Photovoice, Digital StoryTelling, and the use of Photography: Theoretical Foundation, Best Practices and Ethical Considerations Dr. Lauren Sastre June 2, 2021 OFE Workshop
Photovoice, Digital StoryTelling, and the use of Photography: Theoretical Foundation, Best Practices and Ethical Considerations
Mar 16, 2023
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Photovoice, Digital StoryTelling, and the use of Photography: Theoretical Foundation, Best Practices and Ethical ConsiderationsConsiderations
Presentation Overview
Digital Storytelling, and Related Photographic Methods
10 Minute Break
Part II. Examples
10 Minute Break
Resources + Q & A
Digital Storytelling, and Related Photographic Methods
Photovoice
represent, and enhance their community through a specific
photographic technique. It entrusts cameras to the hands of
people to enable them to act as records, and potential
catalysts for change , in their own communities.” (Wang &
Burris 1997)
to not only be a community-based participatory research
approach to a community needs assessment, but to elicit
social justice and change.
Photovoice (Wang & Burris 1997)
There are 3 key attributes in PV:
1) To enable people to record and reflect their community’s
strengths and concerns
important issues through large and small group
discussions of photographs
1) Theoretical literature on education for critical
consciousness, feminist theory, and documentary
photography
educators to challenge assumptions about representation
and documentary authorship
and Development Program
Women
Workers
Youth/Children
Peasants
Illiterate
Allows researchers and practitioners to “gain the possibility of
perceiving the world from the viewpoint of people who lead
lives that are different from those traditionally in control of the
means for imaging the world”
Powerful descriptive method for conducting a needs
assessment.
Can include and capacity for vulnerable, marginalized
groups.
Sustains strong involvement and participation with the target
community.
Can reaffirm or redefine program goals.
Brings more stories, explanations and ideas from the target
community into the assessment process.
Tangible and immediate benefits to the community (e.g. giving
photographs back to neighbors and friends).
Stimulates social action- goes beyond conventional needs
assessments to invite people to be their own advocates for their
and their community’s well-being.
Photovoice- Advantages vs. Disadvantages
groups, and research and/or practice needs.
Can be used for both assessment and evaluation.
Photovoice- Advantages vs. Disadvantages
Simple data collection, however, complex data analysis.
Photovoice - Basic Methodology
Facilitators and Participants.
ownership photographs)
Data Collection, selection of primary photographs (3-10)
Photovoice - Basic Methodology
discussions.
power players.
1) General research consent- what will be asked, what to
expect, confidentiality, etc
photographs
SHOWeD Interview Guide/Photograph Discussions
WHat is really Happening?
What can we Do about it?
** Can include freewrite per photograph using above as a guide and/or for discussion.
Photovoice: Why and
component.
Example of Use:
Overcome language barrier and limited dietary assessment tools to investigate dietary habits, preferences to tailor messaging and cultural appropriateness of a community-based hypertensive health promotion and education program.
Our Voice Our Health
First year in the US, attended a school for Newcomers
in North Carolina.
1-2 weeks, digital camera, food and activities.
Development of culturally relevant, targeted nutrition
and health promoting resources.
A special thank you to all of the service providers and students
who participated in this study, as well as the school staff who helped interpret and translate materials for
the study and for the Williams Art Health Research Award for funding Our Voice, Our Health through the
School of Health and Human Sciences at UNCG.
The Photographers . . .
Sharing Foods
Part III. Ethical Considerations
Social Justice and Methods
A Review by Sanon, et al., 2014, found out of 30 photovoice
studies, only three included an aspect of transformation and
impact with the majority simply raising “awareness”.
Few moved beyond encouragement of individual behavior
change- if not supporting greater change, who is truly
benefitting from the work? Action of PV continues to lack
impact and alignment with true use of the methodology.
Social Justice and Methods
“Researchers must consider the extent of participation in all
aspects of the study, and the extent to which social justice
awareness, amelioration, or transformation may be
achieved.” (Sanon et al., 2014)
For participants and researchers:
Is action take to ameliorate or transform the status quo?
Is the method truly empowering or caught within the rigidity of
research design?
Ethical photography practices.
Choose an interview location that is safe and private.
Systematically sort and label all participant photographs.
Practical Guidelines and Ethical Considerations for Studies
Using Photo-Elicitation Interviews (Bugos et al., 2014)
Create photo-elicitation interview guide.
Protect Confidentiality and privacy.
technique.
Health Research (Creighton et al., 2018)
Inedible images- content, copyright.
Representation- subjectivity, variances, conflict.
audience.
Reflection on Methodology and Ethics in Two Cultural
Contexts( Murray and Nash, 2017)
Managing the Burden of Participation.
Confidentiality and Digital Image Sharing.
Consent in the Context of Longitudinal Visual Research.
Photographing Children and Children Photographing?
What is an “Appropriate” Photograph and Where Can
Photographs be Shown?
(Wang & Redwood Jones 2001)
Image Ethics and “invasion”.
Being Placed into a False Light by Images.
Protection Against the Use of a Person’s Likeness for
Commercial Benefit.
(Wang & Redwood Jones 2001)
Ethical Issues in Recruitment.
Ethical Issues in Representation.
Ethical Issues in Issues in Facilitator’s and Photographer’s
Participation.
Ethical Issues in Advocacy.
(Wang & Redwood Jones 2001)
HIV/AIDS: Ethical Opportunities and Challeneges (Teti et
al., 2012)
Disclosure, Photographing Others.
considerations within a participatory research process
(Jardine & James 2011)
Consent and Assent.
Types of Cameras.
and Results
Ethical Considerations (Kia-Keating et al., 2017)
Use and Content of Images and Risk.
Incentives and Coercion.
Additional Resources
College of Allied Health Sciences
(252) 744-1005
References Wang, C., & Burris, M. A. (1994). Empowerment through Photo Novella: Portraits of Participation. Health Education Quarterly, 21(2), 171–186. https://doi.org/10.1177/109019819402100204
Wang, C., & Burris, M. A. (1997). Photovoice: concept, methodology, and use for participatory needs assessment. Health education & behavior : the official publication of the Society for Public Health Education, 24(3), 369–387. https://doi.org/10.1177/109019819702400309
Creighton, G., Oliffe, J. L., Ferlatte, O., Bottorff, J., Broom, A., & Jenkins, E. K. (2018). Photovoice Ethics: Critical Reflections From Men's Mental Health Research. Qualitative health research, 28(3), 446–455. https://doi.org/10.1177/1049732317729137
Sanon, M. A., Evans-Agnew, R. A., & Boutain, D. M. (2014). An exploration of social justice intent in photovoice research studies from 2008 to 2013. Nursing inquiry, 21(3), 212–226. https://doi.org/10.1111/nin.12064
Wang CC, Redwood-Jones YA. Photovoice Ethics: Perspectives from Flint Photovoice. Health Education & Behavior. 2001;28(5):560-572. doi:10.1177/109019810102800504
Murray, L., & Nash, M. (2017). The Challenges of Participant Photography: A Critical Reflection on Methodology and Ethics in Two Cultural Contexts. Qualitative health research, 27(6), 923–937. https://doi.org/10.1177/1049732316668819
Musoke, D., Ssemugabo, C., Ndejjo, R., Molyneux, S., & Ekirapa-Kiracho, E. (2020). Ethical practice in my work: community health workers' perspectives using photovoice in Wakiso district, Uganda. BMC medical ethics, 21(1), 68. https://doi.org/10.1186/s12910-020-00505-2
Switzer, S., Guta, A., de Prinse, K., Chan Carusone, S., & Strike, C. (2015). Visualizing harm reduction: Methodological and ethical considerations. Social science & medicine (1982), 133, 77–84. https://doi.org/10.1016/j.socscimed.2015.03.040
Kia-Keating, M., Santacrose, D., & Liu, S. (2017). Photography and Social Media Use in Community-Based Participatory Research with Youth: Ethical Considerations. American journal of community psychology, 60(3-4), 375–384. https://doi.org/10.1002/ajcp.12189
Jardine, C. G., & James, A. (2012). Youth researching youth: benefits, limitations and ethical considerations within a participatory research process. International journal of circumpolar health, 71(0), 1–9. https://doi.org/10.3402/ijch.v71i0.18415
Teti, M., Murray, C., Johnson, L., & Binson, D. (2012). Photovoice as a community-based participatory research method among women living with HIV/AIDS: ethical opportunities and challenges. Journal of empirical research on human research ethics : JERHRE, 7(4), 34–43. https://doi.org/10.1525/jer.2012.7.4.34
Bugos, E., Frasso, R., FitzGerald, E., True, G., Adachi-Mejia, A. M., & Cannuscio, C. (2014). Practical guidance and ethical considerations for studies using photo-elicitation interviews. Preventing chronic disease, 11, E189. https://doi.org/10.5888/pcd11.140216
Lorenz, L. S., & Kolb, B. (2009). Involving the public through participatory visual research methods. Health expectations : an international journal of public participation in health care and health policy, 12(3), 262– 274. https://doi.org/10.1111/j.1369-7625.2009.00560.x
Chilton, M., Rabinowich, J., Council, C., & Breaux, J. (2009). Witnesses to hunger: participation through photovoice to ensure the right to food. Health and human rights, 11(1), 73–85.
Presentation Overview
Digital Storytelling, and Related Photographic Methods
10 Minute Break
Part II. Examples
10 Minute Break
Resources + Q & A
Digital Storytelling, and Related Photographic Methods
Photovoice
represent, and enhance their community through a specific
photographic technique. It entrusts cameras to the hands of
people to enable them to act as records, and potential
catalysts for change , in their own communities.” (Wang &
Burris 1997)
to not only be a community-based participatory research
approach to a community needs assessment, but to elicit
social justice and change.
Photovoice (Wang & Burris 1997)
There are 3 key attributes in PV:
1) To enable people to record and reflect their community’s
strengths and concerns
important issues through large and small group
discussions of photographs
1) Theoretical literature on education for critical
consciousness, feminist theory, and documentary
photography
educators to challenge assumptions about representation
and documentary authorship
and Development Program
Women
Workers
Youth/Children
Peasants
Illiterate
Allows researchers and practitioners to “gain the possibility of
perceiving the world from the viewpoint of people who lead
lives that are different from those traditionally in control of the
means for imaging the world”
Powerful descriptive method for conducting a needs
assessment.
Can include and capacity for vulnerable, marginalized
groups.
Sustains strong involvement and participation with the target
community.
Can reaffirm or redefine program goals.
Brings more stories, explanations and ideas from the target
community into the assessment process.
Tangible and immediate benefits to the community (e.g. giving
photographs back to neighbors and friends).
Stimulates social action- goes beyond conventional needs
assessments to invite people to be their own advocates for their
and their community’s well-being.
Photovoice- Advantages vs. Disadvantages
groups, and research and/or practice needs.
Can be used for both assessment and evaluation.
Photovoice- Advantages vs. Disadvantages
Simple data collection, however, complex data analysis.
Photovoice - Basic Methodology
Facilitators and Participants.
ownership photographs)
Data Collection, selection of primary photographs (3-10)
Photovoice - Basic Methodology
discussions.
power players.
1) General research consent- what will be asked, what to
expect, confidentiality, etc
photographs
SHOWeD Interview Guide/Photograph Discussions
WHat is really Happening?
What can we Do about it?
** Can include freewrite per photograph using above as a guide and/or for discussion.
Photovoice: Why and
component.
Example of Use:
Overcome language barrier and limited dietary assessment tools to investigate dietary habits, preferences to tailor messaging and cultural appropriateness of a community-based hypertensive health promotion and education program.
Our Voice Our Health
First year in the US, attended a school for Newcomers
in North Carolina.
1-2 weeks, digital camera, food and activities.
Development of culturally relevant, targeted nutrition
and health promoting resources.
A special thank you to all of the service providers and students
who participated in this study, as well as the school staff who helped interpret and translate materials for
the study and for the Williams Art Health Research Award for funding Our Voice, Our Health through the
School of Health and Human Sciences at UNCG.
The Photographers . . .
Sharing Foods
Part III. Ethical Considerations
Social Justice and Methods
A Review by Sanon, et al., 2014, found out of 30 photovoice
studies, only three included an aspect of transformation and
impact with the majority simply raising “awareness”.
Few moved beyond encouragement of individual behavior
change- if not supporting greater change, who is truly
benefitting from the work? Action of PV continues to lack
impact and alignment with true use of the methodology.
Social Justice and Methods
“Researchers must consider the extent of participation in all
aspects of the study, and the extent to which social justice
awareness, amelioration, or transformation may be
achieved.” (Sanon et al., 2014)
For participants and researchers:
Is action take to ameliorate or transform the status quo?
Is the method truly empowering or caught within the rigidity of
research design?
Ethical photography practices.
Choose an interview location that is safe and private.
Systematically sort and label all participant photographs.
Practical Guidelines and Ethical Considerations for Studies
Using Photo-Elicitation Interviews (Bugos et al., 2014)
Create photo-elicitation interview guide.
Protect Confidentiality and privacy.
technique.
Health Research (Creighton et al., 2018)
Inedible images- content, copyright.
Representation- subjectivity, variances, conflict.
audience.
Reflection on Methodology and Ethics in Two Cultural
Contexts( Murray and Nash, 2017)
Managing the Burden of Participation.
Confidentiality and Digital Image Sharing.
Consent in the Context of Longitudinal Visual Research.
Photographing Children and Children Photographing?
What is an “Appropriate” Photograph and Where Can
Photographs be Shown?
(Wang & Redwood Jones 2001)
Image Ethics and “invasion”.
Being Placed into a False Light by Images.
Protection Against the Use of a Person’s Likeness for
Commercial Benefit.
(Wang & Redwood Jones 2001)
Ethical Issues in Recruitment.
Ethical Issues in Representation.
Ethical Issues in Issues in Facilitator’s and Photographer’s
Participation.
Ethical Issues in Advocacy.
(Wang & Redwood Jones 2001)
HIV/AIDS: Ethical Opportunities and Challeneges (Teti et
al., 2012)
Disclosure, Photographing Others.
considerations within a participatory research process
(Jardine & James 2011)
Consent and Assent.
Types of Cameras.
and Results
Ethical Considerations (Kia-Keating et al., 2017)
Use and Content of Images and Risk.
Incentives and Coercion.
Additional Resources
College of Allied Health Sciences
(252) 744-1005
References Wang, C., & Burris, M. A. (1994). Empowerment through Photo Novella: Portraits of Participation. Health Education Quarterly, 21(2), 171–186. https://doi.org/10.1177/109019819402100204
Wang, C., & Burris, M. A. (1997). Photovoice: concept, methodology, and use for participatory needs assessment. Health education & behavior : the official publication of the Society for Public Health Education, 24(3), 369–387. https://doi.org/10.1177/109019819702400309
Creighton, G., Oliffe, J. L., Ferlatte, O., Bottorff, J., Broom, A., & Jenkins, E. K. (2018). Photovoice Ethics: Critical Reflections From Men's Mental Health Research. Qualitative health research, 28(3), 446–455. https://doi.org/10.1177/1049732317729137
Sanon, M. A., Evans-Agnew, R. A., & Boutain, D. M. (2014). An exploration of social justice intent in photovoice research studies from 2008 to 2013. Nursing inquiry, 21(3), 212–226. https://doi.org/10.1111/nin.12064
Wang CC, Redwood-Jones YA. Photovoice Ethics: Perspectives from Flint Photovoice. Health Education & Behavior. 2001;28(5):560-572. doi:10.1177/109019810102800504
Murray, L., & Nash, M. (2017). The Challenges of Participant Photography: A Critical Reflection on Methodology and Ethics in Two Cultural Contexts. Qualitative health research, 27(6), 923–937. https://doi.org/10.1177/1049732316668819
Musoke, D., Ssemugabo, C., Ndejjo, R., Molyneux, S., & Ekirapa-Kiracho, E. (2020). Ethical practice in my work: community health workers' perspectives using photovoice in Wakiso district, Uganda. BMC medical ethics, 21(1), 68. https://doi.org/10.1186/s12910-020-00505-2
Switzer, S., Guta, A., de Prinse, K., Chan Carusone, S., & Strike, C. (2015). Visualizing harm reduction: Methodological and ethical considerations. Social science & medicine (1982), 133, 77–84. https://doi.org/10.1016/j.socscimed.2015.03.040
Kia-Keating, M., Santacrose, D., & Liu, S. (2017). Photography and Social Media Use in Community-Based Participatory Research with Youth: Ethical Considerations. American journal of community psychology, 60(3-4), 375–384. https://doi.org/10.1002/ajcp.12189
Jardine, C. G., & James, A. (2012). Youth researching youth: benefits, limitations and ethical considerations within a participatory research process. International journal of circumpolar health, 71(0), 1–9. https://doi.org/10.3402/ijch.v71i0.18415
Teti, M., Murray, C., Johnson, L., & Binson, D. (2012). Photovoice as a community-based participatory research method among women living with HIV/AIDS: ethical opportunities and challenges. Journal of empirical research on human research ethics : JERHRE, 7(4), 34–43. https://doi.org/10.1525/jer.2012.7.4.34
Bugos, E., Frasso, R., FitzGerald, E., True, G., Adachi-Mejia, A. M., & Cannuscio, C. (2014). Practical guidance and ethical considerations for studies using photo-elicitation interviews. Preventing chronic disease, 11, E189. https://doi.org/10.5888/pcd11.140216
Lorenz, L. S., & Kolb, B. (2009). Involving the public through participatory visual research methods. Health expectations : an international journal of public participation in health care and health policy, 12(3), 262– 274. https://doi.org/10.1111/j.1369-7625.2009.00560.x
Chilton, M., Rabinowich, J., Council, C., & Breaux, J. (2009). Witnesses to hunger: participation through photovoice to ensure the right to food. Health and human rights, 11(1), 73–85.
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