Disclosure of interest: None declared Patients and physicians collaborative effort in the gynecological rare cancers network through a web platform. Ms Nuchanard Chiannilkulchai - ARCAGY-GINECO, Paris Dr Anne Floquet - Institut Bergonié, Bordeaux Ms Coralie Marjollet - ARCAGY-GINECO, Paris Ms Pascale Jubelin - IMAGYN, Paris Pr Eric Pujade-Lauraine - Hôtel-Dieu, AP-HP, and on behalf of the GINECO group EPP45-18 Track 3 - Improving patient and family experiences Abstract presented before: N0
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Disclosure of interest: None declared
Patients and physicians collaborative effort in the gynecological rare cancers network through a web platform.
Ms Nuchanard Chiannilkulchai - ARCAGY-GINECO, Paris
Dr Anne Floquet - Institut Bergonié, Bordeaux
Ms Coralie Marjollet - ARCAGY-GINECO, Paris
Ms Pascale Jubelin - IMAGYN, Paris
Pr Eric Pujade-Lauraine - Hôtel-Dieu, AP-HP, and on behalf of the GINECO group
EPP45-18
Track 3 - Improving patient and family experiences
Abstract presented before: N0
• Other non-epithelial tumors
-- Small cell carcinoma
-- Carcinosarcoma
• Epithelial tumors
-- Clear-cell adenocarcinoma
-- Mucinous adenocarcinoma
-- Low grade serous carcinoma
-- Borderline tumors
GYNECOLOGICAL RARE CANCERS
Rare cancers are those with incidence < 6 / 100 000 per year
Annually rare cancer diagnoses in Europe represent about 22% of all cancer cases diagnosed. RARECARE
Incidence of rare and common cancers by site in EU27
Incidence
rate per
100,000
Standard
error
Estimated
incident
cases in
EU27
incidence
distribution
(%)
Female genital tract Common 9,6 0,0 47 779 32
Female genital tract Rare 16,1 0,0 80 669 55
Female genital tract All 29,5 0,0 147 597 100
Breast Common 47,7 0,1 238 471 74
Breast Rare 4,9 0,0 24 415 8
Breast All 64,3 0,1 321 429 100
Rare Ovarian Cancers
• Stromal and sex-cord tumors
(adult, juvenile granulosa cell T,
Sertoli-Leydig cell T, ...)
• Germ-cell tumors (dysgerminoma,
yolk sac tumors, Immature
teratoma, ... )
FRENCH RARE OVARIAN CANCERS NETWORKreferenced by INCa