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Patient Consent to Use of Data Are We Asking the Wrong Question? David Harlow JD MPH THE HARLOW GROUP LLC healthblawg.com @healthblawg
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Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Aug 20, 2015

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David Harlow
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Page 1: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Patient Consent to Use of DataAre We Asking the Wrong Question?

David Harlow JD MPHTHE HARLOW GROUP LLC

healthblawg.com@healthblawg

Page 2: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Photo: CC: http://www.flickr.com/photos/monkeyatlarge/16645379/

Page 3: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

When an Unstoppable Force Meets an Immovable Object . . .

Page 4: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Focus.

Photo: CC: http://www.flickr.com/photos/danielavladimirova/4089141799

Page 5: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

A Big Pile-Up of Rules is in Nobody’s Best Interest

Page 6: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Don’t Be Evil

Page 7: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Photo: CC: http://www.flickr.com/photos/aigle_dore/6672141083

Page 8: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Deidentification

Photo: CC: http://www.flickr.com/photos/hape_gera/3281625420

Page 9: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Research

Page 10: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

What If We Didn’t Need to be Protected?

Page 11: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

What if …

Page 12: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Fix Problems Standing in the Way of Sharing-------

Identify Patients Interested in Sharing

Page 13: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Get on Board

Photo: CC: http://www.flickr.com/photos/mtaphotos/8269993082

Page 14: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Shift Your Perspective

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Page 15: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Patient-Controlled Sharing

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Blue Button

Page 17: Patient Consent to the Use of Data: Are We Asking the Wrong Question?
Page 18: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Project Medyear

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Page 21: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Photo: CC: http://www.flickr.com/photos/danielavladimirova/4089141799

Page 22: Patient Consent to the Use of Data: Are We Asking the Wrong Question?
Page 23: Patient Consent to the Use of Data: Are We Asking the Wrong Question?

Thank You

harlowgroup.nethealthblawg.com

twitter.com/[email protected]

David Harlow JD MPHTHE HARLOW GROUP LLC