partners in health care, pillars of hope

Partners in Health Care, Pillars of Hope:

Why engaging family caregivers is essential in quality improvement

Breakout session F3

Barb MacLeanExecutive [email protected]

Disclosure

I work for the Family Caregivers’ Network Society of BC. We receive funding from the BC Ministry of Health, Patients as Partners Initiative.

I am biased toward patient and family centered care.

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3 Themes:

1. Incredible yet invisible: the family caregiver role

2. Making the shift to patient and family centered care

3. How can we ACT to: include family/friends as partners in care engage in health planning and policy refer them for support & education

family caregivers3

Family Caregivers’ Network of BC

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Dedicated to family caregiver support, education and representation in health system improvement

for 25 years.

family caregivers

A Family Caregiver is….…anyone who provides care and support for an adult family

member or friend who is in poor health, frail, elderly or disabled.

The care recipient can live either in their own home, with the family caregiver or in a care facility.

1,000,000One in 3.6

80%80%

family caregivers7

70%family caregivers

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family caregivers

$25-26 billion

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Why are we caring?

Impact of Caregiving on Health

Depression and anxiety

High levels of stress

Chronic health conditions twice the rate of general population

Hypertension

Compromised immune system

Back injuries

Insomnia

And then there’s the financial impact $$$

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family caregivers

Impact of Caregiving on Health

Depression and anxiety

High levels of stress

Chronic health conditions twice the rate of general population

Hypertension

Compromised immune system

Back injuries

Insomnia

And then there’s the financial impact $$$

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family caregivers

4 years

I’m fine. I’m fine. I’m fine.

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Crisis

Accept help

family caregivers

Let’s tangle

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Why are caregivers excluded?

privacy legislation - professionals cautious about sharing with families

Stigma or assumption that they will interfere or be trouble.

Lack of understanding

Indifference

Staff Work load – too busy

No simple established communication process

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Source: Wendy Sutton

Individuals - us

50% resistant to change

8% innovators

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The Global Challenge......

[Jennings,Miller,Materna1997] after Tom Ferguson -Healthcare Forum Journal Jan/Feb 1995 pp28-33

System is shifting to the least expensive and most available

resources

How do we shift to patient and family centered care?

family caregivers22

Family caregivers

Setting Prioritiesfor the B.C. Health System

PRIORITY1:

Provide patient-centred care

Shift the culture of health care from being disease-centred and provider- focused to being patient-centred.

Feb. 2014

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BC Ministry of Health Patients as Partners

Patients and family caregivers are partners in health care when they are supported and encouraged to participate:

in their own health care

in decision making about that care

at the level they choose

in quality improvement and health care redesign

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Patient, Family, Public Engagement

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Ministry of Health Patients as Partners

Engagement Examples:

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Family Caregiver Week May 4-10

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Simple, free and easy:

MAKE A REFERRAL

BC Family Caregiver Program

Caregiver Support Line

1-877-520-3267

Education & Resource Center:

www.familycaregiversnetwork.org

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family caregivers

Inventory of resources in BC – living document

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family caregivers32

I have been impressed with the urgency of doing.

Knowing is not enough; we must apply.

Being willing is not enough; we must do.

Leonardo da Vinci

Family caregivers33

What will YOU DO?

include = part of the care team

Inquire, “How are you?”

refer for support

invite to the planning table

??

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Caregiver Support Line:

1-877-520-3267

Education & Resource Center:

www.familycaregiversnetwork.org

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