Participatory design, the "Making" of Health and the Future of Diabetes Technology

John Costik, Adrien de Croy, Weston Nordgren II, The Nightscout community, Joyce Lee, MD, MPH, Doctor as Designer

Participatory Design, the “Making” of Health,

and the Future of Diabetes Technology

Co-director-Mott Mobile

Technology for Enhancing Health

Social Media Editor, JAMA Pediatrics

Healthdesignby.us

Hard to !nd Too many

Uncertain Quality Uncertain Bene!t

Lack of link to provider Lack information on security/data

The promise of mobile health has yet to be realized

Eng DS, Lee JM. The Promise and Peril of Mobile Health Applications for Diabetes and Endocrinology. Pediatric Diabetes 2013: 14: 231–238.

@joyclee

https://medium.com/@joyclee

75% of children fail to achieve recommended

blood sugar goals in Type 1 Diabetes

Diabetes through the eyes of healthcare

But is it really their fault? Look at this series of

#design #fails

What do those buttons mean & why are they so hard to press?

Why are the menus all different and confusing? A green screen? Really?

Why does your doctor ask you to keep a paper

logbook? To practice your penmanship?

Hi-tech #dataviz in the clinic! Circles for highs, triangles for lows?

Which cord? A desktop software program? No cloud connectivity?

Really?

#waiting

#waiting

How many different data displays are there for all the different

meters/pumps?

Not so helpful? Not so Interactive? Not so useful?

Oh and the devices don’t talk to each other, so many caregivers still

use paper for communication

Don’t forget to fax BS to your MD and wait for a rotary phone call!

Kid: “Mom, what’s a fax? Is it compatible with Snapchat?”

“Design was at fault, not the operators”

-Don Norman

http://bit.ly/1xcgR4Z

http://bit.ly/1wIvdc6

75% of health care providers/systems fail to help children achieve recommended blood sugar

goals in Type 1 Diabetes

Diabetes through the eyes of a designer

Patient problems are really

design problems

Joyce Lee Medical Designer

Fix the design, and it’s no longer the

patient’s problem

Joyce Lee Medical Designer

Let patients and caregivers design, and they will

!x the problem!

The Nightscout Project

But we have to overcome the #cultureofhealthcare

which says:

“D!"#$r%&'(e)*+, & d-./0c!123n4567 a-5'8h9:;<p9=#>,?N@A'BaC*;Dt%”  

“OEFG0c9=#Hf45I0h9JK8h/iELM>t-N'Br!O;>s4PQ3l%:

sRPMSd?T;0c-5U8iEV'd4JW,t9X'8eYZQ$l!VG”  

“D!"#$t%& t%'()o*+,- i. c/012e3 B4 t50 d6'78r &

c69:;n< F=> t50 p?@A$nB”  

Have you guys heard about the

Nightscout Project?

http://on.wsj.com/1zFbT1I

Patient as

expert maker

collaborator #thefutureofdiabetestechnology

Patient as

expert http://bit.ly/10IUyph

Patient as

maker

Patient as

collaborator

http://bit.ly/1qyPESH

John Costik

Adrien de Croy

Weston Nordgren II

John Costik

Adrien de Croy

Weston Nordgren II

MD to Patient Passive Solitary

#currentdiabetestechinnovation

Patient to Patient Active

Collaborative

#futurediabetestechinnovation

THANK YOU John Costik

Adrien de Croy Weston Nordgren II

The Nightscout/#doc community David Klonoff

Twitter: @NightscoutProj

FB: CGM in the Cloud #wearenotwaiting