Pan- European Network Core Group EUROFAMCARE 1 Care-Arrangements against the background of various welfare states models. First results of the EU-Project.

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EUROFAMCAREEUROFAMCARE

Care-Arrangements against the background of various welfare states

models. First results of the EU-Project EUROFAMCARE

Eva Mnich, Hanneli Döhner

The EUROFAMCARE group: Germany: Döhner H. (project coordinator), Kofahl C., Luedecke D., Mnich E. (Hamburg) and Rothgang H., Becker R. (Bremen); Greece: Mestheneos E. (PI), Triantafillou J. (PI), Prouskas C., Mestheneos K.; Italy: Lamura G. (PI), Balducci C., Melchiorre M.G., Quattrini S., Spazzafumo L.; Poland: Bien B. (PI), Wojszel B., Synak B., Czekanowski P., Bledowski P., Pedich W,; Sweden: Öberg B. (PI), Krevers B., Johansson S.L.; United Kingdom: McKee K. (PI), Barber L., Brown J., Nolan M.

“Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage”

E U R O F A M C A R EE U R O F A M C A R EE U R O F A M C A R EE U R O F A M C A R E

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Six Countries Comparative Study

AGE – European OlderPeople‘s Platform

Brussels

Universityof Hamburg

Italian National Research Centre on AgeingINRCA Ancona

National School for Public Health

SEXTANT Athens

Universityof Bremen

The Medical Academyof Bialystok

&University of Gdansk

Linköping University&

Socialstyrensen Stockholm

Universityof Sheffield

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Aims

• EUROFAMCARE will provide a European review of the situation of family carers of elderly people in relation to the existence, familiarity, availability, use and acceptability of supporting services.

• EUROFAMCARE will push a change management process at various policy levels to promote social and health policies towards a partnership approach between family carers, professional providers and cared-for.

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Methodology

In depth studies in the 6 countries 6.000 Interviews with family caregivers Elderly in need of support aged over 65 Extent of care/support 4 or more hours per week

Postal or phone interviews (follow-up study) after one year

Postal/phone or face to face interviews with service providers

Background Reports provided by both the 6 core countries and the 17 Pan-European countries

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Questions for Data Analysis

Differences of existing service provision on the one hand and on the other hand the knowledge about services and their availability,

The use and non-use of such service provision with fundamental reasons in special interest,

Experience with as well as evaluation of such services with respect to effectiveness and efficiency,

Claimed needs of support, resulting from the individual family situation, which beside others may point out a lack of specific services,

Specific types of family care situation and their relation to specific services, respectively the lack of services.

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Organizations of volunteers

Other informal assistants

Service Provider

ElderNeeds > Ressources

Caregiving Relatives(Ressources etc.)

The involved actors

Supply of support

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Procedure

Caregiver

- Male / female- Higher / lower educational status-Not gainfully employed / gainfully employed- Cares up to 2 years / more than 2 years- Support / no support during illness- Low burdened / burdened (COPE)- Low / high life quality- Other /same generation

Care-arrangements- rural / urban

- separate / shared household

Cared-for

- Male / female- under / over 80 years- no / cognitive impairments (subjective)- low / high functional impairments (ADL / IADL)- No need / need of financial support

in dichotomous criteria almost 33.000 combinations

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Procedure

Family-Carer

Care-arrangement

Cared-for

Reduction on cluster

Country-specific key aspects of care-arrangements

Relevance of support according to care-

arrangements in countries

Relevance of support according to care-

arrangements

Country-specific relevance of

support

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1 Female (Carer) 6 No support available

9 Female (Cared-for) 13 Need of financial support (Cared-for)

2 Same generation 7 High strain 10 80 years and older (Cared-for)

14 Shared household

3 Low educational status 8 Life-quality is high 11 Cognitive impairments

15 Rather urban region

4 Gainfully employed 12 Functional impairments

5 Duration of care more than 2 years

Care-arrangement 1

Care-arrangement 2

Prozent von ...

75,432,449,986,676,557,877,231,657,662,780,0 2,5 9,3 98,9 95,90%

25%

50%

75%

100%

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15

62,256,051,390,973,384,585,118,772,172,490,9 3,7 37,1 1,1 93,50%

25%

50%

75%

100%

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15N=891

N=851

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2 Same generation 7 Strain is high 10 80 years and older (Cared-for)

14 Shared household

3 Low educational status 8 Life-quality is high 11 Cognitive Impairments




Care-arrangement 3

Care-arrangement 4

Prozent von ...

67,491,535,779,459,630,91,534,873,271,599,3 97,1 48,5 5,9 72,00%

25%

50%

75%

100%

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15

76,192,445,369,744,424,697,153,058,975,274,22,136,089,53,30%

25%

50%

75%

100%

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15

N=824

N=419

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55,398,832,645,418,639,176,470,814,919,668,563,410,05,374,10%

25%

50%

75%

100%

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15


9 Female (Cared-for) 13 Need of financial support (Cared-for))


14 Shared household

3 Low education status 8 Life-quality is high 11 Cognitive impairments




Care-arrangement 5

Care-arrangement 6

Prozent von ...

72,09,029,996,863,976,676,179,926,859,076,1 7,2 16,6 39,6 11,90%

25%

50%

75%

100%

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15N=775

N=571

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14 Shared household

3 High education status 8 Life-quality is high 11 Cognitive Impairments




Care-arrangement 7

Percentage of ...

72,70,012,23,716,039,375,670,718,935,750,063,114,79,774,40%

25%

50%

75%

100%

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15

N=1053

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Distribution of care-arrangements

15,8%

19,6% 16,5%

15,3%7,8%14,4%

10,6%

Subjective and objective highly strained, not gainfully employed, caring woman without support

Subjective and objective highly strained, gainfully employed Carer

Caring wives/ women with medium strain without support

Caring husbands / men with medium strain without support

Rather subjectively strained, not gainfully employed Carers in separate household with support

Subjectively a. objectively less strained, gainfully employed carers in mutual household with support

Subjectivly a. objectivly less strained, gainfully employed carers in separate household

N=5384

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Distribution of care-arrangements in the six countries

N=889 N=792

N=884N=972

N=949 N=898

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Dimensionanalysis of important forms of support

Financial-technical support

More money for care Adjustment of housing

Support in planning of future care

Stress coping,

Problemorientation

Visiting self-help groups for family carers Talking about problems

Training of care skills

Spending more time with the family

Support in handling family disputies

Autonomy,

Time souvereignty

Respite from care Attendance to activities beyond care

Activities for the cared-for

Combining care with mit employment

Spending more time with the family

Training and Information

Information about available support possibilities Information about diseases Training of care skills

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Overview of focal needs in respective countries categorized in groups of care-arrangements (CA)

Greece Total CA 1 CA 2 CA 3 CA 4 CA 5 CA 6 CA 7

finan.-technical. support + + + + + + (+) + +

Stress coping., Problemorienta. + (+) - -

Relief of strain, time sovereignt. -

Training and Information (+) (+) + (+)

Poland Total CA 1 CA 2 CA 3 CA 4 CA 5 CA 6 CA 7

finan.-technical. support + + + + + + + + + (+)

Stress coping., Problemorienta. (-) (+) - - (-) (-) -

Relief of strain, time sovereignt. (+) - - -

Training and Information - - - - - - - -

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Schweden Total CA 1 CA 2 CA 3 CA 4 CA 5 CA 6 CA 7

finanz.-techn. Unterstützung - - - - - - - - - - - - - -

Stress coping., Problemorienta + + + + + + + (+) +

Relief of strain, time sovereignt. (+) ++

Training and Information

Germany Total CA 1 CA 2 CA 3 CA 4 CA 5 CA 6 CA 7

finanz.-techn. Unterstützung - - - - - - - - - -

Stress coping., Problemorienta (+) - (-) - - -

Relief of strain, time sovereignt. -

Training and Information (-) - -

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Italy Total CA 1 CA 2 CA 3 CA 4 CA 5 CA 6 CA 7

finan.-technical. support + + +

Stress coping., Problemorienta.

Relief of strain, time sovereignt. - - - - - - - - - - (-)

Training and Information + + + + + + + +

England Total CA 1 CA 2 CA 3 CA 4 CA 5 CA 6 CA 7

finan.-technical. support + +

Stress coping., Problemorienta

Relief of strain, time sovereignt. + + + (+)

Training and Information +

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Summary

+ -finan./technical(stress coping)*

+(finan./techn.)*

(time autonomy)*

(Information)*

-

+Information

(finan./technical)*

-Time autonomy

+finan./technical

(information)*

(stresscoping)*

-(stress coping)*

+finan./technical

-Information

(time autonomy)**

+Stress coping

-finan./technical

* in special care-arrangements ** concerns caring spouses / partner

Pan- European Network Core Group EUROFAMCARE 1 Care-Arrangements against the background of various welfare states models. First results of the EU-Project.

Documents

eurofamcare group

paneuropean countries

need of support

core countries

needs of support

european review

duration of care

countries relevance