Organ and tissue donation for transplantation in Australia ... · The National Reform Programme Organ and tissue donation - a precious opportunity Only around 1-2% of people who die

Organ and tissue donationfor transplantation in Australia

2014–2018Strategic plan

Foreword 5

TheNationalReformProgramme 6

Progress 7

PartnershipsandCollaboration 11

TheFuture 13

ThePlan 15

Objective1:Increase the number of potential organ and tissue donors 16

Objective2: Improve organ and tissue donor conversion rates 18

Objective3:Enhance systems to support organ and tissue donation and transplantation 20

OutcomeandPerformanceMeasures 25

2014-15StrategicPriorities 26

2015-16StrategicPriorities 27

A collaborative strategy between:

DonateLife Australian Capital Territory

DonateLife New South Wales

DonateLife Northern Territory

DonateLife Queensland

DonateLife South Australia

DonateLife Tasmania

DonateLife Victoria

DonateLife Western Australia

Contents

54

54

Transplantationisaneffectiveandwell-establishedtreatmentthatcansignificantlybenefitAustraliansfacingillness,disabilityorprematuredeath.NotingthatthedemandfororgansfortransplantationcontinuestoexceedsupplyinAustralia,asintherestoftheworld,wearecommittedtooptimisingeverydonationopportunity.Cliniciansinthedonationandtransplantationsectors,governments,andmembersofthecommunityhavearoletoplayincontributingtoanorganandtissuedonationserviceforAustraliansthatmeetsourexpectations.

On2July2008theAustralianGovernment,recognisingtheimportanceofbridgingthegapbetweenthedemandfortransplantationandtheavailabilityoforgansandtissues,announcedanationalreformprogrammetoimplementaworld’sbestpracticeapproachtoorganandtissuedonationfortransplantation,whichwasendorsedbytheCouncilofAustralianGovernmentson3July2008.

InJanuary2009theOrganandTissueAuthority(OTA)wasestablishedtomanagetheimplementationofthenationalreformprogramme,andoverthatyeartheDonateLifeNetwork,anationalnetworkofDonateLifeAgenciesandhospital-basedmedicalandnursingspecialistsinorganandtissuedonation,wasestablishedtoprovideacoordinatedapproachtoorganandtissuedonationfortransplantation.

TherehasbeenstronggrowthindonationandtransplantoutcomessincetheestablishmentoftheOTAandtheDonateLifeNetwork.In2013,ournationalorgandonationoutcomewas58%higherthan2009andthenumberoftransplantrecipientswas39%higher.

Despitetheimprovementsindonationandtransplantationoutcomes,therearestillnotenoughdonatedorganstomeetthecurrentneedandthefutureneedwhichisanticipatedtogrowwiththeageingofAustralia’spopulationandtheincreasedincidenceofchronicdiseases.In2013,therewereapproximately1,500Australianswaitingforanorgan

transplantatanypointintime.ObviouslythereisstillmuchtodotocontinuetobuildonandsustaintheincreaseinorganandtissuedonationtoensurethatmoreAustraliansareabletobenefitfromtransplantation.

Todate,strategicprioritiestofocusimplementationofthenationalreformprogrammehavebeendevelopedonanannualbasis.Astheimplementationofthenationalreformprogrammematures,itistimelytodevelopastrategicplanoveralongerperiod.

ThisstrategicplanhasbeendevelopedwithinputfromtheAdvisoryCouncilandtheJurisdictionalAdvisoryGroup.Itaimstooutlineourvisionandprioritiesfor2014-18toensureasharedunderstandingofourpurposeandstrategiestoachieveournationalgoalof25organdonorspermillionpopulation(dpmp)by2018.

Thestrategiesandactionsoutlinedintheplanwillbereviewedandupdatedannuallytoensuretheplanremainscurrentandalignswithavailableresourcesandtheupdatedplanwillinformthedevelopmentofstrategicprioritiesforeachfuturefinancialyear.

Inthe2014federalBudget,theAustralianGovernmentannouncedplanstomergethefunctionsoftheNationalBloodAuthority(NBA)withtheOTA.Thisworkisbeingprogressedinthecontextofawhole-of-governmentapproachtoensurenewarrangementsareeffectivelyimplemented.

Wearecommittedtoachievingtheobjectives,andimplementingthestrategiesandactions,outlinedinthisstrategicplan.

Foreword

76

The National Reform Programme

TheaimoftheAustralianGovernment’snationalreformprogrammeistoimplementanationallycoordinatedworld’sbestpracticeapproachtoorganandtissuedonationfortransplantationincollaborationwiththestatesandterritories,cliniciansandthecommunitysector.

Thetwinobjectivesofournationalreformprogrammeare:

1. Toincreasethecapabilityandcapacitywithinthehealthsystemtomaximisedonationrates,and

2. TobuildcommunityawarenessandstakeholderengagementacrossAustraliatopromoteorganandtissuedonation.

Our VisionOurvisionistomakeAustraliaaworldleaderinorganandtissuedonationfortransplantation,andtoworkinpartnershipwithstateandterritorygovernmentstoimproveaccessbyAustralianstolife-transformingtransplants.

Our MissionOurmissionistodeliverahighlyeffectivenationallyconsistentorganandtissuedonationsystemfortransplantationwiththesupportofAustraliangovernments,theclinicalprofessionandthecommunityandtoincreasethenumberofpeoplefromallpartsofAustraliansocietywhoconsenttoorganandtissuedonation.

Our world’s best practice approachAustralia’snationalreformprogrammewasdevelopedinthecontextofclearinternationalcommitmentsandstatementsbytheWorldHealthOrganizationrelatingtotheobligationofgovernmentstobemoreaccountableandresponsibleforimplementingsafe,ethicalandeffectiveorganandtissuedonationandtransplantationsystemsatthenationallevel.

Evidencefromcomparablecountriesdemonstratesthatacoordinatednationalapproachandsystem,focusedonclinicalpracticereform,improvesorgandonationandtransplantationrates.ThekeyreformelementsadoptedinAustraliaandbyleadingcountriesinorganandtissuedonationare:

> Anappropriatelegalandethicalframework> Anationalcoordinatingbody> Hospital-basedclinicaldonationspecialists> Specialisttrainingforclinicalstaffin

managementofthedonationprocessandfamilydonationconversations

> Implementationofaclinicalgovernanceframeworkthatsupportsqualityassuranceandauditofhospitalclinicalpracticeandgovernanceofthedonationprocess

> Financialsupporttodonorhospitalstoensurethatcostsrelatedtodonormanagementarenotabarriertodonation

> Mediaengagementandnationalcommunityawarenessandeducation

> Internationalcooperationtosharebestpractice.

TheAustraliannationalreformprogrammehasbeeninformedbybestpracticeincountriesthatareworldleadersinorganandtissuedonation.

76

The National Reform Programme

Organ and tissue donation - a precious opportunityOnlyaround1-2%ofpeoplewhodieinhospitals,dieinthespecificcircumstancesrequiredtobeapotentialorgandonor.Forthisreason,itisimportanttooptimisetheidentificationofpotentialdonorsandtheconversionofpotentialdonorstoactualdonors.

Unlikeorgandonation,manymorepeoplecanbecomeeyeandtissuedonorsastissuescanbedonatedupto24hoursafterdeathregardlessofhowandwheredeathoccurred.

Throughoutthisplan,unlessotherwisespecified,‘tissue’referstoalltissuetypes,includingeyetissue.

The2014-18strategicplanincludesoutcomedataforthe2013calendaryear.Asthisplanisupdatedforfuturefinancialyears,theoutcomedatawillbeupdated.

In2013theAustralianpopulationwas23,130,900withanestimated149,500deathsoccurring.

Ofthese,approximately75,400deathsoccurredinhospitalswitharound725potentialorgandonorsidentified.

Requeststofamiliesfordonationweremadeinaround700cases,withapproximately430familiesconsentingtodonation.

Injustunder40caseswherefamilyconsentwasgiven,donationdidnotproceedforavarietyofclinicalreasons.

Theresulting391deceasedorgandonorsenabled1,177organstobetransplanted,transformingthelivesof1,122transplantrecipients-thehighestdonationandtransplantationoutcomesincenationalrecordsbeganin1989.

Australian Population

23,130,900

Deaths in Hospital

75,400

Australian Deaths

149,500

OrgansTransplanted

1,177

PotentialDonors

725

ActualDonors

391TransplantRecipients

1,122

98

AustraliahasachievedstronggrowthindonationandtransplantoutcomessincetheestablishmentoftheOTAandtheDonateLifeNetworkin2009.The2013donationoutcomewas10%higherthanin2012(391donorscomparedto354in2012).The2013outcomerepresenteda58%increaseinthenumberofdonorsin2009,theyeartheDonateLifeNetworkwasestablished.

Asaresulttheorgantransplantrecipientoutcomewas7%higherthanin2012(1,122transplantrecipientscomparedto1,053in2012).The2013outcomerepresenteda39%increaseinthenumberoftransplantrecipients(808)in2009,theyeartheDonateLifeNetworkwasestablished.

InthistimetherehavebeenmajorchangesinAustralia’sorganandtissuedonationinfrastructure,mostnotablywiththeembeddingofdedicatedmedicalandnursingdonationspecialiststaffinorganandtissuedonationinkeyhospitalsacrossAustralia,

whoworkcollaborativelywithstafffromeightDonateLifeAgenciesandtheirclinicalcolleagues.InitiativessuchastheintroductionoftheProfessionalEducationPackage(PEP)andtheDonateLifeAuditofpotentialdonoropportunitieshavefurtherdevelopedtheskillsofthehospitalbaseddonationspecialistdoctorsandnurses,whiletheintroductionofOrganDonationHospitalSupportFundinghasprovidedacontributiontowardsthecostsassociatedwithorgandonationactivity.

Furthermeasuressuchastheintroductionofanationaldonorfamilysupportservice,theimplementationoftheAustralianPairedKidneyExchangeprogrammeanddevelopmentoftheConsensusStatementonEligibilityCriteriaandAllocationProtocolsforOrganTransplantationfromDeceasedDonorshaveallprovidedgreatersupport,accessandsectoraccountabilitytotheAustralianpublic.

Progress

0

10

20

30

40

50Organs transplanted per million populationOrgan transplant recipients per million populationOrgan donors per million population

15.6 48.846.3 16.9 50.948.511.4 39.537.2 14.0 45.142.8 15.1 47.345.2

2009 2010 2011 2012 2013

Rate

per

milli

on p

opul

atio

n

Source: Australia and New Zealand Organ Donation (ANZOD) Registry (January 2014)

60

Organ donation and transplantation outcomes 2009-13

Note:Allreferencestodonationandtransplantationinthisdocumentrefertodeceaseddonationandtransplantationofdeceaseddonororgansunlessotherwisestated.

98

Since2012,Australiahasbeenabletoreportonnationaleyeandtissuedonationandtransplantationdata,withgrowthalsooccurringinbothofthesesectorsaswell.

Progress (continued)

2010 outcome 9572009 outcome 9222011 outcome 1,0832012 outcome 1,1692013 outcome 1,144

0

200

400

600

800

1000

1200

DecNovOctSepAugJulJunMayAprMarFebJan

Eye donors to end June 2013

Source: Eye Bank Association of Australia and New Zealand (January 2014)

Num

ber

2%24%

Eye donors 2009-13

2010 outcome 1,5102009 outcome 1,4672011 outcome 1,7162012 outcome 1,942

2013 outcome 1,9320.5%

0

500

1000

1500

2000

DecNovOctSepAugJulJunMayAprMarFebJan

Corneal transplants to end June 2013

Source: Eye Bank Association of Australia and New Zealand (January 2014)

Num

ber

32%

Corneal transplants 2009-13

1110

Progress (continued)

0

500

10005,0275,027

5000

7500

10000

SkinCardiovascularMusculoskeletalSource: Australia and New Zealand Organ Donation (ANZOD) Registry (January 2014)

Numb

er Notified tissue transplant recipientsNotified tissue grafts transplanted

5,289

793

3,436

89

166166

Tissue transplant outcomes 2012-13

Theseachievementsareatributetothoseimplementingthenationalreformprogramme;healthcareprofessionalsinvolvedindonationandtransplantation;awiderangeofcommunitygroupsandreligiousandculturalleaderswhohavecommittedtoworktoraiseawarenessandpromoteorganandtissuedonationfortransplantationinthecommunity;andparticularlytoorgandonorsandtheirfamilieswhohavegenerouslyconsentedtodonation.

ThroughthenationalDonateLifecommunityawarenessandeducationprogramconsiderableprogresshasbeenmadeinincreasingpublicawarenessoftheimportanceoffamilydiscussionandknowledgeofdonationdecisions.Thisisreflectedin

theincreasedlevelsoffamilydiscussionattheheightoftheDonateLifeadvertisingcampaignandinthegradualincreaseinfamiliesinitiatingdiscussionsregardingthepotentialfororgandonationinthehospitalsetting.Atthesametime,thereisanongoingneedtoengagethecommunitytoregisterdonationdecisionsandmostimportantlytodiscussandknowfamilydonationdecisions.Thereisaprevailinggapbetweenthosewhobelievetheirfamilyknowtheirdonationdecisionsandthosewhoactuallyknowthedonationdecisionsoftheirlovedones.

Whiletheneedfororgansandtissuewillcontinuetoexceedavailability,wecandomoretoincreaseourdonationandtransplantationoutcomes.ThisisachallengeforthewholeofAustraliansociety.

0

50

100

150

2000

2500

3000

3500

4000

Skin CardiovascularMusculoskeletal1Skin CardiovascularMusculoskeletal

5335

36

43

383

56

10373

20

3,7853,652

71

38

45

78

2012 2013Source: Australia and New Zealand Organ Donation (ANZOD) Registry (January 2014)

Num

ber

Living donationsDeceased tissue only donationsDeceased organ and tissue donations

Tissue donations from living and deceased donors 2012-13

1110

IncreasingorganandtissuedonationfortransplantationinAustraliaisacollectiveresponsibilityandrequiresawholeofcommunityresponse.

Attheforefrontofourworkarethefamiliesofdeceasedorgandonors,transplantrecipientsandtheirfamilies,andthoseAustraliansandtheirfamilieswaitingforatransplant.TheseAustraliansplayasignificantroleinhelpingustoeducatethebroadercommunitytounderstandtheneedandbenefitsofdonationfortransplantation.

TooptimiseopportunitiesforAustralianstoreceivealife-transformingtransplant,wemustworktogethertonormaliseclinicalandcommunityacceptanceoforganandtissuedonationtoensurethatdonorsandtheirfamiliesareprovidedwitheveryopportunitytodonate.

Toachievethis,Commonwealth,stateandterritorygovernments,clinicians,professionalbodies,eyeandtissuebanks,consumersandthecommunitysectorworkinpartnershiptoimproveorganandtissuedonationandtransplantationoutcomesinAustralia.

Ourpartnersalsoincludefaithandculturalorganisations,media,corporatepartnersandcommunitypartnersthatsupportorganandtissuedonationandtransplantationwithintheircommunities.

Allpartners:> Workcollaborativelytorealiseoursharedgoal

ofasustainedincreaseinorganandtissuedonation

> Receiveandconsideradviceprovidedbyothers> Respecttheircontributionandactivelyengage

themintakingourmissionforward> Demonstrateintegrity> Manageefficientlytoprovideasoundreturnon

investmentfortheAustraliancommunity.

Belowarethekeystakeholderswithwhomweworktoimplementthenationalreformprogramme,alongsideourcollectiveengagementwiththeAustraliancommunity.

Government:> AustralianHealthEthicsCommittee> AustralianGovernmentDepartmentof

Health(includingtheTherapeuticGoodsAdministration)

> AustralianGovernmentDepartmentofHumanServices

> ACTHealth> DepartmentofHealth,WesternAustralia> DepartmentofHealth,NorthernTerritory> DepartmentofHealthandHumanServices,

Tasmania> DepartmentofHealth,Victoria> NationalHealthandMedicalResearchCouncil> NSWMinistryofHealth> QueenslandHealth> SouthAustralianDepartmentforHealthand

AgeingProfessionalbodies:

> AustralianandNewZealandIntensiveCareSociety

> AustralianCollegeofCriticalCareNurses> AustralasianCollegeforEmergencyMedicine> AustralianMedicalStudentsAssociation> AustralasianTransplantCoordinators

Association> BiotherapeuticsAssociationofAustralasia> CollegeofIntensiveCareMedicineofAustralia

andNewZealand> EyeBankAssociationofAustraliaandNew

Zealand> TransplantNursesAssociation> TransplantationSocietyofAustraliaandNew

Zealand

Partnerships and Collaboration

1312

Eyeandtissuebanks:> ACTBoneBank> AustralianBiotechnologies> BarwonHealthBoneBank> CellsandTissueTherapiesWesternAustralia> DonorTissueBankofVictoria> HunterNewEnglandBoneBank> LionsEyeBankWA> LionsEyeDonationServiceVIC> NSWBoneBank> NSWLionsEyeBank> PlusLife> QueenslandBone&SkinBank> QueenslandEyeBank> QueenslandHeartValveBank> SouthAustralianEyeBank> SouthAustralianTissueBank> SydneyHeartValveBank

CommunityOrganisations:> DavidHookesFoundation> DonorFamiliesAustralia> EurobodallaRenalSupportGroup> GiftofLifeIncorporated> HeartandLungTransplantTrust(Victoria)Inc> KidneyHealthAustralia> LiverKidsAustralia> OrganDonationandTransplantFoundationof

WA> SammyDFoundation> StudentsandVolunteersforOrganDonation> StJohnofGodHealthCare> TransplantAustralia> TransplantCricketAustralia> Zaidee’sRainbowFoundation

Donationandtransplantoutcomeregistries:> AustraliaandNewZealandDialysisand

TransplantRegistry> AustraliaandNewZealandLiverTransplant

Registry> AustraliaandNewZealandOrganDonation

Registry> AustralianandNewZealandCardiothoracic

TransplantRegistry> AustralianCornealGraftRegistry> NationalOrganMatchingService

InternationalOrganisations:> CanadianBloodServices> DonationandTransplantationInstitute,Spain> GiftofLifeDonorProgram,USA> InstituteforTransplantationandBiomedicine,

TheRepublicofCroatia> InstitutoPortuguesedoSanqueeda

Transplantacao,Portugal> InternationalRegistryonOrganDonationand

Transplantation,Spain> NationalHealthService,UK> NationalTransplantOrganization(ONT),Spain> OrganDonationNewZealand> TheTransplantationSociety> WorldHealthOrganization

Otherorganisations:> AustralianRedCrossBloodService

Partnerships (continued)

1312

Despitetheprogressachievedtodate,thedemandfortransplantationinAustraliacontinuestoexceedthesupplyoforgans.Thewaitforatransplantcanextendtoyearsandcomesatasignificantcosttothoseneedingatransplant,theirfamilyandcommunity,andtothehealthsystem.Itisforthesereasonsthatcontinuedsustainedgrowthisrequiredoverthenextfouryearsto2018.

TheabilityofCommonwealth,stateandterritorygovernments,workingwiththecommunityandclinicianstomaximiseorganandtissuedonationfortransplantation,willrequireongoingfocusonkeyareassuchasincreasingthenumberofidentifiedpotentialdonors,improvingthenumberofsuccessfuldonationoutcomesandensuringthatappropriatesystemsareinplacetosupportorganandtissuedonationandtransplantation.InordertotrytomeetthedemanditisessentialthatweworkwithAustraliangovernments,thecommunityand,thedonationandtransplantsectorstodevelopstrategiesthatwillincreaseavailabilityofdeceaseddonororgansandmaximiseorgantransplantation.

TheAustraliancommunityalsohasanongoingroletoplayinincreasingorganandtissuedonationfortransplantation.Unlessindividualsandtheirfamiliesconsenttodonation,transplantratescannotimprove.Australiansneedtoconsiderorganandtissuedonationasthenormalandexpectedthingtodo,bothforthemselvesandtheirlovedones.Workwillcontinuewiththecommunitytomaintainactiveengagementandbuildonthehighlevelofsupportfororganandtissuedonation;toencourageallAustralianstoregistertheirdonationdecisionontheAustralianOrganDonorRegisterandmostimportantlytodiscusstheirdonationdecisionwithfamilymembers.

Whiletheneedfororgansfromdeceaseddonorsoutweighstheiravailability,anappropriatebalancemustbefoundtoaddresstheneedsofindividualswhowouldbenefitfromreceivingatransplant.

Unfortunately,whatevertheallocationprocess,therewillbepeoplewhocouldbenefitfromanorgantransplantbutwillnotreceiveoneduetothelimitedavailabilityofdeceaseddonororgans.

Inanattempttoexpandthenumberoforgansavailablefortransplantation,extendedcriteriafororgansuitabilityhavebeendevelopedforsomebutnotallorgans.Successwiththisapproachisbeingachievedinternationally.Extendedcriteriarelatetothecharacteristicsofthedonor(e.g.comorbidities,infectiousdiseases,age)orthedonororgan(e.g.longerischaemictime)thatcanbeassociatedwithpooreroutcomesaftertransplantationinsomerecipients.However,theprospectofthepotentialrecipientsurvivingconsiderablylongerthanmayoccurwithoutatransplant,andtheresultingcommunitybenefit,shouldbeweighedagainstthemedicalfactorsandpotentiallyhigherriskinvolved.Inthesecases,theapplicationofanalternateallocationsystemtomatchanextendedcriteriaorgantosuitablerecipientsshouldbeexplored.

Furthergrowthinorganandtissuedonationfortransplantationwillrequireustoworkevenmorecloselywithourclinicalandtransplantcolleaguesandthebroadercommunity.WemustensurethattheverybestuseismadeofthisscarceresourceinordertoprovideasmanyAustraliansaspossiblewithaccesstotransplantation.Thiswillnecessitatefurtherstrengtheningofthealreadystrongprofessionalrelationshipsthatexistbetweenthedonationandtransplantcommunitiestoensurethatmoreorgansareuseableandsurgeonsarebettersupportedtotransplantorganssafelyintothemostappropriaterecipient.Itwillrequireongoingdevelopmentofrelevantsystems,policiesandprotocolstokeeppacewiththechangingclinicalenvironmenttomaintainasafe,ethicalandeffectiveorgandonationfortransplantationsysteminAustralia.

The Future

1514

OngoingawarenessofdevelopmentsinmedicaltechnologiesisintegraltounderstandingandutilisingthebestoptionsavailabletotheAustraliancommunity.Therearescientificdevelopmentsandresearchonthehorizonthatwillchallengecurrentacceptedclinicalandethicalpracticeindonationandtransplantation.Weneedtobepreparedtoaddressclinicalandethicalissuesthatmayariseinrelationtoanyevolvingtechnologyandtechniquesinorgantransplantationand,theongoingtransitionfrominnovationofresearchtoestablishedpractice.

Developmentsinthefieldoforgantransplantationsuchasmachinereperfusionoforganshavethepotentialtotransformandincreasetheopportunitiesforpatientsneedingatransplant.Repairandregenerationoforganswillhaveasubstantialimpactonthenumberofsuitableorgandonors.Bothmechanicalandbiological(stemcell)organreplacementtherapiesmaychangetheprofileofpeopleneedinganorgantransplant.Eyeandtissuebanksarestrongcandidatestobecomelaunchinghubsfornovelbiotechnology,enhancedtissuegraftsandbiotherapeutics.Workwiththeeyeandtissuebankingsectorwillcontinuetofosterastrongnationalnetwork,andconsistencyandsustainabilityofthesector.

WewillworkevenmorecloselywithourdonationandtransplantationsectorsandthebroadercommunitywiththeaimtoprovideAustralianswiththeopportunitytomakeinformeddecisionsabouttheirdonationandtransplantationoptions,inordertoprovidemoreAustralianswiththeappropriatetransplantoutcomeforthem.

TheOTAwillworkwiththeDepartmentofHealthandtheNBAonplanstomergefunctionstostreamlinecorporateandadministrativeactivitieswithinthecontextofawhole-of-governmentapproachtootherentitymergerstoensurenewarrangementsareeffectivelyimplemented.

The Future (continued)

1514

ThisstrategicplanhasbeendevelopedtoensurethatorganandtissuedonationisdeliveredonacollaborativebasisthroughoutAustraliawithaviewtoincreasingorgandonationoutcomesto25donorspermillionpopulation(dpmp)by2018.

Theplanidentifiestheobjectives,strategiesandactionsresultingfromconsultationwithourstakeholders,aswellasidentifyingperformancemeasures.

Thefollowingkeyobjectivesareidentified:1. Increasethenumberofpotentialorganand

tissuedonors2. Improveorganandtissuedonorconversion

rates3. Enhancesystemstosupportorganandtissue

donationandtransplantation.Strategiesareidentifiedtosupportachievementofeachobjectiveandasetofactionsforeachofthefouryears2014–18isidentifiedtosupportachievementofeachstrategy.

Thesestrategiesandactionsrepresentachallengetoallthosewitharoleinorganandtissuedonationandtransplantation.Allstakeholderswillneedtocontinuetoworktogethertoachievetheseoutcomes.

Worktoimplementthesestrategiescommencedon1July2014.Ourdeliveryagainsttheseobjectives,strategiesandactionsisreportedregularlyto

stakeholdersandtheAustralianGovernment.Implementationismanagedbyaframeworkofinternalgovernanceandcontrolmechanisms.

Annual ReviewTheplanwillbereviewedandupdatedannuallytoensureitremainscurrentandalignswithavailableresources.Theannualreviewwillprovidetheopportunitytoassesstheeffectivenessoftheplannedstrategiesandactionsintermsofprogresstowardsachievementoftheobjectives;toidentifyanychangedcircumstances,needsorpriorities;andtoupdatetheplantoensureitremainsrelevantandpracticable.

Strategic PrioritiesInaddition,theannualupdateoftheplanwillinformdevelopmentofstrategicprioritiesforthecomingyearwhichwillfocusourefforts;guidetheallocationofourresources;andstreamlinereportingofprogress.TheOTAwillsubmitthestrategicprioritiestotheDonateLifeNetworkleadershipteam,comprisingtheAdvisoryCouncil,theJurisdictionalAdvisoryGroupandOperations/Agency/ClinicalManagers,forendorsement.

The Plan

ACTIONS

STRATEGIES

OBJECTIVES

Objective 1INCREASE THE NUMBER OF POTENTIAL ORGAN AND TISSUE DONORS

STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

DO

NO

R ID

EN

TIF

ICA

TIO

N

Implementendoflifepromptsfordonoridentificationandreferral

Review,enhanceandpromoteclinicaltriggerstoidentifyallpotentialorganandtissuedonorsinemergencydepartmentsandintensivecareunits

ExploreoptionsandagreeanapproachforcomprehensivereferraltotheDonateLifeAgencyofallpotentialorgandonors

Developandimplementtheagreedcomprehensivereferralsystem

Exploreoptionsandagreeanapproachforautomaticdeathnotificationinhospitalsforeyeandtissueonlydonation

Evaluatetheimplementationofthecomprehensivereferralsystem

Developandimplementtheagreedsystemforautomaticdeathnotificationinhospitalsforeyeandtissueonlydonation

Furtherreviewandevolvethecomprehensivereferralsystem

Evaluatetheimplementationoftheagreedcomprehensivereferralandautomaticdeathnotificationsystemforeyeandtissueonlydonation

Provideprofessionaleducationandtrainingforclinicians

RaiseprofessionalawarenessandknowledgeofdonationpathwaysandclinicalprocessesthroughtheIntroductoryDonationAwarenessTraining(IDAT)workshop

Supportpeakbodiesinpromotionofprofessionalguidanceandtrainingforbraindeathdetermination

PromotecommencementofanorganandtissueGraduateDiplomacourse

Developanationaleducationstrategyonthecomprehensivesystemforreferralofpotentialorgandonors

ConsiderdevelopmentofadditionalmodulestoextendtheProfessionalEducationPackage(PEP)

MonitorenrolmentanduptakeoftheorganandtissueGraduateDiplomacourse

Implementtheeducationstrategyonthecomprehensivesystemforreferralofpotentialorgandonors

DevelopandimplementagreedadditionalPEPmodules

EvaluatetheeducationstrategyoncomprehensivereferralandadditionalPEPmodules

ConsiderdevelopmentofadditionalmodulestoextendthePEP

OptimisetheuptakeofDonationafterCirculatoryDeath(DCD)donationpathwayinhospitals

RefineandapplyanappropriatedefinitionandDonateLifeAuditsystemapplicationformoreaccuratecaptureandreportingofDCDdata

ReviewtheNationalProtocolforDCDandidentifyopportunitiesforincreasingtheuptakeandconsistencyofDCDpracticeinthedonationandtransplantationsectors

IncreasethefocusofDCDinnationalPEPeducationinitiatives

ImplementagreedandtestedpotentialDCDmethodologiesintheDonateLifeAuditproductiontool

Commencereportingthefullpotentialdonordataset,includingpotentialDCDdonors,andusethedatatoinformdebriefsandlocalcasereviewofmissedpotentialdonorcasesandtoidentifybestpractice

DevelopDCDkeyperformanceindicators(KPIs)

ReleasetherevisedNationalProtocolforDCD

DCDKPIsarereportedroutinelyaspartoftheDonateLifeAuditReport

Continuetopromoteuptakeandconsistentpracticeindonationandtransplantationsectors

ApplyDCDdatadrivenanalysistoinformstrategiestoincreaseconversionofDCDpotentialdonors

16

Objective 1 (continued)INCREASE THE NUMBER OF POTENTIAL ORGAN AND TISSUE DONORS

STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

DO

NO

R ID

EN

TIF

ICA

TIO

N

Establishprocessestooptimisethetransplantationoforgansfromextendedcriteriadonors(ECD)

Engagewiththecommunityandthedonationandtransplantationsectors(NationalHealthandMedicalResearchCouncil,TransplantationSocietyofAustraliaandNewZealand)togainsupportandconsensusforoptimisedacceptanceofECD

Promoteawarenessofchangesandtechnologicaladvancementsthatoptimisetheavailabilityandqualityoforgansfortransplantationwithconsiderationofhealthtechnologyassessmentprocesses

Consideranddevelopnationalprotocols,guidelines,toolsandresourcesthatwillsupportthetransplantationoforgansfromECD

WorkwiththedonationandtransplantationsectorstooptimisetransplantationoforgansfromECD:

> Betterorganandrecipientmatching

> Improvedaccesstotestingandscreening

> Workwithjurisdictionstoestablishandmaintaineffectiveandefficientretrievalservices

> Allocationsystemsandprocesses

> Scopenationalbestpracticeguidelinesfororganpreservationstrategies

> Standardiseextendedcriteriafordonorsuitability

DevelopanddelivereducationstrategiesthatsupporttheimplementationofagreednationalprotocolsandguidelinesfortransplantationoforgansfromECD

Developbestpracticeguidelinesfororganpreservationstrategies

Evaluatetheimplementationofnationalprotocols,guidelines,toolsandresourcesandthetransplantationoforgansfromECD

LIV

ING

DO

NA

TIO

N

Supportlivingorgandonation

ContinuetoimplementtheAustralianPairedKidneyExchange(AKX)programme

WorkwiththeDepartmentofHealthtounderstandtherelationshipandimpactoflivingkidneydonationondeceasedorgandonation

WorkwiththeDepartmentofHealthonstrategiestoprovideforlivingdonorleave

ContinuetoimplementandevaluatetheAKXprogramme

17

18

Objective 2IMPROVE ORGAN AND TISSUE DONOR CONVERSION RATES

STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

OPT

IMIS

ING

RE

QU

EST

AN

D F

AM

ILY

CO

NSE

NT

ContinuetodevelopanAustralianbestpracticerequestandconsentmodelfororganandtissuedonationfortransplantation

CompletethenationalevaluationofthepilotofrequestandconsentmodelsforofferingorganandtissuedonationinhospitalsacrossAustralia

Developanationalbestpracticemodelforrequestandconsentfordonationbyanalysingthefindingsfromthenationalpilot

Developaneducationstrategytosupporttheimplementationofanationallyagreedbestpracticemodelforrequestandconsent

Evaluatetheimplementationofthenationalbestpracticemodelforrequestandconsent

Reviewthemodelinlinewiththefindingsoftheevaluation

Increaseeducationofprofessionalsinvolvedinconversationsaboutorganandtissuedonation

DevelopadvancedFamilyDonationConversation(FDC)modulesonfaithandculturalperceptionsandrequirements

Developcommunicationstrainingoncallingfamiliesforconsentforeyeandtissuedonation

DevelopanddeliveranadvancedFDCmoduleonacurrenttopicofinterestfordonationprofessionals


ReviewofthePEPandFDCmodules


ReviewtheeffectivenessofthePEPasaneducationdeliverymodeforhealthprofessionalsinthedonationandtransplantationsector

NO

RM

ALI

SIN

G C

OM

MU

NIT

Y A

CC

EPT

AN

CE

ContinuetobuildpublicsupportandconfidenceinAustralia’sdonationandtransplantationsystem

ImplementthenationalcommunicationsplantoincreasefamilydiscussionandknowledgeoftheAustralianOrganDonorRegister(AODR)–registereddonationdecisions

ContinuetoworkwiththeDepartmentofHealthandtheDepartmentofHumanServicestoimproveAODRonlineregistrationprocesses

WorkwiththeDepartmentofHealthandtheDepartmentofHumanServicestointroducethefunctionalityforelectronicsignaturestoregisterlegalconsentontheAODR

Implementanationalonlinedonorregistrationcampaign,inconsultationwithkeystakeholders,toencourageAustralianstoutilisetheenhancedAODRfunctionalitytoregistertheirlegalconsentandrevisingtheProfessionalEducationProgramtoincorporatetheAODRchanges

Revisethenationalcommunicationsplan

Evaluatethenationalonlinedonorregistrationcampaign

Implementtherevisednationalcommunicationsplan,informedbymarketresearchoncurrentattitudesandawarenesslevels

19

Objective 2 (continued)IMPROVE ORGAN AND TISSUE DONOR CONVERSION RATES

STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

NO

RM

ALI

SIN

G C

OM

MU

NIT

Y A

CC

EPT

AN

CE Supportinformed

familydiscussionandAODRregistrationofdonationdecisionswithinculturallyandlinguisticallydiverse(CALD)andAboriginalandTorresStraitIslander(IndigenousAustralian)communities

ImplementthenationalCALDcommunityeducationandengagementplan,andengageanIndigenousAustraliancommunicationspartnerorganisationtodevelopanationalIndigenousAustraliancommunityeducationandengagementplantoimproveaccesstoculturallyappropriateinformationaboutorganandtissuedonation

RevisethenationalCALDcommunityeducationandengagementplan,andimplementtheIndigenousAustraliancommunityeducationandengagementplan

ImplementthenationalCALDandIndigenousAustraliancommunityeducationandengagementplans

RevisethenationalCALDandIndigenousAustraliancommunityeducationandengagementplansinformedbymarketresearchoncurrentattitudesandawarenesslevels

CA

RE

OF

POT

EN

TIA

L D

ON

OR

S Optimisephysiologicalmanagementofpotentialorgandonors

Developnationalclinicalprotocolstooptimisethemanagementofpotentialdonors,withinitialfocusonmanagementofbraindeaddonors

Embedtheendorsednationalprotocolsintoclinicalpractice

Scopeoptionsforthedevelopmentofadditionalnationalclinicalprotocols

Evaluatetheeffectivenessofnationalclinicalprotocols,anddevelopnewnationalclinicalprotocolsasrequired

Revisenationalclinicalprotocolsasnecessary

Objective 3ENHANCE SYSTEMS TO SUPPORT ORGAN AND TISSUE DONATION AND TRANSPLANTATION

STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

RE

SOU

RC

ES

ContinuetodeveloptheElectronicDonorRecord(EDR)

UndertakeapostimplementationevaluationoftheEDRorganmodule

Scopethefeasibilityofimplementingeyeandtissuebankingmodules

UpdatetheEDRorganmoduleinlightofthefindingsoftheevaluation

Completethefeasibilityscopingforimplementingthetissuebankingmodule

DeveloptheEDReyeandtissuemodulesandassociatedprocesses

ImplementtheEDReyeandtissuemodulesandassociatedprocesses

UndertakeapostimplementationevaluationoftheEDReyeandtissuemodulesandassociatedprocesses

Deliveranationalvigilanceandsurveillancesystemfordeceasedorgandonationandtransplantation

Developanationalvigilanceandsurveillanceframeworkthatcomplementsexistingjurisdictionalincidentreportingandinvestigationsystemsforthechainofdonationthroughtotransplantation

Implementthenationalvigilanceandsurveillancesystemandestablishanexpertadvisorycommitteetomonitoradverseeventsrelatedtodeceasedorgandonationandtransplantation

Monitorimplementationofthenationalvigilanceandsurveillancesystem

Undertakeapostimplementationevaluationofthevigilanceandsurveillancesystem

Supportthedeliveryofethicalguidelinesandclinicalprotocolsfororgantransplantationfromdeceaseddonors

ContributetothedevelopmentoftheethicalguidelinesthroughrepresentationontheNationalHealthandMedicalResearchCouncil(NHMRC)ExpertAdvisoryGroup

Assistthetransplantationsectorinthedevelopmentoforgan-specificClinicalProtocols

Supportalignmentoftheethicalguidelinesandclinicalprotocols

Supportthecommunityandthedonationandtransplantationsectorsintheuseoftheethicalguidelinesandclinicalprotocols

Maintainthecurrencyoftheethicalguidelinesandclinicalprotocols

Provideorgandonationhospitalsupportfunding(ODHSF)

AdministerfundingagreementswithStatesandTerritories,HospitalandHealthServicesandPrivateHospitals

AssesstheeffectivenessoftheODHSFmodelandoutcomes

NegotiateODHSFfundingwithStates,HospitalandHealthServicesandPrivateHospitals

20

Objective 3 (continued)ENHANCE SYSTEMS TO SUPPORT ORGAN AND TISSUE DONATION AND TRANSPLANTATION

STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

DA

TA A

ND

RE

SEA

RC

H

Continuetodevelopsystemsandprocessestocapture,analyseandreportondonationandtransplantationdataandresearch

DeveloptheOTADataGovernanceFramework

ContinuetodeveloptheDonateLifeAudittoolandprocessestoenablethereportingofDonationafterCirculatoryDeathdonationactivity

ContinuetodevelopperformancemonitoringandmeasuringsystemsinaccordancewiththeOTAPerformanceReportingFramework

ConductandreportonWave1ofthenationalDonorFamilyStudy(2010and2011)seekingfeedbackfromfamiliesontheirdonationexperience

ConductmarketresearchintoIndigenousAustraliancommunityattitudesandawarenesslevels

ImplementtheOTADataGovernanceFrameworkandamendasnecessary

ImplementtheenhancementstotheDonateLifeAudittoolandprocessestoenablethereportingofDonationafterCirculatoryDeathdonationactivity

ConductandreportonWave2ofthenationalDonorFamilyStudy(2012and2013)

Developstrategiestosupportresearchinthedonationandtransplantationsectors

Conductmarketresearchintogeneralcommunityattitudeandawarenesslevels

Workwiththetransplantsectorandregistriestoimprovethequalityofdataavailableontransplantationoutcomesandaccesstotransplantation

ReviewtheimplementationoftheOTADataGovernanceFrameworkandamendasnecessary


ConductmarketresearchintoCALDcommunityattitudeandawarenesslevels

EvaluatetheupdatedDonateLifeAudittoolandprocesses


ConductmarketresearchintogeneralandATSIcommunityattitudeandawarenesslevels

EY

E A

ND

TIS

SUE

SE

CT

OR

Continuetosupporttheongoingdevelopmentoftheeyeandtissuesectorincollaborationwithprofessionalbodies

Supportthedevelopmentandimplementationofeyeandtissuesectorspecifictrainingandeducationprogrammes

Implementnationallyagreedeyeandtissuedefinitionstosupporttheconsistentreportingofperformancedataandenhancedretrieval,processingandstoragesystems

CompletethereviewoftheeyeandtissuesectorandpresentfindingstotheCOAGHealthCouncil(CHC)foradecisiononthefuturestructureandsustainabilityoftheAustralianeyeandtissuesector

InconsultationwithstakeholdersdevelopanimplementationplanfortheagreedCOAGCHCrecommendations

SupporttheeyeandtissuesectorduringtheimplementationoftheagreedCOAGCHCrecommendations

CompleteimplementationoftheISBT128codingstandardacrosstheeyeandtissuesector

Reviewtheeyeandtissuesectoreducationprogrammes

21


STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

EY

E A

ND

TIS

SUE

SE

CT

OR

Continuetosupporttheongoingdevelopmentoftheeyeandtissuesectorincollaborationwithprofessionalbodies(continued)

Commenceareviewoftheeyeandtissuesectortoinformthedevelopmentofmoreeffective,efficient,andsustainableworkingmodelsacrossthesector

DevelopanimplementationplanfortheintegrationoftheISBT128codingstandardintotheeyeandtissuesectors

ImplementtheBiotherapeuticsAssociation(BAA)ofAustraliaNationalCompetencyMatrixandTrainingModulesforAustralianTissueBanks

DevelopandimplementtheBAAandEyeBankAssociationofAustraliaandNewZealand(EBAANZ)DonorSurveillancePilot

ContinuetosupporteyeandtissuesectororganisationsincomplyingwiththeTherapeuticGoodsAdministrationBiologicalsFramework

AU

STR

ALI

AN

OR

GA

N M

AT

CH

ING

SY

STE

M

SupportthedevelopmentofanAustralianOrganMatchingSystem(AOMS)toimproveorganallocationandmatchingprocesses

FundandsupporttheAustralianRedCrossBloodService(BloodService)toundertakeascopingreviewofoptionsfortheprovisionofanAOMS

CommencethedevelopmentofAOMS

CompletethedevelopmentofAOMS

ImplementtheAOMS

DevelopareviewandevaluationplantoassesstheeffectivenessoftheAOMSinmeetingtherequirementsofthedonationandtransplantationsectors

22

23


STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

DO

NA

TE

LIFE

NE

TW

OR

K

ContinuetosupporttheevolutionoftheDonateLifeNetworkinresponsetochangesintherequirementsoftheorganandtissuedonationandtransplantationservicemodel

Monitorjurisdictionalprogressinimplementingthenationalreformprogrammeinaccordancewiththecurrentfundingagreements

ContinuetoimplementanddeveloptheClinicalGovernanceFramework(CGF)andtheClinicalPracticeImprovementProgramme(CPIP)

EvaluatetheCPIP/CGFtoinformthedevelopmentandimplementationofPhase2oftheprogramme

Deliverthe2015DonateLifeNetworkForum

Negotiatestateandterritoryfundingagreementsfordeliveryoforganandtissuedonationservicesfrom1July2016

ImplementandmonitorPhase2oftheCGF/CPIPincludingaTargetedHospitalImprovementProgramme

Implementthestateandterritoryfundingagreements

EvaluatePhase2oftheCGF/CPIP

CA

RE

OF

DO

NO

R F

AM

ILIE

S ProvidenationalDonorFamilySupportServicestoensurethatdonorfamilieshaveaccesstoqualitybereavementcareandsupport

ReviewandupdatetheNationalDonorFamilySupportServicesGuidelines

Consideropportunitiesfornationalrecognitionofdonorsandtheirfamilies

ConsiderfindingsfromWave2ofthenationalDonorFamilyStudytoinformenhancementstofamilysupportservices

Reviewandupdatetheresourcesprovidedtofamiliesafterdonation

ConsiderfindingsfromWave3ofthenationalDonorFamilyStudytoinformenhancementstofamilysupportservices

OTA

AS

AN

AG

EN

CY

OF

EX

CE

LLE

NC

E

MaintaintheOTAasanagencyofexcellence

Fosterateamofenthusiasticanddynamicpeoplewithrelevantskillsandexpertise

AlignorganisationalstructureandprocessestosupporttheOTA’sbusinessobjectives


STRATEGIESACTIONS

2014-15 2015-16 2016-17 2017-18

OTA

AS

AN

AG

EN

CY

OF

EX

CE

LLE

NC

E

MaintaintheOTAasanagencyofexcellence(continued)

WorkwiththeDepartmentofHealthandtheNBAonplanstomergefunctionstostreamlinecorporateandadministrativeactivitieswithinthecontextofawhole-of-governmentapproachtootherentitymergerstoensurenewarrangementsareeffectivelyimplemented

Reviewandupdatethestrategicplananddevelopstrategicprioritiesfor2015-16



24

25

Outcome and Performance Measures

TheaimofthestrategyisforAustraliatoachieveanorgandonationrateof25dpmpby2018.Thiswillrequirefocusedandsustainedcollaborativeeffortbyallthosecontributingtotheimplementationofthenationalreformprogramme.

Itisimportanttobeabletounderstandwhetherthesumoftheseactionsishavingtheexpectedimpact.Thefollowingperformanceandoutcomemeasureswillbeusedtotrackprogress:

Performance Measure 1 Donor per million population rate (dpmp)2018nationaltarget:25dpmp

Performance Measure 2 Transplant recipients from deceased donors per million population rate

2018nationaltarget:70transplantrecipientspermillionpopulation

Note:PerformanceMeasures1and2aretimelimitedtargetsandprogressismeasuredusingnationalorganandtissuedonationandtransplantationdatareportedbytheAustraliaandNewZealandOrganDonationRegistry.ThesetargetswillbereviewedannuallyandtheStrategicPlanwillbeupdatedifrequired.

WhilePerformanceMeasure2isspecifictodeceaseddonors,publicreportingwillincludetransplantrecipientsfromdeceaseddonorspermillionpopulationaswellastransplantrecipientsfromcombineddeceasedandlivingdonorspermillionpopulation.

Theseperformancemeasures,reportedbycalendaryear,willenablecomparisonwithinternationalbenchmarks.

ProgressagainsttheseperformancemeasureswillbereportedintheOTAPerformanceReportandtheOTAAnnualReport.

Performance Measure 3 Request rate: requests / potential donors x 100(Numberofrequestsasapercentageofallpotentialorgandonors)Nationaltarget:100%

Performance Measure 4 Consent rate: consents / requests(Numberofconsentsasapercentageofallrequestsofpotentialorgandonors)Nationaltarget:75%

Performance Measure 5 Conversion rate: actual donors / potential donors x 100(Numberofactualdonorsasapercentageofpotentialorgandonors)Nationaltarget:70%

Note:PerformanceMeasures3-5areaspirationaltargetsandprogressismeasuredusingdatafromtheDonateLifeAudit.

ProgressagainsttheseperformancemeasureswillbereportedintheOTAAnnualReport.

Outcome Measure 1 Develop and implement performance measures for the tissue sector by the end of 2018

Note:ProgressagainstOutcomeMeasure1willbereportedasregularupdatestotheJurisdictionalAdvisoryGroup.

2726

2014-15 Strategic Priorities

1. Implementing the second stage of the DonateLife Clinical Governance FrameworkThesecondstageoftheDonateLifeClinicalGovernanceFrameworkwilldeliveratargetedhospitalpracticeimprovementprogramforthesubsetofDonateLifeNetwork(DLN)hospitalswithdemonstratedperformancebelownationalaverageoutcomesinrequestandconsentrates.ItwillprioritiseinterventionusingoutcomeandprocessperformancedatafromtheDonateLifeAuditandtheClinicalGovernanceFramework.

ThetargetedhospitalpracticeimprovementprogramwillbuildontheClinicalGovernanceFrameworkwhichhasbeenimplementedacrosstheDLNandprovidesthegovernanceandaccountabilitystructurethatsupportseffectiveimplementationofaClinicalPracticeImprovementProgramineachDonateLifeNetworkhospitalacrossAustralia.

2. Developing a national vigilance and surveillance framework for organ donation and transplantationThenationalvigilanceandsurveillanceframeworkwillsupportthereportingandinvestigationofadverseoutcomesrelatedtoorgandonationandtransplantation.Thedatagatheredwillinformclinicalpracticeimprovementandallowforpublicreporting.

3. Delivering specialist education to health professionals involved in conversations with families about the opportunity for donationEducationwillcontinuetobeprovidedinallstatesandterritoriesthroughtheFamilyDonationConversation(FDC)workshopsoftheProfessionalEducationPackage.FDCworkshopsprovidehealthprofessionalswiththenecessaryknowledgeandskillstocommunicatewithgrievingfamiliesandsupportthemtomakeafullyinformedandenduringdecisionaboutdonation.

TheeffectivenessoftheFDCtraining,includingitsimpactonrequestingpractices,familyexperiencesandconsentratesfordonation,willcontinuetobeevaluated.

4. Conducting community awareness and education activities on organ and tissue donation, in partnership with sector and community organisationsThepublicwillcontinuetobeeducatedabouttheneedforfamilydiscussionandknowledgeoforganandtissuedonationdecisionsandbeprovidedinformationtoassisttheminmakingandregisteringdonationdecisionsontheAustralianOrganDonorRegister.

Inpartnershipwithsectororganisationsandthebroadercommunity,awarenessraisingactivitieswillcomprise:DonateLifeWeek;targetedcommunityeducationcampaigns;medialiaison;and,onlineandsocialmediaengagement.Theseactivitieswillincludetargetedoutreachwithcommunitiesanddemographicgroupsthatarelessengagedwithorganandtissuedonation,includingculturallyandlinguisticallydiverseaudiences.

5. Merge functions of the OTA and NBATheOTAwillworkwiththeDepartmentofHealthandtheNBAonplanstomergefunctionstostreamlinecorporateandadministrativeactivitieswithinthecontextofawhole-of-governmentapproachtootherentitymergerstoensurenewarrangementsareeffectivelyimplemented.

During2014-15,theOrganandTissueAuthority(OTA)willcontinuetoremainfocusedonthedeliveryofthenationalreformprogrammeobjectivesandoutcomes,andtoworkwithallourstakeholdersinachievingcontinuedandsustainedincreasesinorganandtissuedonation.Inparticular,theOTAwillbefocussingonfivekeypriorityareas:

2726

2015-16 Strategic Priorities

1. Implementing the second phase of the DonateLife Clinical Governance Framework including a Targeted Hospital Improvement ProgrammeTheOTA,inpartnershipwithStateandTerritoryGovernmentsandtheDonateLifeNetwork,willimplementPhase2oftheClinicalGovernanceFrameworkandClinicalPracticeImprovementProgram(CPIP)includingaTargetedHospitalImprovementProgramme.Thisphasewillincludebuildingcross-borderpeerrelationshipsbetweenlikehospitalstostrengthenlocalorganandtissuedonationpracticethroughexposuretoalternatesystemsandapproacheswithinthenationalDonateLifeNetwork.Itwillprovidedevelopmentopportunities;sharedlearningprogrammes;andtargetedfocusonhospitalswiththegreatestpotentialforgrowthindonationoutcomesaspartoftheTargetedHospitalImprovementProgramme,toensuretheadoptionofbestorgandonationpracticefordonoridentificationandfamilyconsentconversationsinallDonateLifehospitals.Thisimplementationwillbemonitoredusingenhancedperformancemeasuresandreportingprocesses.

2. Continuing to deliver specialist education to health professionals involved in conversations with families about the opportunity for donationEducationopportunitiesforhealthprofessionalsinvolvedinfamilydonationconversationswillcontinuetobedevelopedanddelivered.Thisworkwillcontributetoincreasingthedonationconsentrate.AdvancedFamilyDonationConversation(FDC)workshopswillbedevelopedtoprovidetreatingcliniciansanddonationspecialistswithincreasedknowledgeandskillstosupportfamiliesinmakingdonationdecisions.Inaddition,anEyeandTissueFDCworkshoptailoredtotelephone-basedfamilyconsentforeyeandtissuedonationoutsideofthehospitalsettingwillbedevelopedanddelivered.

3. Developing a national vigilance and surveillance framework for organ donation and transplantationEndorsementoftheNationalVigilanceandSurveillanceFrameworktofurthersupportsafetyandqualityinorgandonationfortransplantationwillbesoughtfromstatesandterritoriesandkeystakeholders.TheFrameworkwillsupporttheinvestigation,resolutionandlearningfromadverseoutcomesrelatedtoorgandonationfortransplantation.Inaddition,aVigilanceandSurveillanceExpertAdvisoryCommitteewillbeestablishedtoprovideadviceonappropriateevaluation,reportingandremedialactionrequiredfornotifiedadverseeventsrelatedtodeceasedorgandonationfortransplantation.

4. Commencing development of the Australian Organ Matching SystemDevelopmentoftheAustralianOrganMatchingSystem(AOMS)willcommencetoreplacethecurrentorganmatchingsystem.TheAOMSwillbedevelopedwiththefunctionalitytoadaptinanagileandtimelymannertoimplementfutureclinicalinnovationsinthematchingandallocationofdonororgans.Thesystemwillallowforoptimalmatchingoftransplantrecipientsthroughtheapplicationofbest-practicealgorithmstofurthermaximisetheequityofaccessandclinicaloutcomesoftransplantsinAustralia.

5. Conducting community awareness and education activities on organ and tissue donationTheproportionoflegalconsentregistrationsontheAustralianOrganDonorRegister(AODR)willbeincreasedbyintroducingthefunctionalityforelectronicsignaturestoregisterlegalconsent.Thiswillremovethecurrentbarriersintheprocess,aswellasprovidinggreatercertaintyofanindividual’sdonationdecisionforcliniciansandfamiliesatthefamilydonationconversation.TheelectronicregistrationprocesswillbesupportedbytheOTAthroughtheimplementationofanationalonlinedonorregistrationcampaignandrevisingtheProfessionalEducationProgramtoincorporateAODRchanges.

During2015-16,theOrganandTissueAuthority(OTA),inpartnershipwithstateandterritorygovernmentsandtheDonateLifeNetwork,willcontinuetoremainfocusedonthedeliveryofthenationalreformprogrammeobjectivesandoutcomestoachievecontinuedandsustainedincreasesinorganandtissuedonation.Oureffortswillfocusonfivekeypriorityareas:

Organ and tissue donation for transplantation in Australia ... · The National Reform Programme Organ and tissue donation - a precious opportunity Only around 1-2% of people who die

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