Afternoon Session 6C 2:15-3:30pm, April 10, 2014 Person-Centred Thinking and Building Social Capital Supporting an Included Life in the Community with Homes, Jobs, and Friends for People with Intellectual Disabilities Keenan Wellar, MA and Julie Kingstone, MEd Co-Founders & Co-Leaders, LiveWorkPlay.ca Starting in 2008, LiveWorkPlay embarked on a journey of “de-programming” by making a shift from congregated programs to authentic community-based, person-centered, and assets-focused thinking and processes. Beyond exciting outcomes such as first homes, first jobs, and first experiences engaging in the community with other citizens, with respect to the experience of an included life, the impact is all about the development of reciprocal relationships and interdependence (social capital).
OADD 2014: Person-Centred Thinking and Building Social Capital Supporting an Included Life in the Community with Homes, Jobs, and Friends for People with Intellectual Disabilities
May 07, 2015
Person-Centred Thinking and Building Social Capital Supporting an Included Life in the Community with Homes, Jobs, and Friends for People with Intellectual Disabilities
Keenan Wellar, MA and Julie Kingstone, MEd
Co-Founders & Co-Leaders, LiveWorkPlay.ca
Starting in 2008, LiveWorkPlay embarked on a journey of “de-programming” by making a shift from congregated programs to authentic community-based, person-centred, and assets-focused thinking and processes. Beyond exciting outcomes such as first homes, first jobs, and first experiences engaging in the community with other citizens, with respect to the experience of an included life, the impact is all about the development of reciprocal relationships and interdependence (social capital).
Keenan Wellar, MA and Julie Kingstone, MEd
Co-Founders & Co-Leaders, LiveWorkPlay.ca
Starting in 2008, LiveWorkPlay embarked on a journey of “de-programming” by making a shift from congregated programs to authentic community-based, person-centred, and assets-focused thinking and processes. Beyond exciting outcomes such as first homes, first jobs, and first experiences engaging in the community with other citizens, with respect to the experience of an included life, the impact is all about the development of reciprocal relationships and interdependence (social capital).
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Afternoon Session 6C 2:15-3:30pm, April 10, 2014
Person-Centred Thinking and Building Social Capital Supporting an Included Life in the Community with Homes,
Jobs, and Friends for People with Intellectual Disabilities
Keenan Wellar, MA and Julie Kingstone, MEdCo-Founders & Co-Leaders, LiveWorkPlay.ca
Starting in 2008, LiveWorkPlay embarked on a journey of “de-programming”by making a shift from congregated programs to authentic community-based,person-centered, and assets-focused thinking and processes. Beyond exciting
outcomes such as first homes, first jobs, and first experiences engaging inthe community with other citizens, with respect to the experience of an
included life, the impact is all about the development of reciprocalrelationships and interdependence (social capital).
It always seems impossible.
Until it is done.Nelson Mandela
We can’t think differently if wedon’t change our underlying assumptions about reality.
Michael Kendrick
Remediating Accommodating VALUING
We cannot hope to INCLUDE viathinking and practices that focus on EXCLUSION.
In many jurisdictions the courts are proving the only option for people with intellectual disabilities who want support for a non-segregated life. Is this what will drive change in Ontario? Or will doing the right thing be motivation enough?
Al Condeluci http://buildingsocialcapital.org/Interdependence Network
Helen Sanderson http://www.tlccanada.groupsite.com/The Canadian Learning Community For
Person-Centred Practices
What would you say great cutting edge work looks like today in human services?
If people with disabilities are enjoying lives pretty much like other citizens, in terms of work, education, home life, participation in the community and so on, then you would have to say that is a huge improvement in quality of life. You judge it by the outcomes in the lives of the people.
- Michael Kendrick
Most organizations in Developmental Services use statements like these.But is this representative of what our sector is doing in practice?
Watch video: http://j.mp/ablastfrompast
What Did You Think Of Our Video? We can hardly believe it when we watch it. Did we really build a parallel society for people with
intellectual disabilities, thinking it was the path to inclusion?
Popularity is not a significant or critical measurement.We are called to a higher level of accountability.
The Day Program?
THAT WAS EASY!
But now…a robust network of welcoming people and places that includes a home, a job, friends, and enjoyable things to do in the community with many diverse relationships?
For EACH and EVERYperson we support?
HARD!But it’s supposed to be about doingwhat is right, not what is easy…
Decisions = Paid Staff and/or FamilyEducation = Day Program/Special EducationRecreation = Segregated ProgramEmployment = Sheltered WorkHome = Institutional or “Special Model”Relationships = Paid Staff and/or Family
What Are The Assumed Norms ForPeople With Intellectual Disabilities?
How did we arrive at these assumptions?Aren’t we becoming more person-centred,
assets-focused, and community-based?
Thank you for choosing Acme Support Services, where we proudly facilitate individual independence through person-centered planning!
Now, let me start by outlining the list of fixed choices available to you!
SCARCITY ABUNDANCE
(WHAT WE’VE LEARNED)
“THIS IS TUESDAY NIGHT LEAGUE BOWLING. PLEASE COME BACK ON THURSDAY NIGHT AND SIGN UP FOR SPECIAL NEEDS BOWLING.”
BUT I’VE GOT A 180 AVERAGE!
THEN NOW
A job isn’t everything or the only thing. When we talk about “employment first” and/or “housing first” it’s not about suggesting some sort of cure for having a disability. It’s about valuing people with disabilities as they are, and moving beyond the assumption that their life will be systems and staff-oriented instead of assets-based and community-focused.
Play collage
NO DAY PROGRAM OR WORKSHOP?
WHAT IF THEY CAN’T FIND OR
KEEP A JOB?
WHAT WILL THEY DO TO
FILLTHEIR TIME?
(Medical Model)
Social Services(Community Model)
Social Change
Decisions = Paid Staff and/or FamilyEducation = Day Program/Special EdRecreation = Segregated ProgramEmployment = Sheltered WorkHome = Institutional Setting/Special ModelRelationships = Paid Staff and/or Family
Decisions = Self-Directed (With Chosen Help)Education = Inclusive Classrooms (All Ages)Recreation = Playing In Community (With Diverse Others)
Employment = Work/Volunteerism (With Diverse Others)
Home = House/Condo/ApartmentRelationships = Family, Friends, Neighbours, Spouse,
Unpaid Support, Paid Support
TRANSFORMATION
A Transformative Journey
MORE (AND MORE& MORE IMPORTANT)
FamilyFriends
ColleaguesCo-WorkersClassmatesNeighbours
Spouse
ONLY AS NEEDED (ANDLESS & LESS IMPORTANT)
Residential WorkerProgram WorkerOther Workers
DoctorsPsychologistsPsychiatrists
Social Workers
HOW TO SUPPORT INCREASED SOCIAL CAPITALFOR PEOPLE WITH INTELLECTUAL DISABILITIES
(IT’S ALL ABOUT RELATIONSHIPS)
Do staff want to perform like stars? Sure! But we don’t want to be your world.
(Inspired by Dave Hingsburger)
“Some things have to be believed to be seen.”― Madeleine L'Engle
(A Wrinkle In Time)
My own place! A job (and cheque) I love! My football team!
The reality is, developmental services agencies tend to be not very skilled or practiced inthe art or science of relationships. Traditionally, their talent lies in creating and managingprograms and infrastructure. We need a different theory to get us where we need to be as facilitators of relationships for the people we are trusted and honoured with supporting.
(Watch video: http://bzbz.ca/big-bang-friend)
THEORY OF CHANGE is a dialogue-based process that generates a description of a sequence of events that is expected to lead to a particular desired outcome’ This description is captured in a diagram and narrative to provide a guiding framework for the project team and stakeholders.
A theory of change starts by identifying a clear ultimate goal and works backwards to establish preconditions for reaching that goal. At each step any assumptions are examined. The next step is to identify indicators. Only when these steps have been completed are the activities or interventions identified.
In reality - often in response to a particular funding opportunity - many agencies in the developmental services sector (and in the non-profit community in general) may develop programs or projects based almost fully on unproven assumptions, and then work to align the program with the ultimate goal promised in the application and as required to obtain the funding. Not exactly a best practice for human services!
LiveWorkPlay: Our Theory Of Change
What is Our Anticipated DIRECT Impact
1) People with intellectual disabilities supported by LiveWorkPlay will experience life as more valued and included members of the community
2) Family members of those supported by LiveWorkPlay experience greater satisfaction with regard to the life of their child
3) LiveWorkPlay partners (individuals, organizations) experience positive changes, benefiting from and advocating for inclusive community
What is Our Anticipated INDIRECT Impact
• Other service organizations employ improved practices for the inclusion of people with intellectual disabilities
• Policymakers and thought leaders envision and enact more effective and efficient policies and resource allocation to support the inclusion of people with intellectual disabilities
Through Direct andIndirect Impact…
Our work is done when all persons with intellectual disabilities can experience and contribute to the community on an equal basis with other citizens.
What is Our Anticipated DIRECT Impact
1) People with intellectual disabilities supported by LiveWorkPlay will experience life as more valued and included members of the community
What Activities?
What Resources?
Impact
On-going
Planning
Independent Living
In-Home Supports
Natural Supports
Life Coaching
Referrals to Affordable
Housing
Paid Employment
Employment Planning
Job Matching &
Development
Job Coaching
Long term maintenance
Community Participation
Support to join
community activities and
venues and travel
Support to volunteer
within the non-profit
sector
Support to develop
friendships
Friday night meet-ups
Supporters
Family Feasts
New Year’s Eve Party
Auction and Golf
Tournament
Annual Recognition
Banquet
LiveWorkPlay Supports
Our collaborative process: 1) develop person-centred plans based on interests, abilities, and possibilities; 2) identify sub-communities for making needed connections; 3) develop an understanding of sub-community operations and expectations 4) develop individual and organizational inclusion gatekeepers for ongoing success. We do this by supporting:
Referrals to other services (income
supports, affordable housing, health,
transport,)
Diversification and
increased participation in ordinary community
activities and places with
other citizens
Diversification and increased
community contribution in
ordinary activities and places with
other citizens
Diversification and increased
social roles (employee, neighbour,
friend, spouse,
volunteer, owner, other)
Diversification, growth, and maintenance
of a network of unpaid and reciprocal personal
relationships
How we support people with intellectual disabilities to experience life as more valued and included members of the community:
MEMBERS BOARD
Executive
Staff
Director of
Operations
Executive
Staff
Marketing &
Communications
1
Employment
Supports (2)
Community
Connectors (3)
Living
Supports (2)
Coordinator of
Volunteers and
Support
Networks (1)
100 Volunteers
1
Supports
Coordinator
(1)
2
LIVEWORKPLAY ORGANIZATIONAL CHART 2014
MEMBERS
100+ Volunteers
Referrals to other services(income supports, affordable
housing, health, transport)
Diversification and increased participation in ordinary community activities and places
with other citizens
Diversification and increased community contribution in ordinary
activities and places with other citizens
Diversification and increased social roles: employee,
neighbour, friend, spouse, volunteer, owner, other)
(Watch video: http://bzbz.ca/matt-cam)
Diversification, growth, and maintenance of a network of unpaid and reciprocal personal relationships
(Watch video: http://bzbz.ca/jim-chris)
What is Our Anticipated DIRECT Impact
2) Family members of those supported by LiveWorkPlay experience greater satisfaction with their child’s life
The Parent Perspective (Watch video: http://bzbz.ca/betty-kyle)
What is Our Anticipated DIRECT Impact
3) LiveWorkPlay partners (individuals, organizations) experience positive changes, benefiting from and advocating for inclusive community
Watch the video: http://bzbz.ca/Jeremy-Short
Tracking and Measuring Our Progress
http://www.compasspoint.org/nextgenorgs
A GREAT BASISFOR CHALLENGINGYOUR ORGANIZATION
JUST WHEN YOUMIGHT BE THINKING“WOW, WE ARE AWESOME”COMES THE REALIZATIONTHAT STANDING STILLALWAYS RESULTSIN ORGANIZATIONALDECAY. RENEWAL REQUIRESCONSTANT VIGILANCE AND AN ENERGY FORSELF-IMPROVEMENT!
youtube.com/liveworkplayvideo
liveworkplay.ca
facebook.com/liveworkplayfans
twitter.com/liveworkplay
What Does The Public Know About Developmental Services?
We cannot solve our problems with the same thinking we used when we created them.(Albert Einstein)
50
Some of what happened - by trying!
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