Northeast Florida FIMR Findings January 2005-December 2011 Laurie Lee, RN, BSN, CCM FIMR Coordinator Northeast Florida Healthy Start Coalition
Feb 25, 2016
Northeast Florida FIMR Findings
January 2005-December 2011
Laurie Lee, RN, BSN, CCMFIMR CoordinatorNortheast Florida Healthy Start Coalition
Overview of the Fetal & Infant Mortality Review Process
The FIMR Case Review Team meets bimonthly Review process developed by the American
College of Obstetrics & Gynecology is used. Information abstracted from birth, death,
prenatal care, Healthy Start, WIC, hospital and autopsy records.
Efforts are also made to interview the family. All information is de-identified. Purpose is to determine specific medical, social,
financial and other issues that may have impacted the poor birth outcome.
Recommendations for community action drafted annually based on findings.
Prepared by LleeNEFL FIMR
Healthy Start Coalition
Overview of the Fetal & Infant Mortality Review Process
The purpose of FIMR is to examine cases with the worst outcomes to identify gaps in services that might be addressed through community action.
Cases selected for review based on specific criteria such as:Zip codes with high infant mortality ratesFetal losses over 36 weeks gestation or 2500
gramsDeaths in outlying counties, etc.
Prepared by LleeNEFL FIMR
Healthy Start Coalition
Resident Infant Mortality Rates-All RacesNortheast Florida and Florida2001-2011
2003 2004 2005 2006 2007 2008 2009 2010 20110
2
4
6
8
10
12
14
16
18
20
9.8 9.5 10.4
8.2 8 8.97.9 7.3
6.57.5 7 7.2 7.2 7.1 7.2 6.9 6.5 6.4
NE FL FL US
Prepared by L.Lee Source: Birth and Death Certificates/Vital Stats
114 infant deaths in 2011
Resident White Infant Mortality RatesNortheast Florida and Florida 2001-2011
2003 2004 2005 2006 2007 2008 2009 2010 20110
2
4
6
8
10
12
14
16
18
20
6.7 6.6 7.6 6.2 5.9 6.3
4.9
5.6
4.025.8 5.5 5.3 5.6 5.2 5.5
5.84.9 4.6
NEFL FL
Prepared by L.Lee Source: Birth and Death Certificates/Vital Stats
39 white infant deaths in 2011
Resident Nonwhite Infant Mortality Rates Northeast Florida and Florida2001-2011
2003 2004 2005 2006 2007 2008 2009 2010 20116
8
10
12
14
16
18
20
16.2
15.316.1
1211.9
13.8
10.59.64 10.3
12.411.5 12.5 11.8 12.2 11.8
12.110.8
11.1
13.7
15.9
18.8
12.812.9 14.1
12.310.6
12
NEFL FL Black
Prepared by L.Lee Source: Birth and Death Certificates/Vital Stats
75 nonwhite infant deaths in 2011- ¾ black
Birth Weight in Infants That DiedNortheast Florida 2005-2011 n=1028
25%
33%14%
26%
2%
< 500 grams (< 1.1 pounds)500-1499 grams (1.1-3.29 pounds)1500-2499 grams (3.3 - 5.49 pounds)2500+ grams (> 5.5 pounds)No info
58% of the babies that died weighed < 3.3 pounds at birth
Prepared by LleeNEFL FIMR
Healthy Start Coalition
Infant Age at DeathNortheast Florida2005-2011
2005 n=189
2006 n=158
2007 n=154
2008 n=165
2009 n=155
2010 n=127
2011 n=114
0%10%20%30%40%50%60%70%80%90%
100%
61.4 64.6 64.3 67.3 68.8 69.3 77.8
38.6 35.4 35.7 32.7 31.3 30.7 22.2
Neonates Postneonates
63% of the neonatal deaths occurred in the 1st 24 hours Prepared by LleeNEFL FIMR
Healthy Start Coalition
Cause of Death0%
10%
20%
30%
40%
50%50
%
13% 16
%13
%
13%
4% 6% 5%
PrematurityCongenital AnomaliesSleep relatedRDS/BPD/Pul-monary Hy-poplasiaInfectionIVHNECMultiple Organ Failure
*records may have more than one cause of death listed
Causes of Infant DeathNortheast Florida2005-2011 n=1028
Prepared by LleeNEFL FIMR
Healthy Start Coalition
Northeast Florida
Sleep related deaths
2005-2011
Total Number of Sleep Related DeathsNortheast Florida2005 – 2011
2005
2006
2007 2008 2009 2010 2011
# 33 23 27 27 22 16 14
% of death
s
17.5%
14.6%
17.6%
16.4%
15.1%
12.6%
12.3%
Prepared by LleeNEFL FIMR
Healthy Start Coalition
Distribution of Sleep Related Deaths in 2011
Baker Clay Duval Nassau
St Johns
# deaths
2 1 11 0 0
Duval county detail:
• The following zipcodes had one sleep related death: 04, 06, 08, 10,11, 23, 25, 57, 77
• The 06 zip was the only one with > 1 sleep related death and it had only 2
Prepared by LleeNEFL FIMR
Healthy Start Coalition
Rate Comparison2005
2006 2007 2008 2009 2010 2011
# NEFL SIDS cases
10 10 6 6 3 1 1
NEFL SIDS rate/1,000 live births
.55 .53 .31 .32 .16 .06 .06
FL SIDS rate
.38 .39 .34 .35 .32 .30 .20
# NEFL Undetermined or other sleep related cases
23 13 21 21 19 15 13
NEFL sleeping infant death rate/1,000 live births
1.83 1.21 1.40 1.45 1.20 .90 .80Prepared by Llee
NEFL FIMRHealthy Start Coalition
Risk Factor ComparisonRisk Factor 2005 – 2011
n=162
Unsafe sleep surface 80%Not on back to sleep 66%Not in an infant bed 69%
Never breast fed 66%
Unsafe items in bed 60%
Second/third hand smoke
46%
Sharing sleep surface 55%Prepared by Llee
NEFL FIMRHealthy Start Coalition
Maternal DemographicsSleep Related Deaths
• 79% in their 20’s• 71% single• 63% white• about ½ had inadequate prenatal care• 42% with no high school diploma• about 1/3 are overweight or obese
Resident Infant Mortality Rates by CountyAll Races2007-2011
0
2
4
6
8
10
12
Baker Clay Duval Nassau St. John's
10.5
5.2
8.5
5.94.1
State rate=6.8
Baker County-5 year summary
29 total fetal and infant deaths; 20 infants/9 fetals
61% single moms (highest) 40% infant deaths sleep related (highest) 39% with poor birth spacing (over 3 x higher) 38% all losses w/ congenital anomalies (highest) 32% with no HS diploma (highest) Second only to Duval for late or no pnc (32%) Low teen pregnancies and substance abuse
Zip City Total Fetal and Infant Deaths
32063 MacClenny 1332040 Glen St. Mary 12
Clay County-5 year summary
66% w/ unhealthy BMI (highest) 55% single 25% with late or no pnc 12% teens (second highest) 12% Hispanic (highest)
Zip City Deaths32068
Middleburg 30
32065
Orange Park
22
32073
Orange Park
30
32043
Green Cove
14
32003
Fleming Isl. 7
110 fetal and infant deaths; 58 infants/52 fetals
Nassau County-5 year summary
89% white (highest)27% w/out HS diploma
(second to Baker)Highest substance
abuse (33%-all tobacco)57% w/ unhealthy BMI
(96% of those high)Lowest congenital
anomalies
Zip City Deaths
32011 Callahan 10
32034 Fernandina 16
32097, 32041
Yulee 14
46 total deaths: 23 infant and 23 fetal
St. John’s County-5 year summary
Maternal Demographics: 80% white 56% married (highest) 52.3.2% w/ some college (highest) Best pnc, birth spacing and healthy
BMI’s Highest underweight though-
1/3 of those w/ unhealthy BMI’s Highest cocaine use
Zip City Deaths
32081 & 2
Ponte Vedra 10
32084 DowntownSt Aug
33
32086 St Aug Shores
14
32092 Palmo 1932145 Hastings 6
92 total deaths:• 37 infants• 55 fetals (all other
counties had fewer fetals than infants)
Resident Infant Mortality Rates by RaceDuval County2003-2011
2003 2004 2005 2006 2007 2008 2009 2010 20110
5
10
15
20
25
1
6.9
7.5 7.9
7.2 6.7 7.15.5 5.8
2.8
10.5 10.9 11.69.5 9 9.7
8.48 7.3
7.57 7.2 7.2 7.1 7.2 6.9 6.5 6.4
16.8
16.4
20.1
14.6 15.4 15.3 15.9
8.8
13.315.5
15.316.9
12.9 12.914
13.1 11.312.8
WhiteTotal CountyFloridaTarget AreaBlack
Prepared by L.Lee Source: Birth and Death Certificates/Vital stats
90 infant deaths in 2011
Duval CountyWhite Births2007-2011
2007 2008 2009 2010 20116200
6400
6600
6800
7000
7200
7400
7600
7800
8000 78947777
7474
71286889
Prepared by LleeNEFL FIMR
Healthy Start Coalition
Duval CountyBlack and Other Births2007-2011
2007 2008 2009 2010 20115100
5200
5300
5400
5500
5600
5700
5800
5900
6000
5878
5657 5667
5416 5431
Birth versus Death Cohorts: Demographics
Birth Cohort Death Cohort
Race W=56%; B=43% W=30%; B=63%Age Teens trended down over
last 3 yrs, currently at 8.3%; 20’s –mid to high
50%
Teens w/ slight trend up 12-13%; 20 year olds represent 55-60%; slight upward trend in 40 year olds
Single Marital Status
48% last 3 years Decreased from 65% to 61% last 3 years
Education-HS or higher
85% 68%
Birth versus Death Cohorts:Behavior
Birth Cohort Death Cohort
Smoking 8% Trend 17 – 11% over last 3 yrs
Unhealthy BMI 50% 61%
Inadequate prenatal care 24% Trending down over last 3 yrs-40 to
36%
Pregnancy Interval < 12 mos
14% 17%
Contributing Factors in FIMR Cases2009-2011N=87
0%
10%
20%
30%
40%
50%
60%
Maternal Medical and OB History
56%
31%
20%
15%11%
Pre-existing conditions such as hypertension, diabetes, asthma, etc.
History of fetal or infant loss
History of previous preterm or low birth weight baby
History of STD or other GU infection
History of elective termination
Contributing Factors in FIMR Cases2009-2011N=87
0%
5%
10%
15%
20%
25%
30%
35%
Pre-existing Nutritional Issues
Obesity
Inadequate Nutrition
(underweight BMI or anemia at 1st trimester
pnc visit)
Prepared by L.Lee Source: FIMR/CRT case reviews
Contributing Factors in FIMR Cases2009-2011N=87
0%
5%
10%
15%
20%
25%
30%
35%
40%
45%
Socioeconomic
41%
28%
39%
24%
Life Course Perspective Issues
Maternal Age < 21 or > 35
Poverty
Other emotional stressors during pregnancy such as loss of job, loss of loved one, incarceration, divorce, natural disaster, etc.)
Prepared by L.Lee Source: FIMR/CRT case reviews
Prepared by L.Lee Source: FIMR/CRT case reviews
Contributing Factors in FIMR Cases2009-2011N=87
0%
10%
20%
30%
40%
50%
60%
Medical Conditions During Pregnancy
48%
23%
52%
28%
Maternal Infections other than STD's
STD's
Preterm Labor
PROM/PPROM
Prepared by L.Lee Source: FIMR/CRT case reviews
Prepared by L.Lee Source: FIMR/CRT case reviews
Contributing Factors in FIMR Cases2009-2011N=87
Prepared by L.Lee Source: FIMR/CRT case reviews
Prepared by L.Lee Source: FIMR/CRT case reviews
-10%
0%
10%
20%
30%
40%
50%
60%
Parental Knowledge/Compliance Issues
53%
13%
67%
30%
Inadequate pnc
Kick counts; signs of decreased fetal movement and when to call MD
Family Planning
Substance abuse
Contributing Factors in FIMR Cases2009-2011N=87
Prepared by L.Lee Source: FIMR/CRT case reviews
Prepared by L.Lee Source: FIMR/CRT case reviews
0%
2%
4%
6%
8%
10%
12%
14%
16%
18%
20%
Service Issues
3%
5%
11%
Medical and social services/community inadequate to meet needs
Medical and social services/community resources available, but not used
Patient fear of/dissatisfaction with system
Contributing Factors in FIMR Cases2009-2011N=87
Prepared by L.Lee Source: FIMR/CRT case reviews
Prepared by L.Lee Source: FIMR/CRT case reviews
0%
10%
20%
30%
40%
50%
60%
Fetal/Infant Medical Issues
51%
33%
6%
Prematurity
Infection
Cord Problem
2012 FIMR Recommendations
(based on 2011 data)
Continue to focus on preventing sleep related deaths. Of the 114 infant deaths in Northeast Florida in 2011, 14were sleep related. This represents 12.3 % of all deaths and 58% of deaths after the first month of life. Focus on safe sleep surface and bedsharing. Develop additional Cribs 4 Kids programs in region and
take advantage of cash matching program. Develop regional Safe Sleep Campaign in collaboration
with TPC Advocacy Center at Wolfson Children’s Hospital.
2012 FIMR Recommendations (based on 2011 data)
Focus on safe sex, STD prevention and family planning. Implement jail education program; take advantage of having a
captive audience. Within the FIMR cases, STDs during pregnancy increased from
9% in 2009 to 35% in 2011. Duval County ranks 5th in the state based on 2012 data in STD rates.
Contraception in the immediate postpartum period is a priority for action. In the FIMR reviewed cases, only one-third of the mothers received a Depo shot or prescription for contraceptives prior to hospital discharge.
More than two-thirds (67%) of the FIMR cases involved family planning issues including unplanned pregnancies and inadequate birth spacing.
2012 FIMR Recommendations (based on 2011 data)
Continue to focus on dangers of smoking during pregnancy. In 2011, 13% of the mothers in the death cohort self-
reported some type of substance abuse; 83% of these were tobacco users. In 2010, 17% of the death cohort self-reported some type of substance abuse. Ninety-three percent of these were tobacco users.
The Community Action Team is implementing an anti-smoking campaign in the target area (Health Zone 1) based on prior recommendations.
Healthy Start program in St. Johns County is also piloting SCRIPT, an evidence-based smoking cessation program for pregnant women. Based on pilot results, this program should be considered for replication throughout the region.