NEMOURS CHILDREN’S HEALTH SYSTEM SIDNEY KIMMEL … CV... · POSTGRADUATE TRAINING AND FELLOWSHIP APPOINTMENTS: 1999-01 Fellowship, Clinical Child (Pediatric) Psychology, Division

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NEMOURS CHILDREN’S HEALTH SYSTEM SIDNEY KIMMEL MEDICAL COLLEGE – THOMAS JEFFERSON UNIVERSITY

Curriculum Vitae _ July 2018

MELISSA A. ALDERFER, Ph.D.

HOME ADDRESS: 211 Martins Run Media, PA 19063 OFFICE ADDRESS: The Center for Healthcare Delivery Science Room 163, Rockland Center One

1600 Rockland Road Wilmington, DE 19803

PHONE: (302) 651-6522 EMAIL: [email protected] EDUCATION: 1985-89 BA University of Pennsylvania (Biological Basis of Behavior)

1989-90 MSEd University of Pennsylvania Graduate School of Education (Psychological Services in Education) 1990-94 MS University of Utah (Clinical Psychology) 1994-01 PhD University of Utah (Clinical Psychology)

POSTGRADUATE TRAINING AND FELLOWSHIP APPOINTMENTS:

1999-01 Fellowship, Clinical Child (Pediatric) Psychology, Division of Oncology, The Children’s Hospital of Philadelphia (CHOP) 2002 Fellowship, National Institutes of Health, Summer Training Institute for Randomized Clinical Trials Involving Behavioral Interventions

FACULTY APPOINTMENTS: 2004-13 Assistant Professor of Clinical Psychology in Pediatrics – CHOP Perelman School of Medicine at the University of Pennsylvania 2010-12 Adjunct Faculty, Department of Psychology, Bryn Mawr College 2013 Associate Professor of Clinical Psychology in Pediatrics – CHOP Perelman School of Medicine at the University of Pennsylvania 2014-cont. Associate Professor of Pediatrics, Sidney Kimmel Medical College at Thomas Jefferson University HOSPITAL AND ADMINISTRATIVE APPOINTMENTS: 2001-13 Psychologist, Division of Oncology, CHOP 2006-13 Director, Psychology Postdoctoral Fellowship Training, CHOP 2007-08 Interim Director, Psychosocial Services, Division of Oncology, CHOP 2013-17 Senior Research Scientist, Nemours/A.I. duPont Hospital for Children 2018-cont. Principal Research Scientist, Nemours Children’s Health System/A.I.

duPont Hospital for Children

Melissa A. Alderfer, Ph.D. Page 2 SPECIALTY CERTIFICATION: None LICENSURE: 2002-cont. Pennsylvania (Psychologist) AWARDS, HONORS AND MEMBERSHIP IN HONORARY SOCIETIES:

1993 Graduate Instructor Teaching Award, Psi Chi Honor Society, University of Utah 1993 Routh Student Research Award, Society of Pediatric Psychology 1993 Teaching Commendation and Service Commendation, Department of

Psychology, University of Utah 1994 Commendation for Overall Performance on Preliminary Examination

(advancement to Ph.D. candidacy exam), with High Pass distinctions on Research Design, Psychopathology, and Health Psychology

1994 Eccles Fellowship, Mariner S. Eccles Foundation for Political Economy, University of Utah

1995 B. Jack White Award for Academic, Research, and Service Excellence, Department of Psychology, University of Utah

1995 Professional Development Award, Scholarly Accomplishments Commendation, and Service Commendation, Department of Psychology, University of Utah

1995 Utah Psychological Association Graduate Research Award 2000 Best Model of Interdisciplinary Collaboration, Leadership

Education in Neuro-developmental and Related Disabilities Research Day, Children’s Hospital of Philadelphia

2002 National Cancer Institute/American Cancer Society scholarship to attend the 2002 Cancer Survivorship Conference: Resilience

Across the Lifespan, Washington, DC 2003 Research Award, The Eunice & Irving Leopold Annual Scientific Symposium and Retreat, Abramson Cancer Center 2003 NIH Loan Repayment Program for Clinical Researchers (renewed five

times with funding approved through 2012) 2005 Research Award, The Eunice & Irving Leopold Annual Scientific Symposium and Retreat, Abramson Cancer Center 2007 Routh Early Career Award, Society of Pediatric Psychology 2010 Meritorious Research Award, The 5th Biennial Cancer Survivorship

Research Conference: Recovery and Beyond, 2010 2011 Recognition for Outstanding Service and Dedication to the Child and

Family Health Special Interest Group, Society of Behavioral Medicine 2013 Health Psychology Editorial Appreciation Award 2015 Honorable Mention, Diane Willis Award (most outstanding paper

published in Journal of Pediatric Psychology), Society of Pediatric Psychology for: Rohan, J., Drotar, D., Alderfer, M.A., Donewar, C., Ewing, L., Katz, E., & Muriel, A. (2015). Electronic monitoring of medication adherence in early maintenance phase treatment for pediatric leukemia and lymphoma: Identifying patterns of nonadherence. Journal of Pediatric Psychology, 40, 75-84.

2016 Fellow, American Psychological Association, Division 54 2017, 2018 Best Poster Awards, the Annual Cardiac Neurodevelopmental

Symposium, Cardiac Neurodevelopmental Outcome Collaborative

Melissa A. Alderfer, Ph.D. Page 3 MEMBERSHIPS IN PROFESSIONAL AND SCIENTIFIC SOCIETIES: National Societies: American Psychological Association (APA), 1989-continuing Society of Pediatric Psychology (SPP), APA Division 54, 1989-continuing Health Psychology, APA Division 38, 2008-continuing Society of Behavioral Medicine PROFESSIONAL AND SCIENTIFIC COMMITTEES:

National Societies: Society of Pediatric Psychology (SPP), APA Division 54, Chair, Family Assessment Work Group, Measures Task Force, 2003-2007 Reviewer, SPP Student Research Award and Travel Award, 2005-2013 Mentor, SPP Mentoring Project, 2005-continuing Member, Pediatric Psychology Identity Task Force, 2006-2007 Reviewer, SPP Program Committee, APA Annual Convention, 2007-08; 2013-15 Reviewer, SPP Annual Conference, 2012-14 Member, Targeted Research Grant Review Committee, 2013-continuing

Liaison to Society of Behavioral Medicine, 2018-continuing SPP Member, Committee petitioning the Commission for the Recognition of Specialties and Proficiencies in Professional Psychology for Renewal of Recognition of Clinical Child Psychology as a Specialty, 2018-continuing

Health Psychology, APA Division 38, Reviewer, Div 38 Student Research Award, 2008-11

Society of Behavioral Medicine Founder & Chair, Child & Family Health Special Interest Group, 2005-10

Member, Special Interest Group Council, 2005-10 Reviewer, Child & Family Health SIG Student Research Award, 2005-12

Programming Committee, Co-chair/Chair Lifespan Track, 2008-11 Steering Committee, Child & Family Health Special Interest Group, 2010-13 American Cancer Society Palliative Care and Symptom Management Peer Review Committee, 2017-21

Professional Organizations/Committees: Sibling Partnership for Advocacy, Research and Care in Childhood Cancer (SPARCCC)

Chair, 2005-continuing (previously Sibling Research Advisory Committee, SRAB) Alliance for Quality Psychosocial Care, Research & Demonstration Committee, 2009-2011 Coalition Against Childhood Cancer (CAC2), 2018-continuing EDITORIAL POSITIONS: Associate Editor: 2016-cont. Psychological Services 2017-cont. Journal of Pediatric Psychology

Melissa A. Alderfer, Ph.D. Page 4 EDITORIAL POSITIONS (continued): Special Issue/Section Editor: 2011 “Family Assessment in Pediatric Psychology,” Journal of Pediatric Psychology 2017 “Using Qualitative Research Methods to Improve Clinical Care” Clinical Practice in Pediatric Psychology 2018 “Trauma-Informed Care for Children and Families” Psychological Services Editorial Boards: 2006-2017 Journal of Pediatric Psychology 2010-2016 Health Psychology 2012-2016 Journal of Family Psychology Ad Hoc Reviewer: 1994-2010 Health Psychology 1999-2006 Journal of Pediatric Psychology

2003-2012 Journal of Family Psychology 2003-cont. Annals of Behavioral Medicine 2005-cont. International Journal of Nursing Studies 2005-cont. Journal of Clinical Psychology in Medical Settings 2005-cont. Pediatrics 2006 Canadian Journal of Behavioural Science 2006-cont. Journal of Family Nursing 2006-cont. Pediatric Blood & Cancer 2007-cont. Journal of Consulting and Clinical Psychology 2008-cont. Journal of Marital and Family Therapy 2008-cont. Pediatric Hematology & Oncology 2008-cont. Psycho-Oncology 2009 Biology of Blood and Marrow Transplantation 2009 Bone Marrow Transplantation 2010 Journal of Applied Developmental Psychology 2011 Leukemia Research and Treatment 2011-cont. Journal of Adolescent and Young Adult Oncology 2011 Journal of Pediatrics 2012 Acta Paediatrica 2012 International Journal of Adolescent Medicine and Health 2013 American Psychologist 2013-cont. Children’s Health Care 2013 Journal of Clinical Child and Adolescent Psychiatry 2018 Journal of Cancer Education 2018 Clinical Genetics

ACADEMIC COMMITTEES:

2001-13 Faculty Member, Training Committee, Department of Child and Adolescent Psychiatry and Behavioral Sciences, CHOP

2006-13 Faculty Member, Abramson Cancer Center, University of Pennsylvania (Penn) 2006-13 Member, Institute for Translational Medicine and Therapeutics, Penn

2008-13 Pediatric Protocol Review Committee, Division of Oncology, CHOP

Melissa A. Alderfer, Ph.D. Page 5 ACADEMIC COMMITTEES (continued): 2009-13 Member, Research Trainee Advisory Committee, CHOP 2016-cont. Member, Clinical Research Review Committee, Nemours 2018-cont. Member, Promotions Committee, Nemours

MAJOR RESEARCH MENTORING AND TEACHING RESPONSIBILITIES: 1. Research Mentor, Junior Faculty (2 total/current faculty members) Corinna Schultz, M.D., Assistant Professor of Pediatrics (Nov 2015-cont.) Mentored Research Development Award,

Delaware Clinical Translational Research ACCEL Program Nemours/A.I. duPont Hospital for Children

Kristin Long, Ph.D., Assistant Professor (Jan 2015-cont.) Alex’s Lemonade Stand Foundation Psychosocial Launch Grant Department of Psychological and Brain Sciences

Boston University

2. Primary Mentor, Psychology Postdoctoral Fellows (7 total fellows) The Center for Healthcare Delivery Science, Nemours/A.I. duPont Hospital for Children Aimee Hildenbrand, Ph.D. (July 2017-June 2019) Naomi Knoble, Ph.D. (Aug. 2015-Dec. 2015) current position: Research Associate, Mapi Group, Boston, MA Division of Oncology, The Children’s Hospital of Philadelphia

Leela Banerjee Jackson, Psy.D., (Sept. 2008-Nov. 2010); current position: Assistant Professor of Clinical Psychology in Psychiatry,

Perelman School of Medicine, University of Pennsylvania Clinical Psychologist, Department of Child &Adolescent Psychiatry & Behavioral Sciences, CHOP, Philadelphia, PA

Caroline Stanley, Ph.D., (Sept. 2007-Aug. 2009); current position: Assistant Professor, Department of Psychology,

Bridgewater State University, Bridgewater, MA Neha Navsaria, Ph.D. (Sept. 2007-Aug. 2008);

current position: Assistant Professor of Psychiatry (child), Division of Child Psychiatry School of Medicine, Washington University in St. Louis, St. Louis, MO

Lynne Kaplan, Ph.D. (Sept. 2005-Aug. 2007); current position: Clinical Psychologist II, Division of Oncology, CHOP Rowena Conroy, Ph.D. (Sept 2005-June 2007);

current position: Senior Clinical Psychologist and Coordinator of Education and Training in Psychology, Royal Children’s Hospital, Melbourne Coordinator of Postgraduate Child Clinical Psychology Training Department of Psychology, University of Melbourne, Australia

3. Research Mentor, Psychology Interns, Department of Child and Adolescent Psychiatry and Behavioral Sciences, CHOP (3 total interns): Jade Bender, Oncology Research Rotation (July 2010-June 2011) Meghan Marsac, Oncology Research Rotation (July 2007-June 2008) Diana Shellmer, Oncology Research Rotation (July 2003-June 2004)

Melissa A. Alderfer, Ph.D. Page 6 MAJOR RESEARCH MENTORING AND TEACHING RESPONSIBILITIES (continued): 4. Dissertation/Thesis Committee Research Mentor (2 current, 8 total graduate students) Lara Aunio, Department of Psychology, LaSalle University, Philadelphia, PA (April 2015 – defense; Doctoral Dissertation)

Cortney Reick, Institute for Graduate Clinical Psychology, Widener University, Chester, PA (November 2014 – April 2016; Doctoral Dissertation)

Marieke Van Schoors, Department of Experimental-Clinical and Health Psychology Ghent University, Belgium (January 2014 – defense; Doctoral Dissertation)

Whitney Kvistad, MSN, Masters of Nursing Program, University of Minnesota, Minneapolis, MN (September 2013 – December 2013; Masters Capstone Project)

Amanda Banes, Department of Psychology, LaSalle University, Philadelphia, PA (March 2012 – August 2015; Doctoral Dissertation) Kate Samson, Psy.D., Institute for Graduate Clinical Psychology, Widener University, Chester,

PA (May 2011 – March 2013; Doctoral Dissertation) Kristin Long, Ph.D., Department of Psychology, University of Pittsburgh, Pittsburgh, PA (June 2010 – June 2012; Masters Thesis and Doctoral Dissertation) Jilda Hodges, Ph.D., Department of School Psychology, Lehigh University, Bethlehem, PA

(September 2009 – April 2012; Masters Thesis and Doctoral Dissertation) 5. Undergraduate, Post-Baccalaureate and Graduate Student Research Supervisor (~35 total since 2004)

6. Course Coordination and Teaching Nemours Children’s Health System/A.I. duPont Hospital for Children:

Course Coordinator, Responsible Conduct of Research, Nemours Biomedical Research, (2014-cont.; 4 hour seminars, two sessions per year, 30-50 participants)

Course Coordination and Lecturer, The Center for Healthcare Delivery Science Team Meeting, (2014-2015.; 1 hour presentations, weekly, 10-15 participants)

Lecturer, Psychology Fellow and Residents Professional Development Seminar (2015-cont.; 2 hour presentation, once per year, 15-20 students) Lecturer, Pediatric Clinical Fellows Seminar: “Ethics in Research” (2016-cont.; 1 hour presentation, once per year, ~15 students) Lecturer, Nemours Summer Undergraduate Research Program (NSURP) Seminar: “Ethics in

Research” (2016-cont; 1 hour presentation, once per year, ~30 students) The Children’s Hospital of Philadelphia/University of Pennsylvania/Other:

Course Coordinator and Lecturer, Psychology Fellows’ Forum, CHOP (May 2003-July 2013; 1-2 hour sessions, 1-2 times/month; lectured twice per year; 5-12 fellows)

Lecturer, Professional Development Seminar, Psychology Internship Training Program, CHOP (March 2004-Dec. 2012; 1 hour presentations, once or twice per year; 5-6 participants)

Lecturer, N818: Families and Research, University of Pennsylvania School of Nursing (March 2010, March 2012; 2 hour presentations, once per year, ~10 students) Lecturer, Psy280-910: Developmental Psychology, University of Pennsylvania (June 2011; 3 hour presentation, once, 25 students) Course Coordinator, Pediatric Psychology Group Supervision for Trainees, Department of

Psychology, CHOP (July 2004-July 2007; 1 hour sessions, once per month; 7 students) Coordinator, Psychosocial Topics, Oncology Journal Club, Division of Oncology, CHOP (July 2004-July 2007; 1 hour sessions, 4 times/year; 10-20 participants) Lecturer, Child and Adolescent Psychiatry Residency Didactic Program, CHOP (Nov. 2003,

Sept. 2005, July 2006; 2 hour presentations, once per year, 5 students)

Melissa A. Alderfer, Ph.D. Page 7

MAJOR RESEARCH MENTORING AND TEACHING RESPONSIBILITIES (continued):

6. Course Coordination and Teaching (continued) The Children’s Hospital of Philadelphia/University of Pennsylvania/Other (continued): Lecturer, Pediatric Acute-Chronic Care Nurse Practitioner Program, Penn Nursing (Oct. 2001; 2

hour presentation, once, 20 students) Course Coordinator and Lecturer, Psych346: Pediatric Psychology, Bryn Mawr College (Fall 2010, Fall 2011; 3 hour sessions, 4 times/month, 4 months/year; 20-25 students)

MAJOR CLINICAL RESPONSIBILITIES AND CLINICAL SUPERVISION: 1. Direct Clinical Service Roles and Responsibilities: Licensed Clinical Psychologist, Division of Oncology, CHOP (Jan. 2002-Sept. 2013) Neurocognitive Assessment Coordinator, Division of Oncology, CHOP (Sept. 2004-June 2012) Interim Director of Psychosocial Services, Division of Oncology, CHOP (June 2007-Oct. 2008)

2. Clinical Supervision, Psychology Postdoctoral Fellows, Division of Oncology, CHOP (6 total): Lauren Daniel, Ph.D., Neurocognitive Assessment (Sept. 2012-Aug. 2013) Matthew Hocking, Ph.D., Neurocognitive Assessment (Sept. 2009-Sept. 2012) Leela Banerjee Jackson, Psy.D., Neurocognitive Assessment (Sept. 2008-Nov. 2010) Meghan Marsac, Ph.D., Consultation, Therapy & Assessment (July 2008-Dec. 2009) Caroline Stanley, Ph.D., Consultation, Therapy & Assessment (Sept. 2007-Aug. 2009) Neha Navsaria, Ph.D., Neurocognitive Assessment (Sept. 2007-Aug. 2008)

3. Clinical Supervision, Psychology Interns, Department of Child and Adolescent Psychiatry and Behavioral Sciences, CHOP (8 total): Allison Smith, Oncology Assessment Rotation (Jan. 2013-June 2013) Traci Kennedy, Oncology Assessment Rotation (July 2012-Dec. 2012) Prerna Arora, Oncology Assessment Rotation (Jan. 2012-June 2012) Josie Welkom, Oncology Assessment Rotation (July 2011-Dec. 2011) Lauren Krumholz, Oncology Assessment Rotation (Jan. 2011-June 2011) Jade Bender, Oncology Assessment Rotation (July 2009-June 2010) Clorinda Velez, Oncology Assessment Rotation (July 2009-Dec 2009) Yamalis Diaz, Oncology Assessment Rotation (July 2008-Dec 2008) 4. Clinical Supervision, Practicum Students, Division of Oncology Neurocognitive Assessment Practicum, CHOP (7 total): Douglas Kawka, Widener University Clinical Psychology Program (Sept. 2012-June 2013) Jill Hersh, Immaculata University Clinical Psychology Program (June 2012-June 2013) Rachel Eisenberg, Lehigh University School Psychology Program (Sept. 2011-Aug. 2012) Jennifer Bubier, Temple University Clinical Psychology Program (July 2008-June 2009) Shilpee Tiwari, Temple University Clinical Psychology Program (Sept. 2007-June 2008) Kelly Foran, LaSalle University Clinical Psychology Program (Sept. 2007-June 2008) Jilda Hodges, Lehigh University School Psychology Program (Sept. 2005-June 2006)

LECTURES BY INVITATION:

July 17, 2004 “Emotional Effects of Childhood Cancer on Children and Families,” (invited address), Children’s Neuroblastoma Conference, Chicago, IL

Melissa A. Alderfer, Ph.D. Page 8 LECTURES BY INVITATION (continued):

Aug 12, 2006 “Writing Grants that Get Funded: Tips and Techniques,” (invited talk). APA Division 54: Pediatric Psychology Hospitality Suite, The Annual Convention of the American Psychological Association, New Orleans, LA Jan 14, 2008 “Application of the Social Ecology Model to Understand, Predict and Influence

Responses to Childhood Chronic Illness,” (invited talk), Department of Psychology, Case Western Reserve University, Cleveland, OH

April 25, 2008 “Childhood Cancer as a Traumatic Family Event,” (psychiatry grand rounds), Memorial Sloan Kettering Cancer Center, New York, NY May 15, 2008 “Evidence-Based Psychosocial Practice in Pediatric Oncology,” (invited address), the Annual Conference of the Association of Pediatric Oncology Social Workers, Bar Harbor, ME

Nov 15, 2008 “Psychosocial Support for Children with Cancer and Their Families: The Psychosocial Services Program at The Children’s Hospital of Philadelphia,” (invited address), The 40th Annual Conference of the Children’s Cancer Association of Japan, Makuhari, Chiba, Japan

June 27, 2009 “Coping with Cancer” (keynote speech), Alex’s Lemonade Stand Foundation Childhood Cancer Symposium, Philadelphia, PA

June 27, 2009 “Sibling Issues,” (break-out session), Alex’s Lemonade Stand Foundation Childhood Cancer Symposium, Philadelphia, PA April 10, 2010 “Publishing 101,” (breakfast roundtable talk), Student Special Interest Group, the 31st Annual Meeting and Scientific Sessions of the Society of Behavioral Medicine, Seattle, WA

June 10, 2010 “Cancer-related Traumatic Stress in Siblings of Children with Cancer,” (invited talk), Center for Pediatric Traumatic Stress, 2010 Trauma Training Institute, Philadelphia, PA

July 18, 2010 “Childhood Cancer as a Traumatic Family Event: Coping with the Emotional Impact of Childhood Cancer,” (invited address), Children’s Neuroblastoma Conference, Chicago, IL Aug 12, 2010 “Parenting Adolescents in Chronic Illness Contexts: Families Resilient and at Risk,”

(discussant), The Annual Convention of the American Psychological Association, San Diego, CA

Nov 12, 2010 “Survivors and Families: Living the Cure,” (keynote speech), Childhood Cancer Survivorship and Wellness Conference, University of Alabama at Birmingham, Division of Pediatric Hematology/Oncology, Birmingham, AL

June 18, 2011 “Cancer-related Traumatic Stress” (keynote speech), Alex’s Lemonade Stand Foundation Childhood Cancer Symposium, Philadelphia, PA


April 20, 2012 “Pediatric Medical Traumatic Stress: A Toolkit for Professionals,” (invited address),

2012 Perspectives in Care Symposium: Medical Trauma in Childhood, La Rabida Children’s Hospital, Chicago, IL

April 20, 2012 “Assessing Psychosocial Risk and Resilience,” (invited talk), Nursing track presentation,

2012 Perspectives in Care Symposium: Medical Trauma in Childhood, La Rabida Children’s Hospital, Chicago, IL

April 2, 2013 “Psychosocial Impact of Pediatric Cancer on the Family Unit,” (keynote address),

Marjean Reed Cancer Conference, Des Moines University, Des Moines, IA April 3, 2013 “Teenagers and Cancer: Perspectives of Patients, Parents and Siblings,” (clinic grand

rounds), Des Moines University, Des Moines, IA Oct 26, 2013 “In Their Own Words: Parents Decisions Regarding Testing their Children for LFS,” (invited talk), Li Fraumeni Syndrome Association Conference, Boston, MA

Mar 18, 2014 “Researching families in pediatric oncology: Intersections with policy,” (invited lecture),

N818: Families and Research, University of Pennsylvania School of Nursing, Philadelphia, PA

June 6, 2014 “Pediatric Medical Traumatic Stress,” (invited talk), 3rd Annual Cardiac

Neurodevelopmental Symposium, Children’s Healthcare of Atlanta, Atlanta, GA

Aug 2, 2014 “Cancer’s Effect on Families,” (invited talk), Alex’s Lemonade Stand Foundation Childhood Cancer Symposium, Philadelphia, PA

Aug 7, 2014 “Parents of a Critically Ill or Injured Child – Psychosocial adjustment and intervention,”

(symposium discussant), Annual Convention of the American Psychological Association, Washington, DC

Jan 22, 2015 “Nemours Center for Healthcare Delivery Science” (showcase presentation), Nemours

Neuroscience Retreat, Wilmington, DE April 8, 2015 “Improving Healthcare Delivery: Understanding and enhancing the reciprocal

relationships between families and pediatric healthcare,” (podium presentation), Nemours Biomedical Research Faculty Meeting, Wilmington, DE

Aug 17, 2016 “Family Centered Care: Where are the Healthy Siblings?” (grand rounds), Nemours

Children’s Health System, Wilmington, DE Sept 17, 2016 “Integrating a Trauma-Informed Care Approach into Pediatric Medicine” (pre-

conference workshop), Society for Developmental and Behavioral Pediatrics Annual Meeting, Savannah, GA

June 3, 2017 “Psychological Challenges for Families of Children with Cancer” (invited talk),

Childhood Leukemia Early Adverse Reactions Conference, Elsinore, Denmark


Nov 10, 2017 “Developmental Outcomes for Infants with Cancer; Understudied and Underserved?” (plenary talk), Pediatric Oncology Group of Ontario 2017 Symposium, Toronto, Canada

Nov 11, 2017 “Developmental and Psychosocial Aspects of Caring for Infants with Cancer”

(workshop), Pediatric Oncology Group of Ontario 2017 Symposium, Toronto, Canada Mar 20, 2018 “Family strategies to support siblings of pediatric hematopoietic stem cell transplant

patients” (invited talk), 44th Annual Meeting of the European Society for Bone and Marrow Transplantation, Lisbon, Portugal

May 7, 2018 "Family Centered Care for Children with Special Healthcare Needs: Where are their Siblings?” (grand rounds), Children’s National Medical Center, Washington, D.C.

Sept 20, 2018 “Publishing in the Journal of Pediatric Psychology” (invited workshop), European

Pediatric Psychology Conference, Ghent, Belgium

ORGANIZING ROLES IN SCIENTIFIC MEETINGS: March 27-29, 2008 “Celebrating the Past, Inspiring the Future” 29th Annual Meeting and Scientific Sessions, Special Interest Group Liaison to the Programming Committee. Society of Behavioral Medicine, San Diego, CA April 22-27, 2009 “Behavioral Medicine: From Science to Practice to Policy” 30th Annual Meeting and Scientific Sessions, Program Committee Co-Chair, Lifespan Track. Society of Behavioral Medicine, Montreal, Canada

April 7-10, 2010 “Behavioral Medicine: Building for the Future” 31st Annual Meeting and Scientific Sessions, Program Committee Chair, Lifespan Track. Society of Behavioral Medicine, Seattle, WA

April 27-30, 2011 “Behavioral Medicine: Accelerating our Impact on the Public’s Health” 32nd

Annual Meeting and Scientific Sessions, Program Committee Chair, Lifespan Track, Society of Behavioral Medicine, Washington, DC

April 11-14, 2012 “Behavioral Medicine: Engaging New Partners and Perspectives” 33rd Annual

Meeting and Scientific Sessions, Program Committee Chair, Lifespan Track, Society of Behavioral Medicine, New Orleans, LA

Nov 12-13, 2016 “Sibling Research Summit” Program co-Chair, Sibling Partnership for Advocacy, Research and Care in Childhood Cancer (SPARCCC) sponsored by Alex’s Lemonade Stand Foundation, Philadelphia, PA

March 22-24, 2018 “2018 SPARCCC International Sibling Summit” Program co-Chair, SPARCCC sponsored by Alex’s Lemonade Stand Foundation

April 28, 2018 “Family Research Workshop” research faculty, Children’s National Children’s

Hospital, Washington, D.C.

Melissa A. Alderfer, Ph.D. Page 11 BIBLIOGRAPHY:

PUBLICATIONS, PEER REVIEWED:

1. Kazak, A.E., Christakis, D., Alderfer, M.A., & Lawrence, M.J. (1994). Young adolescent cancer survivors and their parents: Adjustment, learning problems and gender. Journal of Family Psychology, 8, 74-84.

2. Wiebe, D.J., Alderfer, M.A., Palmer, S.C., Lindsay, R. & Jarrett, L. (1994). Behavioral self-regulation

in adolescents with Type I diabetes: Negative affectivity and blood glucose symptom perception. Journal of Consulting and Clinical Psychology, 62, 1204-1212.

3. Alderfer, M.A., Wiebe, D.J., & Hartmann, D.P. (2001). Social behavior and illness information interact

to influence the peer acceptance of children with chronic illness. British Journal of Health Psychology, 6, 243-255.

4. Kazak, A.E., Barakat, L.P., Alderfer, M.A., Rourke, M.T., Meeske, K., Gallagher, P., Cnaan, A., & Stuber, M.L. (2001). Posttraumatic stress in survivors of childhood cancer and their mothers: Development and validation of the Impact of Traumatic Stressor Interview Schedule (ITSIS). Journal of Clinical Psychology in Medical Settings, 8, 307-323. 5. Kazak, A.E., Prusak, A., McSherry, M., Simms, S., Beele, D., Rourke, M.T., Alderfer, M.A., & Lange, B. (2001). The Psychosocial Assessment Tool (PAT): Pilot data on a brief screening instrument for identifying high risk families in pediatric oncology. Family Systems and Health, 19, 303-315.

6. Alderfer, M.A., Wiebe, D.J., & Hartmann, D.P. (2002). Predictors of the peer acceptance of children

with diabetes: Social behavior and disease severity. Journal of Clinical Psychology in Medical Settings, 9, 121-130.

7. Alderfer, M.A., Labay, L., & Kazak, A.E. (2003). Does posttraumatic stress apply to siblings of childhood cancer survivors? Journal of Pediatric Psychology, 21, 281-286.

8. Kazak, A.E, Cant, C., Jensen, M., McSherry, M., Rourke, M.T., Hwang, W.T., Alderfer, M.A., Beele, D., Simms, S., & Lange, B. (2003). Identifying psychosocial risk indicative of subsequent resource utilization in families of newly diagnosed pediatric oncology patients. Journal of Clinical Oncology, 21, 3220-3225.

9. Hoehn, K., Wernovsky, G., Rychik, J., Tian, Z., Donaghue, D., Alderfer, M.A., Gaynor, J., Kazak, A.E., Spray, T., & Nelson, R. (2004). Parental decision-making in congenital heart disease. Cardiology in the Young, 14, 1-6.

10. Kazak, A.E., Alderfer, M.A., Rourke, M.T., Simms, S., & Streisand, R. & Grossman, J. (2004).

Posttraumatic stress symptoms (PTSS) and Posttraumatic Stress Disorder (PTSD) in families of adolescent cancer survivors. Journal of Pediatric Psychology, 29, 211-219.

11. Kazak, A.E., Alderfer, M.A., Streisand, R., Simms, S., Rourke, M.T., Barakat, L.P., Gallagher, P., & Cnaan, A. (2004). Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: A randomized clinical trial. Journal of Family Psychology, 18, 493-504.


PUBLICATIONS, PEER REVIEWED (continued):

12. Kazak, A.E, McClure, K., Alderfer, M.A., Hwang, W.T., Crump, T., Le, L., Deatrick, J., Simms, S., & Rourke, M.T. (2004). Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI). Journal of Pediatric Psychology, 29, 531-542.

13. Alderfer, M.A., Cnaan, A., Annunziato, R., & Kazak, A.E. (2005). Patterns of posttraumatic stress in parents of adolescent cancer survivors. Journal of Family Psychology, 19, 430-440.

14. Kazak, A.E., Simms, S., Alderfer, M.A., Rourke, M.T., Crump, T., McClure, K., Jones, P., Rodriguez, A., Boeving, C.A., Hwang, W.T., Reilly, A. (2005). Feasibility and preliminary outcomes from a pilot study of a brief psychological intervention for families of children newly diagnosed with cancer. Journal of Pediatric Psychology, 30, 644-655.

15. Kazak, A.E., Boeving., C.A., Alderfer, M.A., Whang, W.T., Reilly, A. (2005). Posttraumatic stress

symptoms (PTSS) during treatment in parents of children with cancer. Journal of Clinical Oncology, 23, 7405-7410. 16. Barakat, L.P., Alderfer, M.A., & Kazak, A.E. (2006). Posttraumatic growth in adolescent survivors of childhood cancer and their mothers and fathers. Journal of Pediatric Psychology, 31, 413-419.

17. Kazak, A.E., Kassam-Adams, N., Schneider, A., Zelikovsky, N., Alderfer, M.A., & Rourke, M.T. (2006). An integrative model of pediatric medical traumatic stress. Journal of Pediatric Psychology, 31, 343-349

18. Kazak, A.E., Rourke, M.T., Alderfer, M.A., Pai, A., Reilly, A., & Meadows, A.T. (2007). Evidence-based assessment, intervention, and psychosocial care in pediatric oncology: A blueprint for

comprehensive services across treatment. Journal of Pediatric Psychology, 32, 1099-1110. 19. Alderfer, M.A., Fiese, B., Gold, J., Cutuli, J.J., Holmbeck, G., Goldbeck, L., Chambers, C., Abad,

M., Spetter, D., & Patterson, J. (2008). Evidence based assessment in pediatric psychology: Family measures. Journal of Pediatric Psychology, 33, 1046-1061. 20. Butler, R., Sahler, O.J., Askins, M., Alderfer, M.A., Katz, E., Phipps, S., & Noll, R. (2008).

Interventions to improve neuropsychological functioning in childhood cancer survivors. Developmental Disabilities Research Reviews, 14: 251-258. 21. Pai, A., Patiño-Fernández, A.M., McSherry, M., Beele, D., Alderfer, M.A., Reilly, A., Hwang, W.T., & Kazak, A.E. (2008). The Psychosocial Assessment Tool (PAT2.0): Psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer. Journal of Pediatric Psychology, 33, 50-62. 22. Patiño-Fernández, A.M., Pai, A., Alderfer, M.A., Hwang, W.T., Reilly, A., Kazak, A.E. (2008). Acute stress in parents of children newly diagnosed with cancer. Pediatric Blood & Cancer, 50, 289-292. 23. Alderfer, M.A., Mougianis, I., Barakat, L.P., Beele, D., DiTaranto, S., Hwang, W.T., Reilly, A. & Kazak, A.E. (2009). Family psychosocial risk, distress and service utilization in Pediatric Cancer: Predictive validity of the Psychosocial Assessment Tool. CANCER, 115, 4339-4329. 24. Alderfer, M.A., Navsaria, N., & Kazak, A.E. (2009). Family functioning and posttraumatic stress disorder in adolescent survivors of childhood cancer. Journal of Family Psychology, 23, 717-725.


PUBLICATIONS, PEER REVIEWED (continued): 25. Iobst, E.A., Alderfer, M.A., Sahler, O.J., Askins, M., Fairclough, D., Katz, E., Butler, R., Dolgin, M. & Noll, R. (2009). Problem solving and maternal distress at time of a child's diagnosis of cancer in two- parent versus lone-parent households. Journal of Pediatric Psychology, 34, 817-821. 26. Jobe-Shields, L., Alderfer, M.A., Barrera, M., Vannatta, K., & Phipps, S. (2009). Parental depression and family environment predict distress in children undergoing stem-cell transplantation. Journal of Developmental and Behavioral Pediatrics, 30, 140-146. 27. Lutz Stehl, M., Kazak, A.E., Alderfer, M.A., Rodriguez, A., Hwang, W.T., Pai, A., Boeving, C.A. &

Reilly, A. (2009). The feasibility of conducting a randomized clinical trial of an intervention for parent caregivers of children newly diagnosed with cancer. Journal of Pediatric Psychology, 34, 803-816.

28. Alderfer, M.A. & Hodges, J. (2010). Supporting siblings of children with cancer: A need for family- school partnerships. School Mental Health, 2, 72-81.

29. Alderfer, M.A., Long, K.A., Lown, E.A., Marsland, A., Ostrowski, N., Hock, J., & Ewing, L. (2010). Psychosocial adjustment of siblings of children with cancer: A systematic review. Psycho-oncology, 19, 789-805

30. Phipps, S., Barrera, M., Vannatta, K., Xiong, X., Doyle, J., & Alderfer, M.A. (2010). Complementary therapies for children undergoing stem cell transplant: Report of a multisite trial. CANCER, 116, 3924-3933.

31. Buchbinder, D., Casillas, J., Krull, K., Goodman, P., Leisenring, W., Recklitis, C., Alderfer, M.A., Robison, L., Armstrong, G., Kunin-Batson, A., Stuber, M. & Zeltzer, L. (2011). Psychological outcomes of siblings of cancer survivors: A report from the Childhood Cancer Survivor Study. Psycho- Oncology, 20, 1259-1268.

32. Hildenbrand, A., Clawson, K., Alderfer, M.A., Marsac, M. (2011). Coping with pediatric cancer:

Strategies employed by children and their parents to manage cancer-related stressors during treatment. Journal of Pediatric Oncology Nursing, 28, 344-354. 33. Power, T., Robins, P., Rourke, M.T., & Alderfer, M.A. (2011). Determining readiness for pre-doctoral training: The process of developing a screening measure. Journal of Clinical Psychology, 67, 6-16.

34. Kazak, A.E., Barakat, L.P., Ditaranto, S., Biros, D., Hwang, W.T., Beele, D., Kersun, L., Alderfer, M.A., Mougianis, I., Hocking, M. & Reilly, A. (2011). Screening for psychosocial risk at pediatric cancer diagnosis: The Psychosocial Assessment Tool. Journal of Pediatric Hematology/Oncology, 33, 289-294.

35. Marsac, M. & Alderfer, M.A. (2011). Psychometric properties of the FACES-IV in a pediatric oncology

population. Journal of Pediatric Psychology, 36, 528-538.

36. Buchbinder, D., Mertens, A., Zeltzer, L., Leisenring, W., Goodman, P., Lown, E.A., Alderfer, M.A., Recklitis, C., Oeffinger, K., Armstrong, G., Hudson, M., Robison, L., & Casillas, J. (2012). Cancer prevention and screening practices of siblings of childhood cancer survivors: A report from the Childhood Cancer Survivor Study. Cancer Epidemiology, Biomarkers & Prevention, 21, 1078-1088.


PUBLICATIONS, PEER REVIEWED (continued): 37. Kazak, A.E., Brier, M., Alderfer, M.A., Reilly, A., Fooks Parker, S., DiTaranto, S., & Barakat, L.P. (2012). Screening for psychosocial risk in pediatric cancer. Pediatric Blood and Cancer, 59, 822-827. 38. Marsac, M., Hildenbrand, A., Clawson, K., Jackson, L., Kohser, K., Barakat, L.P., Kassam-Adams, N., Aplenc, R., Vinsel, A., & Alderfer, M.A. (2012). Acceptability and feasibility of family use of the Cellie Cancer Coping Kit. Supportive Care in Cancer, 20, 3315-3324. 39. Pentz, R., Pelletier, W., Alderfer, M.A., Stegenga, K., Fairclough, D. & Hinds, P. (2012). Shared decision-making in pediatric oncology allogeneic blood and marrow transplantation: What if there is no decision to make? The Oncologist, 17, 881-885. 40. Phipps, S., Peasant, C., Barrera, M., Alderfer, M.A., Huang, Q., & Vannatta, K. (2012). Resilience in children undergoing stem cell transplantation: Results of a complementary intervention trial. Pediatrics, 129, e762-770. 41. Kaplan, L.M., Kaal, K.J., Bradley, L., & Alderfer, M.A. (2013). Cancer-related traumatic stress reactions in siblings of children with cancer. Families, Systems, & Health, 31, 205-217. 42. Long, K.A., Alderfer, M.A.. Ewing, L., & Marsland, A. (2013). The role of contextual threat in predicting self-reported distress among siblings of children with cancer. Journal of Clinical Psychology in Medical Settings, 20, 199-208. 43. Long, K.A., Marsland, A., & Alderfer, M.A. (2013). Cumulative family risk predicts sibling adjustment to childhood cancer. CANCER, 119, 2503-2510. 44. Lindwall, J., Russel, K., Huang, Q., Zhang, H., Vannatta, K., Barrera, M., Alderfer, M.A., Phipps, S. (2014). Adjustment in parents of children undergoing stem cell transplantation. Biology of Blood & Marrow Transplantation, 20, 543-548. 45. Hildenbrand, A., Alderfer, M.A., Deatrick, J., & Marsac, M. (2014). A mixed-methods assessment of coping with pediatric cancer. Journal of Psychosocial Oncology, 32, 37-58. 46. Marsac, M.L., Klingbeil, O.G., Hildenbrand, A.K., Alderfer, M.A., Kassam-Adams, N., Smith-Whitley,

K., & Barakat, L.P. (2014). The Cellie Coping Kit for Sickle Cell Disease: Initial acceptability and feasibility. Clinical Practice in Pediatric Psychology 2, 389-399. doi: 10.1037/cpp0000062

47. Pelletier, W., Hinds. P., Alderfer, M.A., Fairclough, D., Stegenga, K., & Pentz, R. (2014). Themes

reported by families as important when proceeding with pediatric hematopoietic stem cell transplantation. Pediatric Blood and Cancer, 61, 1625-1631.

48. Pentz, R., Alderfer, M.A., Pelletier, W., Stegenga, K., Haight, A., Hendershot, K., Dixon, M.,

Fairclough, D. & Hinds, P. (2014). Concerns and unmet needs of siblings of children undergoing a hematopoietic stem cell transplant: Do they need an independent advocate? Pediatrics, 133, e1156-e1162.

49. Alderfer, M.A., Stanley, C., Conroy, R., Long, K.A., Fairclough, D.L., Kazak, A.E., & Noll, R.B.

(2015). The social functioning of siblings of children with cancer: A multi-informant investigation. Journal of Pediatric Psychology, 40, 309-313. doi:10.1093/jpepsy/jsu079Y


PUBLICATIONS, PEER REVIEWED (continued):

50. Alderfer, M.A., Zelley, K., Lindell, R.B., Novokmet, A., Mai, P.L., Garber, J.E., Nathan, D., Scollon, S., Chun, N.M., Patenaude, A.F., Ford, J.M., Plon, S.E., Schiffman, J.D., Diller, L.R., Savage, S.A., Malkin, D., Ford, C.A., & Nichols, K. (2015). Parent decision making around the genetic testing of their children for germline TP53 mutations. Cancer, 121, 286-293. doi: 10.1002/cncr.29027

51. Gerhardt, C., Lehmann, V., Long, K.A., & Alderfer, M.A. (2015). Supporting siblings as a standard of

care in pediatric oncology. Pediatric Blood & Cancer, 62, S678–S732 . doi: 10.1002/pbc.25821 52. Hildenbrand, A., Barakat, L.P., Alderfer, M.A., & Marsac, M. (2015). Coping and coping assistance

among children with sickle cell disease and their parents. Journal of Pediatric Hematology/Oncology, 37, 25-34.

53. Long, K.A., Goldish, M., Lown, E.A., Ostrowski, N., Alderfer, M.A., Marsland, A., Ring, S., Skala, S., & Ewing, L. (2015). Major lessons learned from a nationally-based community-academic partnership: Addressing sibling adjustment to childhood cancer. Families, Systems, & Health, 33, 61-67.

54. Rohan, J., Drotar, D., Alderfer, M.A., Donewar, C., Ewing, L., Katz, E., & Muriel, A. (2015). Electronic monitoring of medication adherence in early maintenance phase treatment for pediatric leukemia and lymphoma: Identifying patterns of nonadherence. Journal of Pediatric Psychology, 40, 75-84.

55. Van Schoors. M., Caes, L., Verhofstadt, L.L., Goubert, L. & Alderfer, M.A. (2015). Systematic Review:

Family resilience after pediatric cancer diagnosis. Journal of Pediatric Psychology, 40, 856-868. doi:10.1093/jpepsy/jsv055.

56. Buchbinder, D., Oeffinger, K., Franco-Villalobos, C., Yasai, Y., Alderfer, M.A., Armstrong, G.T.,

Casillas, J., Ford, J., Krull, K., Leisenring, W., Recklitis, C., Robison, L.L., Zeltzer, L., & Lown, E.A. (2016). Tobacco use among siblings of childhood cancer survivors: A report from the Childhood Cancer Survivor Study. Pediatric Blood and Cancer, 63, 326-333. doi: 10.1002/pbc.25719

57. Knoble, N., Alderfer, M.A., Hossain, M.J. (2016). Socioeconomic status (SES) and childhood acute

myeloid leukemia (AML) mortality risk: Analysis of SEER data. Cancer Epidemiology, 44, 101-108. doi: 10.1016/j.canep.2016.07.007

58. Price, J., Kassam-Adams, M., Alderfer, M.A., Christofferson, J. & Kazak, A.E. (2016). Systematic

review: A re-evaluation and update of the Integrative (Trajectory) Model of Pediatric Medical Traumatic Stress. Journal of Pediatric Psychology, 41, 86-97. doi:10.1093/jpepsy/jsv074

59. Samson, K., Rourke, M. T. & Alderfer, M.A. (2016). A qualitative analysis of the impact of childhood

cancer on the lives of siblings at school, in extra-curricular activities and with friends. Clinical Practice in Pediatric Psychology, 4, 362-372. doi:10.1037/cpp0000161

60. Santos, S., Crespo, C., Canavarro, M. C., Alderfer, M. A., & Kazak, A. E. (2016). Family rituals,

financial burden, and mothers’ adjustment in pediatric cancer. Journal of Family Psychology, 30, 1008-1013. doi:10.1037/fam0000246

Melissa A. Alderfer, Ph.D. Page 16 PUBLICATIONS, PEER REVIEWED (continued):

61. Alderfer, M.A., Lindell, R. B., Viadro, C., Zelley, K., Valdez, J., Mandrell, B., Ford, C., & Nichols, K., (2017). Should genetic testing be offered for children? The perspectives of adolescents and emerging adults in families with Li-Fraumeni Syndrome. Journal of Genetic Counseling. 26(5), 1106-1115. doi: 10.1007/s10897-017-0091-x.

62. Long, K.A., Pariseau, A.C., Muriel, A.C., Chu, A., Kazak, A.E., Leon, M., & Alderfer, M.A. (2017).

Psychosocial screening for siblings of children with cancer: Barriers and Preferences. Clinical Practice in Pediatric Psychology, 5(4), 364-375.

63. Pierce, L., Hocking, M. C., Schwartz, L.A., Alderfer, M.A., Kazak, A.E., & Barakat, L. P. (2017).

Caregiver distress and patient health-related quality of life: Psychosocial screening during pediatric cancer treatment. Psycho-oncology, 26, 1555-1561. doi:10.1002/pon.4171

64. Rohan, J.M., Fukuda, T., Alderfer, M.A., Donewar, C.W., Ewing, L., Katz, E.R., Muriel, A.C., Vinks,

A.A., & Drotar, D. (2017). Measuring medication adherence in pediatric cancer: An approach to validation. Journal of Pediatric Psychology, 42, 232-244. doi:10.1093/jpepsy/jsw039

65. Van Schoors, M., Caes, L., Alderfer, M.A., Goubert, L., & Werhofstadt, L. (2017). Couple functioning

after pediatric cancer diagnosis: A systematic review. Psycho-oncology, 26(5): 608-616. doi:10.1002/pon.4204

66. Van Schoors. M., Caes, L., Knoble, N., Verhofstadt, L.L., Goubert, L. & Alderfer, M. A. (2017). Associations between family functioning and child adjustment after pediatric cancer diagnosis: A meta- analysis. Journal of Pediatric Psychology, 42, 6-18. doi:10.1093/jpepsy/jsw070 67. White, T., Hendershot, K., Dixon, M., Pelletier, W., Haight, A., Stegenga, K., Alderfer, M.A., Cox, L., Switchenko, J., Hinds, P., & Pentz, R. (2017). Family strategies to help siblings of pediatric hematopoietic stem cell transplant patients. Pediatrics, 139(2),e20161057. doi: 10.1542/peds.2016-1057

68. Long, K.A., Lehmann, V., Marsland, A., Gerhardt, C., & Alderfer, M.A. (2018). Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review. Psycho-Oncology epub ahead of publication. https://doi.org/10.1002/pon.4669

69. Long, K., Pariseau, E., Muriel, A., Chu, A., Kazak, A., & Alderfer, M.A. (2018). Development of a

psychosocial risk screener for siblings of children with cancer: Incorporating the perspectives of parents. Journal of Pediatric Psychology, 43(6):693-701. doi: 10.1093/jpepsy/jsy021. PubMed PMID: 29617821.

70. Schultz, C.L., Alderfer, M.A., Lindell, R.B., McClain, Z., Zelley, K., Nichols, K.E., & Ford, C.A.

(2018). The influence of adolescence on parents' perspectives of testing and discussing inherited cancer predisposition. Journal of Genetic Counseling, doi: 10.1007/s10897-018-0267-z. [Epub ahead of print] PubMed PMID: 29909594.

71. Stegegna, K., Pentz, R., Alderfer, M.A., Pelletier, W., Fairclough, D., & Hinds, P. (2018). Child Access

to transplant information and involvement in treatment decision-making. Western Journal of Nursing Research.

72. Viola, A., Taggi-Pinto, A., Sahler, O.J.Z., Alderfer, M.A., Devine, K.A. (2018). Problem-solving skills,

parent-adolescent communication, dyadic functioning, and distress among adolescents with cancer. Pediatric Blood and Cancer, 65(5), e26951. doi.org/10.1002/pbc.26951.

Melissa A. Alderfer, Ph.D. Page 17 PUBLICATIONS, PEER REVIEWED (continued):

73. Lohani, M., Hendershot, K., Pelletier, W., Stegenga, K., Dixon, M., Hinds, P., Alderfer, M.A., & Pentz, R. (in press). Potential benefits to families and children enrolled in longitudinal qualitative research. IRB: Ethics and Human Research.

74. Schultz, C.L, & Alderfer, M. A. (in press). Are on-line patient portals meeting test result preferences of

caregivers of children with cancer? A qualitative exploration. Pediatric Blood & Cancer. 75. Stenman, K., Christofferson, J., Alderfer, M.A., Pierce, J., Kelly, C., Schifano, E., Klaff, S., Sciolla, J.,

Deatrick, J., & Kazak, A. E. (in press). Integrating play in trauma-informed care: Multidisciplinary pediatric healthcare provider perspectives. Psychological Services.

76. Valdez, J., Walker, B., Ogg, S., Gattuso, J., Alderfer, M.A., Zelley, K., Ford, C.A., Baker, J., Mandrell,

B.N., Nichols, K.E. (in press). Parent-child communication surrounding genetic testing for Li-Fraumeni Syndrome: Living under the cloud of cancer. Pediatric Blood & Cancer.

PUBLICATIONS, NON-PEER REVIEWED: None PEER REVIEWED ABSTRACTS, PRESENTATIONS, AND POSTERS: 1. Kazak, A.E., Meadows, A.T., & Alderfer, M.A. (1989, September). "Psychological and family adaptation in 10-15 year old long-term survivors of childhood cancer." Poster presented at the Society for Developmental and Behavioral Pediatrics, Cambridge, MA. 2. Kazak, A.E., Torchinsky, M. & Alderfer, M.A. (1991, August). “Beyond the obvious: What does survival mean to families?” Podium presentation at the Annual Convention of the American Psychological Association, San Francisco, CA. 3. Alderfer, M.A., Palmer, S., Wiebe, D.J., Jarrett, L. & Lindsay, R. (1993, March). "Hypoglycemic fear, symptom perception errors, and daily diabetes management." Poster presented at the Society for Behavioral Medicine Annual Conference, San Francisco, CA. 4. Palmer, S., Alderfer, M.A., Wiebe, D.J., Jarrett, L. & Lindsay, R. (1994, March). "Negative affectivity and diabetes self-regulation in adolescents with Insulin-Dependent Diabetes Mellitus." Poster presented at the Society of Behavioral Medicine Annual Conference, Boston, MA. 5. Palmer, S., Wiebe, D.J., Alderfer, M.A., Jarrett, L., & Lindsay, R. (1995, March). "Stress, trait anxiety, and symptom misattribution in adolescents with IDDM." Poster presentation at the Society of Behavioral Medicine Annual Conference, San Diego, CA.

6. Alderfer, M.A. & Wiebe, D.J. (1998, March). "Social behavior and peer acceptance of children with chronic illness." Poster presentation at the Society of Behavioral Medicine Annual Conference, New Orleans, LA.

7. Alderfer, M.A., Barakat, L.P. & Kazak, A.E. (2000, March). “Beliefs and posttraumatic stress symptoms of mothers of childhood cancer survivors.” Poster presentation The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

Melissa A. Alderfer, Ph.D. Page 18 PEER REVIEWED ABSTRACTS, PRESENTATIONS, AND POSTERS (continued):

8. Alderfer, M.A., Rourke, M.T., van der Aa, L., Hobbie., W. & Kazak, A.E. (2000, March). “Distinguishing young adult survivors of childhood cancer who participate in follow-up care from those who do not.” Poster presented at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

9. Kazak, A.E., Prusak, A., McSherry, M., Simms, S., Beele, D., Rourke, M.T., Alderfer, M.A., & Lange, B. (2000, March). “The Psychosocial Assessment Tool (PAT): Development of a brief screening instrument for identifying high risk families in pediatric oncology.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

10. Alderfer, M.A., Barakat, L.P. & Kazak, A.E. (2000, April). “Beliefs and posttraumatic stress symptoms

of mothers of childhood cancer survivors.” Poster presentation at the Society of Behavioral Medicine Annual Conference, Nashville, TN.

11. Alderfer, M.A. (2000, May). “Social behavior and illness severity contributing to the peer acceptance of children with chronic illness.” Poster presented at Leadership Education in Neurodevelopmental and Related Disabilities Research Day, Philadelphia, PA.

12. Rourke, M.T., Hobbie, W., van der Aa, L., Alderfer, M.A. & Kazak, A.E. (2000, June). “Relationships

between demographic variables and participation in long-term follow-up care by young adult survivors of childhood cancer.” Poster presentation at the 6th International Conference on Long-Term Complications of Treatment of Children and Adolescents for Cancer, Niagara-on-the-Lake, Ontario.

13. Alderfer, M.A. (2001, April). “Developmental variation in the influence of social behavior and health status on peer acceptance.” Poster presentation at the Society for Research in Child Development Bi-annual Conference, Minneapolis, MN.

14. Alderfer, M.A., Rourke, M., Kunin-Batson, A., & Kazak, A.E. (2001, April). “Anxiety and family

world view predict posttraumatic stress in childhood cancer survivors and their mothers.” Poster presentation at the Florida Conference on Child Health Psychology, Gainesville, FL.

15. Alderfer, M.A., Wiebe, D.J., & Hartmann, D.P. (2001, April). “Social behavior and disease obviousness contribute to the peer acceptance of children with chronic illness.” Poster presentation at the Florida Conference on Child Health Psychology, Gainesville, FL.

16. Kazak, A.E., Prusak, A., McSherry, M., Simms, S., Beele, D., Rourke, M.T., Alderfer, M.A., & Lange, B. (2001, April). “The Psychosocial Assessment Tool (PAT): Development of a brief screening instrument for identifying high risk families in pediatric oncology.” Poster presentation at the Florida Conference on Child Health Psychology, Gainesville, FL.

17. Alderfer, M.A., Rourke, M.T., & Kazak, A.E. (2001, August). “Posttraumatic stress disorder in caregivers of childhood cancer survivors.” In D.L. Clay & M. Stern (Chairs), Caregivers of children with chronic illness or disability. Podium presentation within a symposium presented at the American Psychological Association Annual Convention, San Francisco, CA.

18. Kazak, A.E., Simms, S., Rourke, M.T., & Alderfer, M.A. (2001, November). “Surviving Cancer Competently Intervention Program (SCCIP).” Workshop presentation at the National Council on Family Relations, Rochester, NY.


19. Rourke, M.T., Alderfer, M.A., & Kazak, A.E. (2001, December). “Understanding trauma in survivors of childhood cancer.” In N. Kassam-Adams (Chair), Illness, injury and posttruamatic stress in youth and parents. Podium presentation within a symposium presented at the International Society for Traumatic Stress Studies Annual Conference, New Orleans, LA.

20. Alderfer, M.A., Labay, L.E., & Kazak, A.E. (2002, April). “Posttraumatic stress in siblings of

childhood cancer survivors.” Poster presentation at the Society of Behavioral Medicine Annual Conference, Washington, DC.

21. Kazak, A.E., Cant, C., Prusak, A., McSherry, M., Beele, D., Rourke, M.T., Alderfer, M.A., Simms, S. & Lange, B. (2002, April). “Psychosocial risk and resource utilization in pediatric oncology families.” Poster presentation at the Great Lakes Regional Meeting on Child Health Psychology, Milwaukee, WI.

22. Alderfer, M.A., Rourke, M.T., & Kazak, A.E. (2002, June). “Rates and concordance of posttraumatic stress in caregivers of childhood cancer survivors.” Poster presented at the 7th International Conference on Long-Term Complications of Treatment of Children with Cancer, Niagara-on-the-Lake, Ontario, Canada.

23. Kazak, A.E., Alderfer, M.A., Rourke, M.T., Simms, S. & Streisand, R. (2002, June). “Posttraumatic stress in adolescent survivors of childhood cancer and their mothers, fathers and siblings.” Poster presented at the Biennial National Cancer Survivorship Conference, Washington, DC.

24. Alderfer, M.A. (2002, October). “The use of family management styles in family intervention research.” In A Nelson (Chair), Family management styles: State of the science and practice. Podium presentation as part of a preconference presented at the Association of Pediatric Oncology Nurses Annual Conference, Salt Lake City, UT.

25. Hoehn, K., Wernovsky, G., Rychik, J., Tian, Z., Donaghue, D., Alderfer, M.A., Gaynor, W., Kazak, A.E., Spray, T., & Nelson, R. (2003, February). “Assessment of parental stress and decision making in congenital heart disease: Prenatal versus postnatal diagnosis.” Poster presentation at the Society for Critical Care Medicine Annual Conference, San Antonio, TX.

26. Alderfer, M.A., Annunziato, R., & Kazak, A.E. (2003, March). “Disease obviousness as a protective factor against peer rejection for children with chronic illness?” Poster presentation at the Society of Behavioral Medicine Annual Conference, Salt Lake City, UT.

27. Alderfer, M.A., Labay, L., & Kazak, A.E. (2003, April). “Does posttraumatic stress apply to siblings of

childhood cancer survivors?” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

28. Alderfer, M.A., Rourke, M.T., & Kazak, A.E. (2003, April). “Rates and concordance of posttraumatic

stress in caregivers of childhood cancer survivors.” Poster presented at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

29. Kazak, A.E., Alderfer, M.A., Barakat, L.P., Cnaan, A., Gallagher, P., Rourke, M.T., Simms, S., & Streisand, R. (2003, April). “Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their family members: A randomized clinical trial.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.


30. Kazak, A.E., Alderfer, M.A., Rourke, M.T., Simms, S. & Streisand, R. (2003, April). “Posttraumatic stress in adolescent survivors of childhood cancer and their mothers, fathers and siblings.” Poster presented at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA

31. Cnaan, A., Alderfer, M.A., Gallagher, P., & Kazak, A.E. (2003, August). “Statistical approaches to differential dropout in pediatric intervention research.” Poster presentation at the Annual Convention of the American Psychological Association, Toronto, Canada.

32. Kazak, A.E., Alderfer, M.A., Streisand, R., Simms, S., Rourke, M.T., Barakat, L.P., Gallagher, P., & Cnaan, A. (2003, October). “Treatment of posttraumatic stress symptoms in childhood cancer survivors.” Poster presentation at the International Society for Traumatic Stress Studies Annual Conference, Chicago, IL.

33. Alderfer, M.A., Annunziato, R., Cnaan, A., & Kazak, A.E. (2004, April). “Patterns of posttraumatic stress in parents of childhood cancer survivors.” Poster presentation at the National Conference on Child Health Psychology, Charleston, SC.

34. Jensen, M., Alderfer, M.A., Cant Peterson, C., & Kazak, A.E. (2004, April). “Psychosocial risk in

families of children with brain tumors.” Poster presentation at the National Conference on Child Health Psychology, Charleston, SC.

35. Kazak, A.E., Alderfer, M.A., Streisand, R., Simms, S., Rourke, M.T., Barakat, L.P., Gallagher, P., & Cnaan, A. (2004, April). “Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: A randomized clinical trial.” Podium presentation at the National Conference on Child Health Psychology, Charleston, SC.

36. Kazak, A.E., Alderfer, M.A., Streisand, R., Simms, S., Rourke, M.T., Barakat, L.P., Gallagher, P., &

Cnaan, A. (2004, April). “Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: A randomized clinical trial.” Poster presentation at Biennial National Cancer Survivorship Research Conference, Washington, DC.

37. Kazak, A.E., McClure, K., Alderfer, M.A., Hwang, W.T., Crump, T., Le, L., Deatrick, J., Simms, S.,

& Rourke, M.T. (2004, April). “Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI).” Poster presentation at the National Conference on Child Health Psychology, Charleston, SC.

38. Kazak, A.E., Simms, S. Alderfer, M.A., Rourke, M.T., Crump, T., McClure, K., Jones, P., Rodriguez, A., Boeving, C.A., Hwang, W.T., & Reilly, A. (2004, April). “Surviving Cancer Competently Intervention Program – Newly Diagnosed (SCCIP-ND): A randomized clinical trial of a brief cognitive-behavioral and family therapy pilot intervention for parents of children diagnosed with cancer.” Poster presentation at the National Conference on Child Health Psychology, Charleston, SC.

39. Alderfer, M.A., Annunziato, R., Cnaan, A., & Kazak, A.E. (2005, April). “Patterns of posttraumatic stress symptoms in parents of adolescent cancer survivors and family functioning.” Poster presentation at the Society of Behavioral Medicine Annual Conference, Boston, MA.


40. Alderfer, M.A. & Kazak, A.E. (2005, April). “Family functioning and posttraumatic stress in adolescent survivors of childhood cancer.” In Fiese, B (Chair), Family Resilience and Strain in Children at Medical Risk. Poster presentation as part of a symposium at the Society for Research in Child Development Bi-annual Conference, Atlanta, GA.

41. Alderfer, M.A., Rourke, M.T., Boeving, C.A., & Kazak, A.E. (2005, August). “Interventions for

posttraumatic stress in families of children with cancer.” In A.E. Kazak (Chair), Pediatric Medical Traumatic Stress. Podium presentation as part of a symposium at the Annual Convention of the American Psychological Association, Washington, DC.

42. Kazak, A.E., Kassam-Adams, N., Schneider, A., Zelikovsky, N., Alderfer, M.A., & Rourke, M.T. (2005, August). “An integrative model of pediatric medical traumatic stress.” In A.E. Kazak (Chair),

Pediatric Medical Traumatic Stress. Podium presentation as part of a symposium at the Annual Convention of the American Psychological Association, Washington, DC.

43. Alderfer, M.A., Barakat, L.P., & Kazak, A.E. (2006, March). “Cancer-related beliefs predict

posttraumatic stress symptoms in survivors of childhood cancer and their parents.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

44. Alderfer, M.A., Conroy, R., & Kazak, A.E. (2006, March). “Talking about cancer among adolescent

survivors of childhood cancer with and without posttraumatic stress disorder.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

45. Alderfer, M.A., Navsaria, N. & Kazak, A.E. (2006, March). “Family functioning and posttraumatic stress in adolescent survivors of childhood cancer.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

46. Barakat, L.P., Alderfer, M.A., & Kazak, A.E. (2006, March). “Posttraumatic growth in adolescent

survivors of childhood cancer and their mothers and fathers.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

47. Kaplan, L., Hills, T., & Alderfer, M.A. (2006, March). “How well do parents know their children?: Accuracy of parents’ perceptions of their children’s posttraumatic stress prior to blood and bone marrow transplant. Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

48. Patino-Fernandez, A.M., Kazak, A.E., Cutuli, J.J., Pete, I., Jensen-Pace, M., Alderfer, M.A, & Reilly, A.

(2006, March). “Acute stress disorder in parents of newly diagnosed pediatric oncology patients.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

49. Patino-Fernandez A.M., Kazak, A.E., Cutuli, J.J., Pete, I. Jensen-Pace, M., McSherry, M., Beele, D.,

Alderfer, M.A., Whang, W.T., & Reilly, A. (2006, March). “Evidenced-based assessment of psychosocial risk in families of children newly diagnosed with cancer.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.


50. Rodriguez, A., Lutz Stehl, M., Hulbert, J., Alderfer, M.A., & Kazak, A.E. (2006, March). “Using innovative (video) technology in pediatric psychology intervention research.” Poster presentation at The Eunice and Irving Leopold Annual Scientific Symposium and Retreat, University of Pennsylvania Cancer Center, Philadelphia, PA.

51. Alderfer, M.A., Barakat, L.P., & Kazak, A.E. (2006, April). “Cancer-related beliefs predict

posttraumatic stress symptoms in survivors of childhood cancer and their parents.” Poster presentation at the National Conference on Child Health Psychology, Gainesville, FL.

52. Alderfer, M.A., Conroy, R., & Kazak, A.E. (2006, April). “Talking about cancer among adolescent survivors of childhood cancer with and without posttraumatic stress disorder.” Poster presentation at the National Conference on Child Health Psychology, Gainesville, FL.

53. Alderfer, M.A., Navsaria, N. & Kazak, A.E. (2006, April). “Family functioning and posttraumatic stress

in adolescent survivors of childhood cancer.” Poster presentation at the National Conference on Child Health Psychology, Gainesville, FL.

54. Barakat, L.P., Alderfer, M.A., & Kazak, A.E. (2006, April). “Posttraumatic growth in adolescent survivors of childhood cancer and their mothers and fathers.” In A.E. Kazak (Chair), Family Systems Issues in Child Health/Pediatric Psychology. Podium presentation as part of a symposium at the National Conference on Child Health Psychology, Gainesville, FL.

55. Patino-Fernandez, A.M., Kazak, A.E., Cutuli, J.J., Pete, I., Jensen-Pace, M., Alderfer, M.A, & Reilly, A.

(2006, April). “Acute stress disorder in parents of newly diagnosed pediatric oncology patients.” Poster presentation at the National Child Health Psychology Conference, Gainesville, FL.

56. Patino-Fernandez A.M., Kazak, A.E., Cutuli, J.J., Pete, I. Jensen-Pace, M., McSherry, M., Beele, D.,

Alderfer, M.A., Whang, W.T., & Reilly, A. (2006, April). “Evidenced-based assessment of psychosocial risk in families of children newly diagnosed with cancer.” Poster presentation at the National Child Health Psychology Conference, Gainesville, FL.

57. Rodriguez, A., Lutz Stehl, M., Hulbert, J., Alderfer, M.A., & Kazak, A.E. (2006, April).“Using

innovative (video) technology in pediatric psychology intervention research.” Poster presentation at the National Child Health Psychology Conference, Gainesville, FL.

58. Alderfer, M.A., Conroy, R., & Kazak, A.E. (2006, April). “Talking about cancer among adolescent survivors of childhood cancer with and without posttraumatic stress disorder.” Poster presentation at Psychosocial and neurocognitive consequences of childhood cancer: A symposium in honor of Raymond Mulhern, St. Jude Children’s Research Hospital, Memphis, TN.

59. Patino-Fernandez, A.M., Pai, A., Alderfer, M.A., Jensen-Pace, M., Reilly, A., & Kazak, A.E. (2006, September). “Assessing psychosocial risk: Mother, physician, and nurse report.” Paper presentation at the Annual Meeting of the Society for Developmental and Behavioral Pediatrics, Philadelphia, PA.

60. Alderfer, M.A. & Kazak, A.E. (2006, October). “Family functioning after childhood cancer: Perspectives of adolescent survivors, parents, and siblings.” Poster presentation the Biennial National Cancer Survivorship Research Conference, Bethesda, MD.


61. Alderfer, M.A., Cnaan, A., & Kazak, A.E. (2006, October). “The use of cluster analysis in describing patterns of posttraumatic stress symptoms in parents of adolescent cancer survivors.” Poster presentation at New Methods for the Analysis of Family and Dyadic Processes, a conference of the Center for Research on Families, University of Massachusetts at Amherst, Amherst, MA.

62. Hodges, J., Ganz, P., & Alderfer, M.A. (2007, March). “Family functioning after childhood cancer and

healthy siblings’ school performance.” Poster presentation at the Annual Conference of the National Association of School Psychologists, New York, NY.

63. Kaal, K.J. & Alderfer, M.A. (2007, March). “Spiritual coping and sibling adjustment to childhood

cancer.” Poster presentation at the Society of Behavioral Medicine Annual Conference, Washington, D.C.

64. Alderfer, M.A. & Hills, T. (2007, August). “Rates and correlates of positive adjustment among children with cancer.” In M. Stern (Chair), Current Research on Adolescent Cancer: Psychosocial Functioning, Resilience, and Adaptation. Podium presentation as part of a symposium at the Annual Convention of the American Psychological Association, San Francisco, CA.

65. Alderfer, M.A. & Kazak, A.E. (2007, August). “Family functioning and posttraumatic stress in adolescent cancer survivors.” In J. Butler (Chair), Family Functioning During Adolescence in the Context of Chronic Illness and Chronic Illness Recovery,” Podium presentation as part of a symposium at the Annual Convention of the American Psychological Association, San Francisco, CA.

66. Kaplan, L. & Alderfer, M.A. (2007, August). “Psychological adjustment of siblings of children with cancer.” Poster presentation at the Annual Convention of the American Psychological Association, San Francisco, CA.

67. Pai, A., Patino-Fernandez, A.M., Alderfer, M.A., & Kazak, A.E. (2007, August). “Validation of the

Psychosocial Assessment Tool 2.0.” Poster presentation at the Annual Convention of the American Psychological Association, San Francisco, CA.

68. Wodrich, D., Daley, K., Wolcott, C. M., Hodges, J.H., Stein, R. R., Manz, P.H., Alderfer, M.A., & Chenneville, T. (2008, February). Helping students with chronic illness: The importance of school-based data. Symposium presented at the 40th Annual Meeting of the National Association of School Psychologists, New Orleans, LA.

69. Alderfer, M.A., Long, K., Lown, E.A., Ewing, L., Hock, J., Ostrowski, N., & Marsland, A. (2008,

March), “Development of a research agenda to understand and serve the needs of siblings of children with cancer: A systematic review.” Podium presentation at the 5th Annual Convention of the American Psychosocial Oncology Society, Irvine, CA.

70. Kaplan, L., & Alderfer, M.A. (2008, April). “Psychological adjustment of siblings of children with cancer.” Poster presentation at the National Child Health Psychology Conference, Miami, FL.

71. Marsac, M. & Alderfer, M.A. (2008, April). ”The Disease Impact Scale: Initial development and validation.” Poster presentation at the National Child Health Psychology Conference, Miami, FL.

72. Kazak, A.E., Alderfer, M.A., & Mougianis, I. (2008, June). “Quality of life of family caregivers of childhood cancer survivors, focusing on the transition from treatment to post-treatment.” Podium presentation at the Biennial National Cancer Survivorship Conference, Atlanta, GA.


73. Rutherford, C.G., Vannatta, K., Alderfer, M.A., Barrera, M., & Phipps, S. (2008, October). “Optimism, affective functioning, and quality of life in children about to undergo stem cell transplantation.” Poster presentation at the Annual Meeting of the Society of Developmental and Behavioral Pediatrics, Cincinnati, OH.

74. Long, K., Ewing, L., Alderfer, M.A. & Marsland, A. (2009, April). “Stress and coping in siblings of

pediatric cancer patients.” Poster presentation at the Annual Meeting of the Society for Research in Child Development, Denver, CO.

75. Marsac, M. & Alderfer, M.A. (2009, April). “Psychometric properties of the FACES-IV in a Pediatric

oncology population.” Poster presentation at the Regional Conference on Child Health Psychology, Kansas City, MO.

76. Robins, P., Power, T., Rourke, M.T., Alderfer, M.A., Grus, C, & Watkins, M. (2009, April). “Enhancing

competency based training through the screening, selection, and performance evaluations of psychology interns.” Podium presentation at the Association of Psychology Postdoctoral and Internship Centers Membership Conference, Portland, OR.

77. Hinds, P., Pelletier, W., Alderfer, M.A, Davies, S., Pentz, R. (2009, May). "Pediatric sibling donor bone marrow transplant: Assessing distress in donors and family members." Poster presentation at the Annual Meeting of the American Society of Clinical Oncologists, Orlando, FL.

78. Long, K., & Alderfer, M.A. (2010, February). “Siblings of childhood cancer patients: Stress & coping.” Podium presentation at the 7th Annual Convention of the American Psychosocial Oncology Society, New Orleans, LA.

79. Phipps, S., Barrera, M, Vannatta, K., & Alderfer, M.A. (2010, April). “Complementary health promotion

intervention for children undergoing stem cell transplant: Report of a multisite trial.” Podium presentation at the Society of Behavioral Medicine Annual Conference, Seattle, WA.

80. Alderfer, M.A., Long, K., Goldish, M. (2010, June). “The importance of social support in the adjustment

of siblings of children with cancer” Poster presentation at the 5th Biennial National Cancer Survivorship Research Conference, Washington, DC.

81. Alderfer, M.A. & Hodges, J. (2010, August). “Family-school partnerships: Possible support for siblings

of children with cancer?” In E. Shapiro & G. DuPaul (Symposium Chairs), Partnerships to Improve Mental Health Services for Children in Schools. Podium presentation as part of a symposium at the Annual Convention of the American Psychological Association, San Diego, CA.

82. Alderfer, M.A., Stanley, C., & Noll, R. (2010, October). “Emotional, behavioral and school difficulties for siblings of children with cancer: A comparison with matched classmates.” Podium presentation at the 42nd Congress of the International Society of Paediatric Oncology, Boston, MA.

83. Drotar, D., Alderfer, M.A, Ewing, L., Katz, E., Muriel, A., Wetherington, C., Rohan, J., & Vinks, S. (2010, October) “Multisite study of adherence to 6MP treatment in pediatric leukemia.” Podium presentation at the 42nd Congress of the International Society of Paediatric Oncology, Boston, MA.


84. Kazak, A.E., Barakat, L.P., Ditaranto, S., Biros, D., Hwang, W.T., Kersun, L., Alderfer, M.A., Mougianis, I., & Reilly, A. (2010, October) “Screening for psychosocial risk at cancer diagnosis: The Psychosocial Assessment Tool (PAT).” Podium presentation at the 42nd Congress of the International Society of Paediatric Oncology, Boston, MA.

85. Pentz, R., Alderfer, M.A., Pelletier, W., Stegenga, K., & Hinds, P. (2010, October), “My sisters' keepers: The voices of brothers and sisters of children having a stem cell transplant.” Podium presentation at the American Society for Bioethics and Humanities Annual Meeting, San Diego, CA.

86. Salley, C.G., Vannatta, K., Alderfer, M.A., Barrera, M., & Phipps, S. (2010, October). ”Optimism and

pessimism as predictors of children’s functioning following stem cell transplantation.” Poster presentation at the 42nd Congress of the International Society of Paediatric Oncology, Boston, MA.

87. Stegenga, K., Pentz, R., Alderfer, M.A., Pelletier, W., Hinds, P. (2011, February). “Doing the unavoidable to save my child: Parents perceptions of their role in stem-cell transplant decision-making.” Podium presentation at the Oncology Nursing Society Conference on Cancer Nursing Research, Los Angeles, CA.

88. Long, K., Alderfer, M.A., & Marsland, A. (2011, April). “Family functioning and parenting as predictors of sibling adjustment to childhood cancer” Poster presentation at the Biennial Meeting of the Society for Research in Child Development, Montreal, Quebec, Canada.

89. Hildenbrand, A., Banerjee, L., Kohser, K., Clawson, K., Alderfer, M.A. & Marsac, M. (2011, April). “Examining the pediatric cancer experience: Stressors and coping strategies among children with cancer and their parents.” Poster presentation at the National Child Health Psychology Conference, San Antonio, TX.

90. Marsac, M., Banerjee, L., Barakat, L.P., Kohser, K., Hildenbrand, A., Clawson, K., Vinsel, A &

Alderfer, M.A. (2011, April). Initial development of an innovative tool to enhance adaptation to pediatric cancer.” Poster presentation at the National Child Health Psychology Conference, San Antonio, TX.

91. Pelletier, W., Hinds, P., Alderfer, M.A., Stegenga, K., & Pentz, R. (2011, May). “Family decision-making in pediatric allogeneic hematopoietic stem cell transplantation.” Oral breakout session at the 35th Annual Conference of the Association of Pediatric Oncology Social Workers, Atlanta, GA.

92. Salley, C., Vanatta, K., Alderfer, M.A., Barrera, M., & Phipps, S. (2011, July). “Optimism and

pessimism as predictors of children’s functioning following stem cell transplantation. Pediatric Blood and Cancer, 56 (7), 1160.

93. Marsac, M., Hildenbrand, A., Kohser, K., Banerjee, L., Barakat, L.P., Alderfer, M.A. (2011, November). ”Promoting adjustment to pediatric cancer: Initial development of an innovative, developmentally sensitive tool,” In N. Kassam-Adams (Chair), Traumatic stress, coping, and health outcomes in children facing medical events. Podium presentation as part of a symposium conducted at the International Society for Traumatic Stress Studies Annual Meeting, Baltimore, MD.

94. Hildenbrand, A., Clawson, K., Alderfer, M.A., Deatrick, J., & Marsac, M. (2012, April). “A mixed-methods assessment of coping with pediatric cancer.” Poster presentation at the Midwest Regional Conference in Pediatric Psychology, Milwaukee, WI.


95. Marsac, M., Hildenbrand, A., Jackson, L., Barakat, L.P., & Alderfer, M.A. (2012, April) "The Cellie

Cancer Coping Kit: Acceptability, feasibility, and initial outcomes." Podium presentation at the Midwest Regional Conference in Pediatric Psychology, Milwaukee, WI.

96. Buchbinder, D., Mertens. A., Zeltzer, L., Leisenring, W., Goodman, P., Lown, E. A., Alderfer, M.A., Recklitis, C., Oeffinger, K., Armstrong, Hudson, M., Robison, L., & Casillas, J. (2012, June). “Cancer prevention and screening practices of siblings of childhood cancer survivors: A report from the Childhood Cancer Survivor Study.” Poster presentation at the 12th International Conference on Long-Term Complications of Treatment of Children and Adolescents for Cancer, Williamsburg, VA.

97. Pelletier, W., Hinds, P., Alderfer, M.A., Fairclough, D., Stegenga, K., & Pentz, R. (2013, February).

“Factors reported by families as important when proceeding with pediatric hematopoietic stem cell transplant.” Podium presentation at the 10th Annual Conference of the American Psychosocial Oncology Society, Huntington Beach, CA.

98. Alderfer, M.A., Hayes, M., Jackson, L., Logan, B., Lodis, C., & Sigmon, S. (2013, April). "Changes across time in cancer-related traumatic stress symptoms in siblings of pediatric cancer patients." Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.

99. Hildenbrand, A., Barakat, L., Alderfer, M.A., Smith-Whitley, K., & Marsac, M. (2013, April) “Coping and coping assistance among children with sickle cell disease and their parents.” Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.

100. Kazak, A.E., Alderfer, M.A., Hocking, M., Schwartz, L., Barakat, L.P. (2013, April). “Check-in About Recent Experiences and Strengths (CARES): A web-based tablet-administered caregiver-report assessment protocol.” Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.

101. Long, K., Goldish, M., Lown, E A., Ostrowski, N., Alderfer, M.A., Marsland, A., Ring, S., Skala, S. &

Ewing, L. (2013, April). “Lessons learned from a nationally-based community-academic partnership: Addressing sibling adjustment to childhood cancer.” Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.

102. Samson, K., Rourke, M.T. & Alderfer, M. A. (2013, April). “A qualitative analysis of the impact of

childhood cancer on the lives of siblings in school, with friends and in extra-curricular activities. Poster presentation at the National Conference in Pediatric Psychology, New Orleans, LA.

103. Stegenga, K., Pentz, R., Alderfer, M.A., Pelletier, W., Hinds, P. (2013, June). “The child perspective:

Access to information and involvement in family decisions related to pediatric stem cell transplant. Podium presentation at the International Family Nursing Conference, Minneapolis, MN.

104. Marsac, M.L., Barakat, L.P., Alderfer, M.A., Kassam-Adams, N., Klingbeil, O., & Hildenbrand, A.K.

(2014, February). “Development and dissemination of the Cellie Cancer Coping Kit.” Poster presentation at the American Psychosocial Oncology Society Annual Conference, Tampa, FL.

105. Rohan, J., Drotar, D., Alderfer, M.A., Donewar, C., Ewing, L., Katz, E., & Muriel, A. (2014,

February). “Patterns of adherence to maintenance treatment and psychosocial outcomes in pediatric cancer.” Poster presentation at the American Psychosocial Oncology Society Annual Conference, Tampa, FL.


PEER REVIEWED ABSTRACTS, PRESENTATIONS, AND POSTERS (continued):

106. Marsac, M.L., Barakat, L.P., Kohser, K.L., Kassam-Adams, N., Alderfer, M.A., (2014, March). “Supporting children through cancer: Development and dissemination of the Cellie Cancer Coping Kit.” Poster presentation at the Association of Pediatric Oncology Social Workers Annual Conference, Philadelphia, PA.

107. Klingbeil, O., Hildenbrand, A.K., Alderfer, M.A., Kassam-Adams, N., Smith-Whitley, K., Barakat,

L.P., Marsac, M.L. (2014, March). “Coping influence of the Cellie Coping Kit for sickle cell disease.” Poster presentation at the Society of Pediatric Psychology Annual Conference, Philadelphia, PA.

108. Hildenbrand, A.K., Klingbeil, O., Alderfer, M.A., Smith-Whitley, K., Barakat, L., & Marsac, M. (2014,

April). “A novel coping tool for children with cancer and sickle cell disease: The Cellie Coping Kit. Annals of Behavioral Medicine, 47 (1), S185.

109. Lindell, R., Ford, C., Alderfer, M.A., McClain, Z., Zelley, K., & Nichols, K. (2014, May) “Parents'

perspectives on testing and communicating with adolescents about cancer genetic risk.” Poster presentation at the Pediatric Academic Societies Annual Meeting, Vancouver, BC.

110. Pentz, R. White, T., Hendershot, K., Alderfer, M.A., Dixon, M., Pelletier, W., Stegenga, K., Hinds, P.

(2014, May) “Meeting the needs of at-home siblings of pediatric hematopoietic stem cell transplant patients.” Published abstract, American Society of Clinical Oncology, Chicago, IL.

111. Pierce, L., Fleischer, J., Hocking, M.C., Alderfer, M.A., Kazak, A.E., Barakat, L.P. (2014, October).

“Caregiver Distress and Patient Health-Related Quality of Life: Psychosocial Screening During Pediatric Cancer Treatment,” (podium presentation by Dr. Barakat). 46th Congress of the International Society of Paediatric Oncology, Toronto, Canada

112. Rohan, J.M., Donewar, C., Ewing, L., Alderfer, M.A., Fukuda, T., Muriel, A., Katz, E., Vinks, A., &

Drotar, D. (2015, April). The Relationship of 6-Mercaptopurine Medication Adherence to Clinical Outcomes in Pediatric Cancer. Poster presentation at the Society of Pediatric Psychology Annual Conference, San Diego, CA

113. Buchbinder, D., Oeffinger, K., Franco-Villalobos, C., Yasui, Y., Alderfer, M.A., Armstrong, G.,

Casillas, J., Ford, J., Krull, K., Leisenring, W., Recklitis, C., Robison, L., Zeltzer, L., Lown, E.A. (2015, May) “Tobacco use behaviors among siblings of childhood cancer survivors: A report from the Childhood Cancer Survivor Study,” Poster presentation at the American Society of Pediatric Hematology/Oncology Annual Meeting, Phoenix, AZ.

114. Knoble, N., Alderfer, M.A., Hossain, M.J. (2016, April). “Socioeconomic Determinants of Pediatric

AML Survivorship.” Poster presentation at the Society of Behavioral medicine Annual Conference, Washington, D.C.

115. Keller, A.E., Lown, E.A., Ewing, L.J., Alderfer, M.A., Goldish, M., Marsland, A., Ostrowski, N., Long,

K.A. (2016, April). “Family Support and Parental Affect as Predictors of Adjustment Among Siblings of Children with Cancer.” Poster presentation at The Society of Pediatric Psychology Annual Conference, Atlanta, GA.

116. Alderfer, M.A., Butchbach, M.E.R., Scavina, M. (2016, June). “Systematically Assessing the

Psychosocial Needs of Families of Children with Spinal Muscular Atrophy.” Poster presentation at the Annual Spinal Muscular Atrophy Researcher Meeting, Anaheim, CA

Melissa A. Alderfer, Ph.D. Page 28 PEER REVIEWED ABSTRACTS, PRESENTATIONS, AND POSTERS (continued): 117. Marsac, M., Weiss, D., Cole, D., Kohser, K., Hildenbrand, A., Barakat, L., Alderfer, M.A., Kassam-

Adams, N. (2017, February). “Systematic development of an evidence-based tool to promote adjustment to pediatric medical conditions: The Cellie Coping Kit.” Journal of Developmental and Behavioral Pediatrics, 38 (2), S14-S15.

118. Viola, A., Devine, K., Taggi-Pinto, A., Sahler, O.J., & Alderfer, M.A. (2017, February). Problem-

solving skills and Cancer-related Communication Problems among Teens with Cancer. Podium and poster presentation at the 14th American Psychosocial Oncology Society (APOS) Annual Conference, Orlando, FL.

119. Long, K.A., Pariseau, E., Chu, A., Muriel, A.C., Kazak, A., & Alderfer, M.A. (2017, March). Development of a screening module to assess psychosocial risk among siblings of children with cancer. Poster presentation at the Society of Pediatric Psychology Annual Conference, Portland, OR. 120. Viola, A., Devine, K., Taggi-Pinto, A., Sahler, O.J., & Alderfer, M.A. (2017, March). Problem-solving

skills and Cancer-related Communication Problems among Teens with Cancer. Poster presentation at the Society of Pediatric Psychology Annual Conference, Portland, OR.

121. Schultz, C., & Alderfer, M.A. (2017, June). Preferences for receiving test results and patient portal use

in pediatric oncology care: A qualitative exploration. Pediatric Blood and Cancer, 64 (1), S68. 122. Sood, E., Zyblewski, S., Christofferson, J., Brosig, C., Lihn, S., Demianczyk, A., Neely, T., Tanem, J.,

Toth, M., Delaplane, E., Randall, A., Boyle, E., Williams, C.. Alderfer, M.A., & Kazak, A. (2017, June). Family psychosocial care model for congenital heart disease: A crowdsourced study. Poster presentation at the Annual Cardiac Neurodevelopmental Symposium, Ann Arbor, MI.

123. Alderfer, M.A. & Goldish, M. on behalf of SPARCCC (2017, Oct). Setting an agenda for advocacy,

research, and care of siblings of children with cancer. Electronic poster presentation at the 49th Congress of the International Society of Paediatric Oncology, Washington, DC

124. Long, K.A., Pariseau, E.M., Muriel, A.C., Chu, A., Kazak, A.E. & Alderfer, M.A. (2017, Oct.).

Psychosocial screening for siblings of children with cancer: Development and testing of a new sibling screening module. Poster discussion session presentation at the 49th Congress of the International Society of Paediatric Oncology, Washington, DC

125. Long, K.A., Lehmann, V., Carpenter, A., Gerhardt, G.A., Marsland, A.M., & Alderfer, M.A. (2017,

Oct.). Psychosocial functioning and risk factors for siblings of children with cancer: An updated systematic review. Poster presentation at the 49th Congress of the International Society of Paediatric Oncology, Washington, DC

126. Sood, E., Zyblewski, S., Christofferson, J., Brosig, C., Lihn, S., Demianczyk, A., Neely, T., Randall, A.,

Toth, M., Delaplane, E., Tanem, J., Alderfer, M.A., Kazak, A. (2018, Feb.) Family Psychosocial Care Model for Congenital Heart Disease: A Crowdsourced Study. Poster presentation at the 21st Annual Update on Pediatric and Congenital Cardiovascular Disease, Scottsdale, AZ

127. Christofferson, J., Stenman, K., Sciolla, J., Alderfer, M.A., Pierce, J., Schifano, E., Kelly, C., Garrett, S.,

Deatrick, J., & Kazak, A.E. (2018, April). Multidisciplinary Pediatric Provider Perspectives on Traumatic Stress. Poster presentation at the Society of Pediatric Psychology Annual Conference, Orlando, FL.

Melissa A. Alderfer, Ph.D. Page 29 PEER REVIEWED ABSTRACTS, PRESENTATIONS, AND POSTERS (continued): 128. Kripalani, S., Hildenbrand, A., Taggi-Pinto, A., & Alderfer, M.A. (2018, April). The Family

Experience of Siblings of Children with Cancer: A Comparison of Sibling and Parent Reports. Poster presentation at the Society of Pediatric Psychology Annual Conference, Orlando, FL.

129. Lewis, K., McWhorter, L., Alderfer, M.A., Zettler-Greeley, C., Taggi Pinto, A. & Sood, E. (2018, June).

Integrating an Early Literacy Parent Education Program into Cardiac Neurodevelopmental Follow-Up: Successes and Barriers. Poster presentation at the 7th Annual Scientific Sessions of the Cardiac Neurodevelopmental Outcome Collaborative, Kansas City, Missouri.

130. McWhorter, L.G., Christofferson, J., Alderfer, M.A., Neely, T., Randall, A., & Sood, E. (2018, June).

The effects of parental post-traumatic stress on parenting and child adjustment in families of children with CHD. Poster presentation at the 7th Annual Scientific Sessions of the Cardiac Neurodevelopmental Outcome Collaborative, Kansas City, Missouri.

131. Alderfer, M.A., Sharkey, C., & Tomatsu, S (2018, September). The adjustment of siblings of children

with cancer, their parents, and family functioning: A comparison to families of healthy children. Podium presentation as part of the Symposium, “Perspectives of patients, parents, and siblings on family adjustment to childhood cancer: Contrasts, associations, and prospective predictors.” European Pediatric Psychology Conference, Ghent, Belgium.

132. Hildenbrand, A.K., Taggi Pinto, A., Viola, A., Devine, K.A., & Alderfer, M.A. (2018, September).

Patterns of parent-adolescent decision making around pediatric cancer care. Poster presentation at the European Pediatric Psychology Conference, Ghent, Belgium.

133. Buchbinder, D., Sidhu, S., Alderfer, M.A., Lown, E.A., Kolarik, R.C., & Wang, T. (2018, November).

An assessment of pediatric resident knowledge, experience, comfort, and perceived competency in providing psychosocial support for siblings. Poster presentation for the 2018 American Academy of Pediatrics National Conference & Exhibition, Orlando, FL.

134. Hildenbrand, A. K., Kaplan, L. M., & Alderfer, M. A. (2018, November). Parent posttraumatic stress,

parenting behavior, and family functioning in families of children with cancer. International Society for Traumatic Stress Studies 34th Annual Meeting, Washington, DC.

EDITORIALS, COMMENTARIES, CHAPTERS: 1. Alderfer, M.A. (2004). “Pediatric psychology.” In A.J. Christensen, R. Martin, & J.M. Smyth, (Eds.) Encyclopedia of Health Psychology, pp.206-209. New York: Klewer Academic/Plenum Publishers.

2. Deatrick, J., Alderfer, M.A., Knafl, G. & Knafl, K. (2005). Identifying patterns of managing chronic conditions: Family management styles. In D.R. Crane & E.S. Marshall (Eds.) Handbook of Families

and Health: Interdisciplinary Perspectives, pp. 62-80. Thousand Oaks, CA: Sage Publications, Inc. 3. Alderfer, M.A. (2006). Use of family management styles in family intervention research. Journal of Pediatric Oncology Nursing, 23, 32-35.

4. Alderfer, M.A. & Kazak, A.E. (2006). Family issues when a child is on treatment for cancer. In R. Brown (Ed.) Pediatric Hematology/Oncology: A Biopsychosocial Approach, pp. 53-74. New York: Oxford University Press.

Melissa A. Alderfer, Ph.D. Page 30 EDITORIALS, COMMENTARIES, CHAPTERS (continued):

5. Nelson, A., Deatrick, J., Knafl, K., Alderfer, M.A., Ogle, S. (2006). Consensus Statement: The Family Management Style Framework and Its Use with Families of Children with Cancer. Journal of Pediatric Oncology Nursing, 23, 36-37.

6. Kazak, A.E., Alderfer, M.A., & Reilly, A. (2006). Posttraumatic stress symptoms during treatment in parents of children with cancer: In Reply. Journal of Clinical Oncology, 24, 2216-2217. 7. Alderfer, M.A. & Noll, R. (2006). Identifying and addressing the needs of siblings of children with cancer. Pediatric Blood and Cancer, 47, 537-538.

8. Kazak, A.E., Alderfer, M.A., & Rodriguez, A. (2008). Psychological issues in cancer survival in pediatric populations. In S. Miller, D. Bowen, R. Croyle, & J. Rowland (Eds.) Handbook of

Behavioral Science and Cancer. pp.449-465. Washington, DC: American Psychological Association. 9. Pentz, R., Haight, A., Noll, R., Barfield, R., Pelletier, W., Davies, S., Alderfer, M.A., & Hinds, P. (2008). The ethical justification for a minor sibling bone marrow donation: A case

study. The Oncologist, 13, 148-151.

10. Alderfer, M.A. & Rourke, M.T. (2009). Family psychology in the context of pediatric medical conditions. In J.H. Bray & M. Stanton (Eds.) Handbook of Family Psychology. pp. 527-538. Malden, MA: Wiley-Blackwell. 11. Weiner, L.S., Hersh, S. P., & Alderfer, M.A. (2010). Psychosocial support for the child and family. In P. A. Pizzo & D. G. Poplack (Eds.) Principles and Practice in Pediatric Oncology, Sixth Edition. pp. 1322-1346. Baltimore, MD: Lippincott, Williams & Wilkins. 12. Weiner, L.S. & Alderfer, M.A. (2011). Psychosocial aspects of cancer for children and their

families. In P. Lanzkowsky (Ed.) Manual of Pediatric Hematology and Oncology, Fifth Edition, pp. 952-967. San Diego, CA: Elsevier Academic Press.

13. Alderfer, M.A. (2011). Assessing family health. In M.J. Craft-Rosenberg (Ed.) Encyclopedia of Family Health. pp. 78-85. Newbury Park, CA: Sage Publications.

14. Barakat, L. & Alderfer, M.A. (2011). Introduction to special issue on family assessment: Advancing the science of family assessment in pediatric psychology. Journal of Pediatric Psychology, 36, 489-493.

15. Alderfer, M.A. & Stanley, C. (2012). Health and illness in the context of the family. In A. Baum,

T. A. Revenson & J. E. Singer (Eds.) Handbook of Health Psychology, Second Edition. pp. 493-516. London, England: Taylor & Francis.

16. Hocking, M. & Alderfer, M.A. (2012). Neuropsychological sequelae of childhood cancer. In S.

Kreitler, M. ben-Arush & A. Martin (Eds). Pediatric Psycho-Oncology. (pp. 177-184). Wiley Blackwell.

17. Alderfer, M.A. & Marsac, M. (2013). The PedsQL. In M. Gellman & J.R. Turner (Eds).

Encyclopedia of Behavioral Medicine. (pp. 1448-1149). Springer.

18. Long, K. & Alderfer, M.A. (2013) Maternal distress. In M. Gellman & J.R. Turner (Eds). Encyclopedia of Behavioral Medicine. (pp. 1194-1197). Springer.

Melissa A. Alderfer, Ph.D. Page 31 EDITORIALS, COMMENTARIES, CHAPTERS (continued):

19. Alderfer, M.A. & Rourke, M.T. (2014). School reintegration: Consulting to families and schools. In M. Roberts, B. Aylward & Y. Wu (Eds.). Clinical practice of pediatric psychology: Cases and service delivery. (pp. 109-125). Guilford.

20. Weiner, L.S., Pao, M., & Alderfer, M.A. (2015). Psychiatric and psychosocial support for the child

and family. In P. A. Pizzo & D. G. Poplack (Eds.) Principles and Practice in Pediatric Oncology, Seventh Edition. Pp. 1124-1140. Baltimore, MD: Lippincott, Williams & Wilkins.

21. Alderfer, M.A., & Sood, E. (2016). Commentary: The use of qualitative methods for improving

clinical practice in pediatric psychology. Clinical Practice in Pediatric Psychology, 4, 358-361.

22. Alderfer, M.A. (2017). Commentary: Family Processes and Outcomes: Recent Advances and Future Directions. Journal of Pediatric Psychology, 42, 125-129.

23. Alderfer, M.A. (2017). Introduction to the special issue: Using qualitative methods to improve clinical care. Clinical Practice in Pediatric Psychology,

24. Kazak, A.E., Alderfer, M.A., & Reader, S (2017). Families and other systems in pediatric

psychology. In M.C. Roberts & R.G. Steele (Eds.) Handbook of Pediatric Psychology (5th Edition). pp. 566-579. New York: Guilford.

25. Marsac, M. & Alderfer, M.A. (2017). The PedsQL. In M. Gellman & J.R. Turner (Eds). Encyclopedia of Behavioral Medicine, Second Edition. Springer.

26. Miller, E., Hildenbrand, A., Taggi-Pinto, A., & Alderfer, M.A. (2018). Let's work together: Collaborative research is needed to overcome difficulty enrolling families for bereaved sibling research. Journal of Pain and Symptom Management, 56(1):e3-e4. doi: 1 10.1016 /j.jpainsymman.2018.03.015. Epub 2018 Mar 23. PubMed PMID: 29581036.

27. Alderfer, M.A. & Hildenbrand, A. (in press). Survey and interview assessment approaches in research with families. In B. Fiese (Ed.), APA Handbook of Contemporary Family Psychology. Washington, DC: American Psychological Association.

28. Alderfer, M.A., Kazak, A.E. & Canter, K. (in press). Families and the healthcare system. In B. Fiese (Ed.), APA Handbook of Contemporary Family Psychology. Washington, DC: American Psychological Association.

29. Canter, K., Alderfer, M.A., Schultz, C., & Kazak, A. E., (in press). Pediatric cancer. Handbook of

Pediatric Behavioral Healthcare: An Interdisciplinary Collaborative Approach

. BOOKS AND OTHER PEER-REVIEWED SCHOLARSHIP NOT LISTED ABOVE: None

Melissa A. Alderfer, Ph.D. Page 32 COMMUNITY SERVICE: 2004-2012 Four Seasons Parkway Run and Family Fun Walk 2004 Invited Address, The Children’s Neuroblastoma Cancer Foundation 2005-2014 SuperSibs! Scientific Research Advisory Board 2008 Research Ambassador, Southeastern Pennsylvania Relay for Life Recognition and Awards Ceremony, American Cancer Society

2009 Keynote Speech and Breakout session presentation, Childhood Cancer Symposium, Alex’s Lemonade Stand Foundation 2010 Invited Address, The Children’s Neuroblastoma Cancer Foundation 2011 Keynote Speech, Childhood Cancer Symposium, Alex’s Lemonade Stand Foundation 2013 Invited Talk, Li Fraumeni Syndrome Association and Scientific Consortium 2015 Andrew McDonough B+ Foundation 5K Run & Walk, Wilmington, DE 2015-continuing Alex’s Million Mile Challenge, Bryn Mawr, PA SUPPORT:

1. Title: “Factors Influencing the Peer Acceptance of Children with Cancer” Funding Agency: General Clinical Research Center, The Children’s Hospital of Philadelphia Grant number: Junior Clinical Investigator Award; parent grant – M01 RR00240 Role on project: PI Effective Dates: 06/01/2000 – 05/31/2001 Total Direct Costs: $4,075

2. Title: “Psychosocial Impact of Pediatric Bone Marrow Transplant” Funding Agency: National Institutes of Health/National Cancer Institute Grant number: R01 CA060616 Role on project: co-I/Site PI (Phipps, PI) Effective Dates: 04/01/2004 – 06/30/2007 Total Costs: $1,773,855

3. Title: “Measuring Sibling Cancer-Related Beliefs and Adjustment”

Funding Agency: National Institutes of Health/National Cancer Institute Grant number: R03 CA110926 Role on project: PI Effective Dates: 09/01/2004 – 08/30/2008 Total Direct Costs: $100,000

4. Title: “Family and Peer Influences on Sibling Adjustment to Childhood Cancer” Funding Agency: American Cancer Society Grant number: MRSG 05-213 CPPB Role on project: PI Effective Dates: 07/01/2005 – 06/30/2011 Total Costs: $706,000

Melissa A. Alderfer, Ph.D. Page 33 SUPPORT (continued):

5. Title: “Promoting Treatment Adherence in Adolescent Leukemia” Funding Agency: National Institutes of Health/National Cancer Institute Grant number: R01 CA119162 Role on project: co-I/site PI (Drotar, PI) Effective Dates: 08/01/2007 – 07/31/2013 Total Direct Costs: $2,500,000

6. Title: “Siblings of Cancer Survivors: An At-Risk Population” Funding Agency: LIVESTRONG/Lance Armstrong Foundation Grant number: No assigned number Role on project: co-I (Ewing, PI) Effective Dates: 12/01/2007 – 11/30/2008 Total Direct Costs: $25,000

7. Title: “Family Decision Making in Pediatric Bone Marrow Transplantation” Funding Agency: National Institutes of Health/National Cancer Institute Grant number: R21 CA131875 Role on project: co-I/site PI (Pentz, PI) Effective Dates: 09/01/2008 – 08/30/2010 Total Direct Costs: $275,000

8. Title: “Reducing Posttraumatic Stress Symptoms in Siblings of Children with Cancer”

Funding Agency: Department of Defense, Congressionally Directed Medical Research Program Grant number: parent grant – W81XWH-07-2-0116 Role on project: co-I/site PI (Hayes, PI of subaward; Hock, PI of parent grant) Effective Dates: 10/01/2009 – 12/31/2012 Total Direct Costs (site): $35,000

9. Title: “Self Efficacy and Problem Solving Skills in Teens with Cancer” Funding Agency: Alex’s Lemonade Stand Foundation/Center for Childhood Cancer Research, CHOP Grant number: No assigned number Role on project: PI Effective Dates: 04/01/2011 – 03/31/2013 Total Direct Costs: $25,000

10. Title: “Parental Decision-making Regarding Genetic Testing of and Communication with Children and Adolescents for Germline Mutations in the TP53 Tumor Suppressor Gene” Funding Agency: PENN Center for the Integration of Genetic Healthcare Technologies (PennCIGHT) Grant number: No assigned number Role on project: co-I (Nichols, PI) Effective Dates: 08/01/2011 – 07/31/2013 Total Direct Costs: $50,000

11. Title: “Translational Behavioral Oncology Research: Infrastructure Grant” Funding Agency: Alex’s Lemonade Stand Foundation/Center for Childhood Cancer Research, CHOP Grant number: No assigned number Role on project: co-I (Kazak, PI), then PI Effective Dates: 02/01/2012 – 1/31/2014 (my involvement ended 9/30/2013) Total Direct Costs: $100,000


12. Title: “Adolescents’ Perspectives of the Risks and Benefits of Genetic Testing for Hereditary Predisposition to Cancer” Funding Agency: Alex’s Lemonade Stand Foundation/Center for Childhood Cancer Research, CHOP Grant number: No assigned number Role on project: PI Effective Dates: 02/01/2012 – 10/28/2013 Total Direct Costs: $25,000

13. Title: “Neurocognitive and Health-Related Quality of Life Evaluation of Children undergoing Hematopoietic Stem Cell Transplant” Funding Agency: The Tomorrow Fund (private donor) Grant number: No assigned number Role on project: co-I (Bunin, PI) Effective Dates: 07/01/2011 – 06/30/2015 (my involvement ended 09/30/2013) Total Direct Costs: $100,000

14. Title: “Development of a Screening Module to Assess Sibling-Related Psychosocial Risk in Families of

Children with Cancer” Funding Agency: Alex’s Lemonade Stand Foundation, Psychosocial Launch Grant Grant number: No assigned number Role on project: Primary Mentor (Long, PI) Effective Dates: 12/15/2014 – 12/14/2016 Total Direct Costs: $100,000

15. Title: “Youth with poorly controlled type 1 diabetes: Do behavioral interventions improve health outcomes and lower total healthcare costs?” Funding Agency: American Psychological Association, Center for Psychology Grant number: No assigned number Role on Project: co-I (Price, PI) Effective Dates: 06/01/2015 – 5/31/2016 Total Direct Costs: $24,000

16. Title: “Trajectories of Sibling Adjustment to Childhood Cancer: The First Two Years Post-diagnosis”

Funding Agency: The Andrew McDonough B+ Foundation Grant number: No assigned number Role on Project: PI Effective Dates: 12/15/2015 – 12/14/2018 Total Direct Costs: $100,000

17. Title: “Assessment of Psychosocial Risk among Families of Children with Spinal Muscular Atrophy”

Funding Agency: Cure SMA Grant number: No assigned number Role on Project: PI Effective Dates: 03/01/2016 – 12/31/2018 Total Direct Costs: $50,000


18. Title: “Disseminating Evidence-Based Psychosocial Care through Pediatric Oncology Camps” Funding Agency: American Cancer Society Grant number: Contract #36337 Role on Project: PI Effective Dates: 07/01/2016 – 03/31/2017 Total Direct Costs: $2,000

19. Title: “Trauma Informed Care for Children and Families in Pediatric Healthcare” Funding Agency: Toy Foundation Grant number: No assigned number Role on Project: Co-I (Kazak, PI) Effective Dates: 10/01/2016 – 09/30/2018 Total Direct Costs: $825,000

20. Title: “Identifying Psychosocial Risk in Sibling of Children with Cancer: The Sibling Module of the Psychosocial Assessment Tool”

Funding Agency: The Andrew McDonough B+ Foundation Grant number: No assigned number Role on Project: PI Effective Dates: 01/15/2018 – 01/14/2020 Total Direct Costs: $150,000

21. Title: “Pain Management in Pediatric Cancer: Understanding Family Decision Making”

Funding Agency: Nemours Biomedical Research Grant number: No assigned number Role on Project: Primary Mentor (Hildenbrand, PostdoctoraI Fellow) Effective Dates: 03/01/2018 – 02/28/2020 Total Direct Costs: $40,998

22. Title: “Transdisciplinary Versus Usual Care for Type 1 Diabetes in Adolescence”

Funding Agency: National Institutes of Health (NIDDK) Grant Number: 1-DP3-DK113235 Role on Project: Co-Investigator (05/01/18-12/31/18) PI (01/01/19-3/31/20 (Wysocki, current PI) Effective Dates: 05/01/18-03/31/20 Total Direct Costs: $1,072,220

23. Title: “Caregiver Use of an Online Patient Portal in Pediatric Oncology”

Funding Agency: Hyundai Hope on Wheels Grant number: no assigned number Role on Project: co-I (Schultz, PI) Effective Dates: 01/01/2019 - 12/31/2020 Total Direct Costs: $200,000

PATENTS:

None

NEMOURS CHILDREN’S HEALTH SYSTEM SIDNEY KIMMEL … CV... · POSTGRADUATE TRAINING AND FELLOWSHIP APPOINTMENTS: 1999-01 Fellowship, Clinical Child (Pediatric) Psychology, Division

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