Nbs vylh volunteers copy (july 13.2010)

Newborn Screening: Saving Babies of the Future

Aple Dowannie B. TadlasVYLH-Mindanao

Mindanao State University

Saved

NOT Saved

Newborn Screening is An essential public health program that prevents catastrophic health

consequences through early detection, diagnosis and treatment.

What disorders are screened?

• Congenital Adrenal Hyperplasia CAH)• Congenital Hypothyroidism (CH)• Phenylketonuria (PKU)• Galactosemia (Gal)• Glucose-6-Phosphate Dehydrogenase Deficiency (G6PD def)

Why are these disorders included in the NBS Panel

of Disorders?

• Local Prevalence• Reversible if treated on time• Treatment is available

33,000 babies can be saved every year

*Assuming a cohort of 2.M newborns

Alarm Signal

•Babies look normal at birth.

• Waiting for the onset of the signs and symptoms would lead to irreversible effects to the body meaning its too late.

Disorder Screened

Effect if NOT SCREENED

Effect if SCREENED and

Treated

CH (Congenital Hypothyroidism)

Severe Growth and Mental Retardation

Normal

CAH (Congenital Adrenal Hyperplasia)

Death Alive and normal

GAL (Galactosemia)Death or Cataracts

Alive and normal

PKU (Phenylketonuria) Severe Mental Retardation

Normal

G6PD Deficiency Severe AnemiaKernicterus

Normal

Effects if Not screened

• Newborn screening is ideally at least 24 hours from birth.

When is newborn screening done?

Prick here

How is newborn screening done?

Newborn Screening is Newborn Screening is available in the Philippinesavailable in the Philippines

•Hospitals

•Birthing/lying in centers

•Health Centers/Rural Health Center

Newborn screening FeeP550 Giving up

1 bottle of coke Every week for 1 year

Giving up 1.5 sticksevery day for 1 year

Giving up 2 bottlesevery monthfor 9 months

Giving up 2 cells cards in 9 months

Missing 55 days ofdaily lotto bet

METRO MANILAMETRO MANILACapitol Medical CenterCardinal Santos Medical CenterChildren’s Medical CenterChinese General HospitalDe Los Santos Medical CenterDr. Jesus Delgado Memorial HospitalDr. Victor R. Potenciano Medical CenterFEU-NRMFHospital of the Infant JesusJose Reyes Medical CenterLas Pinas Integrated District HospitalMakati Medical CenterManila Doctors HospitalManila Sanitarium and HospitalMary Chiles General HospitalMary Johnston Hospital, Inc.MCU-FDTMFMedical Center ManilaMetropolitan HospitalMPI-Medical Center MuntinlupaNational Children’s HospitalOlivares General HospitalOspital ng MaynilaOur Lady of Lourdes HospitalPerpetual Help Medical CenterPhilippine Children’s Medical CenterPhilippine General HospitalQuezon City General HospitalQuezon City Medical CenterQuirino Memorial Medical CenterRizal Medical CenterSan Juan Medical CenterSanto Tomas University HospitalSt. Luke’s Medical CenterSt. Martin de Porres HospitalThe Medical CityUERMMMCUnited Doctors Medical Center

Started in 18 privateand 6 govt hospitals in 1996

The group of doctors comprised the Newborn Screening Study Group

The pilot project was named the Philippine Newborn Screening Project, a multi-center trial.

Highlights of the Phil Program 1996 24 hosp

Wao District HospitalWell-Family Midwife Clinic - PakongWell-Family Midwife Clinic - MacabantogWell-Family Midwife Clinic - SabpaWell-Family Midwife Clinic - TabaoWell-Family Midwife Clinic - MonibWell-Family Midwife Clinic - LastimosoWell-Family Midwife Clinic - WombWell-Family Midwife Clinic - AhalulWell-Family Midwife Clinic - AcoonCenter for Health Development - ARMMAmai Pakpak Medical CenterDr. Serapio B. Montañer Jr. Al-haj Memorial HospitalTamparan District HospitalBuluan District HospitalTamontaka Barangay Health Center D.O.S. MaguindanaoWell Family Midwife Clinic - Bulalo, MaguindanaoUnayan Municipal HospitalDr. Jose Maria Torres Memorial Foundation Hospital Inc.

NEWBORN SCREENING IN THE PHILIPPINES

2515 NSF as of December 31, 2009

Advocacy Activities

A Hospital Coordinator giving a lecture on newborn screening

Neonatologist Nurse

Nursery Team Community Health Workers

Door to door Campaign

PRESIDENT’S HOUR, PRESIDENT’S HOUR, SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13PRESIDENT’S HOUR, PRESIDENT’S HOUR, SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13

Getting Support of political Leaders

Tools for Advocacy

Website dedicated to Newborn Screening

www.nsrc-nih.org.ph

BILLBOARDS in STRATEGIC SPOTS

Celebrity endorser

In posters and billboards

TV Commercial

Enactment of the

Newborn Screening Act of 2004 (April 6, 2004)

Signing of the

Implementing Rules and Regulation of

RA 9288 (October 5, 2004)

Newborn Screening LawRepublic Act 9288

• Integration in the health delivery system• Includes newborn screening the

licensure requirement of hospitals• Includes newborn screening as a benefit

of the national health insurance

OCTOBER 2006, REUNION OF SAVED BABIESOCTOBER 2006, REUNION OF SAVED BABIES

A simple drop of blood saves lives.

What can we do?