National Physician & Family Referral (NPFR) Project Overview NPFR Project Pilot Project Approach Methodology Professional Surveyors Traditional Media.

National Physician & Family Referral

(NPFR) Project Overview

NPFR Project

Pilot Project

Approach

Methodology

Professional Surveyors

Traditional Media

Millennium Media

Pilot Progress

Pilot Statistics

Pilot Summary (Chart)

2003 Millennium Media

NPFR Database

Phase 2 Project Coverage: USA

Summary

50 Hoops Corporate50 Hoops is a 501 ( c ) (3) organization with (2)

components:1. The National 50 Hoops Basketball Tournament and Health Fair

2. The National Physician and Family Referral (NPFR) Project

The 50 Hoops Health Fairs also include NPFR recruitment.

NPFR is a national physician, community and media outreach for African American prostate cancer patient & family recruitment.

50 Hoops' function includes administration and recruitment for NPFR. The National Human Genome Center at Howard

University will work with 50 Hoops to identify and assist in development of new approaches to recruitment in communities

across the country and abroad.

Please see web site: http://www.npfr.resourcez.com.

50 Hoops Tournaments & Health Fairs

1. Prostate Awareness Basketball Tournaments for men 50 and over

2. Prostate Education (and Quality of Life) Health Fairs

3. On-Site Free Prostate Cancer Screenings with local collaborative follow-up

4. Prostate & Breast Cancer Awareness conferences and workshops for lay and professionals

5. Coordination of on-site support and recruitment for Prostate Cancer research and human genome studies

6. Slam Dunk Prize Box: The KEY to winning prizes is to attend and participate

The 50 Hoops Tournament & Health Fair includes the following components:

50 Hoops Events Overview50 Hoops is reaching a greater percentage of the underserved men than any other prostate cancer education program through our National Tournament and Health Fair.

Education + Participation = Saved Lives

Our purpose is to raise awareness about prostate cancer. Research, health education and early diagnosis is our focus. We serve as a national educational

(fun) source for prostate cancer and health awareness. 50 Hoops is also a consumer information vehicle for participating pharmaceuticals, product

sponsors, health and fitness professionals. Our goal is to educate, and recruit African American Families and to screen men 40 and over who may not

otherwise have resources to get screenings and follow-up services.

National Physician & Family Referral (NPFR) Project

Project Mission: Instill public awareness of prostate cancer research and recruitment of families who meet the criteria for national and international human genome research studies. Serve as community and media advocates and liaison for a national and international physician, community and media recruitment of African American families (and those of West African descent) who meet the criteria for human genome research studies.

 Project Goal: To identify prostate cancer survivors and family members that will act as "contacts" for the families in this human genome recruitment effort. To identify families who have family members (father, brother, uncle, cousin grandfather) who may have been diagnosed with prostate cancer and who meet the criteria for national human genome studies focusing on African Americans.

The NPFR Project is a new 50 Hoops acquisition

FIND THE CAUSE of Prostate Cancer through Genetic Research

FIND THE CAUSE of Prostate Cancer through Genetic Research

Initially, to identify (up to 50) African American families (beginning in Northern California; expanding to Southern California and West Coast) who meet research criteria for African American Hereditary Prostate Cancer (AAHPC) Study of 4+ affected by the disease. To identify networks within the medical community for locating African American man/families with history of prostate cancer within the Western Region. This project supports, expands and enhances the AAHPC Study objectives to find 100 families who meet the criteria.

Pilot Project MissionBegan 2001

Pilot Project Approach

• Developed Methodic Approach/Plan (repeatable & measurable)

• Created Forms, Checklists & Procedures • Employed Professional Telephone Surveyors• Conducted Staff Training • Utilized Traditional Media• Utilized Millennium Media• Focus on Quality not Quantity• Continuous Process Improvement

Methodology

Detailed Project Plan

Defined Process

Forms, Checklists & Procedures

Associate Training

Database Verification

Process Improvement

Professional Telephone Surveyors: Process

Obtain Resource Contact Information from clinics, physician networks, hospitals and medical institutions, professional associations, universities, community health centers, Greek organizations, churches, support groups

Contact Resources

#1 –Number or Percent of African American Prostate Cancer Patients

#2 – Distribute Promo Flyer.. Listed as Supporter..Patients Contact NPFR Directly via 800-677-8441 or web site: www.npfr.resourcez.com

Contact Family Member/Patient Directly

Populate Database

Media packets were sent to publications, radio and TV stations on the west coast and nationally

Traditional Media

Traditional Media

Distributed to physicians,

support groups,

churches and community

organizations

Millennium Media

Links and networks were set up with prostate cancer and Black websites; online newsletters, physician sites, interactive medical and health related sites, newsgroups, online radio and conference sites contacted

Pilot Phase Progress

Pilot Phase Statistics• 73% of Doctors surveyed have African American

Prostate Cancer Patients• 50% of Family Members surveyed are Patients

themselves• 30% of Patients/Families surveyed had other diseases in

family– Breast Cancer– Hypertension– Heart Disease– Asthma– Obesity– Alcoholism– Multiple of above

Pilot Summary

AAHPC Requirements(input)

African American Hereditary Prostate Cancer (AAHPC) Study Criteria, P&E Mission, Methodology & Approach

(guidelines)

Physician & Family Contact Information, Demographics and Physician association(output)

Professional, Trained Staff(enablers)

National Human Genome Projects

NEW!! Millennium MediaMillennium MediaNEW!! http://www.NPFR.resourcez.com

An Established

Web Presence

Millennium Media

Millennium Media

WEBSITE

ReportsDatabase

Our database houses vital access information to physicians that treat a high % of prostate cancer patients and families with a prostate cancer gene.

Phase 2

Phase 1(Pilot)

Phase 3Phase 4

The NPFR project enhances the total 50 Hoops Millennium concept: to educate communities,

screen underserved men and recruit families who meet the criteria for significant African American

Hereditary Human Genome Research.

Find the Cause

Through Genetic Research

Summary