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National Center for Health Statistics D CC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards on Health Data in the NHIS Jacqueline Wilson Lucas Division of Health Interview Statistics
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National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Dec 14, 2015

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Page 1: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

National Center for Health Statistics

DC CCENTERS FOR DISEASE CONTROL

AND PREVENTION

Changes in Race Differentials: The Impact of the New OMB

Standards on Health Data in the NHIS

Jacqueline Wilson LucasDivision of Health Interview Statistics

Page 2: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

What is OMB Directive 15?

• Standard for data collection on race and ethnicity in the federal statistical system

• Implemented by the Office of Management and Budget (OMB) in 1977

• Minimum reporting categories:

• White, Black, Asian and Pacific Islander (API) and American Indian/Alaskan Native (AIAN)

Page 3: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Why change OMB Directive 15?

• Demography of the country is changing

• Resistance to reporting a single race for people with more than one

• Need for federal statistical systems to keep pace with the changing population - most importantly the Decennial Census

Page 4: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

What are the new standards for federal race and ethnicity data collection

• Revised categories:

• White, Black/African American, American Indian or Alaska Native (AIAN), Native Hawaiian or Other Pacific Islander (NHOPI) [new], Asian [new]

• Hispanic origin (Hispanic/Latino)

• Ask prior to and separately from race

Page 5: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Revised guidelines, cont’d

• Data collection and tabulation

• Data systems must allow respondents to report more than one race

• Data systems must tabulate and report information on multiple race persons, provided data meet agency standards

Page 6: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Why changes to race data are important

• Among the most commonly used demographic variables in analysis of health data

• Many health outcomes of interest - hypertension, diabetes, cancer morbidity and mortality - differ by race

• Important to know whether changes in health outcomes by race over time are due to changes in behavior or changes in the way we measure race

Page 7: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

What are the most important effects of the new standards?

• Changes in tabulation and presentation of data shifts in people reported in particular categories

• Changes in trend data monitoring new groups creates breaks in data

• Changes in the interpretation of data for racial/ethnic groups need to understand the effect of reporting and interpreting data for groups whose composition may be changing over time

Page 8: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

How are race data collected in the NHIS?

• Self-reported race and ethnicity collected since 1976; since 1982 for all household members

• Ethnicity asked in one question, race in two:

• Group or groups that best represent HH member’s race

• Which mentioned BEST describes race (for those with more than one race)

Page 9: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Distribution of racial groups in the NHIS, 1997-1999

0% 50% 100%

1997

1998

1999

Surv

ey

year

Percent

WhiteBlackAIANAsian/API*NHOPI*Other raceMultiple race

SOURCE: CDC/NCHS: National Health Interview Survey; weighted estimates.

Page 10: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Age distribution of single race groups, 1998 NHIS

0

20

40

60

80

White Black AIAN API

Per

cen

t Under 17

18-24

25-44

45-64

65+

SOURCE: CDC/NCHS, 1998 NHIS (weighted data)

Page 11: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Age distribution of multiple race groups, 1998 NHIS

0

20

40

60

80

AIAN/White API/White Black/White Other comb

Per

cen

t

Under 17

18-24

25-44

45-64

65+

SOURCE: CDC/NCHS, 1998 NHIS (weighted data)

Page 12: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

95% confidence intervals for private health insurance coverage, 1998 NHIS

0

20

40

60

80

100

White AIAN AIAN/White

Upper bound

Lower bound

Point estimate

SOURCE: CDC/NCHS, 1998 NHIS (weighted data)

Page 13: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

95% confidence intervals for private health insurance coverage, 1998 NHIS

0

20

40

60

80

100

White Black Black/White

Upper bound

Lower bound

Point estimate

SOURCE: CDC/NCHS, 1998 NHIS (weighted data)

Page 14: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

95% confidence intervals for private health insurance coverage, 1998 NHIS

0

20

40

60

80

100

White API API/White

Upper bound

Lower bound

Point estimate

SOURCE: CDC/NCHS, 1998 NHIS (weighted data)

Page 15: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

95% confidence intervals for respondent assessed health status as “excellent or very good”, 1998 NHIS

0

20

40

60

80

100

White AIAN AIAN/White

Upper bound

Lower bound

Point estimate

SOURCE: CDC/NCHS, 1998 NHIS (weighted data)

Page 16: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

95% confidence intervals for respondent assessed health status as “excellent or very good, 1998 NHIS

0

20

40

60

80

100

White Black Black/White

Upper bound

Lower bound

Point estimate

SOURCE: CDC/NCHS, 1998 NHIS (weighted data)

Page 17: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Summary

• measuring new population groups - NHOPI and the multiple race groups - whose characteristics and patterns of illness and disease appear to be distinct and must be studied further

• racial/ethnic identity - fluid, not fixed - changes our concept of race; substantive meaning of primary race

• relationship between race and health in epidemiologic analyses increasingly more complex

Page 18: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Limitations

• Sample size and precision of estimates

• Limited ability to examine large range of health outcomes - to look at data for adults and children will likely require 3 years or more of data combined to get stable estimates

Page 19: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Limitations (Cont.)

• Differences between multiple race groups and their single race counterparts may be explained by SES and other factors not controlled for in these analyses:

• e.g., age-adjustment possible, but age stratification not possible (in part because of age structure of some multiple race groups)

Page 20: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Availability of multiple race data for analysis

• NHIS Public Use Files (on CD-ROM, data tape, web) do not contain detailed information on multiple race groups

• confidentiality and data reliability issues

• geographic and familial clustering

• Special Request Files

• in-house data files containing suppressed information are available through Research Data Center

Page 21: National Center for Health Statistics DCC CENTERS FOR DISEASE CONTROL AND PREVENTION Changes in Race Differentials: The Impact of the New OMB Standards.

Where to find out more about the OMB race standards:

http://www.whitehouse.gov/OMB/inforeg:

Statistical Policy Section - Data on Race and Ethnicity

• question wording (Section II, Appendix B)

• surveys and administrative records (Section IIIb)

• bridging methods (Section V, Appendix D)