National Blood Clot Alliance National Survey About Blood Clots and Stroke Risk Among Atrial Fibrillation Patients Awareness, Information, Prevention, Adherence Key Survey Findings for Healthcare Professionals in Cardiology Made Possible by a Grant from Janssen Pharmaceuticals, Inc.
National Blood Clot Alliance National Survey About Blood Clots and Stroke Risk Among Atrial Fibrillation Patients Awareness, Information, Prevention, Adherence.
Dec 15, 2015
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National Blood Clot Alliance
National Survey About Blood Clots and Stroke Risk Among Atrial Fibrillation Patients
Awareness, Information, Prevention, Adherence
Key Survey Findings for Healthcare Professionals
in Cardiology
Made Possible by a Grant from Janssen Pharmaceuticals, Inc.
www.stoptheclot.org
National Blood Clot Alliance
Patient GoverningBoard
Volunteer based, patient led
Science driven
Medical & Scientific Advisory Board
Dedicated to the prevention & quality treatment of blood clots
that cause DVTs, PEs, stroke
Awareness
Advocacy
Stop the Clot®
National Blood Clot Alliance
www.stoptheclot.org
Perspectives in Atrial Fibrillation (AF)
AF affects 2.6 million in the U.S.
Five-fold increased
risk for ischemic
stroke
Mortality rates have increased
in past two
decades
12 million AF cases projected by 2050
Overview: The NBCA AF Blood Clot/Stoke Awareness Survey
Responds to growing recognition of AF public health burdens
Benchmarks awareness, prophylaxis experiences
Demonstrates gaps in information and evidence-based prophylaxis
Methodology
Development
Questions developed bySurvey Steering Committee
MASAB members
Implementation
National survey firmInternet panels
2010 extensive evaluations 2011 data unveiled
Methodology
• Mean patient age 57.93 -- 4% aged 20-39 -- 82% aged 40-69 -- 14% aged 70-85+
• 53% female
Information
Prophylaxis
Adherence
Awareness500 AF patients
screened from an online panel
Blood Clot Awareness
Aware of blood clots Recognize blood clots as life threatening
91%
n=500 AF patients n=495 AF patients
99%
Risk Awareness/Information Sharing
27% 27%
60%
n=500 AF patients
Patient-Reported Prophylaxis Experiences
Aspirin Warfarin Low molecular weight heparin
67%
52%
12%
n=500 AF patients
Tx Difficulty of Use: Warfarin
Warfarin moderately/very diff...
32%
n=259 AF patients prescribed warfarin
Patient-Reported Treatment Barriers: Warfarin
70%63%
57%50% 48%
76%
n=84 AF patients prescribed warfarin who report it is moderately/very difficult to use
Additional Findings: Warfarin Adherence Among AF Patients
74% of 259 warfarin users report adherence
83% given information or education about the therapy
26% stopped therapy MD advised
Additional Findings: AF Patient Preferences
Therapeutic Options Cited by Patients to Optimize Treatment55% minimal bleeding complications, 52% fewer drug interactions,
46% no monitoring required, 43% fewer dietary restrictions
60% of AF Patients Given or Referred to Education/Information85% brochure/pamphlet, 37% Websites, 30% articles
12% books, 8% CDs/DVDs
AF Patients Say They PreferCD/DVD 93%, Websites 78%, books 74%,articles 72%, brochures/pamphlets 52%
Conclusions and Future Directions
Fill gaps related to blood clot/stroke risk awareness
Optimize education programs/prophylaxis among patients
Research new therapies to address treatment barriers
Opportunities exist for improved patient education
• General awareness is high• Gaps do remain
• Additional information limited• Information referrals limited
• Warfarin Tx barriers identified• Patients report adherence
• Aspirin use is high• Prophylaxis varies
Awareness
Information
Prophylaxis
Adherence
www.stoptheclot.org
Reduced risksand reduced
complications
Improved blood clot/stroke
understanding and prophylaxis
Decreased morbidity,
mortality, costs
Imperatives Moving Forward
www.stoptheclot.org
www.stoptheclot.org
Thank You for Your Commitment
The National Blood Clot Alliance thanks you for your commitment toincrease awareness of blood clots
and to help prevent blood clot complications like stroke.
Jack E. Ansell, MD - Steering Committee ChairChairman, Department of Medicine, Lenox Hill Hospital, Professor of Medicine,
New York University School of Medicine, New York, NY
Alan P. Brownstein, MPHChief Executive Officer, National Blood Clot Alliance, Tarrytown, NY
Richard J. Friedman, MD, FRCSCChairman, Department of Orthopaedic Surgery, Roper Hospital,
Clinical Professor of Orthopaedic Surgery, Medical University of South Carolina, Charleston, SC
Greg A. Maynard, MD, MSc, SFHMChief, Division of Hospital Medicine, University of California, San Diego, CA
Elizabeth A. Varga, MS, CGCCertified Genetic Counselor, National Children’s Hospital, Clinical Assistant Professor of Pediatrics,
The Ohio State University, Columbus, OH
www.stoptheclot.org
The National Blood Clot Alliance extends its appreciation to members of the NBCA Awareness Survey Steering Committee
LF&A, Inc.Lisa Fullam, President, Scottsdale, AZ
Dry Heat Productions, Inc.Scottsdale, AZ
Communications and Production Services
www.stoptheclot.org
The NBCA Awareness SurveyWas Made Possible by a Grant From
For More Information, Contact the National Blood Clot Alliance
On the Web: www.stoptheclot.org
On Facebook: www.facebook.com/stoptheclot
By phone: 877.4NO.CLOT 877.466.2568
©NBCA 2011
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