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Includingd
isability
in
development
Tanya Barron,
International
Director,
Leonard CheshireDisability
May 7 11, 2012
Washington, D.C.
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Leonard Cheshire Disability
Leonard Cheshire Disability is a UK-based NGO which alsoruns the Secretariat for the Leonard Cheshire DisabilityGlobal Alliance, a network of disability and developmentorganisations in 54 countries worldwide.
Our work covers livelihoods, education, research, policy andcampaigning to support inclusive development for peoplewith disabilities.
We have worked with people with disabilities in developingcountries for 60 years and have an academic research centreat University College London to provide an evidence base forinclusive development policy and practice.
Our partners work within their local contexts to provideservices that meet the needs and rights of disabled people intheir areas.
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Some of the Issues
There is a lack of data about the true situation for people
with disabilities in developing countries, although the World
Report on Disability has helped greatly.
The exclusion of disability in the MDGs
The need for targeted action at the same time as advocatingfor mainstreaming the twin-track approach
Nothing about us without us the importance of
supporting disabled people to take a central part in all
development initiatives. The CRPD (now ratified by 112 countries and signed by 153)
- we need to use it!
Turning campaigning into practical services
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Why LCD focuses on education and
livelihoods
The World Report on Disability Tells Us: People with disabilities are more likely to be unemployed
than non-disabled people.
In addition to being a problem for disabled people and their families, thisleads to huge macroeconomic losses. Analysis from 10 low and middleincome countries in Asia and Africa showed economic losses ranging from
3% of GPD in Malawi and Vietnam to 7% of GPD in South Africa. (ILO,2009)
Children with disabilities are less likely to attend school thannon-disabled children.
School enrolment and completion rates also vary enormously: In India, children with disabilities are five times more likely to be out of school than the
national average (UNESCO, 2010) leading to an illiteracy rate among disabled people ofup to 75%. (World Bank, July 2007) In Malawi and Tanzania, having a disability doubles the probability of children never
having attended school. (UNESCO, 2010)
Disabled people tell us these are their priorities
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Education
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Inclusive Education
Leonard CheshireDisability began our
inclusive education work
with partners in the
Oriang District ofWestern Kenya in 2003.
Working in five pilot
schools, within the first
three years weincreased the enrolment
of children with
disabilities from 45 to
600.
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What is our Understanding of Inclusive
Education?In inclusive education, children with and without
disabilities:
Learn together in the same classroom
Participate in the same lessons and recreation
Use materials appropriate to their various needs
Get appropriate support from teachers depending ontheir learning needs
Can move around the school buildings and grounds
without barriers Are treated equally regarding any other issues, such as
ethnicity, language or gender
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Methodology: our Education Projects
Have 8 Interrelated Strands Baseline study to identify children out of school and available
services
Individual child assessment and support (both educationally and interms of other needs, such as rehabilitation, assistive devices,transport, etc.)
Creating an accessible learning environment both in terms ofphysical access and accessible teaching and learning materials
Child-to-child activities that include children with and withoutdisabilities
Family and community awareness and participation
Supporting teachers including in-service and pre-service training
Creating and sustaining partnerships with education authorities atthe local, regional and national levels
Effective monitoring and evaluation using both quantitative andqualitative indicators
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What We Have Found
We have now worked in 13 countries in Asia andAfrica and supported over 16,000 children withdisabilities to enter and stay in school. Somecommon issues include:
The need for education services cannot be separated fromthe need for other services (rehabilitation, transport, etc.).Often the use of an assistive device or improved access is allthat is needed.
Policy and campaign work must address this need for
services. Both parents and teachers need to be convinced of the value
of educating children with disabilities. Changing attitudestowards disability has resulted in huge shifts in parentsbehaviour in some cases.
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Taras Progress:
Integrated Service
Provision Gets Results
This is Tara from Sri Lanka. In2005 the local Cheshire servicegave her physiotherapy and apair of special shoes to walk.
As she grew, the staff taughther parents how to help buildher memory, cognitive anddaily living skills.
Today Tara attends her localschool, where we also trained
the teachers, and helped child-to-clubs to support theinclusion process at theschool.
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The Challenges
What is needed for all children to attend, be retained andreceive an education at school?
rehabilitation, assistive devices accessible transport: How to develop sustainable solutions
for travelling between home and school?
educational assessment at school registration and annually.Without it how do teachers understand the needs of eachpupil, and how can they measure educational achievementand project impact.
Classroom assistants: education systems in some countriesare extremely stressed, with class sizes of up to 100 notuncommon. All the teacher training in the world wont
change that, and wont necessarily help teachers reachchildren who may need additional support within the class. Joined-up services: Inclusion in education cant work in
isolation other services need to become inclusive
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The good news and the bad news
Since 1999, the number of children who dont go to
school has fallen by 33 million to 67 million.
Approximately a third of these out-of-school children
have disabilities. (UNESCO 2011).
So, a huge challenge still, and where inclusion is
starting to work, the risk that the hardest to reach or
most disabled will continue to be left out.
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Livelihoods
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Economic inclusion: issues and
challenges In the past much training for disabled people has focused on
developing specific skills such as handicrafts rather than on marketneeds.
For the last decade, much livelihoods support has focused onmicro--credit, although small business start-up is not right foreveryone
Microfinance rather than micro-credit may be a more usefulapproach, in particular saving and insurance schemes but areoften used for life events (funerals, marriages etc) rather forbusiness start-up
The needs of people with disabilities in rural and urban areas canbe very different. Self employment may be the only option in thecountryside, while urban areas can have growing job markets
A person may be apparently unemployed but make a valuedcontribution to a household economy Conversely, a disabled person may have employment but no or
little increase in personal wealth or consumption
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Livelihoods Resource Centres: our
Approach for People with Disabilities Starting in 2005, Leonard Cheshire Disability developed a
new approach to livelihoods the livelihoods resourcecentre. These one-stop-shops provide training, careerguidance, and links between employees and employers
and have six core components: Assessment, employment guidance and referral
Soft-skills pre-employment preparation
Vocational training / skills development through mainstreaminstitutions or providers
Employers clubs and networks Waged employment job placement and apprenticeships, job fairs
Business development support (self employment start-up anddevelop)
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Programme Development
Corporate partnerships are a strength of the programme. Themanagement consulting firm Accenture is working with us todevelop livelihoods resource centres (LRCs) in 14 locations in 4South Asian countries.
In the pilot phase 2,723 people with disabilities registered to use 5LRCs to access training or microfinance/loans. 1, 279 people (54%)completed the training programmes, and 893 (70%) went on toenter employment or started their own businesses.
Since then we have received investment from other private sectorand institutional bodies such as the EU and USAID, helping tospread the programme to 25 locations in 10 countries in Asia andAfrica.
In China we started LRCs in urban areas, but have now openedcentres in 4 rural areas of China. Halfway through the project, 708previously unemployed people with disabilities had found jobs orstarted their own small businesses. Their average incomes are nowaround RMB 800 (US$ 125) per month; previously they had nofixed incomes or lived below the national poverty line of RMB1196 (US$ 190) per year.
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What We Have Found
Need realistic expectations of micro-credit and businessstart-up
The importance of working through mainstream trainingproviders so that people with disabilities get recognisedqualifications that are the same as everyone elses.
Corporate partnerships are essential Companies need support to become sensitised to disability
issues, but can become enthusiastic employers of peoplewith disabilities.
Training in soft skills is vital in supporting people into
waged employment Family members may need to be supported to understand
the training and employment process
In Africa and Asia growing economies mean more jobs andopportunities for people with disabilites
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Before the project, wewere frustrated that it wasdifficult to access informationor skills we needed. We arehappy now that we have theresource centre to listen to ourideas and needs, and to helpus to get what we really want.With the support of the centre,we are confident to run ourbusiness successfully...
- A self-help group in ruralChina
A Rural Groups Experience
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Mahendran A, from animpoverished rural family inIndia, had a diploma incomputers but was unable
to find a job despite havingmoved to Bangalore, thecentre of Indias IT industry.
The LRC supported him toget an interview with
Caterpillar, a majorinternational company.Mahendran was hired and,later, promoted.
An Urban Mans Experience
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Policy and Campaigns
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Campaigning, Policy and Practice:
Bringing About inclusion Practitioners, service providers and consumers of services
are often best informed as to what works and what doesnt,yet are often not engaged or interested in influencing policy
One aspect of bringing about change is therefore to buildthe capacity and confidence of civil society organisations toengage in policy development
In particular, policy makers must engage people withdisabilities in policy development
An example of work to support inclusive policy developmentis the inclusive policy guidance tool EDAMAT (created withEU funding). This project, involving disabled people at everystage, produced a guidance manual for government officials
to support the development of policies that mainstreameddisability Understanding the place of policy can help to focus
campaigning on specific, achievable goals
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Campaigning for Change: Young Voices
The ultimate campaigning goal is the full implementation of theCRPD.
We have now prioritised campaigning with young people withdisabilities through our Young Voices programme. Local groups ofyoung people with disabilities in 22 countries campaign for fullinclusion and lobby for governments to sign, ratify and implementthe UNCRPD at the local, national and international levels on
issues of their choice. Once empowered in campaigning and leadership, Young Voices
members are becoming leaders in the disability movement andbeyond
Young Voices members have made over 30 films about theirexperiences, which are available onwww.lcdisability.org/youngvoices.
Having expressed their interest in developing music as acampaigning tool, Young Voices members from five countries havebeen trained in music production and more will be trained soon.Hear their songs soon on the website above.
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People often talk about youngpeople as the leaders oftomorrow. But recently SerayBangura, of Young Voices inSierra Leone told a UNaudience:
We are the leaders of today.We have broken the statusquo. And within the next 5-10years you will see persons withdisabilities being leaders,
being ministers, and ultimatelyholding the position ofpresident in our countries.
The Leaders of Today
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Research
The World Report on Disability Calls on
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The World Report on Disability Calls on
Stakeholders to Strengthen and
Support Research on Disability As disability is increasingly included in international aid and
development programmes, donors and policy makers have an ever-greater need for data that is disaggregated for disability.
The Leonard Cheshire Disability and Inclusive Development Centre,run jointly with University College London, has been conductingboth quantitative and qualitative research into disability anddevelopment for over 15 years.
Research includes: A critical review of peer-reviewed literature that explicitly and systematically
analyses the relationship between poverty and disability. The evidencegenerated by this systematic review supports the anecdotal belief thatdisability and poverty are strongly correlated. However, the dynamics andintricacies of this relationship remain ill-defined and under-researched. ThirdWorld Quarterly (2011)
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DFID funded cross-cutting disability research programmeinto:
Access to Water and Sanitation in Uganda and Zambia.Journal of Water and Health (2011)
Disability and Urban Agriculture in Kenya (to bepublished in 2012)
Maternal Child Health for Women with Disabilities in
Nepal (to be published in 2012) Mental Disability, Stigma and Multidimensional Poverty
in India (to be published in 2012)
Collaborative research with Harvard Law School into poverty,disability and law (to be published in 2012)
ILO funded research into disabled street beggars in Ethiopia(to be published in 2012)
A global partnership agreement with UNICEF to researchhow best to include disability across their programmes (2012 2014)
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Quality, impact and value for money
Quality means being accountable to measurable standards(international e.g. ISO, or national standards)
Regulation in many countries is weak or non-existent
Impact understanding how someones life has been
improved attributable impact knowing what impact a piece work or
project has had on change (see 3ie for impact studies)
value for money is a growing demand of donors andimplementing governments
research capacity is essential to enable all of the aboveactivities: providing base line studies, enabling us tounderstand impact, and establishing cost-benefit analysisand value for money measures
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Learn More
You can explore our online resources for disability and developmenton:
www.lcdisability.org/international our main internationalwebsite
www.lcdisability.org/aideffectiveness for all the publications,presentations and papers from our recent conference on disability-inclusive MDGs and aid effectiveness
http://unlcdcon.tumblr.com the multimedia conference blogincluding interviews and statistics
www.ucl.ac.uk/lc-ccr for a comprehensive list of our researchprojects including links to academic papers and publications
www.lcdisability.org/youngvoices our Young Voices site, whereyou can learn about their campaigns, watch their films, and heartheir music
www.lcint.org/?lid=3142 for our guide to disabilitymainstreaming in government policies, EDAMAT.
http://www.lcdisability.org/internationalhttp://www.lcdisability.org/aideffectivenesshttp://unlcdcon.tumblr.com/http://www.ucl.ac.uk/lc-ccrhttp://www.lcdisability.org/youngvoiceshttp://www.lcint.org/?lid=3142http://www.lcint.org/?lid=3142http://www.lcdisability.org/youngvoiceshttp://www.ucl.ac.uk/lc-ccrhttp://unlcdcon.tumblr.com/http://www.lcdisability.org/aideffectivenesshttp://www.lcdisability.org/international8/13/2019 module12_Barron.pdf
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QUESTIONS AND COMMENTS?