Michael A. Diefenbach, Ph.D. & Kevin Durr Mount Sinai School of Medicine & notsoldseparately.com LLC.

Team HealthOwlMichael A. Diefenbach, Ph.D. & Kevin Durr

Mount Sinai School of Medicine & notsoldseparately.com LLC

Get Empowered. Make smart choices.An app designed to make cancer screening and its decision-making process simple and

reliable

BackgroundEarly detection is an important component to

the Nation’s cancer control efforts. However:

Not every person benefits from screeningScreening can be distressingNot all cancer screening procedures reduce Ca

mortalityScreening recommendations vary across

organizationsThus, patients need to be

informed about their optionsinvolved in the screening decision process

Aims of the AppProvide tailored cancer screening recommendations

based on recorded cancer family history and demographic variables

Educate users about screening procedures & cancer prevalance & mortality data by US state

Provides Pros and Cons of screeningProvide decision tool to aid in the decision making

processTestimonials from people who did/did not screenProvide action plan to assist in identifing physicians,

communicating ones decision to provider, provide information about screening for the non-insured

Provide reminders about screening appointmentsOffers mental health resources for emotional distress

Theoretical FrameworkSelf-regulation framework guides the development.

SLR has these key elementsCancer relevant expectations, beliefs, including self-

efficacy beliefs and beliefs about screening and treatmentCancer relevant affective statesPerceived competencies

The app will speak to each of these 3 key components, by: Addressing beliefs and expectationsProviding reassuring messages and resources to cope

with distressOffering detailed action plans

Development of the AppA prototype of the app will be shown to members

of the target audience via focus groups:Men and women eligible for prostate and breast

cancer screeningWomen eligible for cervical cancer screening

We will invite a diverse group of men and women, representing different ages, races, and socio-economic backgrounds.

Focus groups will be transcribed and coded. App will be revised based on focus group results.

Usability Testing of the AppMen and women from target audience will be

asked to use the appUse talk-aloud method (i.e., ask users to

describe what they want to do with the app and record their successes and failures while using the app)

Revise app according to changes of usabiity testing

Launch HealthOwl

HealthOwl on these PlatformsThe app will be available:

on the webOn mobile platforms

iPhone, Android, Blackberry & Windows Phone 7 , and the Web (Internet Explorer, Chrome, Firefox, Safari )

Use of public available dataScreening recommendations and screening

information will be generated from NCI’s PDQ and Medline+.

Prevelance data by state and county level for all major cancers from http://statecancerprofiles.cancer.gov

http://statecancerprofiles.cancer.gov/

Two ways to obtain tailoring data1) User input answering a few questions

aboutFamily history of cancerSexAgeRace/ethnicityInsurance

2) Data input through EPIC. Connect the App via a website to EPIC and relevant data will be transferred into the program.

A walk through HealthOwl :The Example of Prostate Cancer

Simple User Input of Basic Demographic Variables

Visit http://www.healthowl.org/tour/ to watch an interactive video tour of our prototype

http://www.healthowl.org/tour/



Add Family History information





Summary of Family History and Your Screening Options





The Prostate Cancer ScreenProstate Cancer Screen: • Learn facts about prostate cancer• Know Pros and Cons of screening• Rate the importance of Pros & Cons• Receive a summary score of the importance rating• Read patient stories • Find resources for emotional distress• Find a health care provider for screening• Invite a family member to also get screened





Prostate Cancer Facts

Here the user finds:

• Facts about the prostate and its function

• Information about screening procedure and potential side-effects

•up-to-date prostate cancer prevelance and mortality data for the user’s state from http://statecancerprofiles.cancer.gov


http://statecancerprofiles.cancer.gov/




Pros and Cons About Screening

User can read Pros and Cons re prostate cancer screening, e.g.,: PRO: Prostate screening can

help find prostate cancer at an early stage. Then a decision has to be made whether it should be treated or observed.

CON: Researchers have not demonstrated that earlier treatment prolongs or saves lives





Help with Decision—Value ClarificationUser rates each of the Pros & Cons according to their

perceived importance (1=not important; 5=very important)Users receive a summary score and an interpretative

statement about their screening intentions

Patient storiesBased on our work with prostate cancer patients,

these stories represent aggregated opinions by men about their experience with prostate cancer screening.

Coping with UncertaintiesThe goal is to provide reassurance about the

screening procedure and emotional support to those worried about detecting cancer. Use of GPS to deliver tailored resources

Provide resources: •Cancer Information Service (1-800-4Cancer)•American Cancer Society (Man to man support group)•State-specific resources: e.g. for New York

www.newyorkprostate.com

http://www.newyorkprostate.com/

http://www.newyorkprostate.com/

Finding a doctorAn action plan is an important factor in

translating intentions into screening. This pages helps patients find a physician who would

conduct the screening based on their health insurance. It also provides resources for those who are not insured.

Set a reminder for your screening appointmentThe unique part of

HealthOwl is the ability to set screening appointments as recurring events in the future.

Create reminders to create an appointment and for the screening itself

Prior to a scheduled date a reminder email and/or a text message will be sent to the user.

Connecting to family members

Share this app with family members and friends or email or text the link of the HealthOwl site.

This is a good way for family and friends to learn about cancer screening.

HealthOwl --Innovation through 4 “Firsts”1. Informs patients about their screening

options, tailored according to their age, race, gender, and family history of cancer;

2. Supports and assists patients in their cancer screening decision making through information and value clarification;

3. Identifies health care providers and facilities;

4. Provides reminders for current and future screening events.

Significance and ImpactProposed App

Addresses important priorities within the cancer continuum

Theory and evidence-basedIncludes comprehensive disease and

screening-related informationLists of cancer related pros and cons Emotionally reassuring messages and

resources for those who are worriedAction plan (find a doctor, regardless of

insurance status; get emotional support)

HealthOwlGet Empowered. Make smart choices.

www.healthowl.org

Michael Diefenbach – Team Leader and [email protected]

Kevin Durr – Senior Architect and [email protected]

Mayr Budny – User Interface [email protected]


A proven teamOur team has worked together for over 5 years building interactive cancer education and decision aids interventions

http://www.healthowl.org/

mailto:[email protected]










Michael A. Diefenbach, Ph.D. & Kevin Durr Mount Sinai School of Medicine & notsoldseparately.com LLC.

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