Immunoglobulin Database Data Update 2013/14 June 2015 mdsas Medical Data Solutions and Services
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Immunoglobulin Database Data Update 2013/14 June 2015
mdsasMedical Data Solutions and Services
National Immunoglobulin Database data update 2013/14
Report Page No
1.1 Monthly patient registrations 2
1.1.2 Monthly patient registrations January 2011 - March 2014 2
1.2 Monthly patient registrations by speciality 3
1.3 Patient registrations by region April 2013 - March 2014 32.1 Monthly number of patients treated 42.1.2 Monthly number of patients treated January 2011 - March 2014 4
2.2 Monthly number of patients treated by speciality 5
2.4 Yearly number of patients treated 2009 - 2014 5
2.4 Number of treated patients by region 2013/14 6
2.5 Number of treated patients for top 10 diagnoses 2013/14 6
2.6 Number of treated patients in top 20 trusts 2013/14 7
2.7 Number of grey requests and outcomes recorded 2010 - 2014 8
2.8 Number of long term patients treated and Follow-Ups recorded 8
3.1 Monthly immunoglobulin use by regime 9
3.1.2 Monthly immunoglobulin use by regime January 2011 - March 2014 9
3.2 Monthly immunoglobulin use by speciality 10
3.3 Yearly recorded immunoglobulin use by regime 2010 - 2014 10
3.4 Monthly immunoglobulin use by indication 11
3.5 Immunoglobulin use by region 2013/14 11
3.6 Volume of immunoglobulin used in each region 2013/14 12
3.7 Volume of immunoglobulin used for the top 10 diagnoses 2013/14 12
3.8 Volume of immunoglobulin used in top 20 trusts 2013/14 13
3.9 Monthly use of intravenous and subcutaneous immunoglobulin 14
3.10 Monthly use of intravenous immunoglobulin products 143.11 Monthly use of subcutaneous immunoglobulin products 153.12 Monthly use of immunoglobulin products by manufacturer 15
Compiled byMark Foster MDSAS
Introduction
The last Immunoglobulin database report published was the Third Immunoglobulin Database Report in July 2013. The next full database report to be published at the end of 2015 will be the Fourth Immunoglobulin Database Report.
This Immunoglobulin Database Data Update Report (2013/14) details patient registrations, number or pa-tients treated and volumes of immunoglobulin re-corded for the period April 2013 – March 2014. A full list of reports is provided in the table below.
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National Immunoglobulin Database data update 2013/14
Figure 1.1 Monthly patient registrations
Figure 1.1.2 Monthly patient registrations January 2011 - March 2014
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National Immunoglobulin Database data update 2013/14
Figure 1.2 Monthly patient registrations by speciality
Figure 1.3 Patient registrations by region April 2013 - March 2014
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National Immunoglobulin Database data update 2013/14
Figure 2.1 Monthly number of patients treated
Figure 2.1.2 Monthly number of patients treated January 2011 - March 2014
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National Immunoglobulin Database data update 2013/14
Figure 2.2 Monthly number of patients treated by speciality
Figure 2.3 Yearly number of patients treated 2009 - 2014
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National Immunoglobulin Database data update 2013/14
Figure 2.4 Number of patients treated by region 2013/14
Trust No. Patients
Primary Immunodeficiencies 2855
Immune Thrombocytopenic Purpura - Acute 1370
Chronic Inflammatory Demyelinating Polyradiculoneuropathy 1216
Other Conditions 1211
Chronic Lymphocytic Leukaemia 892
Secondary Antibody Deficiencies 837
Guillain–Barré Syndrome 833
Myasthenia Gravis 535
Multifocal Motor Neuropathy 500
Kawasaki Disease 294
Figure 2.5 Number of patients treated for top 10 diagnoses 2013/14
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National Immunoglobulin Database data update 2013/14
Trust No. Patients
Royal Free NHS Trust 410
The Newcastle Upon Tyne Hospitals NHS Foundation Trust 393
Imperial College Healthcare NHS Trust 346
Barts And The London NHS Trust 327
Leeds Teaching Hospitals NHS Trust 327
Salford Royal NHS Foundation Trust 325
Oxford Radcliffe Hospitals NHS Trust 324
University College London Hospitals NHS Foundation Trust 306
Sheffield Teaching Hospitals NHS Foundation Trust 291
Cambridge University Hospitals NHS Foundation Trust 283
Heart Of England NHS Foundation Trust 256
Guy’s And St Thomas’ NHS Foundation Trust 244
Central Manchester And Manchester Children’s University Hospitals NHS Trust 243
University Hospitals Of Leicester NHS Trust 231
Nottingham University Hospitals NHS Trust 218
Southampton University Hospitals NHS Trust 186
Great Ormond Street Hospital For Children NHS Trust 181
East Kent Hospitals NHS Trust 177
Maidstone And Tunbridge Wells NHS Trust 174
Plymouth Hospitals NHS Trust 171
Figure 2.6 Number of patients treated in top 20 trusts 2013/14
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National Immunoglobulin Database data update 2013/14
Year 2010 2011 2012 2013 2014
Long Term Patients 5136 5606 6515 7502 8182
Long Term Patients with Follow-Up 1122 1183 1925 2849 3383
Percentage 22% 21% 30% 38% 41%
Year 2010 2011 2012 2013 2014
Grey Requests 545 672 799 973 801
Grey Requests with Outcome data N/A N/A 236 271 222
Percentage N/A N/A 30% 28% 27%
Figure 2.7 Number of grey requests and grey requests with outcomes recorded 2010 - 2014
Figure 2.8 Number of long term patients treated and Follow-Ups recorded
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National Immunoglobulin Database data update 2013/14
Figure 3.1 Monthly immunoglobulin use by regime
Figure 3.1.2 Monthly immunoglobulin use by regime January 2011 - March 2014
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National Immunoglobulin Database data update 2013/14
Figure 3.3 Yearly recorded immunoglobulin use by regime 2010 - 2014
Figure 3.2 Monthly immunoglobulin use by speciality
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National Immunoglobulin Database data update 2013/14
Figure 3.5 Immunoglobulin use by region 2013/14
Figure 3.4 Monthly immunoglobulin use by indication
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National Immunoglobulin Database data update 2013/14
Diagnosis Usage (Grams)
Primary Immunodeficiencies 970430
Chronic Inflammatory Demyelinating Polyradiculoneuropathy 763828
Multifocal Motor Neuropathy 372252
Other Conditions 291266
Immune Thrombocytopenic Purpura - Acute 232089
Chronic Lymphocytic Leukaemia 180513
Secondary Antibody Deficiencies 164016
Myasthenia Gravis 136118
Guillain–Barré Syndrome 130329
Inflammatory Myopathies 83692
Region Usage (Grams) Percentage
London 875261 24%
North West 448758 12%
Yorkshire & Humber 355534 10%
East Of England 351325 10%
South West 335826 9%
Thames Valley and Wessex 324423 9%
West Midlands 287978 8%
South East Coast 244359 7%
East Midlands 228609 6%
North East & North Cumbria 211707 6%
Figure 3.7 Volume of immunoglobulin used for the top 10 diagnoses 2013/14
Figure 3.6 Volume of immunoglobulin used in each region 2013/14
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National Immunoglobulin Database data update 2013/14
Trust Usage (Grams)
University College London Hospitals NHS Foundation Trust 197368
Royal Free NHS Trust 180883
Salford Royal NHS Foundation Trust 167160
Oxford Radcliffe Hospitals NHS Trust 160559
The Newcastle Upon Tyne Hospitals NHS Foundation Trust 120878
Leeds Teaching Hospitals NHS Trust 110767
Sheffield Teaching Hospitals NHS Foundation Trust 110434
Cambridge University Hospitals NHS Foundation Trust 101619
University Hospitals Of Leicester NHS Trust 90608
Barts And The London NHS Trust 89318
Heart Of England NHS Foundation Trust 85869
Nottingham University Hospitals NHS Trust 75066
Imperial College Healthcare NHS Trust 67991
South Tees Hospitals NHS Trust 62859
Guy’s And St Thomas’ NHS Foundation Trust 60780
Lancashire Teaching Hospitals NHS Foundation Trust 58323
Plymouth Hospitals NHS Trust 58245
Central Manchester And Manchester Children’s University Hospitals NHS Trust 56688
North Bristol NHS Trust 55388
University Hospital Birmingham NHS Foundation Trust 48466
Figure 3.8 Volume of immunoglobulin used in top 20 trusts 2013/14
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National Immunoglobulin Database data update 2013/14
Figure 3.9 Monthly use of intravenous and subcutaneous immunoglobulin
Figure 3.10 Monthly use of intravenous immunoglobulin products
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National Immunoglobulin Database data update 2013/14
Figure 3.11 Monthly use of subcutaneous immunoglobulin products
Figure 3.12 Monthly use of immunoglobulin products by manufacturer
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