24/04/2015 1 Marie Lynch Marie Lynch Marie Lynch Marie Lynch Head of Healthcare Programmes Head of Healthcare Programmes Head of Healthcare Programmes Head of Healthcare Programmes Living Well with Dementia Living Well with Dementia Living Well with Dementia Living Well with Dementia Conference Conference Conference Conference St Luke’s Home, Education Centre St Luke’s Home, Education Centre St Luke’s Home, Education Centre St Luke’s Home, Education Centre 23 April 2015 23 April 2015 23 April 2015 23 April 2015 Presentation Outline • BACKGROUND BACKGROUND BACKGROUND BACKGROUND • Irish Hospice Foundation • Policy Context • Rationale • CHANGING MINDS PROJECTS CHANGING MINDS PROJECTS CHANGING MINDS PROJECTS CHANGING MINDS PROJECTS • Resources • Education • Service Development • Engagement IHF Vision & Mission Our Vision Vision Vision Vision is that no one should face death or bereavement without the care and support they need Our Mission Mission Mission Mission is to achieve dignity, comfort and choice for all people facing the end of life. We do this by addressing, with our partners and the public, critical matters relating to death, dying and bereavement in Ireland IHF Programmes • Palliative Care for All Palliative Care for All Palliative Care for All Palliative Care for All • Primary Palliative Care Primary Palliative Care Primary Palliative Care Primary Palliative Care • Hospice Friendly Hospitals Hospice Friendly Hospitals Hospice Friendly Hospitals Hospice Friendly Hospitals • Bereavement Education and Bereavement Education and Bereavement Education and Bereavement Education and Training Training Training Training • Children's Programme Children's Programme Children's Programme Children's Programme • Forum on End of Life Forum on End of Life Forum on End of Life Forum on End of Life • Fundraising Fundraising Fundraising Fundraising Grant programmes Population and Policy Population and Policy Population and Policy Population and Policy 41,000 140,000 Irelands dementia population trends Good end of life care for people with Good end of life care for people with Good end of life care for people with Good end of life care for people with dementia dementia dementia dementia RATIONALE RATIONALE RATIONALE RATIONALE
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24/04/2015
1
Marie LynchMarie LynchMarie LynchMarie LynchHead of Healthcare ProgrammesHead of Healthcare ProgrammesHead of Healthcare ProgrammesHead of Healthcare Programmes
Living Well with Dementia Living Well with Dementia Living Well with Dementia Living Well with Dementia
Conference Conference Conference Conference
St Luke’s Home, Education CentreSt Luke’s Home, Education CentreSt Luke’s Home, Education CentreSt Luke’s Home, Education Centre
23 April 2015 23 April 2015 23 April 2015 23 April 2015
Presentation Outline
•BACKGROUNDBACKGROUNDBACKGROUNDBACKGROUND• Irish Hospice Foundation
Our VisionVisionVisionVision is that no one should face death or
bereavement without the care and support
they need
Our MissionMissionMissionMission is to achieve dignity, comfort and
choice for all people facing the end of life.
We do this by addressing, with our partners
and the public, critical matters relating to
death, dying and bereavement in Ireland
IHF Programmes
• Palliative Care for All Palliative Care for All Palliative Care for All Palliative Care for All • Primary Palliative CarePrimary Palliative CarePrimary Palliative CarePrimary Palliative Care
• Forum on End of Life Forum on End of Life Forum on End of Life Forum on End of Life
• Fundraising Fundraising Fundraising Fundraising
Grant programmes
Population and PolicyPopulation and PolicyPopulation and PolicyPopulation and Policy
41,000
140,000
Irelands dementia population trends
Good end of life care for people with Good end of life care for people with Good end of life care for people with Good end of life care for people with
dementiadementiadementiadementia
RATIONALERATIONALERATIONALERATIONALE
24/04/2015
2
Good end of life care for people with dementia Good end of life care for people with dementia Good end of life care for people with dementia Good end of life care for people with dementia
1.1.1.1. Communication skills Communication skills Communication skills Communication skills with people with dementia and families with people with dementia and families with people with dementia and families with people with dementia and families
due to cognition, capacity, lack of diagnosis
2.2.2.2. AssessmentAssessmentAssessmentAssessment of end of life symptoms of end of life symptoms of end of life symptoms of end of life symptoms due to diminishing ability to communicate and co-morbidities
due to complex symptoms & range of specialist involvement
4.4.4.4. Increase in Increase in Increase in Increase in acute events/transitions acute events/transitions acute events/transitions acute events/transitions
RESOURCES RESOURCES RESOURCES RESOURCES ---- People with Dementia & FamiliesPeople with Dementia & FamiliesPeople with Dementia & FamiliesPeople with Dementia & Families
Resources - Families
A A A A new education new education new education new education programme of four 90programme of four 90programme of four 90programme of four 90----
minute sessions, run over four consecutive minute sessions, run over four consecutive minute sessions, run over four consecutive minute sessions, run over four consecutive
weeks, for family members (relatives and weeks, for family members (relatives and weeks, for family members (relatives and weeks, for family members (relatives and
friends) of residents. friends) of residents. friends) of residents. friends) of residents.
1.1.1.1. When someone you care about is in a When someone you care about is in a When someone you care about is in a When someone you care about is in a
nursing home nursing home nursing home nursing home
2.2.2.2. How to have a good visit with a How to have a good visit with a How to have a good visit with a How to have a good visit with a
relative/friend with dementia relative/friend with dementia relative/friend with dementia relative/friend with dementia
3.3.3.3. Family involvement in thinking ahead Family involvement in thinking ahead Family involvement in thinking ahead Family involvement in thinking ahead
and decision making in endand decision making in endand decision making in endand decision making in end----ofofofof----life care life care life care life care
4.4.4.4. When someone you love/know is dyingWhen someone you love/know is dyingWhen someone you love/know is dyingWhen someone you love/know is dying
� EndEndEndEnd----ofofofof----life care, communication and personlife care, communication and personlife care, communication and personlife care, communication and person----
centrednesscentrednesscentrednesscentredness
� Communication Communication Communication Communication –––– what helps and hinderswhat helps and hinderswhat helps and hinderswhat helps and hinders
� The impact of dementia on communication abilityThe impact of dementia on communication abilityThe impact of dementia on communication abilityThe impact of dementia on communication ability
� Models of dementia care and how to communicateModels of dementia care and how to communicateModels of dementia care and how to communicateModels of dementia care and how to communicate
� Tips and techniques for communicating with people Tips and techniques for communicating with people Tips and techniques for communicating with people Tips and techniques for communicating with people
with dementiawith dementiawith dementiawith dementia
EDUCATION / EDUCATION / EDUCATION / EDUCATION / training training training training daysdaysdaysdays
Communicating with People with Communicating with People with Communicating with People with Communicating with People with DementiaDementiaDementiaDementiaA new halfA new halfA new halfA new half----day workshop for staff working in residential careday workshop for staff working in residential careday workshop for staff working in residential careday workshop for staff working in residential care
� Case studies understanding Case studies understanding Case studies understanding Case studies understanding
how to support people with how to support people with how to support people with how to support people with
dementia to live well and die at dementia to live well and die at dementia to live well and die at dementia to live well and die at
home home home home
� AAAAnalysis of those who receive nalysis of those who receive nalysis of those who receive nalysis of those who receive
IHF night nursing service IHF night nursing service IHF night nursing service IHF night nursing service
Service Development/ Dying at homeService Development/ Dying at homeService Development/ Dying at homeService Development/ Dying at home
2007 2008 2009 2010 2011 2012 2013 2014
Series 1 3 8 12 14 25 50 63 86
0
10
20
30
40
50
60
70
80
90
100
Axis Title
Axis Title
Axis Title
Axis Title
# people with dementia referred to # people with dementia referred to # people with dementia referred to # people with dementia referred to IHF night nursing service IHF night nursing service IHF night nursing service IHF night nursing service
SUPPORTING HOME SUPPORTING HOME SUPPORTING HOME SUPPORTING HOME
DEATHS FOR PEOPLE DEATHS FOR PEOPLE DEATHS FOR PEOPLE DEATHS FOR PEOPLE
WITH DEMENTIAWITH DEMENTIAWITH DEMENTIAWITH DEMENTIA
Need to support residential care centres
meet end of life care needs of residents
and comply with regulations
Service Service Service Service Development/RCCDevelopment/RCCDevelopment/RCCDevelopment/RCC
Onsite facilitation Individual
tailoring for quality
improvement
EOLC toolkit
Education
End of life reviews
Telephone support
End of life toolkit
Online learning and
support
Community links
Service Service Service Service Development / RCCDevelopment / RCCDevelopment / RCCDevelopment / RCC
Target 350 Residential Care Centres South, Dublin, MidWest & North West