Life As Little Rainman’s Mom A Special Accounting.

Life As Life As Little Rainman’s MomLittle Rainman’s Mom

A Special Accounting

Welcome To HollandWelcome To Holland

My favorite story!

by: Mrs. Moss

To Start WithTo Start With

Told as a parentGood luck from kids..not sex jokesQuestions and AnswersPermission

Matt’s drawing of how he Matt’s drawing of how he hopes it goes!hopes it goes!

Overview of ThemesOverview of Themes

Early Detection and InterventionFamily ChallengesInappropriate BehaviorCommunicationSocial SkillsAbstract Vs. ConcreteAttitudinal Healing

In the beginningIn the beginning

Grew up FloridaFirst love gemsAir ForceGemologyMet Jim…moved to Canada6 kids later…my real gems

Travel and Gemstones Travel and Gemstones

Air ForceAir Force

This is me

Off to GIA (Gemology School)Off to GIA (Gemology School)

me

The Gemological Institute of America, Santa Monica, CA

Marriage to JimMarriage to Jim

Gemology ProfessionGemology Profession

In The BeginningIn The Beginning

Our first!

Kim, Matt & ChristinaKim, Matt & Christina

Our Gleesome Threesome!

Jonathan & JuliaJonathan & Julia

Julia AnnaJonathanJulia

Jonny, Early SignsJonny, Early Signs

Jonny mesmerized by computer

Leading with right

The Gaze!The Gaze!

Jonny’s uncanny gaze as we look back!

Movie ClipsMovie Clips

Signs of Autism Signs of Autism Hands FlappingHands Flapping

Memorizing Memorizing

A one grade A

Movies over and over

David Machine – Mind AliveDavid Machine – Mind AliveThe Digital Audio Visual

Integration Device

Light and Sound therapy

Great results

Grief CycleGrief CycleDr. Kubler-Ross identified five stages in grief

cycle. They are:

1. Denial2. Anger3. Bargaining4. Sadness5. Acceptance They can be experienced in any order and

even together

Autism CluesAutism Clues

Missed social cues

Not “getting jokes”

Enjoys literal idioms

Lack of reality “sense”

Strong reaction to external

Raining Cat’s and Dogs!

Sensory IssuesSensory Issues

Too much stimulation Not enough stimulation

StemmingStemming

E….X….I….T…. Out the door slide

Dangerous SituationsDangerous Situations

Jonny playing with a knife

Taking kids to police station

Not in touch with realityNot in touch with reality

3 barefoot in snow

4 Stephen chimney

5 hugged a tire

6 bike across highway

8 neighbors pool

9 threatened me

11 knife to school

Hurt Feelings Movie ClipHurt Feelings Movie Clip

Experiencing Loss of MichaelExperiencing Loss of Michael

I wish I could have unlimited lives so I could add a life for Michael.

Sensory IssuesSensory Issues

Jonny used to get “comfy” after school!

Caregivers forgetting obviousCaregivers forgetting obvious

“Well, when the bed squeaks, maybe the springs need to be oiled!”

Archie Social Story

Picky EatersPicky Eaters

“I don’t want no mayonnaise!

War over small stuff not worth it.

Socialization more important

Behavior ChallengesBehavior Challenges

Either push or get in

Don’t you know how to handle your kid!

Mrs Lorenz is “unfair to Jonathan” wall

Empowering Kids At SchoolEmpowering Kids At SchoolPochahantis

Shaping Tomorrow

Invisibility:

“For this type of conference special needs kids”

Collaboration with teamCollaboration with team

Parent told me teacher not good

I trusted principal

Everyone doing best

Turned out great

Grade 1 – Mrs SGrade 1 – Mrs S

Learned to lie (abstract)

Shincaryk feathers slide

I told Mrs P I had a tummy ache!

Mrs. Shincaryk doesn’t have feathers!

Christmas PlayChristmas Play

Spank you, spank you very much!

Rules of the gameRules of the game

Broad jump

Social stories

Be on winning team!

Understanding & Understanding & ComprehensionComprehension

Memory recall Stephen

Tetrus

Andrea SpauldingAndrea Spaulding

Boring

Dinosaur

3 P’s of being ahead of 3 P’s of being ahead of behaviors behaviors

Planning

Predicting

Preventing

Swimming PoolSwimming Pool

Jonny missing at pool!

Don’t worry, mom, I took the back alleys, so strangers wouldn’t get me!

Pretty smart, eh?

New OrleansNew OrleansWhat if plane blows up

and parachute down?

Added: Before I get on plane, we go thru an X-ray to make sure there aren’t concealed weapons. Only good people will fly on this plane!

New Orleans ConferenceNew Orleans Conference

Ya mean I get money for these books? Cool!

“Lionel, its me again, Jonny, this time I’m older.”

Difficulties of raising six kidsDifficulties of raising six kids

No it isn’t, you just raise them one at a time!

Hope for FutureHope for FutureMedication pros, cons

IPP = same page and equal

“Jonny continually challenges them put teaching in perspective…what’s really important.”

Little Rainman grade 4 kids read on their own!

How the book was bornHow the book was bornLittle Rainman, Autism Through The

Eyes of a Child

Feeling vulnerableFeeling vulnerable

Put words in his mouth

Simple, easy for everyone to understand.

Toronto ConferenceToronto Conference

Twelve year old inspiration

“Skirting the issue”

Temple Grandin Temple Grandin TestimonialTestimonial

These pictures are some of the best illustrations of what autism is. They give the reader a really good picture of how a child with autism thinks. They think with pictures in their head.

I use them in my presentation and lectures to demonstrate visual thinking process.

Temple Grandin, Presenter, Author "Thinking in Pictures"

Jonny reading book clipJonny reading book clip

Helping him understand

What is a social storyWhat is a social story

Carol Gray said LR like one big Social Story

Social Story helps individual get “in” their environment, not outside looking in. They become scripted actors in their own life’s play.

Jerry Jampolsky Jerry Jampolsky CoincidencesCoincidences

“God’s way of remaining anonymous”

Arlington

Lamar

Woodbury

Sign birthday and Jonathan man

What we doWhat we do

KEEN Education Foundation

Exceptional Resources

Keys To The Treasure Chest

Autismtoday.com

AlexAlex

When he was first born

First signsFirst signs

Alex in jolly jumperBrain scanSpecialist

“though your son doesn’t have a brain tumor, I’m afraid he has Cerebral Palsy.”

Alex therapyAlex therapy

First diagnosis: Ataxic Cerebral Palsy

Speech Therapy

Occupational Therapy

Physical Therapy

Speech challenges clipSpeech challenges clip

I love Alex

Speech challenges

Label controversyLabel controversy

Dog and cat picture

Good for funding

Communicate intervention concepts

Bad for gross generalization

FamilyFamily

Dig for supportNeed flexible reliefBetter education

Large family forces Jonny to interact with others in his face whether he likes it or not.

How special needs effect How special needs effect other siblingsother siblings

EmbarrasmentProtectionBus driver..archiePrideSpecial Needs family

Special neighborsSpecial neighbors

Deep pressure calms

Squeeze machine, mattress, aqua-massage

Kim said:

“It’s like the pots giving birth!”

Squeeze machine clipSqueeze machine clip

Temple Grandin’s “Squeeze Machine”

Temple Grandin and KidsTemple Grandin and Kids

SocializationSocializationBeavers & CubsFootball

Mom, I’m the only one that can communicate to Jonny’s other dimension. He’s in another world, mom, we even say:

“Earth calling Jonny”

Special Siblings & Pride!Special Siblings & Pride!

Playing favoritesPlaying favorites

Kids say we favor

Extended at distance

Through prayer, medication and meditation

Tomorrow and BeyondTomorrow and Beyond

Unique familyUnique family

Routines impossibleHope they share storyJonny inventory…

Diagnosing Jefferson

University Orchestra clipUniversity Orchestra clip

Jonny leading the orchestra

Future PromiseFuture Promise

Seek understanding..sharingPositive advocacyWork with kids

What Does It Mean To MeI Am Special

Recipe for SuccessRecipe for Success

Raise awareness, educateParents accept diagnosis, get past denialParents, educators, support..same pageEqual treatment to allOpen minded, relentless persistenceNon-judgmental or defensiveMost importantly child is the focus

Your GardenYour Garden

Poem by Mary-Lou Sims

As a Gemologist True GemsAs a Gemologist True Gems

I’ve learned to look at the inclusions within gems as beautiful characteristics rather than flaws. Each unique in their own way. My children are my own little gems.

Our Real GemsOur Real Gems