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3/21/14
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Daniel Z. Sands, MD, MPH @DrDannySands Society for Par=cipatory Medicine Beth Israel Deaconess Medical Center Harvard Medical School Boston, MA
Pallia=ve care means pa=ent and family-‐centered care that op=mizes quality of life by an=cipa=ng, preven=ng, and trea=ng suffering.
Pallia=ve care throughout the con=nuum of illness involves addressing physical, intellectual, emo=onal, social, and spiritual needs and to facilitate pa8ent autonomy, access to informa8on, and choice.
Affective Impact: 61M Minister with DM and Chronic Pain
I have a lot of medical issues. This email system has left me feeling comfortable and in good hands! Otherwise, I would feel as cold, depleted, and alone, as the lifeless tree in my front yard in the deepest of winter!
Hi - there are several things I want to go over when we meet. I suspect several will require referrals, and given the time it takes to get a slot, I'm thinking of making those appointments now. (It's easy to cancel and create an opening for someone else.) I'm 56 and I generally don't have any complaints. Here are the symptoms I'm concerned about: […] What do you think?
ACOR is great. I posted two messages tonight and got responses in 4 and 11 minutes. One responder also sent a private note mentioning Robin and Cathy. The other responder was Cathy. :) Through that list I've also found several other useful sites.
Sources: www.pewinternet.org; PwC HRI Social Media Consumer
Survey, 2012
ì 80% of online adults have looked for health info ì Rising over =me ì Each day, more people search for health informa=on than see a physician! ì More than half act on the informa=on
Source: Harris Interac=ve 9/10/12 at hlp://goo.gl/VzfmT
"Thinking now of new technologies your health care provider could implement, how important would each of the following be to you?” (of pa=ents who saw physician in past year)
Shifting Paradigm?
ì Informa=on asymmetry ì Physician as oracle ì Comfortable ì A burden?
ì Informa=on symmetry ì Physician as partner ì Threatening vs. libera=ng ì Physician as healer
Participatory Medicine is a cooperative model of health care that encourages and expects active involvement by all connected
parties (patients, caregivers, healthcare professionals, etc.) as integral to the full continuum of care. The “participatory” concept may also be applied to fitness, nutrition, mental health, end-of-life
care, and all issues broadly related to an individual’s health.
ì Provider, pa=ent, and carer engagement are cri=cal
ì Par=cipatory Medicine and an important paradigm shir ì “Facilitates pa=ent autonomy, access to informa=on, and choice” ì A new dance that both partners need to learn ì Transforms pa=ent and clinician experience ì Helps shir balance of power
ì Connected technology, including secure e-‐messaging, PHRs, and online resources lowers barriers to engagement, empowering and enabling pa=ents, carers, and providers