Let's Talk Research Annual Conference - 24th-25th September 2014 (Sue Wood & Philip Bell)

The North West People in

Research Forum

Philip Bell

The North West People in

Research Forum

Sue Wood

Reaching out to Communities - promoting

equal access to opportunities for public

involvement in research

Aims of the workshop :-

Why do we need to involve a more diverse

population?

What are the barriers which reduce or prevent

access to opportunities for involvement?

How do we overcome these barriers and how do

we involve those that find it more difficult to have

their voice heard?

Why do we need to involve a more

diverse population?

“The body of research evidence

available to policy makers should

reflect the diversity of the population”

“Research [should be] pursued with the

active involvement of service users and

carers ….including those from hard to

reach groups..”

The Research Governance Framework 2005

Why do we need to involve a more

diverse population?

Involve 2012 – Diversity and Inclusion, what’s it about and

why is it important for public involvement in research

“Inclusion is about positively striving to meet

the needs of different people and taking

deliberate action to create environments

where everyone feels respected and able to

achieve their full potential”

Why do we need to involve a more

diverse population?

Involve 2012 – Diversity and Inclusion, what’s it about and

why is it important for public involvement in research

“we often find that those getting involved are the

people who are the easiest to involve “

People who are used to being involved, with

existing connections, free to volunteer their time

and energy, who understand how research

organisations work

White

ethnic

group The usual

suspects

Older

Higher

socio-

ecomomic

class

Why do we need to involve a more

diverse population?

Involve 2012 – Diversity and Inclusion, what’s it about and

why is it important for public involvement in research

“”this creates a mismatch between those most

affected by health and social care services and

those opting to get involved to influence

services and research”

The Barriers

Equality

Where people live

Communication Issues

Other Issues

Unwanted voices

Financial barriers

Co

mp

lex i

mp

airm

en

ts

Stigma

Confidence

Inadequate information

Self

est

eem

Upfront costs

Benefit Issues

Tokenism De-valuing service users

Expenses

Group discussion:

How do we overcome these barriers and how

do we involve those that find it more difficult to

have their voice heard?

How do we provide

opportunities for all ?

• Equality Issues - gender , age, ethnicity , culture, sexuality, disability, class

• Where people live – homeless, residential service, prisoners, travellers, rural areas, asylum

seekers

• Communication Issues – deaf/blind, people who don’t communicate verbally, English not

first language, people who don’t read or write, those who don’t use computers or the

internet, jargon

• The nature of Impairments – people with complex and multiple impairments

• Unwanted voices – some views are more welcome than others to health care professionals

• Financial Barriers – upfront costs for travel, meeting preparation, expenses not paid,

benefit issues

• External barriers - De-valuing service users/ tokenism, stigma, confidence and self-

esteem, inadequate information about opportunities

(Beresford 2013 – Beyond the Usual Suspects )

The Barriers

Forum Contact Details

Forum Facilitator:

Melanie Chapman

[email protected]

0161 242 1342

Forum website:

www.northwestpeopleinresearchforum.org

Twitter:

@nwpirf

Acknowledgements

The workshop was planned and delivered by public

and professional members of the North West People in

Research Forum Events Working Group, Training

Working Group and the Forum Facilitator:

Sue Wood, Philip Bell, Cara Afzal, Melanie Chapman,

Kath Hennell and Bella Starling.