Kate Swaffer. 27 th International Alzheimer’s Disease International Science Fact or Fiction 7 – 10 th March 2012 London United Kingdom.

Kate Swaffer

27th International Alzheimer’s Disease International

Science Fact or Fiction

7 – 10th March 2012 London United Kingdom

Person Centred Care:

An Insider’s View

Services targeted to the masses, rather than the individual...

Person Centred Care• Define us by our assets• Speak to us, not about us• Work with us, not for us• Don’t diminish our symptoms• Value us• Individualise our support

We are mothers, fathers, lovers, daughters, wivesor husbands, employees or employers, grandmothers, aunties, bloggers...

Issues to be faced• Who will we become• A daily struggle between emotion

and tasks• Further decline• Shame isolation and stigma• Grief and loss• Fear of loss of privacy• Death

Dementia represents the end of dreaming, a long and unforgiving one way odyssey into obscurity, clouded in a thick and unforgiving fog.

The Adelaide Cosy Club

Dementia care is caring for people who often do not know they need care, and don’t want to be in care; no wonder they may become angry and upset!

Thank you

References

Barnett, AE, 2000, Including the person with dementia in designing and delivering care, Jessica Kingsley Publishers, London, UK.

Brooker, D, 2007, Person-Centred Dementia Care: Making services better, Jessica Kingsley Publishers, London, UK.

NOLAN M., DAVIES S., BROWN J., KEADY J. & NOLAN J., Beyond ‘person-centred’ care: a new vision for gerontological nursing, International Journal of Older People Nursing in association with Journal of Clinical Nursing 13, 3a, 45–53, 2004.

O’Rourke, V, 2008, I Wish I Were a Leper, Lumino Press, Qld, Australia.

O’Connor, D. & Purves, B., (Editors) 2009, Decision-making, Personhood and Dementia: Exploring the Interface, Jessica Kingsley Publishers, London, UK.