JANUARY 2017 NEWSLETTER - Liverpoolctrc.liv.ac.uk/Tools/BAccrual/Newsletter/20170207_january.pdf · MISSED 2 MONTHS Rotherham East Sussex Mid Essex North West London ... Follow-up

JANUARY 2017! NEWSLETTER!

MrMarkFlowersPresident,BSCOS

HighlightsthisMonth

•  51casesinJanuary(437total)•  Over100sitesnowrecruited•  Sendusyourx-rays–please

•  Helpuswiththeconsentedcohort…•  EPOSNAabstract–BOSSmethodology

“The BSCOS Board and research sub-committee fully endorse the BOSS study and

encourage all surgeons treating these conditions to participate.”

MonthlyCaseConfirma<onWeaskeverysitetoclickalinkeachmonthtoconfirmcaseuploads–thisistoconfirmpeoplearelookingforcases(toconfirmatrueincidence).120sitesconfirmeduploadswereup-to-dateinJanuary–thankyou.

(downfrom124lastmonth)

AberdeenAiredaleAneurinBevanBarnsleyHospitalBarkingBartsBarnetandChaseBasildonBasingstokeBedfordBetsiCadwaladrBirminghamBlackpoolBoltonBordersGeneralBristolCalderdaleCardiffChelseaChesterChesterfieldColchesterCoventryCrosshouseCwmTafDerbyDudleyDoncasterDumfriesDurhamEast&NorthHertsEastKentEastLancashireEdinburghEpsomForthValleyGlasgow

Almost everyone is contributing every month.

GreatOrmondStreetGreatWesternGuysHairmyresHarrogateHeartOfEnglandHillingdonHinchinbrookHomertonHullImperialIpswichJamesPagetKe\eringLancashireLeicesterLincolnshireLiverpoolLeedsLutonMaidstoneManchesterMedwayMidCheshireMidYorkshireMorecambeBayMonklands&WishNewcastleNorfolkandNorwichNorthumbriaNorthCumbriaNorthMidlandsNorthamptonNorthernDevonNo_nghamOxfordPennine(NthManc)

Pennine(Oldham)PeterboroughPoolePortsmouthQEHosptl,WoolwichRobertJonesRoyalAlexandriaRoyalBerkshireRoyalCornwallRoyalFreeRoyalNaconalOrthoRoyalSurreyRoyalUnitedBathSalisburySandwellScarboroughSheffieldShrewsburySouthDevonSouthManchesterSouthamptonSouthportStockportStGeorgesStHelensSunderlandSwanseaTamesideTauntonUCLWarringtonWestHertsWestMiddlesexWestHertsWhippsCrossWhi_ngtonWinchester NEVERCONFIRMED

NthLincolnshire&Goole

WirralWorthingWrighcngtonYorkWesternIslesWorcestershireWyeValley

MISSEDLASTMONTHDorsetCountyFrimleyPrincessAlexandraGloucesterLewishamRoyalDevonPlymouthBrightonBuckinghamshireWexhamParkNorthMiddlesexMiltonKeynesKingsCollegeInverclyde

MISSED2MONTHSRotherhamEastSussexMidEssexNorthWestLondon

MISSED3MONTHSTaysideRaigmoreWolverhamptonSouthTees(4months)WestSuffolk(4months)

Whohasrecruitedsofar?5recruitedforthefirstcmethismonth28othersrecruitedthismonth•  Airedale•  Barking•  Barnsley•  Barts•  Bath•  Basildon•  Bedford•  Birmingham•  Bradford•  Brighton•  Bristol•  Buckinghamshire•  Cambridge•  Calderdale•  Cardiff•  Chelsea•  Chester•  Colchester•  Coventry•  Crosshouse•  CwmTaf•  Derby•  Doncaster•  Dudley•  Durham•  East&NthHerts

“OVER 100 SITES NOW RECRUITED”

LastMonth’sTop5

HullRotherhamStGeorges

SouthamptonWishaw

•  EastKent•  EastLancs•  EastSussex•  Edinburgh•  Epsom•  Frimley•  ForthValley•  Glasgow•  Gloucester•  GreatWestern•  GreatOrmondSt•  Guys•  Hull•  Imperial•  Ipswich•  Kings•  Lancashire•  Leicester•  Lewisham•  Leeds•  Liverpool•  Luton•  No_ngham•  Manchester•  Maidstone•  Medway

•  MiltonKeynes•  MidYorks•  MorecambeBay•  Newcastle•  NorthMidlands•  Northampton•  NorthDevon•  Norwich•  No_ngham•  Oxford•  Pennine(Oldham)•  Peterborough•  Plymouth•  Poole•  Portsmouth•  PrincessAlexandra•  RobertJones•  Rotherham•  RoyalAberdeen•  RoyalAlexandria•  RoyalBerks•  RoyalCornwall•  RoyalDevon&Exeter•  RoyalFree•  RoyalNaconalOrth•  RoyalBerks

•  RoyalSurrey•  Sandwell•  Sheffield•  Southport•  Stoke•  Stockport•  StGeorges•  SouthTees•  Southampton•  Swansea•  Tameside•  Taunton•  Tayside•  UnitedLincoln•  Warrington•  WestHerts•  WestMiddlesex•  WexhamPark•  Whi_ngton•  Wishaw•  Worcester•  Worthing•  Wrighcngton

E-POSNA:AnabstracthasbeenacceptedtotheE-POSNAmeecnginBarcelonadetailingtheBOSSmethodology.Thiswillbewri\enunderacollaboracvegroupname.Aprotocolmanuscriptisalsobeingpreparedtobepublishedinthenextcoupleofmonths…

NiceCurves….

“YOU ARE PART OF AN EPOSNA ABSTRACT”

CaseDefini<on:SlippedEpiphysis-Allnewcasesofdiseaseagerfixacon.

Perthes’Disease–Allnewcasespresencngtodefinicvecareclinician(i.e.maybediagnosed6monthsagobuttakensomecmetobereferred).

FOLLOW-UPREMINDERS

Thee-mailnowpromptswhenfollow-upistobecompletedonyourcases.Follow-upisfromthecasenotes/x-raysat3-monthspostSCFE(i.e.fracture?Infeccon?etc).Noaddi<onalappointmentsarerequiredbeyond‘rou<necare’.Howtofollow-upcases-Themonthlye-mailwillremindyouaboutwhoisduefollow-up.Tofollow-upcases,pleasegointoRedCap(thelinkfromwww.BOSS.surgeryusingamobilephone/tabletcomputeriseasiest).Ratherthanclicking“addnewcase”,selectthepacent’snumber(i.e.12-1)andthen“3monthf/u”.

TheConsentedCohort39sitesarenowconsencngchildrentocollectPROMSandlong-termfollow-up-inaddicontoenrollingthenintheanonymisednaconalsurveillancecohort.Weneedtofocusonenrollmenttothiscohort–asthiswillgiveimportantPROMSdata.

MISSION: OFFER THE CONSENTED STUDY TO ALL.

ACCESSTOTHECONSENTEDCOHORT…Ifyourcentreisnotopentorecruittotheconsentedcases,thenyoucanpointpacentsinthedireccontheBOSSwebsite(www.BOSS.surgery).Pacentscanregistertheirwillingnesstoparccipateintheconsentedcohortthroughthewebsite,andwewillaskaresearchnursetocontactthemfromAlderHey.EverypacentintheUKwillhavetheopportunitytoparccipateinboththesurveillanceandconsentedcohort

Whocanbeenrolled...Allpacentscanbeenrolledintotheconsentedcohort(eventhoseenrolledtothesurveillancecohortearlieroninthestudy).Finding2yearPROMSonallofthosepacentsincludedinthestudywillbeinvaluable!

AlderHey,Barking,Barnsley,Barts,Basildon,Bedford,Brighton,Bristol,Buckinghamshire,Cardiff,Colchester,Coventry,EastLancashire,EastSussex,Glasgow,GOS,HeartOfEngland,Keaering,Plymouth,Manchester,Maidstone,MidYorkshire,MorcombeBay,Newcastle,Norfolk&Norwich,Northampton,NorthMidlands,Oxford,Peterborough,RobertJones,RoyalBerkshire,RNOH,Sheffield,Shrewsbury,Swansea,WestMiddlesex,Wrigh<ngton.

SitesOpentoConsentPa<ents..

Requestsfromthetrialsteam….MonthlyEmail.Pleaseconfirmcaseuploadsbyclickingthelinkinthee-mail,ratherthane-mailingus–itisfarsimplertomanage(andtakesabout10secondstodo).AnyQueries

[email protected] there are any problems contactEmmathestudycoordinatorat theabove address, or Dan Perry thelead invescgator on [email protected].

DataQueriesSome quescons in RedCap haveoccasionally been missed. Paul(data manager) will highlight thequeries through RedCapwhichwillbeseen ifyou login to thedesktopsite(thisiseasyforResearchNursestoaddress).“NewRecords”Please could you be careful whensaying “create new record” in thedatabase – there are some falserecords been added. These arecreacng data queries, and willulcmately require these to beunpicked! Any Data Queries Contact Paul – 0151-282-4725

SendingRadiographs.WewouldpreferradiographsviatheIEPlink(be\erimagequalityforstudies).IEPlinkisnowlive.Thesearetheinstruccons..PROCEDUREFORPACSTEAMS:q  Idencfythex-raystudytobetransferred.q Duplicatetheimagesandanonymisethe

pacentdetailsasfollows:•  ReplacetheName,NHSNumber,Hospital

numberandanyotherPIDwiththeBOSSStudynumber.

•  Replacethedateofbirthwiththedate1stJanuary2001.

•  Ensurethattherearenootheritemsofdataonthestudythatcouldiden<fythepa<ent.YourInformaconGovernancePolicywillprovidefurtherdetails.

q LogintoIEP,createanewtransfer.q Enterthedescnaconas“AlderHeyChildren’s

NHSFounda5onTrust”.q Enterthedemographicsforthepacent(BOSS

Studynumberassurname,forename,hospitalnumberandNHSnumber,andthedateofbirthas01/01/2001).

q SelectthestudyfromtheStudieslist.q SelecttheDescnaconNode“RBS_Research”

andthePriority“OvernightDownload”.For some the local IEP server doesnot seem to like anonymisacon ofimages – we are happy to receivetheseasCDsore-mail.

InotherBOSSNews…..

(Top-lej)BOSSBurger,McDonaldsNewZealand.(Top-Right)VirginTrainsBOSSnewcampaign.

(Boaom)MrGilesPamson,BOSSCollaboratorandChildren’s

OrthopaedicSurgeoninCoventrydemonstra<nghisfashion

knowledgeonBBC’s‘Pointless’.

ThankstoalltheBOSSCollaborators.IfyouhaveBOSSnews(seriousorotherwise)[email protected]@liverpool.ac.uk(07815122361)