It's About Children - Issue 4 2014 by East Tennessee Children's Hospital

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12

31

Car seat inspections

Dancing with the Knoxville Stars

Year-end gift

DEC.

MAR.

Before

DEC.

6 p.m. to 9 p.m.Regions Bank parking lot in HarrimanIt’s free.You don’t have to register to attend. We’ll teach you everything you need to know to make sure your car seat is used and installed correctly.

7 p.m. to 11 p.m.Knoxville Expo CenterSponsorship tables are $2,000 to $10,000; VIP tables are $400; general seating is $60 a ticket.Call 865-541-8441 or visit www.etch.com/DWTKS to purchase tickets. Proceeds go toward the purchase of medical equipment at the hospital.

If you’re age 70 and a half or older, you can make charitable gifts to Children’s Hospital using funds from your individual retirement accounts (IRAs). Make a tax- free transfer up to $100,000 and fulfill some or all of your required minimum distribution without increasing taxable income. Call 865-541-8441 to learn more.

Mark Your Calendar

2 It’s About Children, Issue 4 • 2014


Photo by Michael Dayah

Like any typical 8-year-old, Braeden Rogers is full of energy. He’s animated when he talks—quick to share his latest feat on the trampoline. And he never passes up an opportunity to wage an intergalactic Lego battle against his older brother, Adam. But Braeden is anything but typical. He wears a continuous glucose monitor, which checks and displays his blood sugar level every five minutes. He also wears a pump that delivers small doses of insulin 24 hours a day. His mother, Jessica, receives texts from Braeden’s teachers throughout the day, giving her updates about his levels. And Braeden’s beloved German shepherd, Jill, is more than just his best friend. She’s his lifesaver.

5Donate at www.etch.com/ItsAboutChildren

Story by E. Anderson

continued on page 6


The Rogers made the nearly two-hour drive to East Tennessee Children’s Hospital, where Braeden was diagnosed with Type 1 diabetes, a chronic condition in which the pancreas produces no insulin, a hormone needed to allow glucose to enter cells in order to produce energy. Braeden spent four days in inpatient care at Children’s Hospital. In the meantime, his parents spent their time in intensive education sessions, learning every aspect about how to care for their newly diagnosed son. “They laid it out as simply as they could without placing fear in us,” Jessica said. “When we walked out of there, we felt like we knew exactly what to do. And they provided us with every resource to make sure we felt secure.” The Rogers spent eight to 10 hours a day—while Braeden was monitored by the doctors and nurses at Children’s Hospital—going through various scenarios that could happen as a result of his condition. “It’s been nearly seven years since Braeden was diagnosed. We’ve met hundreds of Type 1 families. But we’ve never met anyone else—unless they were treated at East Tennessee Children’s Hospital—who received the education we did,” Jessica said. “We just assumed it was like that for everyone—that immersion experience that we had. But we’ve found from talking to other parents that it’s not typical. We feel so lucky to have had that. It really empowered us to know how to take care of Braeden.”

Since the Rogers returned home from Children’s Hospital, the past seven years have been spent adjusting to their new

It was during a December 2007 weekend that Jessica and her husband, Allen, first knew something was very wrong with their 17-month-old toddler. “He was going through a diaper an hour—just soaking through them, and he was indescribably thirsty,” Jessica said. “He would take his sippy cup and just slam it into the water dispenser in the refrigerator door and cry. We knew enough to know that something was up.” The Rogers, who live in Jonesborough, Tenn., immediately took Braeden to their local hospital, where he underwent blood tests. A typical person’s blood sugar level is between 70 and 120 milligrams per deciliter. Braeden’s was more than 600 milligrams per deciliter. “They told us we needed to be in Knoxville in three hours,” Jessica said.

continued from page 5

continued on page 8

6 It’s About Children, Issue 4 • 2014Photos by Michael Dayah

Unlike with Type 1 diabetes, those with Type 2 diabetes do produce insulin. However, their bodies either can’t make enough insulin or it doesn’t work like it should.

They include: • Extreme thirst • Increased appetite • Sudden weight loss • Fatigue • Frequent urination • Sudden vision changes

It’s a condition that prevents the body from producing insulin, a hormone needed to convert sugar, starches and other food into energy. Just like an iPad needs a battery, your body needs energy (called glucose) to keep running.

There’s no cure for Type 1 diabetes. However, with proper monitoring, patients can control their symptoms. Those with diabetes must monitor their blood sugar levels by pricking their fingers for blood several times a day. They must also receive insulin, whether through a pump or regular injections. Diet and physical activity must also be closely monitored to balance blood sugar levels.


Visit www.etch.com/ItsAboutChildren to learn more about our diabetes services.

Number of children diagnosed with Type 1 diabetes each year

Average annual medical costs for children and teens who

don’t have diabetes

Average annual medical costs for children and teens

with diabetes

8

continued from page 6

normal. When he was 20 months old, Braeden received his insulin pump, which closely mimics the body’s normal delivery of insulin by providing continuous doses of the hormone. Then, when Braeden was 4 years old, he got Jill, a diabetic alert dog who is trained to warn Jessica and Allen if Braeden’s blood sugar threatens to go out of a healthy range. As a parent of a child with diabetes, Jessica said her mind is constantly tallying. “It’s nonstop. I’m always calculating, always looking forward. If Braeden jumped on the trampoline, then he needs this. If his blood sugar is at this level at lunchtime, then he needs this for dinner,” she said. “It never stops.” Today, with diligent monitoring and medication, Braeden’s diabetes is more or less under control. He goes to Children’s Hospital once a quarter for visits with James Kerrigan, M.D., his pediatric endocrinologist. As far as Braeden knows, diabetes has always been a part of his life. He can rattle off the number of carbohydrates in a cookie or sleep through a finger stick. He knows that when all his classmates have

cupcakes at a birthday party, he has to eat something that won’t spike his blood sugar. It’s just part of being Braeden. “His attitude—99.9 percent of the time—is phenomenal. He’s a boy. He’s still 8. He may have to face things that other kids don’t have to, but he still gets to be a kid. He doesn’t let his diabetes slow him down,” Jessica said. “That’s so important.” Also important to Jessica and her family is having the resources of Children’s Hospital. She knows if she has a question or concern she can send an email and receive a response within an hour. And she knows she’s prepared for any situation because of the knowledge she and her husband received when Braeden was first diagnosed. “They really empower parents to provide care for their children. Yes, they are doctors and nurses with medical degrees and nursing degrees,” she said. “But they also realize that parents are the primary caregivers. They know how important that is, so they make sure we know exactly what we need to do. We’re so fortunate to have had that.”

Photos by Jessica Rogers

It’s About Children, Issue 4 • 2014


Much like her human counterpart, Braeden Rogers, Jill is anything but typical. The German shepherd, a diabetic alert dog, is trained to sound warning when Braeden’s blood sugar threatens to reach a dangerous level. Jill sleeps during the day, because at night, she’s all business. She paces the room Braeden and his brother, Adam, share, as they sleep in their bunk beds. And if there’s any sort of crisis, she’s the first one to know. “I’ve woken up to her nuzzling me. I’ve woken up to her licking me

in the face. I’ve woken up to her standing on top of me and barking,” Braeden’s mother, Jessica, said. “Her level of alert is relative to how off Braeden’s blood sugar is.” And though Braeden’s continuous glucose monitor beeps if his blood sugar dips too low or climbs too high, Jill’s usually aware of it first—like the night Braeden’s insulin pump malfunctioned. He spent three days in intensive care, but Jessica believes it could’ve been worse without Jill’s quick response.

“Jill went crazy when that happened,” Jessica said. “She probably saved his life. When he was in intensive care, she just stayed on the rug by the door. She was depressed.” Jill goes everywhere with the Rogers family and has taken on another task—monitoring Braeden’s brother, Adam, for seizures. “We do have another dog who is just a pet. We love them both, but there’s a difference,” Jessica said. “We really count on Jill.”

9


Get your child’s medical info You can now access your child’s medical records online through our new patient portal. This easy-to-use, secure tool allows approved users to see: •Appointmenttimes •Prescriptions •Visithistory •Labandtestresults •Dischargeinformation •Billinginformation

Parents who’ve had a child in the hospital recently will automatically receive an email detailing how to access the portal. If your child hasn’t been in the hospital recently, our website has a form you need to complete to become an approved user.

News

Visit www.etch.com/ItsAboutChildren to learn more about our patient portal.

To be able to see a child’s information, you must be the parent or legal guardian. Patients age 18 and older can access their own information.


Keith Goodwin with Ayden Case

When Drew Shelor gave his daughter, Julia Mae, a kiss and watched nurses wheel her down the hall for ear tube surgery, what mattered to him was knowing she was in the best possible hands. What mattered to him was knowing she’d soon be free of the painful ear infections that often kept her from playing with her brother, Blake. Like Drew, pictured on the cover with Julia Mae, nothing is more important to you than your child. And when you turn to us when she’s sick or injured, nothing matters more to us at East Tennessee Children’s Hospital than ensuring she receives the best care possible in a warm, child-friendly environment. What matters to us is helping our patients get back to what they do best—playing with their siblings, scoring a goal on the soccer field or dancing a solo in the recital—as soon as possible. We’re excited to share our fiscal year 2014 accomplishments in this report. We hope they’ll show that we’re constantly working to better the lives of our community’s children—like Ayden Case. Because that’s what matters to us at Children’s Hospital.

Keith GoodwinPresident and CEO

whatask yourself...

matters?


Visit www.etch.com/annualreport to view our annual report video.



highlights

Named one of the country’s top hospitals by the Leapfrog Group.

This report highlights our 2014 fiscal year—July 1, 2013, to June 30, 2014.

Accredited as theonly sleep medicinecenter dedicated topediatrics in East

Tennessee.

Awarded the2013 Tennessee

Nurses Association’sOutstanding

Employer Award.

Receivedaccreditation with

commendation fromthe Accreditation Councilfor Continuing Medical

Education.

Approved as a cleft palate team by the Commission

on Approval ofTeams.

Accredited asa cystic fibrosis care

center by theCystic FibrosisFoundation.

Launched our $75 millionhospital expansion, whichincludes a new surgery

center and a new 44-bed Neonatal Intensive Care Unit.

Michelle Derenski, radiologicaltechnologist, with Chase Brody


When a child is sick or injured, it doesn’t just matter that he gets care, it matters that he gets the right care that’s designed for his growing body. So whether a child has a simple cold, a chronic condition like asthma or a life-threatening illness, we’re ready to provide the diagnosis and treatment he needs. Each one of our patients has a story. Each one makes an imprint in the lives of our staff. Each one reminds us why what we do counts. When every second matters, we’re here for our community’s children.

carematters

Jordan Martinez with Bryce Bower, R.N.



patient population

Anderson 6,938

Blount 12,338

Campbell 3,693

Claiborne 1,984

Cocke 1,939

Grainger 2,111

Hamblen 3,332

Jefferson 4,474

Knox 67,394

Loudon 4,149

Monroe 3,282

Morgan 1,818

Roane 3,256

Scott 1,953

Sevier 11,244

Union 2,376

139,794 Tennessee

519Virginia

779other states

70,230 unique patients • 142,312 patient visits

East Tennessee counties

1,220Kentucky

Kristin Farr, M.D.,with Porter Dickson


5,887 hospital admissions

254,992physician practice visits

161,834 outpatient visits

65,758 Emergency Department visits

774 Neonatal Intensive Care Unit (NICU) patient visits

619 Pediatric Intensive Care Unit (PICU) patient visits

patient stats


741 transports

301 babies treatedfor drug dependency

10,477 surgeries

802 sleep studies

441,637 lab tests

6,142 CT scans

2,718 MRIs

7,022 ultrasounds

49,687 X-rays

2,407 prescriptionorders for chemo

clinical stats

28,904

23,078

13,606

10,424

8,545

6,574

4,962

3,766

3,029

2,829

1,173

509

373

317

282

266

117

112


outpatient activity

28,904

23,078

13,606

10,424

8,545

6,574

4,962

3,766

3,029

2,829

1,173

509

373

317

282

266

117

112

Home HealthGastroenterologyRehabilitationEndocrinologyPulmonologyPhysiatryCardiologyHematology/oncologyUrologyDiabetesNephrologyCystic fibrosisPsychologyInfectious diseasesRheumatologyWeight managementGynecologyDermatology

Delilah Carter, Laboratory



47,000 tongue

depressors

8,045 stethoscopes

58,800 bandages

2,340 frozenpops

107,772 patientmeals

14,640 containers ofbaby wipes

652,854 pounds of linen

hospital gownsto bedsheets

362,830 diapers

inside Children’s Hospital

438doctors

152beds

633nurses

32pediatricspecialties

Marloh andCannon Dowd


To a child, few things matter more than his family. That’s why we provide family-centered care that ensures we care for our patients and everyone who matters to them. That means our social workers are ready to assist families to find the resources they need. Our chaplains are available 24 hours a day to provide support. And for our non-English-speaking families, we provide interpretation services nearly around the clock. For our young patients, it’s not just the clinical care that matters. It’s the therapy dogs whose furry high-fives can brighten their days. It’s the child life specialists who can explain a complicated procedure in words that seem a little less scary. At Children’s Hospital, it’s all part of our commitment to care not just for the child—but for the entire family.

familymatters

Kristi Riggins, child life specialist, with Amanda and Bennett Regas



5,708 visits by 12

therapy dogs


services

3,150 hours of family

support bystaff chaplains

6,811 hospital rounds by

our security officersto ensure patient

safety

26,026 hours of social workservices for 4,619

patient families

27,032 interactions betweenchild life specialists

and patients, including 10,164 cases of play

therapy

14,968 hours of

interpretationsfor 5,788 Spanish-

speaking patients and their families

Carley Hall withMillie the therapy dog


At Children’s Hospital, our responsibility to improving the health and quality of life for our community matters to us. A 2014 study by the Annie E. Casey Foundation reports that the health of Tennessee’s children ranks 31st in the country. That’s why we offer programs that not only address the needs of our patients in the hospital, but those of children and families throughout East Tennessee. We see our role in our community as vital. It matters to us to be leaders in improving child health through specialty services such as asthma screenings, injury prevention programs to keep our children safe and obesity prevention programs to encourage our children to make healthy choices. It’s all part of how Children’s Hospital shows that our community matters to us.

communitymatters

Averi Ramsey


$5,057,444in community benefit

These are programs and servicesdesigned to improve health in

communities and increase accessto health care. They’re integral tothe mission of Children’s Hospital.

$740,867Charity care

Includes losses we incur to cover thecosts of providing medical care topatients whose families are unableto pay for all or part of their care.

$4,316,577Community outreach, education

and wellness programsIncludes child health programs we engage

in for which we’re not reimbursed andcosts for training medical professionals

and community caregivers.


9,671 children educated about the benefits of nutrition

and physical activity

517children screened for asthma

2,049 helmets distributed

403car seats distributed

38car seat inspectionevents conducted

wellness

injuryprevention

John Miguel


12,838 adults and children

participated in safety training

for things like water safety and correct

helmet use

60teens and adultsin the community trained to do CPR

378adults trained

to do CPRin schools

167fire department

and police personneltrained to conduct

car seat inspections

53AED heart-safedrills conducted

10school nursesfunded in 13Title 1 Knox

County elementaryschools

199people attended our13th annual schoolnurse conference

29,702moms interacted

with us on social media

27,665people visited our

website each month

training

schoolnurse

support

experthealth

informationsource

ProjectADAM

52 automated externaldefibrillators (AEDs)

placed in schools

28schools certified as

heart-safe—ready torespond to sudden

cardiac arrests

communityoutreach

4blood drives conducted

at the hospital

260children attended

our summer camps

$151,912in sponsorships

provided tocommunity

organizations thatpromote the healthand well-being of

children andeconomic development


Our clinical care providers are essential to the future of Children’s Hospital. It matters that they receive the education they need to be prepared for a lifetime of caring for our children. Our investment in training doctors, nurses and other health care providers helps ensure that children of future generations will have access to highly trained professionals specializing in pediatric care. We also offer continuing education to thousands of health care professionals already caring for children in the community. We work with more than 70 hospitals, universities and institutions. And every day, the clinical care providers trained by Children’s Hospital are performing lifesaving work and making an impact in our community and beyond.

expertisematters

educationalopportunities

Christy Cooper, R.N.


77 medical fellows,

residents and students

1,042undergraduate nursing students

201 students in other health care positions such as respiratory

therapists, emergency medical technicians and surgical

technicians

2,291continuing medical

education participants

1,726continuing nursing

education participants

732trainees in our pediatric

simulation center

educationalopportunities

33

When a child has an injury or illness, it matters that he receives the specialized care he needs— regardless of his family’s financial situation. And because of the generosity of donors like you, we’re able to provide the necessary equipment to care for thousands of children. We also rely on the tireless commitment by our volunteers. Every day, our volunteers are showing anxious parents the way to their appointments, distracting patients with arts and crafts or rocking tiny infants whose heartsick parents had to return to work. We’re grateful for the countless ways our donors and volunteers show us that what we do for the youngest and most vulnerable members of our community matters to them.

givingmatters

Kyler Jett Bivens




volunteers

donors

56,502 volunteer hoursThis represents a $1,097,268.84 cost-savings. It’s equivalent

to providing chemo to all of our patients who need it.

Visit www.etch.com/donors to see a list of our donors who contributed $100 or more in

fiscal year 2014, listed by giving levels.

$11,667,094in donationstoward our

hospital expansion

$5,483,914in regular annual

donations

5,716donors

15 centsthe cost to

raise a dollar

Harper Dickson withvolunteer Zach Reynolds


cost to operateChildren’s Hospital

payer mix

financial highlights

$563,301.36 a day$205,604,997 a year

64.9 percentMedicaid/TennCare

32.7 percentcommercially

insured

2.4 percentother

$413

$246$162

$8.4$35.9

(millions)

Gross revenueDeductions from revenueExpensesNet gainDebt

Cory Plowman,Environmental Services


Cory Plowman,Environmental Services

2,000employees



Keeping them healthy. Making them better. Giving them second chances. Showing them the future. This is what we’re striving to do for the children who turn to us every day at Children’s Hospital—children like Julia Mae Shelor. And together, with support from our generous community, we’re proving that when we focus on what matters most—remembering that it’s all about the children—we can make a difference in thousands of young lives.

whatmatters

most

Drew and Julia Mae Shelor


Generous donors like you are giving hope and brighter futures to the patients treated at Children’s Hospital. Patients like Mary Nelle Strevel, who spent 11 days in our Neonatal Intensive Care Unit (NICU) after her birth in October 2010 to further her lung development. Or 8-year-old Wesley Graybeal, who visits one of our clinics regularly for his cystic fibrosis. Both of these children have benefited from services that’ll be greatly enhanced as part of our upcoming hospital expansion. This $75 million project includes a new surgery center, a new 44-bed NICU with private rooms, more space

to treat children with chronic conditions like cystic fibrosis and additional parking. Funding for the project comes from two sources— $60 million from Children’s Hospital and $15 million from donors like you. Donors from across the private, corporate and public sectors have made gifts and pledges of more than $13 million as of October 2014. Many of our donors joined us for the Aug. 19 groundbreaking. The expansion, which includes a new five-story building, is expected to take about two years to complete.

Your Dollars at Work

Helping us grow


Gifts of $1 million and greaterBlueCross BlueShield of Tennessee

Children’s Hospital volunteersClayton Family FoundationHaslam Family FoundationRegal Entertainment Group

Gifts of $200,000 to $750,000Delta Dental of Tennessee

Kim Wood McClamroch and familyMr. and Mrs. Mike Crabtree

Thompson Charitable FoundationWill Rogers Institute

Gifts of $60,000 to $150,000Ann and Joe Huie

Mr. Charles HollingsworthDavid and Sandy Martin

First Tennessee FoundationHome Federal BankJohnson and Galyon Mark Cramolini, M.D.

ORAUStowers family

TeamHealthUT–Battelle

Gifts of $50,000 to $59,999BarberMcMurray architectsCommittee for the Future

Denark ConstructionMr. and Mrs. Dennis RagsdaleInnovative Pathology Services

Mr. and Mrs. Joe JohnsonMr. and Mrs. Keith Goodwin

Lucille S. Thompson Family FoundationMr. and Mrs. Randy GibsonMr. and Mrs. Ray Patterson

Realty Trust GroupMr. Ted Flickenger and Ms. Julie Howard

TIS Insurance Services

Special thanks to ...


Visit www.etch.com/expansionor call 865-525-GIVE to donate or learn more about our $75 million expansion.


Thinking about tomorrow Nadine Brantley Dempster, who believed in spending time and money wisely, left her $6.16 million estate to eight charities—one of which was Children’s Hospital. Though the Knoxville native died in 2012 at age 93, the money wasn’t distributed until the fall of 2014. Each of the charities received $770,000. The undesignated donation allows us to use the money in our area of greatest need.


From the heart Two groups are helping Children’s Hospital ensure schools are prepared to save the lives of students or staff in sudden cardiac arrest. Firehouse Subs Public Safety Foundation donated $19,999 to purchase 13 automated external defibrillators (AEDs) for Knox County elementary schools. The wives of the University of Tennessee football coaches donated $10,000, which will help us purchase at least six additional AEDs for area schools. An AED can deliver an electric shock to the heart to return it to normal rhythm if delivered within three to five minutes of someone going into sudden cardiac arrest. Our Project ADAM Tennessee initiative places AEDs in schools and helps train staff to handle emergencies.



Mini gift has major impact Playing with an iPad helps ease the stress and fear of a child in the hospital—providing a fun distraction if he’s undergoing a medical procedure or treatment. Thanks to Extreme Networks, a San Jose-based computer networking company, our patients now have access to six new iPad minis—a nearly $2,000 gift that will provide countless hours of enjoyment. The company donated the small, light-weight devices, which are just right for little hands to grip. The iPad minis will be put to good use by our hospital and Home Health Care patients, children being transported from other hospitals and those receiving care at our Rehabilitation Center.

Power of giving After winning the $259 million Powerball earlier this year, Roy Cockrum pledged to help local charities with his winnings. It was the largest jackpot ever in Tennessee, and the Knoxville man accepted a lump sum payment of $115 million. True to his word, Cockrum recently donated $50,000 to Children’s Hospital. His donation will help provide both training and certification for nurses and social work-related services for patients and their families.


A perfect fit What kind of gift takes 2,500 hours, 25 people and a gallon of glue to assemble? That’d be a 6-foot-long, 9,000-piece jigsaw puzzle of a coral oceanic scene, which hangs in the hallway leading from our Emergency Department into the hospital. The colorful artwork was done by Cody Thornburgh, a Children’s Hospital volunteer, and his fellow dorm residents in Morrill Hall’s Honors Living and Learning Community at the University of Tennessee.

Corporate caring Walmart and Sam’s Club raised $247,000 for Children’s Hospital during a six-week campaign at 27 locations across East Tennessee. Donations were accepted at cash registers and during fundraising activities such as fishing tournaments, car washes and funny hat contests. It was part of a national fundraising effort through Children’s Miracle Network Hospitals, which netted more than $40.2 million for 170 hospitals. Walmart and Sam’s Club are our largest corporate fundraising partners. Money raised this year will be used to help purchase medical equipment such as patient monitors, infant warmers and a portable digital X-ray unit.


Nothing puts a smile on aNothing puts a smile on a child’s face quicker than getting a gift— child’s face quicker than getting a gift

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It's About Children - Issue 4 2014 by East Tennessee Children's Hospital

Health & Medicine

braeden rogers

care of braeden

daywhile braeden

childrens hospitalgoing

michael dayah

inpatient care

diagnosed son

car seat inspectionsdancing