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Indivo X Users Meeting 2012 Kenneth D. Mandl, MD, MPH Boston Children’s Hospital Informatics Program (www.chip.org) Harvard Medical School Center for Biomedical Informatics
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Intro: Indivo X 2012 Users' Conference

Jun 26, 2015

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Health & Medicine

Introduction to the 2012 Indivo X Users' Conference, including a history of Indivo and Personal Health Records, a discussion of the reasons for Google Health's demise, and how Indivo's open architecture might provide a solution.

By Kenneth Mandl, MD MPH, Faculty, Boston Children's Hospital Informatics Program.
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Page 1: Intro: Indivo X 2012 Users' Conference

Indivo X Users Meeting

2012Kenneth D. Mandl, MD, MPHBoston Children’s Hospital Informatics Program

(www.chip.org)Harvard Medical School Center for Biomedical Informatics

Page 2: Intro: Indivo X 2012 Users' Conference

The Personal Health Platform How it diffused Why Google Health died on the vine The cure for personal health platforms

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Portals: A static view into the EHR

PCHRs: Apps platform, and a patient copy of the data

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New England Journal of Medicine

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NEJM

Ecosystem

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SubscribeThe Verbs of PCHR

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New Approaches to Data Liquidity

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ShareThe Verbs of PCHR

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81.4%

34.1%

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VA Survey

79% of Veterans are willing to share personal health information with those outside their health system 62% with a spouse or partner 23% with a child 15% with another family member 25% with a non-VA health care provider

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Add an AppThe Verbs of PCHR

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“We cannot overstate how important PHRs are to the efficient functioning of a low-cost, high quality health-care system . . . . We think that the INDIVO system, or something like it is a good place to start.”

--Clayton Christensen Harvard Business School

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Keeping EHRs Error-Free: the Value of Patient Engagement

http://commonhealth.wbur.org/2011/07/killed-google-health

• Trust issues

• No app developers

• No data

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The App Store for Health

ONC Funded Research Project under the “SHARP” program

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Clinical use case

Med-tastic is a well-funded NewCo which has developed an elegant medication list application that has physician and consumer facing functionality. Patients can annotate medication lists for accuracy.

To work, Med-tastic needs Prescribing history Dispensed medication history Allergies Problem list diagnoses

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Healthcare IT: Why Can’t

Innovators widely share what they create?

Systems innovate faster to support fundamental health care improvement and cost reform?

Providers readily request features and applications?

?

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We imagine EMRs as an iPhone-like platform where Medtastic

could create and widely distribute an app across many

disparate EMRs and PHRs

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EHR as an “iPhone-like” Platform

There is a common application programming interface that enables Software developers to build SUSTITUTABLE

applications Push innovation to the edges Nimbly evolve functionality Avoid vendor lock Shrink switching costs Enable disruption

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An

Inspired Design

from Dave McCandless

(cc license)

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1 Design + 1 Developer + 1 Week

1 Developerin1 Week

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1 SMART App in 3 SMART Systems

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SMARTBP Centiles AppRunning on Cerner

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Medication adherence

JAMIA 2011

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Brief Tangent

I2b2 NIH Funded Pulled into use at 61 Academic Medical Centers ETL Involved in QueryHealth

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“Side Car Strategy”

The data need to come out for analyticsOnce they are out . . .

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i2b2

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Portal-PCHR Hybrid

SMART Platform Apps Have access to EHR data in a vendor agnostic

fashion (from an Epic system, a Cerner system, or an complementary system with data warehoused from the EHR)

So, one can readily create a patient facing portal, which is an apps platform

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Portal-PCHR Hybrid

SMART APPSEHREHR

SMART APPSIndiv

oIndiv

oConnector AppConnector App

Clinician-

Facing Apps

Clinician-

Facing Apps

Patient-

Facing Apps

Patient-

Facing Apps

The best of both worlds: •A local portal, with lots of data from the EHR•A personal health platform with patient control, sharing, and apps

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www.indivohealth.orgwww.i2b2.org

www.smartplatforms.org