International Perspectives on Spinal Cord Injury (IPSCI)

International Perspectives on Spinal

Cord Injury (IPSCI)

BackgroundGuided by Convention

on the Rights of Persons with Disabilities

Building on WHO/World Bank World report on disability

Will support the WHO global disability plan of action 2014 – 2021

Aims of the Report

To bring together the best-available information on SCI, in particular epidemiology, services, interventions and policies;

To reflect the lived experience of people with SCI across the life course and throughout the world;

To make evidence-based recommendations for action.

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How was the Report developed?- Involvement of a large number of stakeholders:

– advisory and editorial committees;– over 200 contributors from low, middle and high income countries.

- Review process: regional consultation, peer review.- People with spinal cord injuries and their

organizations central to the process- Swiss Paraplegic Research (SPF) provided

support to WHO and ISCOS for report's development

What does the Report tell us?

• 250 000 – 500 000

• More men than women ratio 2:1

Causes

• Up to 90% are traumatic causes

• Main three causes: road traffic crashes, falls and violence

• Non traumatic injuries are growing in number

Impacts• 2 to 5 times more likely to die prematurely• high costs to individuals and society.

– indirect costs generally exceed direct costs.– costs of SCI are higher than for comparable

conditions– much of the costs are born by individuals

• lower rates of school enrollment and economic participation

Key messages

Spinal cord injury is: preventable; survivable; liveable.

What works to increase survival

– Timely, appropriate pre- hospital care

– Acute care

What works to improve health and participation

– Access to ongoing health care,

– Access to rehabilitation and mental health services

– Access to appropriate assistive devices

– Specialized knowledge and skills

– improve access to education and economic participation  

Content Overview1. Understanding SCI2. A global picture of SCI3. Prevention of SCI4. Health care and

rehabilitation needs5. Health systems

strengthening 6. Attitudes, relationships and

adjustment 7. SCI and enabling

environments8. Education and employment9. The way forward

Main recommendations1. Improve health sector response to SCI2. Empower people with SCI and their families3. Challenge negative attitudes to people with

SCI4. Ensure that buildings, transport and

information are accessible5. Support employment and self-employment6. Promote appropriate research and data

collection

Summary250,000 – 500,000

people annuallySCI is preventable,

survivable and liveable

The Report shows us how

Success is within reach

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Contact details

Alana Officer – [email protected]

Doug Brown – [email protected] Wyndaele – [email protected]

Per von Groote – [email protected]

Thank you