INDEPTH NETWORK – UPDATE & CURRENT CHALLENGES SEACO, 20-22 November 2011, Johor, Ruth Bonita (acknowledgements to David Ross, Chair INDEPTH SAC)
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INDEPTH NETWORK – UPDATE & CURRENT CHALLENGES
SEACO, 20-22 November 2011, Johor, Ruth Bonita (acknowledgements to David Ross, Chair INDEPTH SAC)
Overview
42 HDSS in 19 countries in Africa, Asia and Oceania for scientific exchange and technical collaboration
All Centres collect core demographic information on vital events (see www.indepth-iSHARE.org)
Starter kit is provided to new HDSS to encourage standardisation of data collecting tools
Striving towards a common platform for easy and efficient sharing of databases (iSHARE)
Over 3,000,000 people under surveillance
Currently 42 centres in 19 countries29 centres in Africa12 centres in Asia1 centre in Oceania
Prospective monitoring of demographic & health events
Verbal autopsy for cause of
death
Capturing episodes of disease and hospital
admission
Measure characteristics of environment or household
members (e.g. SES, vaccines, HIV, nutrition)
Intervention trials
(randomised)
INDEPTH’s Core Business
SCIENCE•Studies using existing HDSS data•Multi-site research, trials, evaluation•Methodological innovation•Collaboration with partner networks
DATA•Management, integrity, quality•Documentation & standardisation•Expand research collaboration•Increase public access
CAPACITY STRENGTHENING
Career paths:•Masters-interns-PhDs-postdocs•Research data management
drivesenables
requ
ires
strengthens
enablesrequires
What INDEPTH does
Supports and strengthen the ability of INDEPTH member centres to conduct longitudinal health and demographic studies in defined populations.
Facilitates the translation of INDEPTH findings to maximise impact on policy and practice.
Facilitates and supports research capability strengthening relevant to INDEPTH activities.
Stimulates and co-ordinates multi-centre applications to research funding bodies for specific research activities.
Key Progress
Important progress includes: Basic demographic data submitted by 33
HDSSs to Secretariat by September 2011 Development of excellent INDEPTHStats
interface Development of clear scientific and data
sharing vision and strategy (eg. Wellcome Trust Strategic Award Proposal)
Current funders
Sida/GLOBFORSK Hewlett Foundation Gates Foundation Wellcome Trust DANIDA IDRC Health Metrics Network European Union Rockefeller Foundation
A wide range of interaction
1. Working Groups Adult health & ageing, Antibiotic resistance, Cause of Death, Climate change Ethics, Fertility Health & demographic
transitions, Health systems, Indoor air pollution, Mental health &
neurology, Migration & urbanization, Mortality analysis &
INDEPTHStats, Sexual & reproductive
health, TB, Vaccination & child
survival
2. Interest Groups Household dynamics Newborn health & epidemiology, Social autopsy, Vaccine safety,
Case study: Risk factors for chronic non-communicable disease: the burden in Asian INDEPTH HDSS
Supplement 1, 2009 in Global Health Action, on line journal (www.globalhealthaction.net)
8 HDSS worked collaboratively Efficient Data manager provided
leadership Translating research into action 9 papers published Capacity building
Current challenges
Importance of leadership of the working and interest groups
Need to focus on the core business of INDEPTH
Restricted funding and human resources even for core business and support for secretariat
Ethics of demographic surveillance (eg. related to data use and sharing) have some specific issues due to longitudinal nature
Senior staff to establish data management systems
Quality assurance Accreditation
Lessons learned
Leadership of the working and interest groups is key
Focus on the core business of INDEPTH is essential
Restrict funding and human resources to core business
Ethics of demographic surveillance (eg. related to data use and sharing) have some specific issues due to longitudinal nature
Effective and efficient data management systems linked to demographic expertise are crucial to ensure quality
Current challenges
There is scope for further standard-setting and innovative work in methods and measurement strategies, including
Development and testing of small area sampling and survey tools, for example, for use at neighbourhood and sub-district levels, in order to generate population data on coverage and health status that district level managers need.
Development of real-time, multi-site, evaluation methods.
Building ‘inter-operability’ between population-based HDSS surveillance records and individual electronic medical records.
Current challenges - INDEPTHStats Initially for core fertility and mortality
indicators, cause of death and migration indicators will soon follow
Data quality needs to be assured Timing for going public (+++) Issues of analytical techniques:
Eg Event History analysis technique for checking longitudinal data
Need to include identifying events for each individual
David Ross
Meaning? The rules are part of the rules for full membership of INDEPTH.
David Ross
This is what Wellcome Trust is proposing, but the INDEPTH rules are that the data must be INDEPTHStats-ready within 3 years of the data period. ie. the data for 2010 must be submitted to the INDEPTH Secretariat and have been checked and approved by Dec 2013. In practice, in my opinion, that would mean that the core results from the data would go public immediately after they have been cleaned and quality controlled, but the Board and Secretariat are still in discussion about whether it will be a requirement that the actual microdata go public at that time.
Translating research results into action Targeted advocacy and communication Targeted audiences: politicians, policy
makers, practitioners, general public Sharing results (iSHARE) and advocacy
skills Virtual library with online access to
papers as well as data sets Links to open access journals such as
Global Health ActionEvans T, AbouZhar C. INDEPTH @10: Celebrate the past and illuminate the future. Global Health Action 2008
Conclusion
A rare example of a southern-based and led international organisation
As a network, is able to add value to the activities of individual (and independent) population surveillance sites
Occupies a niche from which some of the world’s biggest data “holes” can be filled
Has a good track record in global health research (e.g. participation of 4 sites in the recent malaria vaccine trial results)
Is currently making progress on some difficult issues of global data sharing (e.g. iSHARE)
Criteria for full membership of INDEPTH - 1
Full members must:1. Operate an HDSS – at the minimum, have had at
least one follow-up round following an initial census, and have at least one follow-up round per year.
2. Collect data on the core components of demography and health – births, deaths, migrations and pregnancy monitoring.
3. Implement verbal autopsies on death.4. Provide minimum datasets annually to INDEPTH
Secretariat (based on point 2). The lag time for is for a minimum of 3 years. That is, 2010 data must be submitted by 2013.
5. Be prepared to contribute data to cross-site research.
Criteria for full membership of INDEPTH - 2
Full members must:1. Operate an HDSS – at the minimum, have had at
least one follow-up round following an initial census, and have at least one follow-up round per year.
2. Collect data on the core components of demography and health – births, deaths, migrations and pregnancy monitoring.
3. Implement verbal autopsies on death.4. Provide minimum datasets annually to INDEPTH
Secretariat (based on point 2). The lag time for is for a minimum of 3 years. That is, 2010 data must be submitted by 2013.
5. Be prepared to contribute data to cross-site research.
ULTIMATE CHALLENGE : BETTER HEALTH INFORMATION FOR BETTER HEALTH POLICY
Conclusion
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