The University of Sydney Page 1 Implementing evidence into practice to improve chronic lung disease management in Indigenous Australians Professor Jennifer Alison & David Meharg Project Manager & PhD student Faculty of Health Sciences and the Poche Centre for Indigenous Health, University of Sydney Breathe Easy W alk Easy Lungs for Life (BE WELL) AIs: Kylie Gwynne, Boe Rambaldini, Heather Allen and Debbie McCowen CIs: Jennifer Alison, Christine Jenkins, Graeme Maguire, Stephen Jan, Tim Shaw, Sarah Dennis, Zoe McKeough and Vanessa Lee
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Implementing evidence into Breathe Easy Walk Easy Lungs ... · COPD • Questionnaire 2. People with chronic lung disease • Quality of Life • Exercise capacity • Experience
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The University of Sydney Page 1
Implementing evidence into practice to improve chronic
lung disease management in Indigenous Australians
Professor Jennifer Alison&
David MehargProject Manager & PhD student
Faculty of Health Sciences and the Poche Centre for Indigenous Health,
University of Sydney
Breathe Easy Walk Easy Lungs for Life(BE WELL)
AIs: Kylie Gwynne, Boe Rambaldini, Heather Allen and Debbie McCowen
CIs: Jennifer Alison, Christine Jenkins, Graeme Maguire, Stephen Jan, Tim Shaw, Sarah Dennis, Zoe McKeough and Vanessa Lee
The University of Sydney Page 2
BE WELL Overview
– Aim and research question
– Study design, methods and outcome measures
– Knowledge to Action Framework
– BE WELL study flowchart
– Project to date
– Reflections
The University of Sydney Page 3
Aim and Research Question
BE WELL aims to:– Build the capacity of Aboriginal Medical Services in New South
Wales, Australia to provide effective management of Chronic Obstructive Pulmonary Disease (COPD), through pulmonary rehabilitation.
Research Question– Can pulmonary rehabilitation be implemented in Aboriginal
Medical Services and achieve improved health outcomes for Aboriginal people with chronic lung disease?
The University of Sydney Page 4
Study Design – Implementation Science
Source: NIH, CTSA model Thanks to Dr Nicole Rankin
The University of Sydney Page 5
Methods and outcome measures– Research uses mixed methods
– Participants: 1. Aboriginal Health Workers trained as BE WELL program
leaders
2. Aboriginal people with chronic lung disease completing BE WELL
3. Aboriginal Medical Services implementing BE WELL
The University of Sydney Page 6
Participants What to measure How (Pre and Post BE WELL)
1. Aboriginal Health Workers
• Knowledge and confidence managing COPD
• Questionnaire
2. People with chronic lung disease
• Quality of Life• Exercise capacity• Experience of care • COPD hospital
admission and cost of care
• Questionnaire• 6-minute walk test• Yarning circle• Compare COPD hospital
admissions 12 months beforeand after BE WELL program
3. AboriginalMedical Service
• Respiratory services available for people with chronic lung disease
• Questionnaire
The University of Sydney Page 7BEWE= Breathe Easy, Walk Easy
KNOWLEDGE
BEWE resources
Level 1 evidence for Pulmonary Rehabilitation
Guidelines AustraliaCOPD-X & PR
ACTION CYCLEThe Problem - COPD
Indigenous communities:• High incidence COPD• High rates hospitalisation• Limited access to best-practice
management COPD
Adapt knowledge to Local Context in 4 Distinct Aboriginal Medical Services
Assess Barriers to Implementation: • Service Delivery Inventory • Focus Groups