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School of Informatics (College of Science and
Engineering)!School of Philosophy, Psychology, and Language
Sciences (College of Humanities and Social Sciences)
How Private Is Mental Health?
!Maria Wolters!University of
[email protected]!@mariawolters!
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About Mental Health
http://www.optipess.com/2012/09/28/dressing-up/
A third of workers would not tell their managers !if they
experienced mental health problems.!
!Dewa, C. S. (2014). Worker Attitudes towards Mental Health
Problems and Disclosure. The International Journal of Occupational
and
Environmental Medicine, 5(4), 17586.
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Have Applications, Want to Work on Solutions
When the Public is Private
Hacks that Work, or!Security versus Convenience
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Hacks That Work?
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Help4Mood: Supporting People with Depression
3 clinical sites, 2 companies, 5 universities!!daily monitoring
! of activity using actigraph,! of mood, thought patterns &
psychomotor using talking head GUI!
weekly one-page reports to clinicians
Funder: European Union FP7, STREP
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The Help4Mood Development Cycle1. Actigraphy
2. Mood Tracker +!Actigraphy
3. Mood Tracker,!Thought Patterns,!Speech + Actigraphy
4. Mood Tracker,!Thought Patterns,!Behavioural
Activation,!Relaxation,!Speech + Actigraphy
!!!!
Case Studies!!!!
!!
Pilot RCT!!
!People with !
history of depression!
!!!
People with !current depression!
!!!
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Who Uses The Data? Who Generates?
What is the value in the data?! This report is just for you,
isnt it?! Dont make me monitor the monitors.! Im OK with wearing
this watch for research, but ! Why does it say it cant read the
actigraph data?! I want to use the system when I need it.: A
monitoring
strategy became a coping strategy
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Locking Down is Hard to Do Separate mobile phone / laptop vs.
getting data such as
call history, speech (scrambled), movement from users own
mobile!
Data encryption and severely restricting internet use! NHS
requirements (within vs outwith health services) ! Providing access
to clinicians:!
Infrastructure for secure transmission! One more password versus
pushing to email
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When the Public is Private
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Personal Text Data for Personal Use
How not to do it: The Samaritans Radar. !Worried about a friend
who is on Twitter? !Sign up and we will alert you when your friend
sounds like they need a hug or a cup of tea. !Dont want your
friends to be alerted? Set your timeline to private.
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Pros Your public Twitter data is free
for anyone to analyse! Followers are friends! If counsellors
think youre
suicidal, they would tell someone, too!
There are terms that can tell you whether somebody is
suicidal!
False positives are better than false negatives
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and Cons Your public Twitter data is free
for anyone to analyse! Followers are friends! If counsellors
think youre
suicidal, they would tell someone, too!
There are terms that can tell you whether somebody is
suicidal!
False positives are better than false negatives
Twitter has many uses, personal and professional!
People on Twitter with mental health problems have their own
strategies!
Mental health is private; problems carry stigma!
Too many false positives lead to alert fatigue !
Potential for targeted harassment
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Overall, Your public Twitter data is free
for anyone to analyse! Followers are friends! If counsellors
think youre
suicidal, they would tell someone, too!
There are terms that can tell you whether somebody is
suicidal!
False positives are better than false negatives
Twitter has many uses, personal and professional!
People on Twitter with mental health problems have their own
strategies!
Mental health is private; problems carry stigma!
Too many false positives lead to alert fatigue !
Potential for targeted harassment
BAD IDEA
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A Different Approach
Processing personal text (blogs, tweets, Facebook)!and
visualising the results!to allow insight into how mental health
affects!thinking, writing, and posting patterns!!
People can share insights with others if they wish
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Contact Details
Privacy and security in eHealth (applications)!
[email protected]; @mariawolters