Hemophilia Headlines The Hemophilia Foundation of Oregon has a new logo, and has moved. Our new contact information is: office: 456 SW Monroe Ave. #102, Corvallis, OR 97333 phone: (541) 753-0730 fax: (541) 753-0727 email: [email protected]web: www.hemophiliaoregon.org JUNE 2015 Find Us on Facebook Want to know what is going on with the Hemophilia Foundation of Oregon? Check out our facebook page Hemophilia Foundation of Oregon ‘like’ us and you will be kept up to date on all the happenings. Upcoming Events 2015 JUNE: June 19-21, 2015, Southern Oregon Family Camp, Medford/Gold Hills KOA June 27, 2015, Run for Our Lives/The Bloody Run/Terpenning Recreation Complex, Beaverton, registration 7 AM, Race 8 AM June 27, 2015, HFO’s Annual Bleeding Disorders WALK/Terpenning Recreation Complex, Beaverton, registration 9 AM, Walk 10 AM June 27-29, 2015, Summer Teen Program/at Gearhart on the Oregon Coast JULY: July 9, 2015, Portland Support Group/Bullwinkle’s, Wilsonville July 25, 2015 Eugene Support Group/Annual Beach Day, Newport, OR AUGUST: August 2-8, 2015, Camp Tapawingo/near Falls City, OR August 13-15, 2015, National Hemophilia Foundation Annual Meeting/Dallas, TX SEPTEMBER: September 10, 2015, Portland Support Group/Bullwinkle’s, Wilsonville September 13, 2015 Eugene Support Group/TBA, Eugene, OR September 19, 2015 HFO Annual Meeting/Oregon Zoo, Portland What’s Happening with SUPPORT GROUPS If you have not attended a support group before we encourage you to attend one that is convenient to you. Come meet others in your area who share your experiences and concerns with bleeding disorders. Most support group meetings consist of short fun programs, free dinner, and relaxed no-stress conversation. They are enjoyable evenings and they are always open to all ages and stages of life. If these locations don’t work for you contact us at admin@ hemophiliaoregon.org and we can work on starting a group in your area. Some support groups also do a fun summer event such as camping or a day at the coast in addition to regular meetings. Eugene Support Group We will be having our Annual Beach event July 26th at 11am The Best Western Agate Beach Inn, located on Agate Beach in Newport (3019 N Coast Hwy, Newport, OR 97365). Families and kids welcome. Come spend a day on the Oregon coast!! We will have a large meeting space available in the hotel where we will gather. Snacks and a buffet lunch box will be provided at no charge. The chef is able to accommodate special dietary needs so let us know when you rsvp. A program will be provided and sponsored by Sandy Puckett of Bio Rx. Please RSVP by July 22 to the Eugene Support Group at [email protected]. Regular meetings will be in Eugene on Sept 13 and Nov 22. Portland Support Group We meet every other month at Bullwinkle’s Restaurant and Family Fun Center (29111 SW Town Center Loop W, Wilsonville, OR 97070), where we have pizza and salad, enjoy a program and conversation, and let the kids go play in the Family Fun Center. Kids love our support group because of this! Our next meeting will be July 9 at 6:00 PM. Other meetings are scheduled for Sept 10 and Nov 12 this year. Contact us at [email protected] for more information. Southern Oregon Support Group We are looking forward to our annual Southern Oregon Family Camp June 19-21 at Medford/Gold Hill KOA where we have educational programs, camping, swimming, arts and crafts, and all meals provided! Contact Madonna at [email protected] for more information. Regular meetings will be held at the Medford Hampton Inn meeting room on Sept 25, Oct 23, and Nov 20. Please contact us at [email protected] for more information about our fun and welcoming group! HFO Website Please visit our website www.hemophiliaoregon.org and register as a member to receive information regarding upcoming events and programs. Thank you. Join us for our 3rd annual Oregon Bleeding Disorders Walk on June 27. The Walk will be held at the beautiful Howard M Terpenning Recreational Complex at 15707 SW Walker Rd in Beaverton. The Walk is one of our primary opportunities to raise funds to support HFO programs and services, as well as raise awareness about bleeding disorders. The day begins with the Run for Our Lives-The Bloody Run which is a competitive 5 mile race with prizes awarded in 7 age groups and top 3 overall male/female runners. Check in begins at 7 AM and the race begins at 8 AM. Registration can be done the day of the race or online at www.active.com/beaverton-or/running/distance-running-races/run-for-our-lives-the-bloody-run- 5-mile-2015 The fun Walk is 2.5 kilometers (about 1.5 miles) and winds around the Terpenning center on trails and paths. All ages and abilities are welcome. Wheelchairs and dogs are also welcome. The Walk begins with check-in at 9AM and the Walk starting at 10AM. Community members and friends organize Walk teams who raise funds for their teams and proudly wear colorful team tshirts as they walk together. There will also be a team tshirt contest and this is an area where you can really let your creativity flow. The day is about much more than running and walking however. There will be food, games, entertainment by the White Rhino Band, prizes, give-aways, fun baskets to bid on, face painting, exhibit booths, and a chance to get together with the entire bleeding disorders community in Oregon and southern Washington. For more information about the Walk go to our Walk sign-up page at: https://secure.e2rm.com/registrant/LoginRegister.aspx?eventid=160363&langpref=en- CA&Referrer=direct%2fnone or contact HFO at [email protected]. Oregon Bleeding DisordersWalk & Run For Our Lives/The Bloody Run 2015 HFO Mission Statement The Hemophilia Foundation of Oregon enhances the quality of life for individuals with bleeding disorders and their families through advocacy, assistance, outreach, education, and research support. OCTOBER: October 8, 2015, Plasma Facility Tour , Portland and dinner provided by Grifols, TBA October 15, 2015, Dinner and Program, provided by Biogen, TBA October 23, 2015, Southern Oregon Support Group, Medford Hampton Inn October 25, 2015, Shooting for the Stars Fundraising Auction, MAC, Portland NOVEMBER: Nov. 12, 2015, Portland Support Meeting, Bullwinkle’s Family Fun Center, Wilsonville Nov. 13-15, 2015, Women’s Retreat, TBA Nov. 20, 2015, Southern Oregon Support Group, Medford Hampton Inn Nov. 22, 2015, Eugene Support Group, TBA DECEMBER: December 20-21, 2015, Teen Program, TBA 10 456 SW Monroe Ave. #102 Corvallis, OR 97333 How Can You Help the Walk? 1. Register a team and raise money for that team or register as an individual 2. Contact a potential sponsor (individual or Co.) and get a Walk donation 3. Make a personal donation to the Walk 4. Come to the Walk and bid on fun baskets
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Hemophilia Headlines
The Hemophilia Foundation of Oregon has a new logo, and has moved. Our new contact information is:
office: 456 SW Monroe Ave. #102, Corvallis, OR 97333