3/9/2013 1 Health Education via iPad: A pilot project using tablet computers to share health education with LEP patients Christine Wilson Owens EthnoMed.org Interpreter Services Department Harborview Medical Center, Seattle Project • Develop video slideshows in 6 LANGUAGES about 4 TOPICS • Engage Caseworker / Cultural Mediators in using iPads to share education with patients Funding $15,000 • National Networks of Libraries of Medicine, Pacific Northwest Region Express Outreach Program Goals: • To improve use of quality online health information resources by priority populations • To promote improved health information literacy; • To build or strengthen partnerships between network members and other community organizations; • To foster health information expertise in community organizations; • To promote awareness and use of the products and services of the NLM and the NN/LM.
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3/9/2013
1
Health Education via iPad: A pilot project using tablet computers to share health education with LEP patients
Christine Wilson OwensEthnoMed.org
Interpreter Services Department Harborview Medical Center, Seattle
Project
• Develop video slideshows in 6 LANGUAGES about 4 TOPICS
• Engage Caseworker / Cultural Mediators in using iPads to share education with patients
Funding $15,000
• National Networks of Libraries of Medicine, Pacific Northwest Region
Express Outreach Program Goals:• To improve use of quality online health information resources by priority populations
• To promote improved health information literacy;• To build or strengthen partnerships between network members and other community organizations;
• To foster health information expertise in community organizations;
• To promote awareness and use of the products and services of the NLM and the NN/LM.
3/9/2013
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Partners
Healthy Roads Media http://healthyroadsmedia.org
Partners
Community House Calls Program
Photo Credit: UW Medicine
Partners
Community advisors
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Partners
• Systems Analyst
• Oncologist
Partners
Clinic staff and providers, patients
Photo Credit: UW Medicine
Content
Develop new materials
• Multimedia for viewing/listening on iPads
• Cancer identified by CCMs and Community Advisory Board as priority topic
• Survey of CCMs, health disparity data to select specific introductory topics:
• Biopsy, Chemotherapy,
Mastectomy, Prostate Cancer
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Content
• 3 topics, existing HRM modules in English
• 1 topic (biopsy) develop content from trusted sources – National Library of Medicine, NCI, Mayo, Intelihealth – Harvard Medical School; previous handouts EthnoMed created
Content
• CCMs reviewed source English text and images; suggested adjustments e.g. additional info, alternate images rewording, etc.
• Mastectomy:– source draft: 5 slides– after CCM review draft: 14 slides– examples of additional slides:
“It is normal to be afraid of cancer. Breast cancer, when found early, is very treatable.”
“The type of surgery you have also depends on what is acceptable to you and your doctor. Many women seek a second doctor's opinion before having surgery.”
Content
• Source draft:
“Modified radical mastectomy ‐ removal of the breast, most of the lymph nodes under the arm and often the lining over the chest muscles
• CCM draft: added explanation
“Lymph nodes are part of the body’s lymphatic
system that helps to fight infections and filters
unwanted substances, like cancer cells and
bacteria. Cancer cells trapped by lymph nodes
can grow.”
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Content
• Clinician review
• Revised English
modules
Community Input
• Groups of community
advisors, per language– Review English modules,
– CCM narrating translation
– Discuss/recommend
graphics changes,
translation edits,
content changes
to make more meaningful for community
Tailoring
– “An organ that is biopsied is not damaged by the biopsy. The body heals quickly from this kind of procedure because the amount of tissue that is taken is so small.”
– “Surgeries for Breast Cancer” instead of “Mastectomy” (to include lumpectomy)
– Image of cells – caption to indicate what is shown
– Add image of woman in hijab
– “Hair lost during chemotherapy treatment will grow back”
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Language
• 2 words for bruising – indicate like this: morado/morete (Morado is Spanish word used south of Panama. Morete is used north of Panama.)
• The word used for marrow in Amharic was translated as broth (that comes from boiling bones); discussion of alternative term for “substance inside bones”
• Arabic vs. Somali words for drug therapy
• Register of Khmer words for doctor, tissue
Final Content
• Review community feedback with CCMs as group, HRM