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GettingStartedwithT1D
CarbDMCarbDM’smissionistobuildasupportivecommunitythatimprovesthequalityoflifeandhealthofallthoseaffectedbytype1diabetes.TheCarbDMcommunityfostersconnectionsamongpeoplewithdiabetes,theirlovedones,andmedicalprofessionals;promoteslearning;anddevelopsstrategiesforthrivingwithdiabetes.CarbDMoffersthefollowingprogramsthroughouttheyearacrosstheBayArea:
▪ Coffee&Carbs,agatheringforparentsandcaregiversofchildrenwithT1D;▪ CarbsinthePark,agatheringforfamilieslivingwithT1D;▪ Dia-Buddies,outingsandgatheringsforteenswithT1D;▪ LittleCarbs,aplaygroupforchildrenunder5withT1Dandtheirparents;▪ Beer&Basals,agatheringforadultswithT1D;▪ Type1Topics,aspeakerseriescoveringavarietyoftopicsrelevanttothetype1 community.
Inaddition,CarbDMincollaborationwithotherorganizationsholdanannualBayAreaDiabetesSummitinMarch,aMotherDaughterWeekendintheSpring,anAsianOutreachDay,aWorldDiabetesDayCelebrationinNovember,andotherannualprogramsthroughouttheyear.Formoreinformationandacalendarofevents,pleasevisitourwebsiteatwww.carbdm.organdjoinouremaillist.Presentationon“GettingStartedwithDiabetes”givenbyCarbDMFounderTamarSofer-Geri:http://www.ustream.tv/recorded/29936526GeneralTips:
• Thediabetescommunityisthefriendliest,mosthelpfulcommunityyoucanfind.Useit!• Gotodiabetesevents.Itwillhelpyoufeelnormalagain.• Giveyourselftime.Youdon’thavetolearnitallrightaway.• Takebreaks!Taketimeforyourself-youreally,reallyneeditanddeserveit,nowmore
thanever!Gooutbyyourself.Diabeteswillbestilltherewhenyoucomehome.• Makesureyouandyourspouse/partnerareequalpartnersindiabetescare.It’saheavy
loadthat’seasierwhenshared.
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• DON’Tlistentowhatotherpeoplesay.Noonewhoisn’tlivingwithdiabetesunderstandswhatlifewithdiabetesisreallylike.
• DON’Treadtoomuchaboutdiabetes.Mostofitisn’trelevanttopeoplewithtype1diabetesdiagnosedinthisdayandagewhoarewellmanagedfromthebeginning.
LanguageisPowerfulHowyoutalkaboutdiabetescanstronglyinfluencehowyouandyourfamilythinkandfeelaboutdiabetes.Trytoavoidsomeofthesecommonpitfalls:• Bloodsugarchecksare“checks”not“tests.”Youcan’tfailacheck.Iftheyfeellikethey
arefailingBGtestsandyouaredisappointedorjudgingthembytheirnumbers,thentheywillstopwantingtocheckorastheygrowolder,juststopcheckingalltogether.
• Thereareno“good”or“bad”bloodglucoseresults.It’salljustinformation.Theonly“bad”BGsaretheonesyoudon’tknowbecauseyoudidn’tcheck.
• Whenthey’rehighyou’re“adjusting,’notcorrecting.Youdidn’tmakeamistakethatyouneedto“correct.”Yourchild’sbodyisdoingitsthingandsometimesyoujustneedtoadjust.
• Remember:Youcannot“control”diabetes.Allyoucanhopeforistomanageitasbestyoucan.
• Whenyourchildiseatingfoodsyou’drathertheydidn’teat,theyarenot“sneaking”foods,or“cheating.”Theyarejust“eating.”Everychildwillhavecandyandsnacksyoudon’twantthemto.Teachthemthatthey’retherearenoforbiddenfoods,aslongasyouknowwhatthey’reeating,you/theycanbolusforit.Ifyouencourageopennessandhonesty,theywilltellyouwhenandwhattheyareeatingandthatwillmakeyourlifeawholeloteasier.
SeventhingstotellothersaboutT1D(takenfromamother’sblog)
1.Type1Diabetesisanautoimmunediseaseinwhichthebodyattacksanddestroysallofthecellsinthepancreasthatproduceinsulin.Nooneknowsforsurewhatexactlytriggersthisautoimmuneresponse,butitiscurrentlynotanythingthatcanbepreventedandisNOTcausedbypooreating,lackofexerciseorbadparenting.
2.INSULINISNOTACURE!!!ThereiscurrentlynoprovencureforType1Diabetes.UnlikeType2Diabetes(themorecommonlydiscussedtype),eatingbetterandexercisingwon’treverseit.
3.Peoplewithtype1Diabeteswillbedependentoninsulinfortheirentirelivesandmusttakeittosurvive.
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4.Monitoringbloodsugarlevelsisamust!Somepeoplechecktheirchildren’sbloodsugarlevels10ormoretimesaday.
5.Exercisecancausehighbloodsugarsorlowbloodsugars–andlowscanhappenupto12hoursafterexercise.
6.ChildrenwithType1DiabetesCANhavethingswithsugar!Infact,they,likeeveryoneelse,needsugarstoproduceenergy.Whilefoodswithrapidactingsugarslikejuice,candyandfrostingsaretobeusedsparingly,theycanstillbehad.
7.ParentsofchildrenwithdiabetesNEEDotherpeopleintheirlivestolearnhowtomonitorandcarefortheirchildrenincasethereisanemergencyorintherareeventtheyactuallyhaveadatenight.
HelpfulT1DResources:CarbDMwww.carbdm.orgCarbDM’sonlineforum:BraveBuddies,aonlineforumforparentsandcaregiversofchildrenwithT1D:bravebuddies.group.ioDiabetesYouthFamilies:Diabetescampsforkidsandfamilies:www.dyf.orgJDRFwww.jdrf.orgdiaTribehttp://www.diatribe.orgLocalBayAreaJDRFchapterwww.jdrfbayarea.orgRequesttheBagofHope:abackpackfilledwithgoodiesforkids(primarilyRufusthebearwithdiabetes)andinterestinginformationfortheparents.http://bayarea.jdrf.org/get-support/bag-of-hope/AmericanDiabetesAssociationwww.diabetes.orgChildrenwithDiabeteswww.childrenwithdiabetes.comABCDiabeticsprovidesdiabetessuppliestopeoplewithnohealthinsuranceortopeoplewhoneedextrasupplieswhoarewillingtomakeanominaldonation:www.abcdiabetics.org
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DiabetesandSportsHealthcampprovidesportscampsforchildrenwithdiabeteswww.dashcamp.orgJoshuaLevy’sblog:http://cureresearch4type1diabetes.blogspot.com/BeyondType1:www.beyondtype1.org.DiabetesDeviceCompanies:
• Medtronicwww.minimeddiabetes.com.MakeroftheMinimed670GHybridClosedLooppumpandCGM.
• Omnipod.http://www.insulet.com.Makeroftheonlypatchpump.Comingsoonisthe
OmniPodDash,anewPersonalDiabetesManager.
• TandemDiabetes:www.tandemdiabetes.commakeroftheT-slim,T-slimFlex,T-SlimX2touchscreeninsulinpump.
• Dexcom:www.dexcom.comContinuousGlucoseMonitorwithSharethatallowsfor
remotemonitoring.
• CompanionMedical:https://www.companionmedical.commakerofInPen,aBluetoothconnectedpenthatkeepstrackofinsulindosing,insulinonboard,aswellasthetemperatureofyourinsulin.
• BigfootBiomedical:makersofanall-in-onesolutionforAutomatedInsulinDelivery
system,connectedpens,supplymanagement,andmore.Indevelopment.www.bigfootbiomedical.com
• BetaBionics:makersoftheiLetBionicPancreas,abi-hormonalpumpthatdelivers
insulinwhenyou’rehighandglucagonwhenyouarelow.Indevelopmentwww.betabionics.org
• TypeZero:makersoftheinControlplatformwhichincludesadvisoryapplicationsfor
smartinsulinpensandsmartphone-basedartificialpancreassystemsthatautomaticallyregulateinsulindelivery,drasticallyreducehypoglycemia,andsignificantlyimprovebloodglucoselevels.Indevelopment.www.typezero.com
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DiabetesAppsandOnlineTools:
• Tidepool:www.tidepool.org.Thebestwaytoseeallyourdiabetesdatafromallyourdevicesinoneplace.
• Glooko:www.glooko.com.DownloadyourdatatoyouriOSorAndroiddevice,integrate
foodandlifestyledata,shareitwithyourmedicalprofessional.
• MySugr:https://mysugr.comThemostpopularappforkeepingtrackofallyourdiabetesdata.
• OneDropMeter,App,andDiabetesCoach:http://www.onedrop.today/
• Darioallinonemeter+appthatusesyoursmartphoneasthe“meter”:
https://mydario.com/
• Livongo:ameterthatconnectstothecloudandtoareallivecoach.www.livongo.comInsulinManufacturers:NovoNordisk:
• Novolog–fastactinginsulinwww.novolog.com• Levemir—longactinginsulinwww.levemir.com• FIASP—afasteractinginsulinthanNovolog.http://www.myfiasp.com/.Notyet
approvedforuseinpumps.Lilly:
• Humalog–fastactinginsulinwww.humalog.comSanofi:
• Apidra–fastactinginsulinwww.apidra.com• Lantus–longactinginsulinwww.lantus.com
Manycompaniesofferco-payassistanceprograms,checkoutourlistofthemonline.
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Usefuldiabetesproducts&supplies:Shots(theserequireprescriptions)
• ½unitsyringes—allowformoreaccuratedosingthanthe1unitsyringes.• Insulinpens—moreconvenientandportablethansyringesandinsulinvials.Thereare
reusableonesanddisposableonesforNovologandHumaloganddisposableonesforLantus.Unfortunately,they’reonlyavailablewithfullunitdosing(not½units).
• Saline–goodfor“ShotsofSupport”.Parentscanpracticegivingthemselvesshotsortakea“shotofsupport”whenevertheirchildtakesashot.Helpfulincomparingthepaininthearmcomparedtothepaininthestomach;comparingthepainofsixunitscomparedtotwo,etc.Haveyourchildgiveyouasalineshot!
Forchildrenhavingtroublewithshots&pumpchanges:• InjectEaseisadevicethatholdsthesyringeandsomewhatdullsthesensationofthe
needle.Doctorsdon’ttellyouaboutitbutparentsswearbyit.AvailableonAmazon.• PenNeedleswithCoveredTips:BDAutoshieldDuoPenNeedle:Theseneedlesare
coveredsotheyaren’tseenbeforegivingashotwiththem.They’reanothergoodtoolforkidswhoareafraidofneedles.
• BuzzyBee:www.buzzy4shots.comisavibratingdevicethatdistractsyoufromtheshot.• EMLA:numbingcreamthat’sgreatforpumpsiteinsertions.Needstobeputonone
hourbeforetheskiniscompletelynumb.Alsogoodforblooddraw.(Prescriptionrequired.)
• GladWrapStickandSeal:UsetocovertheEMLAcream.It’sbetterthanIV3000orotherstickierthingsbecauseitdoesn’tpullontheskinwhenremovingit.
Lancets&Meters
• Accu-CheckFastclixlancingdevice:agreatlancingdevicethathasacartridgewithsixlancetsinit.Whenit’sdone,youjustreplacethecartridge,soyou’reneverexposedtosharpneedles.Youcanusethislancingdeviceregardlessofwhatglucometeryou’reusing.
MedicalIDbracelets
• RoadID:www.roadid.com.OffersasimilarservicetoMedicAlert,butyoucanalsojustordertheirIDbraceletswithoutthemembership.TrytheWristIDSlim!Theseseemtobethemostpopular.Youcanaddbadgestoindicatethatit’samedicalalertbracelet,forT1D,andalsoforfunstuff.
• MedicAlert:www.medicalert.orgYourinformationiskeptonfileandtheIDbraceletincludesyourmembershipnumber.
• MediBand:www.mediband.comAreallysimple,reallycoolmedicalalertband.
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• Lauren’sHopewww.laurenshope.comforfancierdesigns.
Diabetesbagsandpacks• D-Packsforcarryingaroundthemeter,etc.:Thereareplentyofdiabetespacksonline.
o OutofSightcases:https://www.outofsightcases.como Myabetic:http://www.myabetic.como SugarMedical:http://sugarmedical.como Diabete-ezy:http://www.diabete-ezy.como Pumpwear:
https://www.pumpwearinc.com/pumpshop/index.php?l=product_list&c=151o Adorn:https://adorndesigns.com
• Youcanalsogetonethat’snotintendedasadiabetespack.Somesuggestionsthatcan
befoundonline:o AmeriBagEsopusMicrofiberBagwithdetachablestrap;o BaggelliniPocketCrossbodyo LeSportsSaco ManhattanPortageCityLightsisagoodbagforboys,too.o BrettMichaelhasbagsoutthatshouldappealtoboys.
• SPIbeltPackwww.spibelt.com.Forchildren9andyounger,orderthekidssize.9andup,
ordertheadultsize.Don’tbotherorderingthe“diabeticbelt”-itdoesn’treallyimproveupontheregularbeltanditdoesn’thaveasmanycolorstochoosefrom.
• TooSweetBoutiquewww.toosweetboutique.com.FullycustomizablepumpandCGMwaistpackshandmadetoorder.
• FlipBeltarestripsofneoprenethatwraparoundthewaistandhavemultiplepocketsCoolingDevices:(insulinmustbekeptbetween36-86degreesFahrenheitbutneverfrozen)
• Medicoolpacksfortraveling:www.medicool.com/diabetes/diabetes_travel.php• Friopouches:forkeepinginsulincoldwithoutrefrigeration.Reusablepouchescomeina
varietyofshapes,colorsandsizes www.frioinsulincoolingcase.comTemperatureTrackingDevice:
• MedAngel(medangel.co)connecttoyourphoneviaBlueToothandtracksthetemperatureinyourfridgeorinyourtravelpackandalertsyouifyourinsulinisoutofsafetemperaturerange.CanbepurchasedonAmazon.
Pump&CGMAccessories
• Groovypatches:www.groovypatches.com• Skins:www.skinit.com
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• GrifGrips:colorfulpatchesthatfitovertheDexcomtransmitter,OmniPod,andinfusionsites.CanbepurchasedonAmazonoratgrifgrips.com
Forhands-freenighttimeBGchecks
• Tryaheadlampsuchasthese:www.rei.com/search?query=headlampItmaylooksilly,butit’sreallyhelpful!
AdhesivesforcoveringpumpsitesandCGMs(availableonAmazon):
• Tegaderm-transparentfilmgreatforcoveringpumpsitesorCGMs.• Hypafix–clothmeshavailableinrollsgreatforcoveringpumpsitesorCGMs.Breathes
morethanTegaderm.CanbepurchasedonAmazon.• OpsiteFlexifixhelpstokeepsitesandsensorsoninthewater.JustputoverIV3000or
Tegaderm.Itcomesinrollsandisavailableonline.AdhesiveRemoval
• Unisolve:alcohol-swablikewipesthatdissolvethestickystufffrompumpsitesmakingthemeasiertoremove.
• SensiCare:sprayandwipesforadhesiveremovalthatdoesn’tsmellofalcoholanddoesn’tleavestickyresiduelikeUnisolvedoes.
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GettingUsedtothenew“normal”
• CreateCheatsheets:Carbcountsforfrequentlyeatenfoodssoyou’renotconstantlycheckingthebookorlookingituponline.
• Slidingscales:Carbratiosononesheetsoyoudon’thavetokeepprintingthemoutwhenevercarbratiosarechanged.
• Coolmeasuringcups:Useinterestingmeasuringcupsatthetablesoitdoesn’tfeelsomuchlikeascientificexperimentwhenservingfood.ThestoreAnthropologyhassomecutegeesemeasuringcups:“CanIhaveapapa/mama/babygooseofpasta?”Therearemeasuringcupsavailablethatmasqueradeasnestingdolls–greatforsendingtoschool.
• Round“garagesale”stickers:Usethemtolabelsnackandlunchcontainerswithcarbcounts.AvailableatLong’s,Walgreens,Target,OfficeDepot.
• ChainrestaurantsarerequiredtoprovidenutritionalinformationsoplaceslikeStarbucks,Chipotle,CaliforniaPizzaKitchen,etc.havecarbcountsavailableusuallyinabinderbytheregister.Theyalsooftenincludethemontheirwebsites.
• Findadiabeticbabysitter!We’vegotalistforyou.• Forsomelightheartedhumor:
o http://www.youtube.com/watch?v=LFIVVHQod5oo https://www.youtube.com/watch?v=Es2f5MsEWmg
Goodfoodstohaveonhand:Forlows:
• Sensiblesippers–juiceboxeswith7or8gofcarbavailableatWholeFoods.• Hansen’sJuniorjuiceboxes–4oz.juiceboxeswith15gofcarbsavailableatSafeway.• Marshmallows–about6geach.• TraderJoe’sAllNaturalFruitJellies–gummycandiesthatarefasttoeatandonly7
carbseachsogoodforlows.• GuChomps:gummiesthathaveelectrolytesandothergoodstufftobehavingwhile
exercisingandalsocarbssothatthey’regoodforlowswhileexercising.• ShotBloks:sameasGuChompsjustbyanotherbrandandsomeclaimtheyaretastier.• SportBeans(byJellyBelly,butwithoutfoodcoloringorartificialflavoring).Sameas
theGuChomps,butmorefun.• CliffGelShots–fruitflavorswithoutcaffeine(chocolate&coffeeflavorscontain
caffeine)with24gofcarbsavailableonlineandatWholeFoods.• LevelGlucoseGel–15gfastactinggelininterestingflavorsavailableonline.• Elovate15–singleservepowderglucosewith15gcarbs.Availableonline.Developed
byatype1mom.
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• ManypeoplealsouseSkittles,jellybeans,Smarties,Butterscotchcandies,Swedishfish,LifeSaversGummies,etc.Whenpossible,buythefunsizeforcarbportioncontrol.
• Glucolift–allnatural,nonchalkytastingglucosetabletsDevelopedbyapersonwithtype1diabetes.Glucolift.com
Freefoods(0carbs):• BeefJerky• Cheesesticks• Seaweed• Nuts• Veggiesticks• Sugar-freeJell-O• Leaf&LoveLemonade.
Lowcarbsnacks(upto15gofcarbs):
• NuGiiBars:glutenfreebarsproteinbars.Individuallywrapped12gramsofcarbs.AvailableonAmazon.com
• MiniKindbars-availablefromamazon.comandonly9-13gofcarbs.Greatforpre-sportspracticeorduringagame.
• CrystalLightPureFitness:allnaturaldrinkmixthatcontains6gofcarbsper16ozofjuice.CanbefoundatSafeway.
• Extendbarsandchips:arespeciallyformulatedtoreleasetheglucoseslowlytokeepbloodsugarsstableoveraperiodof9hours.Goodforbedtimesnacksespeciallyafteradaywithalotofactivity.AvailableatWalgreensandonline.
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Diabetesbooks(availableonamazon.com)
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