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Kidney Medicare Drugs Awareness and Education Initiative A KIDNEY COMMUNITY INITIATIVE TO HELP PROFESSIONALS AND PEOPLE WITH KIDNEY DISEASE UNDERSTAND MEDICARE PRESCRIPTION DRUG COVERAGE
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Page 1: GeneralInitiative.ppt

Kidney Medicare Drugs Awareness and Education Initiative

A KIDNEY COMMUNITY INITIATIVE TO HELP PROFESSIONALS AND PEOPLE WITH KIDNEY DISEASE

UNDERSTAND MEDICARE PRESCRIPTION DRUG COVERAGE

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Kidney Medicare Drugs Awareness and Education Initiative

OUR MISSION

The Kidney Medicare Drugs Awareness and Education Initiative is

a service of the kidney community, designed to provide timely, consistent,

reliable, and up-to-date information about Medicare and Medicare

Prescription Drug Coverage (Part D).

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Kidney Medicare Drugs Awareness and Education Initiative

• Ensure accuracy and comprehensiveness

• Enhance credibility

• Avoid duplication

• Minimize confusion

OBJECTIVES

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Kidney Medicare Drugs Awareness and Education Initiative

OUR CHALLENGE• Medicare Part D is complex to understand, much

less explain.• Most materials and services are not geared to

people with kidney disease and professionals that treat them.

• Many people think Medicare Part D is only for those with low income.

• Many don’t want to ask the government for help.

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Kidney Medicare Drugs Awareness and Education Initiative

More Challenges

• Awareness is limited, understanding is poor, and intent to enroll is low.

• Most must take action by May 15, 2006 to get the most savings and avoid higher premiums.

• Acceptance and use of Medicare Part D to its fullest will require: – Ongoing consistent education;– Communication between patients and healthcare

providers.

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Kidney Medicare Drugs Awareness and Education Initiative

OUR TARGET AUDIENCES

• Patients• Physicians and

office staff• Kidney care team• Dialysis providers• Transplant

facilities• Kidney

organizations

• Government (CMS, SSA)

• Federal contractors (Networks, SHIPs)

• Specialty pharmacies

• Media

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Kidney Medicare Drugs Awareness and Education Initiative

BACKGROUND• Novartis community meeting in Spring 2005 showed how

confused kidney community was about Part D• Kidney Care Partners suggested NKF take lead to form

community-wide initiative• Reviewed and collected materials from:

– Federal and state agencies– Other kidney organizations– Other health organizations– Health and patient advocacy groups

• Held planning meetings with community representatives• Held workgroup meetings• Established communications with agency key personnel• Developed communications plan• Began developing kidney-specific resources

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Kidney Medicare Drugs Awareness and Education Initiative

OUR KEY MESSAGES

• Medicare is about to undergo significant, historic change as it implements prescription drug coverage (Part D).

• Medicare Part D offers most on Medicare—including those with kidney disease—the opportunity to save significantly on drug costs.

• Some may not need Part D and others may risk other health coverage by joining a Part D plan (employer, COBRA, Medicare Advantage)

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Kidney Medicare Drugs Awareness and Education Initiative

More Key Messages

• Most info is for the “average” person with Medicare, but www.kidneydrugcoverage.org has kidney-specific info about Medicare Part D.

• Those who have or choose “kidney-friendly” coverage will save more. Finding and choosing these plans may take some effort.

• Social workers can help by collecting and saving notices patients receive from government, current plans, Medicare drug plans

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Kidney Medicare Drugs Awareness and Education Initiative

Kidney Specific Issues

• Patients must review plans for current and future drugs since health and/or treatment may change

• Part A drugs will stay Part A• Part B drugs (immunosuppressants, EPO,

Vitamin D, etc.) will stay Part B• Part B and Part D do not coordinate• Most of our patients will hit coverage gap; plan

for ways to help those in need– Apply for Medicare Savings Programs– Meet spenddown 9/1-12/31 any year– Apply for SPAP, charities, check with drug companies

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Kidney Medicare Drugs Awareness and Education Initiative

Transplant Specific Issues

• Although Part D formularies must only have 2 drugs per class, they must have “all or essentially all” immunosuppressants– Covered under Part B if patient meets criteria– Covered under Part D if on formulary and patient

does not meet Part B criteria

• Transplant patients with ESRD only Medicare can have Medicare and Part D 36 months

• Transplant patients with Medicare can keep Medicare and Part D indefinitely if they have Medicare due to age or disability

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Kidney Medicare Drugs Awareness and Education Initiative

Warnings!• Patients with COBRA can lose COBRA by signing up for

Medicare to get Part D (general materials have no warnings about this)

• Patients with Medicare Advantage (HMO, PPO) will lose MA health plan by joining a stand-alone Part D plan (applications and materials have warnings)

• Employers may cancel coverage if patient joins a Part D plan. Patients should check with employer before making a decision about Part D. (CMS is developing a process to report employers who cancel employee coverage.)

• Employers may urge those with kidney disease to take Part D and drop health coverage. ADA prohibits this if other employees in similar positions can keep coverage. (Report ADA violations to EEOC.)

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Kidney Medicare Drugs Awareness and Education Initiative

THE RIGHT INFORMATION AT THE

RIGHT TIME

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Kidney Medicare Drugs Awareness and Education Initiative

PHASE ONE:AWARENESS

July-August 2005

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Kidney Medicare Drugs Awareness and Education Initiative

PHASE TWO:EDUCATION

September-October 2005

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Kidney Medicare Drugs Awareness and Education Initiative

PHASE THREE: ACTION

November-December 2005

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Kidney Medicare Drugs Awareness and Education Initiative

PHASE FOUR: HOW TO MAXIMIZE

PRESCRIPTION DRUG BENEFITS IN A

MEDICARE PART D PLAN

January – March 2006

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Kidney Medicare Drugs Awareness and Education Initiative

PHASE FIVE: HOW TO PREPARE FOR

AND COPE WITH THE COVERAGE GAP

April – June 2006

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Kidney Medicare Drugs Awareness and Education Initiative

ORGANIZATION RESOURCES

Communications Resource Kit

• A Guide to Understanding Medicare Part D

• Bulletin for staff• Low literacy awareness

message• Web Page/Web Address• Teleconference

announcement

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Kidney Medicare Drugs Awareness and Education Initiative

GENERAL PUBLIC RESOURCES

• Web Page/Web Address

• Newsletter articles for different stages

• Low literacy awareness message

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Kidney Medicare Drugs Awareness and Education Initiative

MEDICARE—HOW IT’S CHANGING TO HELP MORE PEOPLE

TELECONFERENCE SERIES* Social Workers * Nurses * Dietitians ** Dialysis * Transplant * MD Offices *

August 16, 2005 Overview & Low-income Subsidy

September 20, 2005 Part D Coordination

October 18, 2005 Evaluating & Choosing a Plan

November 15, 2005 Exceptions, Coverage Determinations

December 20, 2005 Appeals & Grievances

January 17, 2006 Filling the Coverage Gap

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Kidney Medicare Drugs Awareness and Education Initiative

TOOLS FOR PROFESSIONALS

• Internal data collection tools for MD offices, dialysis clinics, and transplant programs– Medicare Part D Patient Log – Medicare Part D Patient Tracking Form

• Calendar of Key Medicare Part D Dates to help target the right information at the right time

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Kidney Medicare Drugs Awareness and Education Initiative

MEDICARE PRESCRIPTION DRUG COVERAGEFOR PEOPLE WITH KIDNEY DISEASE

Patient Characteristics

CKD Stage 1-4

In-Center Dialysis Patients

Home Dialysis Patients• Home hemodialysis• Peritoneal dialysis

Transplant Recipients• <36 months of discharge• 65 or older• After 24 Months of SSDI for

other than kidney failure

Insurance Characteristics

Auto-enrolled• Dual eligible

Facilitated Enrollment• SSI or MSP

Other Low Income Subsidy• <135% FPL or <150% FPL

Medicare Advantage planEmployer/retiree health planState Pharmacy Asst Programs• Prescription plans• State kidney programs

Medigap H, I, JAny Medicare only beneficiary

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Kidney Medicare Drugs Awareness and Education Initiative

EDUCATION FOR PEOPLE WITH KIDNEY DISEASE

• 4 Brochures for people with Medicare– Chronic Kidney Disease– In-center Hemodialysis– Home Hemodialysis and

Peritoneal Dialysis– Transplant

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Kidney Medicare Drugs Awareness and Education Initiative

EDUCATION FOR PEOPLE WITH KIDNEY DISEASE

• 40 fact sheets for people on Medicare who have kidney disease based on – Stage of kidney disease

and/or treatment type (4)

and– Financial and insurance

status (10)

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Kidney Medicare Drugs Awareness and Education Initiative

POSSIBLE FUTURETOOLS AND FACT SHEETS

• Exception request template for doctors to request drugs for patients that are not on the formulary or drugs that are at a higher tier

• Fact sheets for patients, MDs, and kidney care team members on exceptions and appeals and to urge the use of these tactics when needed

• Fact sheet on how to make the most out of True Out-of-Pocket (TrOOP)

• “How-to” for conducting a local kidney-specific Medicare prescription drug coverage workshop

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Kidney Medicare Drugs Awareness and Education Initiative

KUDOSKUDOS

Thank you for sending the message (from Patient Thank you for sending the message (from Patient & Family Council listserv). It is the best explanation & Family Council listserv). It is the best explanation of the new Medicare Part D prescription plan that I of the new Medicare Part D prescription plan that I have read and clarifies many points for me.have read and clarifies many points for me.

Jeanie, patientJeanie, patientGreat teleconference.  Thanks for providing these Great teleconference.  Thanks for providing these wonderful educational opportunities.wonderful educational opportunities.

Laura, MSWLaura, MSWI think NKF could be a prototype for our work with I think NKF could be a prototype for our work with othersothers! ! 

Janet, CMS

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Kidney Medicare Drugs Awareness and Education Initiative

• Tell your patients and staff about this initiative and www.kidneydrugcoverage.org

• Encourage your staff and patients to listen to free 30-minute teleconferences

• Link to www.kidneydrugcoverage.org • Tell us what you’ve developed for our links• Help us find Medicare Prescription Drug

Plans in your region offer “kidney-friendly” formularies

WE NEED YOUR HELP

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Kidney Medicare Drugs Awareness and Education Initiative

Participating OrganizationsAbbott Laboratories American Association of Kidney Patients, Inc. American Kidney Fund American Nephrology Nurses’ Association The American Society of Nephrology Amgen Astellas Pharma US, Inc. Centers for Medicare & Medicaid Services Central Florida Kidney Center, Inc. DaVita, Inc. DaVita Patient Citizens The ESRD Network of New York Fresenius Medical Care North America Gambro Healthcare US Genzyme Corporation Kidney Care Partners Nabi BiopharmaceuticalsNational Kidney Foundation, Inc.• Council of Nephrology Nurses and Technicians• Council of Nephrology Social Workers• Council on Renal Nutrition• People Like Us

National Minority Health Month FoundationNational Renal Administrators Association Novartis Pharmaceuticals Corporation Pfizer Inc. Pharmaceutical Research and Manufacturers of

America PKD FoundationRenal Care Group, Inc. The Renal Network, Inc. Renal Physicians Association Renal Support Network Roche Pharmaceuticals Sigma-Tau Pharmaceuticals, Inc. Social Security Administration Transplant News The Transplant Pharmacy Coalition UnitedHealth Group/Ovations Washington Hospital Center Wyeth Pharmaceuticals

Abbott Laboratories American Association of Kidney Patients, Inc. American Kidney Fund American Nephrology Nurses’ Association The American Society of Nephrology Amgen Astellas Pharma US, Inc. Centers for Medicare & Medicaid Services Central Florida Kidney Center, Inc. DaVita, Inc. DaVita Patient Citizens The ESRD Network of New York Fresenius Medical Care North America Gambro Healthcare US Genzyme Corporation Kidney Care Partners Nabi BiopharmaceuticalsNational Kidney Foundation, Inc.• Council of Nephrology Nurses and Technicians• Council of Nephrology Social Workers• Council on Renal Nutrition• People Like Us

National Minority Health Month FoundationNational Renal Administrators Association Novartis Pharmaceuticals Corporation Pfizer Inc. Pharmaceutical Research and Manufacturers of

America PKD FoundationRenal Care Group, Inc. The Renal Network, Inc. Renal Physicians Association Renal Support Network Roche Pharmaceuticals Sigma-Tau Pharmaceuticals, Inc. Social Security Administration Transplant News The Transplant Pharmacy Coalition UnitedHealth Group/Ovations Washington Hospital Center Wyeth Pharmaceuticals