Friday Brag and Steal...Philadelphia Aphasia Community at Temple (PACT) For more information: [email protected] for more information: [email protected] ... know that even if

SpiritualityGroupGayleDeDe,PhD,CCC-SLP

PhiladelphiaAphasiaCommunityatTemple(PACT)

Formoreinformation:[email protected]

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Disclosures

• Financial– GayleDeDe isasalariedemployeeofTempleUniversityandthedirectorofthePhiladelphiaAphasiaCommunityatTemple.

• Non-financial– None

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SpiritualityGroup

• Ice-breaker• OralReading• Discussion

• Creatingasafespaceforeveryone– Non-denominational

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Readings

• Groupmemberschoosereadings–Music,art,ethicaldilemmas

• Angerisanacidthatcandomoreharmtothevesselinwhichitisstoredthantoanythingonwhichitispoured.~MarkTwain

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Benefits

• Abstractconversations– Lonelinessvs.beingalone– Forgivenessvs.acceptance–Whatisgrace?

(aphasiaseverity?)

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Benefits

• “Ilike…toheareveryone’sstoryandwedon’tjudgeeachother.

• “…Wecandelvemoreintothoughtsofhowpeoplethinkaboutthings.”

• “…ItgivenmetheconfidenceIneedinsidemetoknowthatevenifnotmakingittochurchIamamongpeoplewhobelieveinsomethingandthatmeansalot.”

• “Icangrow;IgetclosetoGod;IlearnalotasfarasmyselfandtheissuesIhad…”

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GroupinterventioninPrimaryProgressiveAphasiaDevelopingeffectivemodelstodrivesuccessful

communicationparticipation,engagementandsupport

AimeeMooney,M.S.1,4 ,DarbyMorhardt,Ph.D. 2,MelanieFried-Oken,Ph.D.1,MarieSaxon,B.S. 2,BeckyKhayum,M.S.2,EmilyRogalski,Ph.D.2,andAngelaRoberts,Ph.D.3

InstituteonDevelopmentandDisability,OregonHealth&ScienceUniversity,Portland,OR1MesulamCenterforCognitiveNeurologyandAlzheimer’sDisease,NorthwesternUniversityFeinbergSchoolofMedicine,Chicago, IL2

CommunicationSciencesandDisordersDepartment,NorthwesternUniversitySchoolofCommunication,Evanston,IL3SpeechandHearingSciencesDepartment,PortlandStateUniversity,Portland,OR4

NIHgrant#R21DC01099 NIHgrants#R01NS075075;DC008552;AG13854U54NS092089;R01AG055425;R21DC01099

Disclosures• AimeeReaumeMooney,M.S.,CCC-SLP

• Financial:SalariedAssistantProfessorOregonHealth&ScienceUniversity• Relevantnon-financialrelationships:Serveasreviewerforpeer-reviewedjournals

• DarbyMorhardt,Ph.D.• Financial:SalariedAssociateProfessorNorthwesternUniversityFeinbergSchoolofMedicine,GrantsfundedbyNIH,ReceivehonorariaforCEcourses,workshops,seminars

• Relevantnon-financialrelationships:Serveasreviewerforpeer-reviewedjournalsandgrants

• MelanieFried-Oken,PhD,CCC-SLP• Financial:SalariedProfessorOregonHealth&ScienceUniversity,GrantsfundedbyNationalInstitutesofHealth,ReceivehonorariaforCEcourses,workshops,seminars

Disclosures• Dr.AngelaC.RobertsisemployedbyNorthwesternUniversity,PepperDepartmentofCommunicationSciencesandDisorders(SchoolofCommunication).• Financial:ShesitsontheEditorialBoardfortheJournalofSpeech,Language,andHearingResearchforwhichshereceivesanannualstipendfromtheAmericanSpeech-LanguageandHearingAssociation.Inthelast12-months,Dr.RobertshasreceivedspeakerhonorariafromtheParkinsonFoundationandParkinsonSocietySouthwestOntario.Dr.Robertsreceivedresearchfunding(includingsalarysupport)fromtheNationalInstitutesofHealth.

• Non-Financial:SheholdstwoU.S.patentsandhasanonfinancialrelationshipwithWearafi,Incorporated.ShealsositsontheEditorialBoardfortheCanadianJournalofSpeech-LanguagePathologyandAudiologyforwhichshedoesnotreceivecompensation.ShehasanunpaidadjunctresearchfacultyappointmentwiththeUniversityofWesternOntario.Dr.RobertshasanunpaidappointmentontheResearchPolicyCommitteeforParkinsonSocietyCanada.

• MarieSaxon,B.S.• Financial:Nonetoreport• Non-financialNonetoreport

TwoPPAGroupModels:Multi-ModalTrainingOnlineSupport&Education

Themes

“Itwassoimportanttobewithotherswho

understand;toconnectandhavecommunity”

“Thisisaplacewhereyoucansharewithpeoplewhatyou

justcan’tshareanywhereelse,peoplewhounderstandwhat

youaregoingthrough.”

“Ithasbeensohelpfultoexploreotherwaysofcommunicatingandtointentionallypracticethem.”

“Thisisworking,itishelping.I’veneverhadthechancetointeractwithothersthathave

PPA.”

“IthinkI’mstrongerwithallofthisinformation.”

“Veryhelpfultolearnwaysto

communicatethatwemightnotneednow,butwillinthe

future.”

“We’vegrowninself-confidencethroughlearningcompensatorystrategies.”

“Thishashelpedeasethepainofdealingwithincreasing

dependency.”

“I’velearnedtoberesilientIthink,in

makingadaptations.”

Lessonslearned•GROUPSforpeoplewithPPAarenecessaryandvaluable• SuccessfulPPAgroupmodelsaredifferentfromtraditionalStrokeAphasia/Dementiagroups• Successfuloutcomesarebasedon

1. Adequateresearchandcurriculumpreparation2. Expectationssetatbeginningofgroupformation3. Essentialthreecomponents:

1. PPAeducation2. Strategyinstruction3. Emotionalsupport

• Telehealthplatformsreducebarrierstosystemdelivery