• December 2003, at 3 months old, Faydra’s parents noticed that she had a funny shake to her eyes. • CAT scan results showed a tumour in the left eye and a brain tumour, the size of a golf ball, at the base of her skull just behind her nose. • At 4 months of age Faydra underwent a brain biopsy, a craniotomy, numerous eye exams and blood test after blood test, until she was finally diagnosed with Trilateral Retinoblastoma - malignant tumours in both eyes as well as in her brain. • Surgical removal of Faydra's brain tumour was not possible due to the proximity of the tumour to her carotid artery. • Early 2004 Faydra had a port called an OMAYA reservoir inserted through the top of her head reaching into the spinal fluid behind her nose. Faydra received chemotherapy every week directly into the OMAYA reservoir. She also underwent a total of 8 rounds of systemic chemotherapy which ended in July 2004. • Faydra’s eye tumours required cryotherapy and laser work, but were well controlled as they were discovered relatively early due to the brain tumour. • Through her treatments, Faydra has regained some sight, approaching normal vision in the right eye and much weaker vision in the left eye. • September 2004, Faydra underwent an autologous stem cell transplant. Following the stem cell transplant, Faydra resumes weekly head chemo injections, in the spring of 2005, these were reduced to biweekly treatments. • August of 2005, Faydra’s MRI scan showed a suspicious area that appeared to be a cyst. Faydra was scheduled for another craniotomy. The biopsy confirmed a new retinoblastoma brain tumour. • October 2005, Faydra had daily treatments of radiation for a period of 4 weeks at the Princess Margeret Hospital. • November 2005, Faydra is scheduled to start 2 more rounds of systemic chemotherapy and continue to treat the spinal fluid with the OMAYA chemo. (www.faydrasfriends.ca) Faydra “Faydra is a very happy little girl who has never looked sick even with all she has been through. We are very fortunate to have the support of wonderful friends and family.”
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• December 2003, at 3 months old, Faydra’s parents noticed that she had a funny shake to her eyes.
• CAT scan results showed a tumour in the left eye and a brain tumour, the size of a golf ball, at the base of her skull just behind her nose.
• At 4 months of age Faydra underwent a brain biopsy, a craniotomy, numerous eye exams and blood test after blood test, until she was finally diagnosed with Trilateral Retinoblastoma -malignant tumours in both eyes as well as in her brain.
• Surgical removal of Faydra's brain tumour was not possible due to the proximity of the tumour to her carotid artery.
• Early 2004 Faydra had a port called an OMAYA reservoir inserted through the top of her head reaching into the spinal fluid behind her nose. Faydra received chemotherapy every week directly into the OMAYA reservoir. She also underwent a total of 8 rounds of systemic chemotherapy which ended in July 2004.
• Faydra’s eye tumours required cryotherapy and laser work, but were well controlled as they were discovered relatively early due to the brain tumour.
• Through her treatments, Faydra has regained some sight, approaching normal vision in the right eye and much weaker vision in the left eye.
• September 2004, Faydra underwent an autologous stem cell transplant. Following the stem cell transplant, Faydra resumes weekly head chemo injections, in the spring of 2005, these were reduced to biweekly treatments.
• August of 2005, Faydra’s MRI scan showed a suspicious area that appeared to be a cyst. Faydra was scheduled for another craniotomy. The biopsy confirmed a new retinoblastoma brain tumour.
• October 2005, Faydra had daily treatments of radiation for a period of 4 weeks at the Princess Margeret Hospital.
• November 2005, Faydra is scheduled to start 2 more rounds of systemic chemotherapy and continue to treat the spinal fluid with the OMAYA chemo.
(www.faydrasfriends.ca)
Faydra“Faydra is a very happy little girl who has never looked sick even with all she has been through. We are very fortunate to have the support of wonderful friends and family.”
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