EXPERIMENTAL FERTILITY PRESERVATION INTERVENTIONS IN PRE-PUBERTAL BOYS WITH CANCER: A REPORT ON PREFERENCES OF TEENAGE CANCER SURVIVORS, PARENTS, AND PROVIDERS Abha A. Gupta 1 ; Rachel Donen 2 ; Lillian Sung 1 ; Katherine Boydell 4 ; Leila Bahrambahri 2 ; Anisha Prasad 2 ; Sina Hadipour-Lamehsari 1 ; Kirk Lo 3 ; Armando Lorenzo 2 1 Haematology/Oncology, The Hospital for Sick Children, Toronto, ON, Canada; 2 Urology, The Hospital for Sick Children, Toronto, ON, Canada; 3 Urology, Mount Sinai Hospital, Toronto, ON, Canada; 4 Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada November 2, 2013
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EXPERIMENTAL FERTILITY PRESERVATION INTERVENTIONS IN PRE-PUBERTAL BOYS WITH CANCER: A REPORT ON PREFERENCES OF TEENAGE CANCER SURVIVORS, PARENTS, AND PROVIDERS.
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EXPERIMENTAL FERTILITY PRESERVATION INTERVENTIONS IN PRE-PUBERTAL
BOYS WITH CANCER: A REPORT ON PREFERENCES OF TEENAGE CANCER
SURVIVORS, PARENTS, AND PROVIDERS
Abha A. Gupta1; Rachel Donen2; Lillian Sung1; Katherine Boydell4; Leila
Bahrambahri2; Anisha Prasad2; Sina Hadipour-Lamehsari1; Kirk Lo3;
Armando Lorenzo2
1Haematology/Oncology, The Hospital for Sick Children, Toronto, ON, Canada;
2Urology, The Hospital for Sick Children, Toronto, ON, Canada;
3Urology, Mount Sinai Hospital, Toronto, ON, Canada;4Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada
November 2, 2013
Objectives
Parents, Providers & Survivors1) Identify the factors influencing pre-pubertal testicular
biopsy decisionsInterviews
2) Quantify preferences for testicular biopsyThreshold Technique
Before develop fertility programIdentify needs, obstacles and resources
Preliminary researchAre parents even willing to consider testicular tissue
preservation at diagnosis?
(Ginsberg et al., 2010; van den Berg et al., 2007; Wyns et al., 2011)
Methods
Mixed methods
QualitativeInterviews
QuantitativeThreshold Technique
(Greene, 2007)
Methods
Participants
Parents of PP boys with cancer
Oncologists, NPs, Social Workers
Survivors (male, AYA 14 -18 years)
Main Interview Questions
Providers:• Which options would you present to families?
Parents and Survivors:• Would you choose biopsy or no biopsy?
All Groups• What kinds of things do you think about when trying to
make your decision?
Methods: Threshold Technique
Testicular biopsy
vs.
No testicular biopsy
Data Analysis
Since November 2012• 45 interviews and 258 surveys completed
DemographicsParents =156
males = 9
Median age 42 (range 23-62) years
Providers = 34
2NP, 2RN, 1 SW, males = 11
29 were parents
28 knew someone who had had fertility treatment
Survivors = 78
Median age 17 (14-26)
Leukemia 40, sarcoma 9 , lymphoma 11, other 18
Baseline Scenario
• 50% Risk of infertility from treatment• 1% Risk of Complications from biopsy• 15% Chance technology develops• $350/year cost to store tissue family pays