Exceptional Family Member Program Bldg. 219 October 2018 This is a month to celebrate the abilies of our friends and family members with Down Syndrome. It is also an opportunity to raise awareness of Down Syndrome in the local community and amongst your friends, co-workers, and anyone else you may come in contact with. Down Syndrome is the most common genec condion in America occurring in 1 in every 691 births. This accounts for approximately 6000 babies born with Down Syndrome annually or 400,000 people with Down Syndrome currently living in the United States. Chances are that we all know someone who has been affected by Down Syndrome, most oſten in a very posive way. The most common form of Down Syndrome is Trisomy 21. Trisomy 21 occurs when there 3 sets of the 21st chromosome where there should only be 2, one taken from each parent. While Trisomy 21 is the most common, it is not the only form of Down Syndrome. With advances in medical technology, individuals with Down Syndrome are becoming increasingly integrated into society, communies and the work force. With this increase comes an increased need for educaon and awareness! Want more informaon on Down Syndrome? Check out the Naonal Down Syndrome Society– hp://www.ndss.org/ In this issue: October is Down Syndrome Awareness Month EFMP Special Needs Advisory Forum & Trick-or-Treat A Conversaon about Bullying Spouses Corner: Start a new hobby or learn a new skill at The Base Library Cooking Corner: Scary Fun Halloween Treats! Lending Library Pick of the Month: Upcoming Events Calendar Contact EFMP Program Manager (808) 257-7773 Training, Educaon, & Outreach Specialist (808) 257-0290 Family Case Worker (808) 257-8894 Family Case Worker (808) 257-7782
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Exceptional Family Member Program Bldg. 219 October 2018
This is a month to celebrate the abilities of
our friends and family members with Down
Syndrome. It is also an opportunity to raise
awareness of Down Syndrome in the local community and
amongst your friends, co-workers, and anyone else you may
come in contact with.
Down Syndrome is the most common genetic condition in
America occurring in 1 in every 691 births. This accounts for
approximately 6000 babies born with Down Syndrome
annually or 400,000 people with Down Syndrome currently
living in the United States. Chances are that we all know
someone who has been affected by Down Syndrome, most
often in a very positive way.
The most common form of Down Syndrome is Trisomy 21.
Trisomy 21 occurs when there 3 sets of the 21st chromosome
where there should only be 2, one taken from each parent.
While Trisomy 21 is the most common, it is not the only form
of Down Syndrome.
With advances in medical technology, individuals with Down
Syndrome are becoming increasingly integrated into society,
communities and the work force. With this increase comes an
increased need for education and awareness!
Want more information on Down Syndrome?
Check out the National Down Syndrome Society–
http://www.ndss.org/
In this issue:
October is Down Syndrome
Awareness Month
EFMP Special Needs Advisory
Forum & Trick-or-Treat
A Conversation about Bullying
Spouses Corner: Start a new
hobby or learn a new skill at
The Base Library
Cooking Corner: Scary Fun
Halloween Treats!
Lending Library Pick of the
Month:
Upcoming Events Calendar
Contact EFMP
Program Manager
(808) 257-7773
Training, Education, &
Outreach Specialist
(808) 257-0290
Family Case Worker
(808) 257-8894
Family Case Worker
(808) 257-7782
MCCS and EFMP will be hosting our 4th annual sensory-friendly trick-or-treating event. We encourage all families
to come out, in costume (optional), and trick-or-treat around buildings 219 & 220. We will have candy and other
give-a-ways for all the kids to enjoy!
Be kind. Be Patient.
With Halloween upon us, please keep in mind, a lot of
children will be visiting your home.
The child grabbing more than one piece of
candy may have poor fine motor skills
The child who takes a while to pick out one
piece of candy may have motor planning
difficulties
The child who does not say trick-or-treat or
thank you may be non-verbal
The child who looks disappointed when they
see your bowl may have an allergy or may be
diabetic
The child not wearing a costume may have a
sensory sensitivity or Autism
Children with disabilities—such as physical, developmental, intellectual, emotional, and sensory disabilities—are at an increased risk of being bullied. Any number of factors— physical vulnerability, social skill challenges, or intolerant environments—may increase the risk. Research suggests that some children with disabilities may bully others as well. Kids with special health needs, such as epilepsy or food allergies, also may be at higher risk of being bullied. Children and youth with special needs are impacted by their conditions in a variety of ways. Every child is unique, and so are the ways that their health condition affects them. Some impairments, such as brain injuries or neurological conditions, can impact a child’s understanding of social interactions and they may not even know when they are being bullied.
Special considerations are needed when addressing bullying in youth with disabilities. There are resources to help kids with disabilities who are bullied or who bully others. Youth with disabilities often have Individualized Education Programs (IEPs) or Section 504 plans that can be useful in crafting specialized approaches for preventing and responding to bullying. These plans can provide additional services that may be necessary. Additionally, civil rights laws protect students with disabilities against harassment.
Strategies to address student’s special needs at school can also help to prevent bullying and have positive outcomes for all students, especially tactics that use a team approach, foster peer relationships, and help students develop empathy. Talk to your child’s teacher or caregiver about some of these strategies:
Engaging students in developing high-interest activities in which everyone
has a role to play in designing, executing or participating in the activity.
Providing general up-front information to peers about the kinds of support
children with special needs require, and have adults facilitate peer support.
Creating a buddy system for children with special needs.
Involving students in adaptive strategies in the classroom so that they
participate in assisting and understanding the needs of others.
Conducting team-based learning activities and rotate student groupings.
Enhance your creativity, learn a new skill, and make something you can use! The Base Library Makerspace is designed to give you the tools you need to create something, whether it’s technology oriented or hands-on crafting. Technology available for use in the library: Laptops loaded with the Adobe Creative Cloud Suite, Intuos Pen and Touch tablets, a 3D scanner, and a high quality photo scanner. 3D Printing: create a design, and library staff will print it for you. Take it, Make it: Borrow kits designed to teach you a new skill. Kits include:
Origami
Knitting
Little Bits
Arduino
Raspberry Pi
Makey Makey
Robotics
Squishy Circuits
You can also borrow specialty cake pans, GoPros, and coloring books with colored pencils. Go to the Base Library website for more info: http://mccshawaii.com/library/
Wonder Pick of the Month
“When given the choice between
being right or being kind, choose
kind”
August Pullman was born with a facial
difference that, up until now, has
prevented him from going to a mainstream school.
Starting 5th grade at Beecher Prep, he wants nothing
more than to be treated as an ordinary kid—but his
new classmates can’t get past Auggie’s extraordinary
face. WONDER, now a #1 New York Times bestseller
and included on the Texas Bluebonnet Award master
list, begins from Auggie’s point of view, but soon
switches to include his classmates, his sister, her
boyfriend, and others. These perspectives converge in
a portrait of one community’s struggle with empathy,
compassion, and acceptance.
The EFMP Lending Library offers great books, DVDs, learning tools,
& sensory resources for our families to enjoy & learn from. Contact
your Family Case Worker for more information & resources.
The kids will sure love making & eating these fun Halloween treats! Cooking with children is a great opportunity for teaching
moments & sensory exploration. Take time to have them feel, smell, and taste ingredients as you go along.
(the book)
Ongoing— Story Time at the MCBH Library. Thursdays from 9-10AM, for children ages 3-5;
Tuesdays from 9-9:30AM for children ages 1-2. Call 254-7624 for more information.
http://mccshawaii.com/library/
Oct 6—Access Surf; A Day at the Beach at White Plains Beach from 9AM-1PM; adaptive surfing,
shoreline floatation & swimming for any person with a disability. Call 808-236-4200 for more
Information
Oct 6— LDAH Traveling Mini Conference from 9AM-2PM at Hawaii USA Federal Credit Union. See
LDAH website for more details: http://www.ldahawaii.org/
Oct 6— Special Olympics Hawaii Windward Singles Bowling tournament at K-Bay Lanes. For