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Evaluating health information on the Internet David OZIEL EURORDIS www.eurordis.org EURORDIS Online Training
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Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Jun 27, 2020

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Page 1: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Evaluating health informationon the Internet

David OZIELEURORDIS

www.eurordis.org

EURORDIS Online Training

Page 2: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Part 1A complex definition for quality

Page 3: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

• The definition of the term

• The specificity of health information

• The different actors

Page 4: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

• Content• Original documents• Up-to-date information

• Website organization• Design• Accessibility

• Search Engine Optimization• Transparency• ...

• Quality of a website / Quality of an information

The definition of quality

Page 5: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

The specificity of Internet health information

• Internet unregulated

• Different levels of information

• Sensitivity of health information

Page 6: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Different actors

• Websites

• Search engines

• Internet users

Page 7: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Initiatives for a better quality

• Catalogues– Information selected, organized, updated– MedlinePlus (National Library of Medicine)

• Guidelines– Quality criteria– Trust it or Trash it

• Quality labels– Health On the Net (HON)

Page 8: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Part 2HONCode (from Health On the Net)

Page 9: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Quality labels

• + 100 rating tools– Internet Health Coalition

– Discern

– Medcertain

– Netscoring

– HON– ...

Page 10: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

HONCode

• Health On the Net– Swiss foundation– 1996

• 8 000 health websites

• Eight principles

Page 11: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Authority

Indicate the qualifications of the authors

Page 12: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Complementarity

Information should support, not replace, the doctor -

patient relationship

Page 13: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Privacy

Respect the privacy and confidentiality of personal

data submitted to the site by the visitor

Page 14: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Attribution

Cite the source(s) of published information and its date

Page 15: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Justifiability

Any information on a specific treatment will be

supported by the source of information

Page 16: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Transparency

Possibility to contact the webmaster for more compl ete information

Page 17: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Financial disclosure

Provide details on funding

Page 18: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Advertising policy

Clearly distinguish advertising from editorial cont ent

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Page 20: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Limitations of HONCode

• Content not evaluated

• Ever-changing electronic documents

• Quality seals vs user’s critical judgment– Educated consumers– A set of quality criteria

Page 21: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Part 3Some quality guidelines for Internet health information

Page 22: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Who runs the website ?

Page 23: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Who pays for the website ?

Page 24: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

How is the information documented ?

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Page 26: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

What are the qualifications of the authors ?

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How is the information reviewed ?

Page 28: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

How is the information updated ?

Page 29: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Be cautious with hyperlinks

www. ؤ����☺☺☺☺.com

www. ������������.org

www.medical.gov

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Accessibility

Page 31: Evaluating health information on the Internetimg2.eurordis.org › infohub › Quality-Information.pdf · Evaluating health information on the Internet David OZIEL EURORDIS EURORDIS

Other criteria

• Information– Complete, exhaustive– Readable– Useful

• Websites– Organization– Search engine optimization– Design

• Users’critical judgment