ePatient - ExL Eventsinfo.exlevents.com/rs/195-NER-971/images/C624_Web.pdfePatient Meetup: Engage in a rare opportunity for the industry to network and connect with ePatients and discuss

CO-CHAIREmily Freeman

Risk Management, Global Patient

Safety ScientistASTRAZENECA

Enhancing ePatient and Life Science Stakeholder Relations to Create Improved Health Outcomes and Therapeutic Engagements

2015 EVENT HIGHLIGHTS: Regulatory Update: Navigate current and future state and federal social media laws, off-label communications, and limitations faced by life science organizations.

Clinical Trial Focus: Understand the impact of ePatient communities on clinical trial participation and gain best practices for recruitment and retention.

ePatient Author Panel: This unique panel of ePatients has gone from blog to book, publishing their full stories to help inform others about the unexpected turns and valuable lessons of a life-long patient journey.

ePatient Meetup: Engage in a rare opportunity for the industry to network and connect with ePatients and discuss the needs and key components of ePatient communities.

ePatientConnections/ 2015

OCTOBER 29-30, 2015 WYNDHAM PHILADELPHIA HISTORIC DISTRICT, PHILADELPHIA, PA

@ePatCon

OUR DISTINGUISHED FACULTY INCLUDES

Robert PopovianSenior Director, Medical Division

PFIZER

Lisa ValtierraAssociate Director,

Cross-Cultural Marketing

BOEHRINGER INGELHEIM

Lucille AccettaVice President,

Global Operations, Patient Solutions

TEVA PHARMACEUTICALS

Craig KempInnovative

PartnershipsMERCK

VACCINES

Jacob MooreMental Health Activist and

Founder NOSTIGMAS GENETICS

CO-CHAIRJodi SeidlerPresident

2 HIP PRODUCTIONS

Ashley Boynes-Shuck, Chronic Illness Health Activist and Author, SICK IDIOT

Julie Cerrone, Psoriatic Arthritis Health Activist and Blogger, JUST A BAD DAY

Ashley Fuchs, Ehlers-Danlos Syndrome Health Activist and Blogger, THE INCREDIBLE ADVENTURES OF MALLEABLE MOM

Heather Guidione, Surgical Program Director, THE CENTER FOR ENDOMETRIOSIS

Peter Pitts, President, CENTER FOR MEDICINE IN THE PUBLIC INTEREST, Former Associate Commissioner, FDA

Elizabeth Presson, Digital Media and Community Experience Manager, OTICON MEDICAL LLC

Randi Redmund Oster, Health Activist and Author, QUESTIONING PROTOCOL

Andrew Schorr, President, PATIENTPOWER.INFO

Karli Slocum, Senior Manager, Digital Marketing, MYRIAD GENETICS

FEATURED ACTIVISTS AND INDUSTRY EXPERTS:

SPONSORS:

To Register Call 866-207-6528 or Visit Us at www.exlevents.com/epatcon

PRIMARY AUDIENCEePatientConnections/ 2015

As the Internet and technology continue to evolve, more and more patients are empowered

to take an active role in their own healthcare. Through a number of social media platforms,

online communities and mobile applications, patients are becoming their own advocates

by sharing and gathering information about their diseases, connecting with physicians to

improve outcomes, and consulting with industry experts.

Through their online platforms, ePatients directly contribute to data patterns, increased

patient adherence, improved product development and brand loyalty. But there are still

a number of challenges that inhibit cross-functional engagement between ePatients and

pharmaceutical, medical device and biotechnology organizations. FDA guidelines, privacy

laws and a changing regulatory environment often inhibit direct engagements.

The ePatient Connections 2015 summit will focus on bridging the communication gap

between industry leaders and ePatients to establish shared goals in order to enable cross-

functional, patient-centric collaboration to improve overall health outcomes and enhance

participation in clinical trials. All stakeholders will benefi t from the consolidation of industry

knowledge, patient experience and insights.

Additionally, through multiple case studies and panel sessions, this event offers actionable

strategies for industry leaders to communicate and connect with ePatients and ePatient

communities in an evolving regulatory landscape.

I look forward to seeing you in Philadelphia!

Sincerely,

Charleen FamigliettiCharleen FamigliettiConference Production Director ExL [email protected]

Life science professionals (pharma, biotech, medical devices, healthcare) with responsibilities in the following areas:

_ Marketing/eMarketing

_ Digital Strategy/Marketing

_ Patient Experience/Engagement

_ Social Media/Media Strategy

_ Patient Recruitment/Patient Engagement

_ Medical Communications

_ Medical Education

_ Physician/HCP Marketing

_ Product/Brand Management

_ Multichannel Marketing

_ Information Technology

_ Regulatory/Compliance

_ Advocacy Relations

ePatients: _ Patients who engage with strong online communities

_ Advocacy groups

_ Caregivers

Dear C ol league ,

Do you want to spread the word about your organization’s solutions and services to potential clients who attend this event? Take advantage of the opportunity to exhibit, present an educational session, host a networking event or distribute promotional items to attendees. ExL works closely with you to customize a package that suits all of your needs. To learn more about these opportunities, contact Brendan Jordan, Business Development Manager, at 917-258-5154 or [email protected].

SPONSORING AND EXHIBITING OPPORTUNITIES

Room Reservations: If you require overnight accommodations please contact the hotel to book your room. To make reservations, guests can call 1-877-999-3223 and request the group rate for ExL’s ePatient Connections 2015 Group. We encourage participants to make reservations by October 7, 2015. Please book your room early as rooms available at this rate are limited.

ExL Events, Inc. is not a� liated with any third-party booking agencies, housing bureaus, or travel and events companies. In the event that an outside party contacts you for any type of hotel or travel arrangements, please disregard these solicitations and kindly email us at [email protected]. ExL Events has not authorized these companies to contact you and we do not verify the legitimacy of the services or rates o� ered. Please book your guest rooms through ExL’s reserved guest room block using the details provided.

VENUE INFORMATIONWYNDHAM PHILADELPHIA HISTORIC DISTRICT 400 Arch St.Philadelphia, PA


DAY ONE — THURSDAY, OCTOBER 29, 2015 8:00 Registration and Continental Breakfast

9:00 Co-Chairpersons’ Opening RemarksEmily Freeman, Risk Management, Global Patient Safety Scientist, ASTRAZENECA @emilycfreemanJodi Seidler, President, 2 HIP PRODUCTIONS

9:15 Shift Focus from Brand-Centric to Patient-Centric in Order to Be Recognized as a Partner in Healthcare

_ Define “patient centricity” and learn how to implement best practices for an effective partnership between patients and pharma

_ Redefine pharma’s value proposition to prosper in an evolving regulatory and technological landscape

_ Ensure patient-centric strategies by revitalizing your commercial model Lucille Accetta, RPh, MPH, MBA, Vice President, Global Operations, Patient Solutions, TEVA PHARMACEUTICALS

9:45 Identify the Three Pillars of Patient Engagement _ Encourage strong patient participation and engagement in treatment decisions and healthcare policy

_ Cultivate robust information sharing with patients from all healthcare sectors _ Provide access to over-the-counter medicines and treatments without unnecessary barriers

Robert Popovian, Senior Director, Medical Division, PFIZER

10:15 Networking Break

10:45 CASE STUDY Build Sustainable Platforms for Long-Term Patient Engagement

_ Launch a successful social media platform in order to improve patient engagements

_ Hear how Boehringer Ingelheim engages with its Hispanic patient population through multiple platforms

_ View caregivers as active social media participants to engage patients and strengthen patient communication with doctors

Lisa Valtierra, Associate Director, Cross-Cultural Marketing, BOEHRINGER INGELHEIM

11:15 CASE STUDY Empower a Community of Content Creators and Inbound Marketers

_ Understand how an engaged community can accelerate ROI on digital media efforts by moving potential customers through the buying cycle faster

_ Analyze how built-in permission makes community members the most powerful inbound marketers for your business

_ Learn how to create an online community and content program for less than $5,000 a month

Elizabeth Presson, Digital Media and Community Experience Manager, OTICON MEDICAL LLC

11:45 Learn How the Industry Can Support Online Health Communities _ Identify the 5 Rules of Patient Engagement _ Empower leadership: community managers, patient opinion leaders and peer mentors

_ Integrate new members into the community as quickly as possible _ Give personalized support to community members _ Foster a sense of ownership by encouraging the creation of on-brand content _ Gather opinions and feedback from the community and take action on it

Jacob Moore, Mental Health Activist and Founder, NOSTIGMAS, @MooreVoice

12:15 Luncheon

1:15 Dark Social: The Englightenment of Marketing Opportunities for Pharma Brands

_ What is this thing called “Dark Social?” _ Learn how pharma can access a vast untapped audience through Dark Social and stay within regulatory guidelines

_ Understand what tools are available for brands to further expand their audience and capture engaged users with relevant content

Michael Frick, Account Director - Pharma, RADIUMONE

1:45 PANEL DISCUSSION ePatient Authors: Empowering Words, Inspiring Journeys

_ Discuss how published journeys can help patients and professionals _ Gain lessons and new learnings from documenting the patient experience _ Consider how the health industry could create more valuable programs

ModeratorDanielle Schroth, Community Director, WEGO HEALTHPanelists Randi Redmond Oster, Health Activist and Author, QUESTIONING PROTOCOL, @helpme_healthAshley Boynes-Shuck, Chronic Illness Health Activist and Author, SICK IDIOT, @arthritisashleyWendy Williamson, Bipolar Disorder Health Activist and Author, I’m Not Crazy Just Bipolar and Two Bipolar Chicks Guide to Survival: Tips for Living with Bipolar Disorder, @bipolarwendy, @2bipolarchicks

2:15 CASE STUDY Implement Patient Health Communications Through Health IT

_ Navigate the changing patient health IT landscape _ Address EHR patient portals, now and in the future _ Review regulatory guidelines for the commercial sponsorship of patient engagement marketing programs, including HITECH/HIPAA

Craig Kemp, Innovative Partnerships, MERCK VACCINES

2:45 Networking and Refreshment Break

3:15 Explore Ways Pharma Can Collaborate with Healthcare Delivery Organizations to Enable Successful Patient Engagement to Realize the Triple Aim of Healthcare

_ Understand the business case and significance of patient engagement _ Identify the primary drivers of successful patient engagement _ Participate in a facilitated discussion to share insights and successful strategies that can have an impact

Robert Brinker, Key Account Manager, Integrated Health Systems, PFIZER

3:45 Understand the Regulatory Landscape of Social Media, Off-Label Communications and Limitations Faced by Life Science Organizations

_ Navigate state and federal privacy laws and understand current and future rules and regulations

_ Review the regulations of third-party vendors when connecting pharma and patients

_ Achieve better clinical outcomes and improve transparency and efficiency by encouraging meaningful use compliance

Peter Pitts, President, CENTER FOR MEDICINE IN THE PUBLIC INTEREST, Former Associate Commissioner, FDA

4:15 Cut Away the “Scar Tissue” that Inhibits ePatients from Helping You _ Break down silos within pharma companies to truly engage and support patients and family members from initial diagnosis to enrollment in long-term therapy

_ Understand how pharma can go way beyond traditional patient groups without trying to control the discussion

_ Task agencies with supporting independent sustained patient programs _ Leverage pharma’s sales force to build bridges between ePatient communities and provider networks

Jeff Folloder, Patient Advocate and Patient Power Host, PATIENTPOWER.INFO

4:45 - 5:00 The 6th Annual Pharmaguy™ SoMobile Pioneer AwardJohn Mack, Editor & Publisher, PHARMA MARKETING NEWS

5:00 Conclusion of Day One

5:15 - 6:45 “EVERYONE IS A PATIENT” ePatient MeetupNetwork with empowered patient influencers and pharma/device company representatives, and engage in a conversation about wants, needs and managing expectations.

PANEL: What Do Surgery Patients Need from Pharma and Device Companies? » Get to know ePatients, their online communities and their health conditions/illnesses » Discuss research and tools ePatients utilize and need from pharma/device companies » Share apps that help them manage or prepare before and after surgery » Hear what ePatients feel is missing for today’s patient

Roundtable Discussions: Engage in conversations about the relationship between the empowered patient, their families, and pharma and healthcare providers. Discuss knowledge and tools needed to create greater health collaborations. Understand what patients want from pharma/device companies, including educational programming, videos and testimonials from real patients undergoing surgeries.

DAY TWO — FRIDAY, OCTOBER 30, 20158:00 Continental Breakfast

9:00 Co-Chairpersons’ Day One RecapEmily Freeman, Risk Management, Global Patient Safety Scientist, ASTRAZENECA @emilycfreemanJodi Seidler, President, 2 HIP PRODUCTIONS

9:15 Utilize Content Marketing to Connect with Patient Communities

_ Develop and provide tools to help patients self-identify for hereditary cancer syndromes

_ Improve patient understanding and patient-driven testing through the delivery of educational content

_ Understand the ROI of non-promotional patient campaignsKarli Slocum, Senior Manager, Digital Marketing, MYRIAD GENETICS

9:45 Empower Patients by Promoting Digital Health Literacy _ Improve interactions with the other 90% of your patients using lessons learned from ePatients

_ Encourage health literacy to enhance patient understanding and their ability to act on health information

_ Boost digital literacy and ensure that technology is appropriate for the patient population

Emily Freeman, Risk Management, Global Patient Safety Scientist, ASTRAZENECA, @emilycfreeman

10:15 Networking Break

10:45 The Evolution of the Online Patient _ Discuss why becoming an advocate for your own healthcare is vital in today’s healthcare landscape

_ Utilize resources to advance healthcare industry and patient knowledge _ Leverage social media to find support among others facing similar journeys

Julie Cerrone, Psoriatic Arthritis Health Activist and Blogger, JUST A BAD DAY, @justagoodlife

11:30 AUDIENCE Q&A SESSION Getting to Know You: Overcoming Hurdles to Bring the Patient’s True Voice to Pharma

_ Engage patients in their healthcare decision-making by utilizing digital resources

_ Discuss health literacy limitations _ Explore how the pharmaceutical industry is responding to consumers’ growing reliance on digital health

CommentatorsMarjorie Reedy, Director, Market Research, MERCKKerstin Trapp, Associate Director, Compliance and Standards, Global Customer and Brand Insights, MERCK Lisa Courtade, Executive Director, Global Market Research Excellence, MERCK

12:00 Make the Case for Online Communities and Social Support to Improve Patient Outcomes

_ Learn how patients have connected in a meaningful way with their community through CaringBridge, and in turn made a real impact on health outcomes

_ Hear stories of real people whose lives have been forever impacted by the power of the communities that supported them when they needed it most

Sona Mehring, CEO, CARINGBRIDGE

12:30 Luncheon

1:30 PANEL DISCUSSION The Evolving ePatient: Understand How ePatients Are Adapting to New Technologies

_ Identify the level of technology ePatients are willing to embrace _ Discuss new and future technologies that can be utilized for patient engagement

Moderator Emily Freeman, Risk Management, Global Patient Safety Scientist, ASTRAZENECA, @emilycfreemanPanelistsAshley Fuchs, Ehlers-Danlos Syndrome Health Activist and Blogger, The Incredible Adventures of Malleable Mom, @AshleySFuchsLeslie Rott, Autoimmune Health Activist and Blogger, Closer to Myself @LeslieRottKelly Conway, Patient Advocate, Rheumatoid Arthritis Health Activist, INTERNATIONAL FOUNDATION FOR AUTOIMMUNE ARTHRITIS

2:15 Implement a Global Patient Engagement Framework from Research and Development to Commercialization

_ Understand the importance of patient involvement for drug development _ Utilize patient-generated data

Trish Nettleship, Global Director of Social Media and Influence, UCB

2:45 Networking and Refreshment Break

3:15 Understand the Benefits of a Collaborative Approach to Save Time and Money by Connecting Patients, Industry and Physicians

_ Empower patients to use social media to engage providers and one another toward finding best care/treatments

_ Adapt industry best practices to accommodate and elevate patient access, treatments and clinical trial recruitments

_ Learn how physicians can utilize social media as part of a patient-centered approach

_ Overcome regulatory roadblocks that prohibit access, particularly in underprivileged/underinsured populations

Heather Guidone, CWC, Surgical Program Director, THE CENTER FORENDOMETRIOSIS CARE

3:45 Co-Chairpersons’ Closing RemarksEmily Freeman, Risk Management, Global Patient Safety Scientist, ASTRAZENECA @emilycfreemanJodi Seidler, President, 2 HIP PRODUCTIONS

4:00 Conference Concludes

“VERY ENGAGING AND PASSIONATE SPEAKERS WITH MANY DIVERSE

PATIENT PERSPECTIVES.” —Director, MERCK

“THE CONVERSATIONS WERE VERY INFORMATIVE, AND I TOOK

AWAY IDEAS FOR ENGAGING WITH PATIENTS MORE EFFECTIVELY.”

—Director, UCB

“GREAT INSIGHT AND INFORMATION!”

—Senior Marketing Manager, MEDTRONIC


MEDIA PARTNERS:

Questions? Comments?Do you have a question or comment that you would like to be addressed at this event? Would you like to get involved as a speaker or discussion leader? Please email Conference Production Director Charleen Famiglietti at [email protected].

EARLY BIRD PRICING*

Register by September 18, 2015

Conference: $1,895

STANDARD PRICING*

Register After September 18, 2015

Conference: $2,095

ONSITE PRICING*

Conference: $2,195

Pricing:

*Pricing includes sales tax and service fees.

TERMS AND CONDITIONS

Payment:Make checks payable to ExL Events, Inc. and write code C624 on your check. You may also use Visa, MasterCard, Discover or American Express. Payments must be received in full by the conference date. Any discount applied cannot be combined with any other o� ers and must be paid in full at the time of order. Parties must be employed by the same organization and register simultaneously to realize group discount pricing options.

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If you cancel within � ve business days or at any time after receiving the conference documentation, the voucher issued will be $395 less.

To receive a refund or voucher, please fax your request to 888-221-6750.

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Substitution Charges:There will be an administrative charge of $300 to substitute, exchange and/or replace attendee badges with a colleague occurring within � ve business days of the conference.

ExL Events reserves the right to cancel any conference it deems necessary and will not be responsible for airfare, hotel or any other costs incurred by registrants.

ExL Events’ liability is limited to the conference registration fee in the event of a cancellation and does not include changes in program date, content, speakers or venue.

*The opinions of ExL speakers do not necessarily re� ect those of the companies they represent or ExL Events, Inc.

Please Note: Speakers and agenda are subject to change without notice. In the event of a speaker cancellation, signi� cant e� ort to � nd a suitable replacement will be made.

GROUP DISCOUNT PROGRAMS*Offers may not be combined. Early Bird rates do not apply. To find out more on how

you can take advantage of these group discounts, call 866-207-6528.*

Save 25%For every three simultaneous registrations from your company, you will receive a

fourth complimentary registration to the program (must register four at one time).

Save 15% Can only send three? You can still save 15% off of each registration.

REGISTRATION INFORMATION

Ways to Registerwww.exlevents.com/epatcon

[email protected]

866-207-6528

ExL Events, Inc.494 8th Avenue, Fourth FloorNew York, NY 10001

888-221-6750

Enhancing ePatient and Life Science Stakeholder Relations to Create Improved Health Outcomes and Therapeutic Engagements

ePatientConnections/ 2015

@ePatCon

SPONSOR:

OCTOBER 29-30, 2015 WYNDHAM PHILADELPHIA HISTORIC DISTRICT, PHILADELPHIA, PA

CO-CHAIREmily FreemanASTRAZENECA

OUR DISTINGUISHED FACULTY INCLUDES

Robert PopovianPFIZER

Lisa ValtierraBOEHRINGER INGELHEIM

Lucille Accetta TEVA

Craig KempMERCK

VACCINES

Jacob MooreNOSTIGMAS GENETICS

CO-CHAIRJodi Seidler

2 HIP PRODUCTIONS

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Ways to Registerwww.exlevents.com/epatcon

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866-207-6528

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ePatient - ExL Eventsinfo.exlevents.com/rs/195-NER-971/images/C624_Web.pdfePatient Meetup: Engage in a rare opportunity for the industry to network and connect with ePatients and discuss

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