Energizing and Engaging a Work Force for Family-Centered Care Through Annual “Families As Partners” Conferences Presented by Karen M. Crow, MSEd. Coordinator.

Energizing and Engaging a Energizing and Engaging a Work Force for Family-Work Force for Family-Centered Care Through Centered Care Through

Annual “Families As Annual “Families As Partners” ConferencesPartners” Conferences

Presented byPresented byKaren M. Crow, MSEd.Karen M. Crow, MSEd.

Coordinator of Family-Centered CareCoordinator of Family-Centered CareSt. Louis Children’s HospitalSt. Louis Children’s Hospital

At theAt the33rdrd International Institute for Family-Centered Care International Institute for Family-Centered Care

ConferenceConferenceSeattle, WashingtonSeattle, Washington

August 1, 2007August 1, 2007

History of the FAP History of the FAP ConferencesConferences April, 2002-April, 2002--5 SLCH NICU reps. attended -5 SLCH NICU reps. attended

national IFCC conference and wanted to national IFCC conference and wanted to replicate sharing FCC to our hospitalreplicate sharing FCC to our hospital

Families wanted FCC expanded from the NICU Families wanted FCC expanded from the NICU to all units/services hospital-wideto all units/services hospital-wide

November, 2002November, 2002—1—1stst Annual “Families As Annual “Families As Partners” Conference put on by NICU staff and Partners” Conference put on by NICU staff and familiesfamilies

2002--12002--1stst Annual FAP Annual FAP ConferenceConferenceFamily-Centered Care 101Family-Centered Care 101

National speaker shared national perspective National speaker shared national perspective on FCC and her hospital’s journey of on FCC and her hospital’s journey of implementing FCCimplementing FCC

NICU Division Chief shared his perspectivesNICU Division Chief shared his perspectives

Family panel shared their stories and what Family panel shared their stories and what FCC meant to their experiencesFCC meant to their experiences

Results of 1Results of 1stst ConferenceConference Hospital president impressed by family panel Hospital president impressed by family panel

and “grassroots” nature of movementand “grassroots” nature of movement

Assembled a group to determine how to Assembled a group to determine how to move FCC to all unitsmove FCC to all units

Recommendation: Hire a coordinatorRecommendation: Hire a coordinator

May 2003—Coordinator of Family-Centered May 2003—Coordinator of Family-Centered Care hiredCare hired

2003--2nd Annual FAP 2003--2nd Annual FAP ConferenceConferenceInvolving Families: Families As Involving Families: Families As EducatorsEducators National speaker shared national FCC National speaker shared national FCC

perspective and importance of family perspective and importance of family involvement in medical education at many involvement in medical education at many levelslevels

NICU APN shared personal FCC story and her NICU APN shared personal FCC story and her “conversion” to FCC practice“conversion” to FCC practice

FCC champion physician panel shared benefits FCC champion physician panel shared benefits of family as educators in medical educationof family as educators in medical education

Family panel shared their experiences and Family panel shared their experiences and “messages” about FCC to staff and physicians“messages” about FCC to staff and physicians

Results of 2Results of 2ndnd ConferenceConference Family-Centered Care Initiatives committee Family-Centered Care Initiatives committee

was formed to support staff in furthering was formed to support staff in furthering their FCC effortstheir FCC efforts

Sibling Help Force formed to address how to Sibling Help Force formed to address how to better support patients’ siblingsbetter support patients’ siblings

Added members to FACAdded members to FAC

More departments seeking FCC helpMore departments seeking FCC help

2004--32004--3rdrd Annual FAP Annual FAP ConferenceConferenceHaving Those “Difficult Having Those “Difficult Conversations”Conversations” National speaker shared national perspective and National speaker shared national perspective and

her work with FCC and multicultural issues related her work with FCC and multicultural issues related to such conversationsto such conversations

Involving families in discussionsInvolving families in discussions

Families with language issues and cultural Families with language issues and cultural differencesdifferences

Talking to families about bad outcomes/deathTalking to families about bad outcomes/death

Family panel included families with language Family panel included families with language barriers and families that had “difficult” outcomesbarriers and families that had “difficult” outcomes

Results of 3Results of 3rdrd ConferenceConference Inspired departments to ask for help with Inspired departments to ask for help with

FCC initiativesFCC initiatives

Added FAC membersAdded FAC members

Greater variety of departments attendedGreater variety of departments attended

Added members to FCCIAdded members to FCCI

2005--42005--4thth Annual FAP Annual FAP ConferenceConference“Oh, The Places You’ll Go…”“Oh, The Places You’ll Go…” National speakers shared national National speakers shared national

perspective and journey of integrating perspective and journey of integrating families throughout their hospitalfamilies throughout their hospital

Staff panel shared “how to do” FCCStaff panel shared “how to do” FCC

5 SLCH departments were invited to present 5 SLCH departments were invited to present (some w/parents) their FCC initiatives(some w/parents) their FCC initiatives

6 poster presentations from other 6 poster presentations from other departments’ FCC initiativesdepartments’ FCC initiatives

Results of 4Results of 4thth ConferenceConference Presenters were models for other areas to Presenters were models for other areas to

inquire and learn “how to do” FCCinquire and learn “how to do” FCC

Greater sense of “we can do this” in Greater sense of “we can do this” in individual areas and practicesindividual areas and practices

Added members to FCCIAdded members to FCCI

Keynote speakers took conference idea back Keynote speakers took conference idea back to replicate at their hospitalto replicate at their hospital

2006--52006--5thth Annual FAP Annual FAP ConferenceConferenceThe Past, Present, and Future The Past, Present, and Future of FCC at SLCHof FCC at SLCH

The 1The 1stst national speaker returned—spoke about national speaker returned—spoke about progress of FCC nationally and locally at SLCHprogress of FCC nationally and locally at SLCH

SLCH staff video clips tell of “what it was like” and SLCH staff video clips tell of “what it was like” and “what they wish for the future”—included hospital “what they wish for the future”—included hospital leadershipleadership

SLCH departments highlighted FCC initiatives in 5 SLCH departments highlighted FCC initiatives in 5 break out sessions and 9 poster break out sessions and 9 poster presentations/displayspresentations/displays

Audience participation of FCC concepts and Audience participation of FCC concepts and thoughtsthoughts

Results of 5Results of 5thth ConferenceConference Presenters had many communication doors Presenters had many communication doors

opened as a result—several shadowing opened as a result—several shadowing opportunities afterwardsopportunities afterwards

Heightened awareness of presented Heightened awareness of presented programs and inspiration for new initiatives programs and inspiration for new initiatives in new areasin new areas

2007—62007—6thth Annual FAP Annual FAP ConferenceConferenceNothing About ME, Without Nothing About ME, Without ME…ME… New CMO to give keynoteNew CMO to give keynote First Family Choice Award to be givenFirst Family Choice Award to be given Patient panel to discuss what it was like to be Patient panel to discuss what it was like to be

included or not included in their care process and included or not included in their care process and decisionsdecisions

Staff panel who have been involved with a Staff panel who have been involved with a medical event that has since changed the way medical event that has since changed the way they practicethey practice

9 departments break out session presentations9 departments break out session presentations 7 additional department poster presentations—7 additional department poster presentations—

including posters from 2 branch hospitalsincluding posters from 2 branch hospitals

Attributed OutcomesAttributed Outcomes(As perceived by staff)(As perceived by staff)

Conversations with and shadowing in departments Conversations with and shadowing in departments of presentations for further learningof presentations for further learning

““Public permission” to practice FCCPublic permission” to practice FCC Greater awareness of programs and initiativesGreater awareness of programs and initiatives Impetus for new programs that involve family input Impetus for new programs that involve family input

much earliermuch earlier in planning process in planning process Greater use of Family Advisory Council for “family Greater use of Family Advisory Council for “family

input”input” FCC has become a part of hospital’s 5 year FCC has become a part of hospital’s 5 year

strategic plan and annual and individual strategic plan and annual and individual department goalsdepartment goals

Attributed OutcomesAttributed Outcomes(As perceived by leadership)(As perceived by leadership)

A place to showcase excellence across the A place to showcase excellence across the organizationorganization

National speakers enabled us to hear “national National speakers enabled us to hear “national news” and spark our interest to continue to news” and spark our interest to continue to raise the barraise the bar

Many different people exposed to FCC conceptsMany different people exposed to FCC concepts

Demonstrated that SLCH had a high priority on Demonstrated that SLCH had a high priority on FCCFCC

Many departmental changes—EU, radiology, Many departmental changes—EU, radiology, PICU, SDS, therapy servicesPICU, SDS, therapy services

Added ProgramsAdded Programs

FAC’s Family Choice AwardFAC’s Family Choice Award

Concierge Guest Service—Pathfinders, Concierge Guest Service—Pathfinders, “Hospital and Neighborhood Services Guide”, “Hospital and Neighborhood Services Guide”, Information StationsInformation Stations

““Family-Centered Care Today” newsletterFamily-Centered Care Today” newsletter

New NICU additionNew NICU addition

Kid GuidesKid Guides

Added BenefitsAdded Benefits

Increase in choices for family participation in careIncrease in choices for family participation in care

Increase in family input being sought out for Increase in family input being sought out for committees and focus groups through out committees and focus groups through out hospitalhospital

More families are offering to “give back” through More families are offering to “give back” through sharing stories/experiences to “make it better for sharing stories/experiences to “make it better for the next family”the next family”

**Expectation of family presence throughout **Expectation of family presence throughout hospital**hospital**

Future EndeavorsFuture Endeavors

Parent Advisor Orientation/Training programParent Advisor Orientation/Training program

Hiring of “Lead Parents” to help with major Hiring of “Lead Parents” to help with major FCC program development and coordinationFCC program development and coordination

Families As Educators for residentsFamilies As Educators for residents

Family Mentoring ProgramFamily Mentoring Program

Unit-Based Joint Practice TeamsUnit-Based Joint Practice Teams

Lessons LearnedLessons Learned

Need to prepare family/staff panelistsNeed to prepare family/staff panelists

Variety of staff needed for planningVariety of staff needed for planning

““Competitiveness” can be beneficialCompetitiveness” can be beneficial

Great enthusiasm is generated!Great enthusiasm is generated!

QUESTIONS?QUESTIONS?

Please contact me for more information:Please contact me for more information:Karen CrowKaren CrowCoordinator of Family-Centered CareCoordinator of Family-Centered CareSt. Louis Children’s HospitalSt. Louis Children’s HospitalOne Children’s Place, Suite PL-25One Children’s Place, Suite PL-25St. Louis, Missouri 63110St. Louis, Missouri 63110

Phone: 314-454-2153Phone: 314-454-2153FAX: 314-454-4216FAX: 314-454-4216Email: Email: [email protected]@bjc.org