End-of-Life Nursing Education Consortium Pediatric ...End-of-Life Nursing Education Consortium Pediatric Palliative Care October 11-12, 2017 ELNEC Train-the-Trainer Session October

End-of-Life Nursing Education ConsortiumPediatric Palliative CareOctober 11-12, 2017

ELNEC Train-the-Trainer SessionOctober 13, 2017

Anschutz Medical Campus Children’s Hospital Colorado Conference & Education Center Aurora, CO

Provided byChildren’s Hospital Colorado Center for Cancer and Blood Disorders

Planned In Collaboration WithThe Butterfly Program

Overview, Target Audience and Learner OutcomeELNEC-Pediatric Palliative Care (ELNEC-PPC) was adapted from the ELNEC-Core Curriculum in 2003. ELNEC-PPC was developed by 20 pediatric palliative care experts, who recognized the unique needs of children and their families. Since its inception in August 2003, more than fifteen national courses have been provided across the United States to date, along with six Association for Pediatric Hematology/Oncology Nurses (APHON) collaborative courses. Over 1715 pediatric nurses and other healthcare providers have attended one of these national train-the-trainer courses. In 2009, the curriculum was up-dated to include enhanced perinatal and neonatal content.

Who should attend ELNEC-Pediatric Palliative Care?

• Undergraduate and graduate pediatric nursing faculty

• CE providers and staff development educators working in pediatric settings

• Hospice nurses

• Homecare nurses

• APRN/staff nurses working in pediatric acute care settings (i.e. oncology, medical/surgical, palliative care settings, NICU, PICU, clinics, etc.)

• Other members of the pediatric interdisciplinary team are welcome to attend, with the understanding that the curriculum is written by nurses for nurses.

This course was developed for healthcare professionals to provide a more thorough understanding of how the end of child’s life impacts families, friends and caregivers. The ten modules of this course will address different aspects of coping with a terminal illness and provide insights into the bereavement process. Attendees will be able to provide evidenced-based care for patients, as well as emotional and spiritual support to caregivers and survivors.

Course ObjectivesUpon completion of this course, participants should be able to:

• Describe the philosophy and principles of hospice and palliative care that can be integrated across settings to affect quality pediatric care.

• Examine components of spiritual and cultural identification and how they impact the delivery of pediatric palliative care services.

• Identify barriers to adequate pain relief in palliative care and describe pharmacological and non-pharmacological therapies used to relieve pain.

• State foundational ethical principles and legal considerations of pediatric palliative care.

• State details of the Colorado Access to Medical Aid in Dying Act and discuss implications for individual practice.

• Identify physical, psychological, social and spiritual needs and interventions for an imminently dying child and his/her family.

• Describe post-mortem care options and processes.

• Describe unique characteristics of neonatal palliative care and strategies to overcome.

• Summarize three aspects of excellent ongoing communication with the interdisciplinary team, the child and the family throughout the palliative care period.

• Recognize most common distressing symptoms at the end of life.

• Identify behaviors and actions involved at end-of-life that affect the dying experience for patients and families.

• Describe the concepts of grief and bereavement and identify tools that can be used to support families.

• Anticipate successes and pitfalls in program development.

Train-the-Trainer Session ObjectivesUpon completion of this half-day session, participants should be able to:

• Identify strategies that can be used to educate health care professionals related to palliative and end-of-life care.

• Implement end-of-life education in their settings.

• Evaluate educational activities.

Continuing Education CreditRegistration, attendance, sign-in and submission of the evaluation, including a written response to questions related to any change in practice that you may make as a result of learning that took place at this activity, are required for successful completion and receipt of the certificate of attendance. Claim only those hours you attend.

Children’s Hospital Colorado is an approved provider of continuing nursing education by the Western Multi-State Division, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. This educational activity for 19.25 nursing contact hours is provided by Children’s Hospital Colorado (10/11- 7 hours; 10/12- 6.75 hours; 10/13- 5.5 hours).

Participants who complete the Train-the-Trainer session in addition to the course will receive a separate certificate identifying them as ELNEC trainers.

A general certificate of attendance will be available for other disciplines.

Registration Fees By 9/22 After 9/22

Children’s Colorado Staff $100 $125

Community Participants $150 $175

Train-the-Trainer Session $85 $110

Cancellation Policy No refunds will be granted for non-attendance although you may send a substitute (notification is required).

The Planning Committee reserves the right to alter the agenda or cancel the course in the event of an unforeseen circumstance, or if the minimum registration is not attained by September 22, 2017 with a full refund to participants.

Children’s Hospital Colorado complies with applicable Federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, or sex. • ATENCIÓN: si habla español, tiene a su disposición servicios gratuitos de asistencia lingüística. Llame al 1-720-777-1234. • CHÚ Ý: Nếu bạn nói Tiếng Việt, có các dịch vụ hỗ trợ ngôn ngữ miễn phí dành cho bạn. Gọi số 1-720-777-1234.ME_130691_2017-04

Registration is online

childrenscolorado.org/CE

Register online by September 22, 2017 to pay the early registration fee

Agenda

Wednesday, October 11, 2017 Mt. Yale Conference Room

7:30 a.m. Registration & Continental Breakfast

7:50 Welcome and Opening Remarks Nancy King, MSN RN CPNP CPON

8:00 Introduction to Palliative Care Nursing: Special ConsiderationsNancy King, MSN RN CPNP CPON

9:00 Cultural and Spiritual Considerations in Pediatric Palliative CareCate Baze, MSW LSW

10:00 Break

10:15 Pain ManagementJeffrey L. Galinkin, MD FAAP

11:15 Legal and Ethical Considerations in Pediatric Palliative CareKaren Jones, MS RNC-NIC

12:15 p.m. Lunch (provided)

1:00 Colorado Access to Medical Aid in Dying Act: A Review of the New Colorado Law Grant C. Crooks, BSN RN CPON

2:00 Break

2:15 Care at the Time of DeathMolly Hemenway, DNP MS RN AC/PC-CPNPJennifer Madden, MSN RN CPNP

3:15 Care Options for Families Following DeathGeoff Howe, MSPSusan Hughes, BSN RN

4:00 Wrap-up and Evaluation

4:15 Adjourn

Thursday, October 12, 2017 Mt. Princeton Conference Room

7:30 a.m. Registration & Continental Breakfast

7:55 Welcome and Opening Remarks Karin Dolph, BSN RN CHPPN

8:00 Perinatal and Neonatal Palliative CareAmy Hill, BSN RNC-NIC

9:00 Communication in Pediatric Palliative CareKaren Williams, MSN RN FNP-BC ACHPN

10:00 Break

10:15 Symptom ManagementAllison Dorbandt Feldman, MD

11:45 Lunch (provided)

12:45 p.m. Care at the Time of Death – Family PanelFamily Panelists

1:45 Break

2:00 Loss, Grief and BereavementCassie Matz, MSW LCSW

3:00 Models of Excellence: A Growing ProgramKaren Williams, MSN RN FNP-BC ACHPN

4:00 Closing Comments/Evaluation Nancy King, MSN RN CPNP CPON

4:15 Adjourn

Friday, October 13, 2017 Mt. Princeton Conference Room Train-the-Trainer Session FacultyKarin Dolph, BSN RN CHPPNKaren Williams, MSN RN FNP-BC ACHPN

7:15 a.m. Registration & Continental Breakfast

7:40 Welcome/Introduction/Objectives

7:45 Overview of ELNEC-PPC Curriculum and Resources

8:00 Module 1: Introduction to Pediatric Palliative Care

8:30 Module 2: Perinatal and Neonatal Considerations

9:00 Module 3: Communication

9:30 Module 4: Ethical and Legal Considerations

10:00 Module 5: Cultural and Spiritual Considerations

10:30 Break

10:45 Module 6: Pain Management

11:15 Module 7: Symptom Management

11:45 Module 8: Care at the Time of Death

12:15 p.m. Module 9: Loss, Grief and Bereavement

12:45 Module 10: Models of Excellence

1:15 Course Evaluation

1:30 pm Adjourn

Faculty

Family Panelists

Cate Baze, MSW LSWCommunity Resource Division Manager MGA Pediatric Home Healthcare

Grant C. Crooks, BSN RN CPONPrimary Nurse, Solid Tumor Clinic Center for Cancer and Blood Disorders

CCBD Ethics Liaison Ethics Committee Member Children’s Hospital Colorado

Karin Dolph, BSN RN CHPPNClinical Manager, Pediatric Palliative Care The Butterfly Program Centura Health at Home

Allison Dorbandt Feldman, MDPediatric Hospital Medicine Pediatric Palliative Care Colorado Permanente Medical Group

Jeffrey L. Galinkin, MD FAAPProfessor of Anesthesiology and Pediatrics Co-Chair Panel B Colorado Multiple Institutional Review Board University of Colorado

Co-Chair of Pharmacy and Therapeutics Committee Children’s Hospital Colorado

Molly Hemenway, DNP MS RN AC/PC-CPNPSenior Instructor University of Colorado

Pediatric Nurse Practitioner Center for Cancer and Blood Disorders Children’s Hospital Colorado

Amy Hill, BSN RNC-NICClinical Nurse IV, Neonatal ICU Children’s Hospital Colorado

Geoff Howe, MSPCertified Mortuary Science Professional Funeral Director Howe Mortuary, Member of Allnutt Funeral Service

Susan Hughes, BSN RNDirector of Employee Relations Allnutt Funeral Service

Karen Jones, MS RNC-NICAssociate Clinical Manager, Neonatal ICU Children’s Hospital Colorado

Nancy King, MSN RN CPNP CPONELNEC Trainer Inpatient Pediatric Nurse Practitioner Center for Cancer and Blood Disorders Children’s Hospital Colorado

Jennifer Madden, MSN RN CPNPAssociate Professor of Pediatrics University of Colorado

Pediatric Nurse Practitioner, NeuroOncology Children’s Hospital Colorado

Cassie Matz, MSW LCSWBereavement Coordinator Spiritual Care Department Children’s Hospital Colorado

Karen Williams, MSN RN FNP-BC ACHPNProgram Leader, Palliative Care Reach Team Children’s Hospital Colorado

Location and ParkingThe conference will be held on the Anschutz Medical Campus at Children's Hospital Colorado, 13123 East 16th Avenue in Aurora, Colorado. Enter the hospital at the main entrance and take the elevators to the Conference and Education Center on the second floor.

Free parking for hospital guests is available on the Lower Level of the Family/Visitor parking structure, just south of the hospital’s main entrance. Employees of Children’s Colorado and University of Colorado Hospital must park in their designated area.

Please visit childrenscolorado.org/directions for driving directions.

Further Information For any questions or to request arrangements to accommodate a disability, contact the conference coordinator.

Diane Gonzales - 720-777-6160

[email protected]