eHealth, electronic data capture & citizen science in healthcare: implications for clinical trials 1/39 Jeremy Wyatt DM FRCP ACMI Fellow Leadership chair in eHealth research, Leeds university With thanks to Dr Shiva Sathanandam, Institute of Digital Healthcare, Warwick University
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eHealth, electronic data capture & citizen science
in healthcare: implications for clinical trials
1/39
Jeremy Wyatt DM FRCP ACMI Fellow
Leadership chair in eHealth research,
Leeds university
With thanks to Dr Shiva Sathanandam, Institute
of Digital Healthcare, Warwick University
Agenda
Definition of eHealth
Three challenges:
1. Studying eH as an intervention: some examples
of eH studies and potential risks associated with
eH interventions
2. Using eH to support clinical trials
3. How might patients use these methods to
conduct their own clinical trials ?
Summary and conclusions
2/23
eHealth / health informatics
Aim: to improve use of information in health, social & self care
Related terms:
• mHealth, Connected health
• Telehealth, telemedicine
• Digital healthcare
• Cybermedicine, cyberhealth
Focus is on:
• Information,
• Communication, and
• Decisions of clinicians, patients, public
Cluster RCT of GP teledermatology to prevent
unnecessary referrals in 560 patients
With Depts. of Medical Informatics and Primary Care, AMC Amsterdam
Instant messaging triage by NHS Direct
nurses for deaf people
The range of eH interventions
Remote consultation by phone, Skype,
videoconference
Interactive programmes / DVDs. eg for CBT
Automated phone / SMS reminders
Tailored msgs or emails for health promotion
Web sites:
• Standard information eg. NHS Choices
• Personalised information eg. My Diabetes; stroke risk
• Interactive “serious” games
• Immersive environments – Second Life
• Virtual / augmented reality
Social media & forums, eg. SharpTalk
Apps and devices including some or all of the above 6/23
Medicom medication monitor
“Persuasive technology” – an RCT
Persuasive features:
1. Domain name uses https security, .dundee.ac.uk domain vs .com
2. University Logo
3. No advertising
4. References
5. Address & contact details
6. Privacy Statement
7. Articles are all dated
8. Site is certified (W3C and Health on the Net
RCT results - joining the NHS organ
register
889/25000 students recruited in 5 days to internet trial
Same joining rate (38%) in persuasive & control groups
Overall, 336 joined NHS organ register, including:
• 126 (49%) of 260 blood donors (HR 1.46, p=0.02)
• 65 (38%) of 173 who know a donor/recipient (NS)
• 68 (23%) of 296 who initially said “maybe”
• 22 (10%) of 232 who initially said “no” !
Interpretation:
• Fogg’s guidelines do not apply in this setting ?
• NHS should target young blood donors
Funded by NHS Chief Scientist Scotland Nind et al, JMIR 2012 (submitted)