Educate Encourage
Enrich Advocate
Transform Empathize
Social Media: Why and How Should
Healthcare Providers Engage?
Hope Warshaw, MMSc, RD, CDE, BC-ADM, FAADE
Hope Warshaw Associates, LLC
May 19, 2016
Webinar Goals
• Set stage for social media engagement – why now?
• Describe Diabetes Online Community (DOC) evolution
and importance
• Provide rationale for HCPs to engage in social media
• Offer strategies and guidelines for HCPs to engage
5
Set the stage for social media
engagement – why now?
Affordable Care Act (ACA):
A Driver for Patient Engagement
• Triple Aim integrated into ACA
• Affordable Care Act, 2010 – 2018
• Patient engagement integrated into Triple Aim
“As humans we have an ancient
instinct to reach out and want to
share with someone like me,
now people can do this with the
internet.”
“There’s a mobile and social
earthquake happening. People
[our clients] are going to expect
to engage online with HCPs,
with someone like them.”
Susannah Fox, Chief Technology Officer, US Dept HHS. The “e” is for Engagement. AADE15
Susannah Fox, Chief Technology Officer, US Dept HHS. The “e” is for Engagement. AADE15 (reproduced)
Expert Knowledge…In the Past
Susannah Fox, Chief Technology Officer, US Dept HHS. The “e” is for Engagement. AADE15 (reproduced)
People with Diabetes, Caregivers & Community Input
Expert Knowledge Now, Plus…
Gee P, Greenwood D, et al: The eHealth Enhanced Chronic Care Model: A Theory Derivation
Approach, J Med Internet Research. 2015;7(4)
@NightscoutProj
#wearenotwaiting
#nightscout
FB: Nightscout
Lee JM, Hirschfeld E, Wedding J: A Patient-Designed Do-It-Yourself Mobile Technology System for
DiabetesPromise and Challenges for a New Era in Medicine. JAMA; 2016; 315(14):1447-1448.
“How might healthcare stakeholder leverage technologies like
social media to scale the communication and
dissemination of innovations in health?”
Polling Question:
Which social media platform(s) do you see your clients with diabetes (or their caregivers) using most to seek support for or information about diabetes?
1. Twitter 2. Facebook 3. Pinterest 4. Instagram 5. All of the above 6. None of the above
14
Describe the Diabetes
Online Community (DOC)
evolution and importance
Every year, PWD/caregivers spend…
Hours
At the docNot at the…
O’Keefe DT, Montori VM: What’s up #DOC? The role of social media in diabetes management. Diabet Med.
2015;(published online ahead of print) Link to abstract: http://onlinelibrary.wiley.com/doi/10.1111/dme.12955/abstract.
Sparling K, Tenderich A, Warshaw H: “Community as part of the prescription: Social media in diabetes care.”
American Journal of Managed Care. 2015;21(15),SP515-517 .
Used with permission: M. Hernandez
Evolution of the DOC…the early days
Large community
forums
Advocacy
organizations/efforts
100’s personal
blogs
Online e-
magazines and
news sources:
Social
media
Diabetes associations
AADE, ADA, JDRF
Government agencies:
CDC, NIDDK, NDEP
Hilliard ME, et al. Sparling KM, et al. The Emerging Diabetes Online
Community. Current Diabetes Reviews. 2015;11 (e-pub).
Why PWD Connect to the DOC?
• Get, give support
• Laugh, gain levity
• Offer practical insights to deal with diabetes
• Share challenges, stresses
• Celebrate successes
• Minimize isolation, find others in same stage of life
• Stay abreast of diabetes research, technologies,
treatments, etc
• Advocate for diabetes causes, issues and concerns
Research Conclusions*
• The DOC is used as an adjunct to regular diabetes care.
• DOC engagement is associated with better glycemic control.
• The majority of DOC users reported they had been helped
with little harm reported.
• DOC users had high diabetes self-care and Health Related
QOL scores.
• DOC users used the DOC to increase knowledge to improve
self-care and for emotional support.
*Litchman ML: The diabetes online community: A SOCIAL MEDI(c)A(l) approach to #Diabetes care. Presented
as oral research abstract at 42nd Annual Meeting of the American Academy of Diabetes Educators. 2015.
Tool/Handout: Connect Clients to DOC
Find web-based and printable versions:
AADE: diabeteseducator.org/export/sites/aade/_resources/pdf/general/Social_Media_Handout.pdf
Hope Warshaw: hopewarshaw.com/connectdiabetes (links in blog)
DHF: English: http://www.diabeteshandsfoundation.org/doc/color.pdf, http://www.diabeteshandsfoundation.org/doc/bw.pdf;
Spanish: http://diabeteshandsfoundation.org/doccoloresp/; http://diabeteshandsfoundation.org/docbnesp/
21
Provide rationale for HCPs
to engage in social media
WHY Do HCPs Engage in
Social Media?
Polling Question:
Why do you or do you want to engage in social media professionally?
1. Build your business or brand 2. Increase your name recognition 3. Increase access to timely professional news 4. Interact with your clients and potential clients 5. Advocate on professional issues, concerns 6. All of the above 7. None of the above
Twitter: @hopewarshaw
Website: hopewarshaw.com
Facebook: eathealthylivewell Blog: hopewarshaw.com/blog
Instagram: hopewarshaw MY WHY?
Why HCPs Engage or Should?
• Build your name, brand, business, practice
• Connect and share with colleagues
• Grow your professional network
• Become known, reliable information resource
• Stay up to the minute on profession-related news, news
• Know what’s happening on the DOC
• Gain insight into people with diabetes, caregivers (desires,
wants, needs)
• Advocate DOC, professional concerns (local, state, Fed)
Offer Accurate Information, Support
D-Community
(posted by RD)
Remember that #diabetes is preventable
w/light & healthy #nutrition and daily #exercise.
#rdchat @JaniceRDCDE @HopeWarshaw
(response)
Hope Warshaw RD CDE @HopeWarshaw
Type 2 #diabetes can, for some, be prevented
or delayed but not type 1. Important distinction.
Promote Reliable Resources,
Support D-Community
Kate Cornell @SweetenedKate
@HopeWarshaw This is a great resource!
Thank you, and thanks too for including my
blog and the Type 2 @TheT2Experience.
Hope Warshaw RD CDE @HopeWarshaw
Learn, Connect & Engage with the #Diabetes
community. ow.ly/4mO1PX News, blogs
resources and much more #DOC
Advocate for DOC, Associations,
Causes
Hope Warshaw RD CDE @HopeWarshaw
.@MarkWarner Plz support Medicare CGM
Access Act S 804! Bill assures access to
#CGM for people w T1 #diabetes #DOC
@AADEdiabetes
Hope Warshaw RD CDE @HopeWarshaw
.@RepDianaDeGette Tx for intro HR 1726
to increase Access to Quality #Diabetes
Education/Support. @aadediabetes
#DiabetesEd4All
Polling Question:
What hurdles do you face as you set goals to engage/engage more in social media?
1. Time to learn about the medium, various networks 2. Steep learning curve to master and limited access to expertise 3. Employer hurdles: not valued or discouraged, time not allotted 4. Don’t assess value to your practice/professional growth 5. Don’t assess value to the clients you work with 6. All of the above 7. None of the above
30
Offer strategies and guidelines
for HCPs engagement
Rules of HCP Engagement in Social
Media with DOC*
• I will not feel guilty about lurking.
• I will spread good, reputable information.
• I will not judge.
• I will be honest.
• I will be transparent.
• I will be real.
*From:Your Patients Are Online; Why Aren’t You?, Kerri Sparling, JJDI 4/14/16
Guidelines for HCP Engagement in Social
Media - Additions
• I will not play the role of HCP/diabetes educator
“information provider, expert”
• I will gain insight into PWD/caregivers’ desires,
wants, needs in diabetes care, life
• I will be supportive
• I will know my place and role
• I will have fun with PWD/caregivers, engage them to
learn, enjoy the medium
Should You Have Ethical
and Legal Concerns about
Engaging in Social Media?
Should these STOP YOU from engaging?
Ethical & Legal Guidance
• Look to professional associations’ code of ethics
– general, specific to social media
• Act ethically, within legal bounds of profession
– Share research-based content only
– Don’t plagiarize w/ out attribution
– Don’t “air dirty laundry”
• Be transparent/disclose endorsements, sponsorship,
advertising
• Respect privacy, confidentiality: Think HIPPA
– Don’t share: about patients, encounters;
no disparaging remarks; no photos w/ patients
Tips to Engage in Social Media as HCP
• Make it work for you
• Set your own “rules”
• Stick with what you know, your area of interest/expertise
• Develop, apply your “voice”
• Share your personality, vantage point – but not “TMI”
• Create a conversation
• Post photos and videos
• Be real, add value and have fun!
Discussion Question:
If you want to further engage in social media professionally, what is one S-M-A-R-T goal you are willing/able to commit to achieving within the next 30 days?
Webinar Goals
• Set stage for social media engagement – why now?
• Describe Diabetes Online Community (DOC) evolution
and importance
• Provide rationale for HCPs to engage in social media
• Offer strategies and guidelines for HCPs to engage
38
Thank You for YOUR Attention, Now to YOUR questions…