E-patients and social media Lee Rainie, Director, Pew Internet Project - @lrainie 10.10.13 Hofstra University
Jul 15, 2015
E-patients and social media
Lee Rainie, Director, Pew Internet Project - @lrainie
10.10.13
Hofstra University
“Tell the truth, and trust the people” -- Joseph N. Pew, Jr.
http://bit.ly/dUvWe3
http://bit.ly/100qMub
Un-Hippocratic
I SWEAR… I will impart a knowledge of the Art to my own sons, and those of my teachers, and to disciples bound by a stipulation and oath, according to the law of medicine,
but to none others
Lisa Kimbell email: “If you're reading this it's because I managed to convince Peter to send it which makes me very happy even tho I'm sure it makes Peter feel uncomfortable. I'm sending a check out to Oregon today…. Since most of us are far away, we can't do much of that but we can provide some cash to reduce the stress of figuring out how to deal with the day-to-day while they're dealing with something way more important.”
Blogger Jessica Lipnack: “… because you are reading this post, you are connected to P+T. Without their pioneering ideas and frameworks, this kind of connection, between you and me right now, would be very different.” Then she quotes Lisa Kimbell’s email text
Networked Individualism
More important
Differently composed
Perform new functions
Lubricated by social media
Health care implications
Source of caregiving
Second opinions
Providers as “nodes”
Performing in public
But the fundamentals still apply
The last time you had a health issue, did you get information, care, or support from…
Total yes
Yes, online
Yes, offline
Yes, both
Not a source
A doctor or other health care professional 70% 1% 61% 8% 28%
Friends and family 60 1 39 20 39 Others who have the same health condition 24 2 15 7 73
Source: Pew Research Center’s Internet & American Life Project, August 7-September 6, 2012 Survey. N=3,014 adults. Margin of error for internet users (N=2,392) is +/- 2.6 percentage points.
Digital Revolution 1: Broadband at home - 70% (+10% more have smartphones) - Internet users overall: 85%
3%
70%
0%
20%
40%
60%
80%
100%
June2000
April2001
March2002
March2003
April2004
March2005
March2006
March2007
April2008
April2009
May2010
Aug2011
April2012
May2013
Dial-up Broadband
Broadband at home
Dial-up at home
The % of adult internet users who have looked online in the
last 12 months for information about…
55% Specific disease or medical problem
43 Certain medical treatment or procedure
27 How to lose weight or how to control your weight
25 Health insurance, including private insurance, Medicare or
Medicaid
19 Food safety or recalls
16 Drug safety or recalls
16 A drug you saw advertised
15 Medical test results
14 Caring for an aging relative or friend
12 Pregnancy and childbirth
11 How to reduce your health care costs
20 Any other health issue
72 at least one of the above topics
Source: Pew Research Center’s Internet & American Life Project, August 7-September 6, 2012 Survey. N=3,014 adults. Margin of error for internet users (N=2,392) is +/- 2.6 percentage points.
Digital Revolution 2 Mobile – 91% … smartphone 56% … tablets 34%
326.4
Total U.S. population: 319 million
2012
Changes in smartphone ownership
35%
48%
17%
46% 41%
12%
56%
35%
9%
0%
20%
40%
60%
80%
100%
Smartphone Other cell phone No cell phone
May 2011 February 2012 May 2013
Smartphone ownership by income/age
77%
47%
22%
8%
81%
68%
40%
21%
90% 87%
72%
43%
0%
20%
40%
60%
80%
100%
18-29 30-49 50-64 65+
Less than $30,000 $30,000-$74,999 $75,000 or more
Mobile health info
2010 2012
All cell phone owners 17% 31%
Men 17 29*
Women 16 33*
Age
18-29 29 42*
30-49 18 39*
50-64 7 19*
65+ 8 9
Race/Ethnicity
White, non-Hispanic 15 27*
Black, non-Hispanic 19 35*
Hispanic 25 38*
Annual household income
Less than $30,000/yr 15 28*
$30,000-$49,999 17 30*
$50,000-$74,999 17 37*
$75,000+ 22 37*
Education level
No high school diploma 16 17
High School grad 12 26*
Some college 21 33*
College+ 20 38*
• 91% of adults own cells … of them … • 31% get health information • 9% get health text messages
--- • 56% own smartphones
… of them … • 19% have health apps
Health apps All health app users (n=254)
Exercise, fitness, pedometer
or heart rate monitoring 38%
Diet, food, calorie counter 31
Weight 12
Period or menstrual cycle 7
Blood pressure 5
WebMD 4
Pregnancy 3
Blood sugar or diabetes 2
Medication management
(tracking, alerts, etc) 2
Mood *
Sleep *
Other 14
69% track health indicator for themselves or another
… of them … • 49% of trackers say they keep track of progress “in their heads” • 34% say they track the data on paper, like in a notebook or journal • 21% say they use some form of technology to track their health data – and 7% use an app.
Impact of tracking
• 34% of self-trackers say their data collection has affected a health decision
• 40% of self-trackers say it has led them to ask a doctor new questions or seek a second opinion
• 46% of self-trackers say it has changed their overall approach to health
Pew Internet/California HealthCare Foundation survey
Digital Revolution 3 Social networking – 61% of all adults
% of internet users
9%
89%
7%
78%
6%
60%
1%
43%
0%
20%
40%
60%
80%
100%
2005 2006 2007 2008 2009 2010 2011 2012 2013
18-29 30-49 50-64 65+
The Landscape of Social Media Users (among adults)
% of internet
users who…. The service is especially appealing to
Use Any Social
Networking Site 72% Adults ages 18-29, women
Use Facebook 71% Women, adults ages 18-29
Use Google+ 31% Higher educated
LinkedIn 22% Adults ages 30-64, higher income,
higher educated
Use Pinterest 21% Women, adults under 50, whites,
those with some college education
Use Twitter 18% Adults ages 18-29, African-Americans,
urban residents
Use Instagram 17% Adults ages 18-29, African-Americans,
Latinos, women, urban residents
Use Tumblr 6% Adults ages 18-29
reddit 6% Men ages 18-29
•54% of online health searches are conducted on behalf of someone else.
•34% of online adults look at online reviews
•26% in the last 12 months read about or watched someone else’s health experience
• 18% have gone online to find others who might share the same health concerns.
11% of SNS users; 8% of Twitter users get medical info on the sites
80% of online health queries begin at search engines
How online searches affect decisions (1)
• 60% of e-patients say the information found online affected a decision about how to treat an illness or condition.
• 56% say it changed their overall approach to maintaining their health or the health of someone they help take care of.
• 53% say it lead them to ask a doctor new questions, or to get a second opinion from another doctor.
• 49% say it changed the way they think about diet, exercise, or stress management.
• 38% say it affected a decision about whether to see a doctor.
• 38% say it changed the way they cope with a chronic condition or manage pain.
How online searches affect decisions (2)
What social networks do for patients: Why physicians can be “nodes”
• Attention – act as sentries – alerts, social media interventions, pathways
through new influencers
• Assessment – act as trusted, wise companion – assess the accuracy of info, timeliness of info,
transparency and rigor of info
• Action – act as helpful producers/enablers – give people outlets for expression, interpretation
of their creations
Health outcomes payoff
• Monitoring
• Interventions and reinforcement
• Skills training – meds/devices
• Emotional and social support among peers
• “Information prescriptions”
• Amateur research contributions – online recruitment, communities and clinical trials