5th Edition – Paris -- June 4-5, 2015 Patient Opinion Leaders and Pharma Nuria Zúñiga @tulupus
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5th Edition – Paris -- June 4-5, 2015
Patient Opinion Leadersand Pharma
Nuria Zúñiga @tulupus
5th Edition – Paris -- June 4-5, 2015
Why me?• I am a person like any other: dreams, goals,
achievements, …• I also have lupus• I know how it is like to live with a chronic illness• My lupus has made change my life: dreams, goals,
achievements, …• I listen to other patients
5th Edition – Paris -- June 4-5, 2015
How did I emerge?
Other patients
Lupus got complicated…
5th Edition – Paris -- June 4-5, 2015
From blogger to POLI am only a patient that has put a voice to what it feels like to live with a chronic illness.
By listening to people this web has become what it is today and I have become a POL (pledge out loud) person.
Now I write about…• Treatments• Psychology• Family
5th Edition – Paris -- June 4-5, 2015
Am I a Patient Opinion Leader?• "Patient Opinion Leaders (POL), are individuals who are well versed in a
disease either as sufferers or caretakers of individuals with chronic disorders and share their knowledge on the particular disease with others" and that in most cases happen to share this knowledge in social media: Twitter, Facebook, blogs...”
How deep is my knowledge in lupus?
Is that the question???
5th Edition – Paris -- June 4-5, 2015
The right questions are:
• Do I know how it feels like to live with a chronic illness?• Do I know what patients need?• Can I help pharma help patients, doctors and relatives?• Am I responsible when I talk about health?
Am I a Patient Opinion Leader?
5th Edition – Paris -- June 4-5, 2015
POLs and Pharma
Yes…Do you have lupus?
Many illnesses are treated with drugs that
are not specifically indicated for that
condition
5th Edition – Paris -- June 4-5, 2015
The change is arising…I collaborate with several Pharma companies in projects not directly related to lupus.
PharmaHealth Specialists
Patients
5th Edition – Paris -- June 4-5, 2015
POLs and PharmaOther patient common needs:
• Psychology.• Social awareness.• Treatment adherence.• Healthy life habits.• Patient education.
5th Edition – Paris -- June 4-5, 2015
5th Edition – Paris -- June 4-5, 2015
Merci!Nuria Zúñiga
@tulupushttp://tulupusesmilupus.com
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