District with sickle cell and thalassaemia

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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SICKLE CELL AND THALASSAEMIA COUNSELLORS

AND CLINICAL SPECIALISTS

List Updated by Maureen Scarlett STANMAP Secretary

BARKING & DAGENHAM, HAVERING & REDBRIDGE Haemoglobin Disorders Service Cedar Centre- Unit Management Office King George’s Hospital, Barley Lane Goodmayes, Essex. IG3 8YB Tel: 020 8970 8301/8263 Fax: 020 8970 5822 Admin: Anna Robinson Email: [email protected] [email protected] Haemoglobinopathy Specialist Nurse: Christine Williams Mobile: 07958 221 274 Email: [email protected] [email protected] Community Adult Haemoglobinopathy Specialist Nurse: Deo Boodoo Email: [email protected] [email protected] Mobile: 07966 575 785 Welfare Benefits Advisor: (Mon & Thurs) Vacant Highly Specialist Psychologist: Ioanna Ampati Mobile: 07525 922 422 Email: [email protected] [email protected] Acute Adult Haemoglobinopathy Clinical Specialist Nurse: Olushola Shoyemi Mandarin B Ward, Barking, Havering and Redbridge University Hospital Trust, Queen’s Hospital, Rom Valley Way, Romford Essex RM7 0AG Mobile: 07908 427 978 Tel: 01708 435000 Extension 6171 Email: [email protected] [email protected]

Community Paediatric Haemoglobinopathy Specialist Nurse: Jemma Solomon Mobile: 07956 682 144 Email: [email protected] [email protected] Acute Paediatric Haemoglobinopathy Clinical Specialist Nurse: Albin Bendiola Tropical Bay, Barking, Havering and Redbridge University Hospital NHS Trust, Queen’s Hospital, Rom Valley Way, Romford Essex RM7 0AG Tel: 01708 503 521 Extension 6521 Mobile: 07908 428 204 Email: [email protected] [email protected] BARTS HEALTH NHS TRUST The Royal London Hospital Whitechapel London E1 1BB Tel: switchboard :0207 377 7000 The Royal London Hospital Paediatric Service Acute CNS Paediatric Haematology Office 2, Children’s Support Services Level 6, Central Tower The Royal London Hospital E1 1BB Tel: 0203 594 0401/0399 Pager: 07659152645 Email: [email protected] Barts Health Lead Nurse Haemoglobinopathies Adult Service Aldine Thomas Haematology Day Unit Second Floor, Central Tower Tel: 07908 396318 Fax: 0203 594 1859 Email: [email protected]

GREATER LONDON

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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Adult Haemoglobinopathy Administrator Rima Begum Tel: 0203 594 1876 Fax: 0203 594 1859 Email: [email protected] The Royal London Adult Service Acute Adult CNS Haemoglobinopathies Edna Koomson Tel: 0203 594 1877 Fax: 0203 594 1859 Pager: 07659 126840 Email: [email protected] Tower Hamlets Community Haemoglobinopathy Team CNS Adult and Paediatric Service and Genetic Counselling Lydia Taylor-Down Tel: 0203 594 1817 Fax: 0203 594 1859 Email: [email protected] Admin: (vacancy) - 0203 246 0375 Newham Hospital Adult Service Acute Adult CNS Haemoglobinopathies Gabriela Oguntoye Newham University Hospital Glen Road London E13 8SL Tel: 0207 363 8730 Email: [email protected] Whipps Cross Hospital Whipps Cross Road London E11 1NR Contacts: Aldine Thomas Contacts: Waltham Forest Community Team BEXLEY (See Greenwich) BRENT (Brent, Harrow, Ealing) Brent Sickle Cell & Thalassaemia Centre Central Middlesex Hospital Acton Lane, London NW10 7NS

Tel: 020 8453 2050/52 Fax: 020 8453 2051 Generic Email : [email protected] Individual Email: [email protected] Website: www.sickle-thal.nwlh.nhs.uk

Specialist Nurse Consultant/Service Director: Dr. Lola Oni OBE - Tel: 0208 453 2050/2052 Senior Specialist Nurse (Acute-Adults): Heidee Nicosia – Tel: 020 8453 2068 Senior Specialist Nurse (Acute/Community Paeds) Jacqui Bowyer- Tel 0208 453 2050/2054 Specialist Nurse (Community): Patricia Alfonso-Brown Tel: 0208 453 2062 Specialist Midwife: Paula Sullivan- Tel: 020 8453 2069 Email: [email protected] Clinical Psychologist: Dr. Kofi Anie - Tel: 020 8453 2060 Specialist Social Worker (NW Sector): Vacant -Tel: 020 3313 4655/ 07901 103058 Email: Haemoglobinopathy Research Nurse Patricia Kiilu - Tel: 020 8869 2593 Email: [email protected]

CAMDEN & ISLINGTON Whittington Health: Sickle Cell & Thalassaemia Centre 17a Hornsey Street London N7 8GG Tel: 020 3316 8853/8854 Fax: 020 7690 3552 Clinical Services Manager & Community Matron Matty Asante-Owusu Tel : 020 3316 8858 Email: [email protected] Haemoglobinopathy Paediatric Community Nurse: Grace Adjei-Chukwu Tel: 020 3316 8853/54 Email: [email protected] Administrative Manager: Michael Coker 020 3316 8854 Email: [email protected] Clinical Psychologist: Dr Chinea Eziefula 020 3316 8859 Email: [email protected] Antenatal Screening Co-ordinator: Ana Braga [starting in May 2017] Tel: 0207 288 5108 Email: [email protected] Clinical Nurse Specialist (Paediatric): (Roald Dahl Haemoglobinopathy) Edith Aimiuwu Whittington Health NHS Trust Department of Haematology Level 5, Magdala Avenue London N19 5NF Tel: 020 7288 3017 Email: [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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Clinical Nurse Specialist (Thalassaemia): Emma Prescott Tel: 020 7272 3070 Bleep No: 2866 Email: [email protected] Sickle Cell Clinical Nurse Specialist (Adults) Olivia Kudom Whittington Hospital Tel: 0207 288 5035 Mobile- 07887987931 Bleep | Fax Email: [email protected] Sickle Cell Clinical Nurse Specialist: Sarah Cullen Whittington Hospital Ifor Ward Tel: 020 7288 5442 Email: [email protected] ROYAL FREE HOSPITAL Haemoglobinopathy Specialist Midwife Ana Gonzalez Fetal Medicine unit Royal Free London Pond Street London NW3 2QG Tel: 020 7472 6428 (direct Line)

020 7794 0500 ext 38961 Bleep 1067 UNIVERSITY COLLEGE LONDON HOSPITAL: Clinical Nurse Specialist for Haemoglobinopathies Paediatric and Adolescent Catherine Mkandawire The Joint Red Cell Unit Department of Haematology University College London Hospital 3rd Floor West 250 Euston Road London NW1 2PG Tel: 0203 447 7084 sec: 0203 447 9456 Mobile staff only: 07950 972059 Patient advice line: 020 3447 7359 Email: [email protected] Clinical Nurse Specialist in Haemoglobinopathies (Adults): Bernadette Hylton The Joint Red Cell Unit Department of Haematology University College London Hospital 3rd Floor West 250 Euston Road London NW1 2PG Tel: 020 3447 7969 sec: 0203 447 9456 Mobile staff only: 07943 826529

Patient advice line 0203 447 7359 Email: [email protected] Staff Nurse : Nina Gorman Email: [email protected] Antenatal Screening Co-ordinator: Hilary Hewitt Fetal Medicine Unit Elizabeth Garrett Anderson Wing University College London Hospital 235 Euston Road

London NW1 2BU Tel: 0845 155 5000 x76152 Email: [email protected] CITY & HACKNEY Homerton University Hospital NHS Foundation Trust

The Sickle Cell & Thalassaemia Centre

457 Queensbridge Road Hackney London E8 3AS Tel: (Switch Board) 020 7683 4570 Fax: 020 7853 6709 Lead Nurse & Service Manager Natasha Lewis Mobile: 07970 829335 Email: [email protected] Haemoglobinopathy Specialist Nurse: Paediatrics Keisha Osmond-Joseph Tel: 020 7683 4572 Mobile: 07813 115957 Email: [email protected] Haemaglobinopathy Specialist Nurses: Adults (On Rotation) Funmilayo Orebayo Terri- Lee Hughes Haematology Department Homerton University Hospital NHS Foundation Trust Homerton Row, London E9 6SR Tel: 020 8510 5555 Bleep No: 362 (Acute) Tel: 020 7853 4573 (Community) Mobile: 07951 242 641 / 07813 115956 Email: [email protected] Email: [email protected] Centre Administrator : Dianne Miller Email: [email protected] Tel: Switchboard - Clerical Officer: Adenike Surakatu (Thus & Fri only) Tel: 0207 683 4571 Email: [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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Welfare Benefits Advisor: Pamela Jones Tel: 0207 683 4576 Email: [email protected] Community Development Officer: Cynthia Dickson Tel: 020 7683 4578 Email: [email protected] Clinical Psychologist: Email: @homerton.nhs.uk Specialist Midwife in Haemoglobinopathies: Nadine Hay Care of Antenatal Clinic Homerton University Hospital NHS Foundation Trust Homerton Road London E9 6FR Tel: 020 8510 7258 Fax:020 8510 7682 Email: [email protected] CROYDON Sickle Cell & Thalassaemia Centre 316-320 Whitehorse Road Croydon, CR0 2LE Tel: 020 8251 7229 Reception/Fax: 020 8251 7248 Clinical Nurse Specialist: Carol Edwards (Antenatal & Neonatal) E-mail: [email protected] Tel: 020 8251 7246 Clinical Specialist Nurse: Linda Sawyerr (Paeds) E-mail: [email protected] Tel: 020 8251 7247 Clincal Nurse Specialist Vacant (Adults) Email: EALING Sickle Cell & Thalassaemia Service Ealing Hospital Uxbridge Road Southall Middlesex UB1 3HW Specialist Nurse Haemoglobinoapthies, 0-18Years: Vesna Graham Tel: 020 8967 5643 Mobile: 07932 480078 Email: [email protected]

GREENWICH & BEXLEY Antenatal being covered by SE London Centre No other service provision

CENTRAL LONDON COMMUNITY HEALTHCARE NHS Trust (CLCH) (HAMMERSMITH, FULHAM, KENSINGTON, CHELSEA & WESTMINSTER) Sickle & Thalassaemia Service The Medical Centre 7E Woodfield Road London W9 3XZ Tel: 0207 266 8840 Fax: 0300 008 3241 Haemoglobinopathy Specialist Nurse: Judith St Hilaire (antenatal/community adults) (Tues, Weds, Thurs) Email: [email protected] [email protected] Tel: 07879604598 Emma Gedeon (antenatal/community paeds) Email:[email protected] [email protected] Tel: 07879603644 HAMMERSMITH HOSPITAL Gary Weston Centre Haematology Department Hammersmith Hospital Du Cane Road London W12 0HS Clinical Nurse Specialist (Adults): Lydia Alexander Tel: 020 3313 8372 Bleep: 9513 Email: [email protected] Specialist Social Worker (NW Sector): Tel: 020 3313 4655 / 07901 103058 Email: HARINGEY George Marsh Sickle & Thalassaemia Centre St Ann’s Hospital (part of North Middlesex University Hospital NHS Trust) St Ann’s Road Tottenham London N15 3TH Tel: 0208 702 6630 Email: [email protected] Centre Manager/ Nurse Specialist Nasser Roheemun Haemoglobinopathies Specialist Nurses: Cristiano Mbonazo-Ndandu Bandula Jayaweera Doris Ademako- Afriyie Email: [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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Haemoglobinopathy Clinical Nurse Specialist/Lead Nurse Liz Odeh Haematology Department | Pathology Building Tel: 020 8887 3108 Mobile: 07776991888 Email: [email protected] Paediatric Community Sickle & Thalassaemia Nurse Linda Keir Tel 020 8887 4301 Haemoglobinopathy Adult Specialist Nurse/Transfusion Specialist Nurse Francis Mate-Kole Tel 020 8887 2696 Email: [email protected] Greta Zhekova Sickle Cell Day Unit Nurse Tel 020 8873495 North Middlesex University Hospital NHS Trust Sterling Way Edmonton London N18 1QX

HOUNSLOW & RICHMOND Sickle Cell and Thalassaemia Service Heart of Hounslow Centre for Health 3rd Floor 92 Bath Road Hounslow TW3 3LN Tel: 0203 7716092 / Fax: 020 8630 3380 Community Nurse Specialist: Sonia Ambo Email: [email protected] Secure: [email protected] KINGS COLLEGE HOSPITAL 4th Floor, East Hambleden Wing Denmark Hill London SE5 9RS Roald Dahl Transition & Senior Clinical Nurse Specialist for Haemoglobinopathies Giselle Padmore-Payne Email: [email protected] Tel: 0203 299 1424 or 0203 299 4968 Pager via switch 2577 Work mobile: 07890252387 Senior Clinical Nurse Specialist Paediatric Haemoglobinopathies Sandra O'Driscoll Tel: 020 3299 3773 Email: sandra.o’[email protected] Pager Internal 737* KH-1960 External 07659-106022

Clinical Nurse Specialist Paediatric Haemoglobinopathies Sabah Bhatti Tel: 0203 299 1916 Pager: KH8246 Email: [email protected] Clinical Nurse Specialist Marlene Allman Tel: 0203 299 4968 Email: [email protected] Clinical Nurse Specialist – Adults (Apheresis) Fester Ike Tel: 0203 299 1400 Email: [email protected] Joan Walters - Senior Nurse Practitioner Lecturer (Children & Young People) Florence Nightingale School of Nursing & Midwifery King’s College, London James Clerk Maxwell Building 57 Waterloo Bridge Road London SE1 8WA Tel: 020 7848 3510 / Fax: 020 7848 3555 Pager: 07659 143610 Email: [email protected] / [email protected]

COMMUNITY HEALTH NEWHAM- EAST LONDON HEALTH FOUNDATION TRUST The Sickle & Thalassaemia Centre 19 –21 High Street South East Ham London E6 6EN Tel (Reception): 020 8821 0800 Office Mobile: 07908194497 Answer phone: 020 8821 0800 Email: [email protected] Email; For Patient requests- [email protected] Service Manager/Specialist Nurse: Sekayi Tangayi- Mobile-07984202190 PA to Sekayi Tangayi and Operational Manager – Joseph Habgood- 0208 821-0804 Mobile - 07584330654 Team Lead /Specialist Nurses – Adults – Chengetai Muzah-Office – 0208 821 0814 Mobile - 07958330665 Community Nurse Adults- Carey* Johnson- Office 0208 821 0809 Mobile- 07946 782406 Community Specialist Health Visitor- Vacant –

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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Paediatric Community Nurse Debbie Omodele – Office 0208 821 0803 Mobile- 07984278837 Paediatric Community / Hospital Nurse– Vacant Data Admin, Children – Numan Hussain - 0208 821 0806 Clerical Administrator ANC & Adults- Jakir Kamali - 0208 821 0811 Clerical Administrators – Neonatal & Newborn Rachel Akinsanya 0208 821 0800 Family Support Worker: Christine Black

SOUTH EAST LONDON Sickle Cell & Thalassaemia Centre Wooden Spoon House 5 Dugard Way Off Renfrew Road Kennington London SE11 4TH Tel: 020 3049 5993 Fax: 020 3049 6069/6085 Service Manager/Clinical Lead: Nkechi Anyanwu

Tel: 020 3049 5999/ Mob: 07717 701464 Email: [email protected]. Case Managers/Specialist Nurses: Olufunmilola Aoko--ext 5993 Yvonne Owusu-Sekeyere ext 5983 Patience Ologe--ext 6123 Kemi Johnson – ext 6137 Tolu Adeosun – ext 6184 Olukemi Ajamufua – ext 6042 Abby Jonah – ext 5373 Specialist Nurse - Genetic Counselling: Esther Ifinnwa – ext 5993 Email: [email protected] Email: [email protected] Welfare Support Advisor: Daniel Nyakutsey Email: [email protected] Tel: 02030496088 / Mob 07766161797 WANDSWORTH PCT Balham Sickle Cell & Thalassaemia Service Community Services Division Balham Health Centre 120-124 Bedford Hill Balham, London SW12 9HS Tel: 020 8812 6236 Fax: 020 8812 6204 Email: [email protected] Confidential: [email protected]. Haemoglobinopathy Counsellor/Team Lead Theresa Oyiadjo Haemoglobinopathy Nurse Counsellor Caroline Anele

Specialist Nurse Counsellor (Adults): Leteshia Abrahams Adolescents/Paeds: Beverley Telesford Email: [email protected] ST GEORGE’S HEALTHCARE NHS TRUST St George's Hospital Dept Of Clinical Haematology Ground Floor, Jenner Wing Blackshaw Road London SW17 0QT Tel: 0208 725-3025 directline/voicemail 0208 672 1255 bleep 7520 Clinical Nurse Specialist Haemoglobinopathies Carol Rose Mob: 07500 835735 Direct Fax: 020 8725 0636 Monday - Friday 9-5pm Email: [email protected] ST MARYS HOSPITAL (PAEDIATRICS ONLY) Paediatric Department Praed Street London W2 1NY Paediatric Haemoglobinopathies Clinical Nurse Specialist: Rachael Brown Tel: 020 3312 3346 (Office) Mob: 07795 651153 Email: [email protected] ST THOMAS’ HOSPITAL Department of Haematology 4th Floor Southwark Wing Guy’s Hospital Great Maze Road London SE1 9RT Tel: 020 7188 2710 Fax: 020 7960 5865 Clinical Psychologist: Heather Rawle Email:[email protected] Tel 02071882725 Bleep 0781 Heath Psychologist Mina Abedian Tel 02071882718 Mobile 07825282083 Paediatric Sickle Cell Clinical Nurse Specialist: Abidemi Olateju Evelina Children’s Hospital Sky 6th Floor, St. Thomas’ Hospital Westminster Bridge Road, London SE1 7EH Tel: 020 7188 4486/ bleep 2733 Mob:0777 501 4637 Email: [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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Paediatric Deputy Sickle Cell CNS Natalee Murray Evelina Children’s Hospital 3rd Floor Beckets House Westminster Bridge Road, London SE1 7EH Tel: 020 7188 9432/ bleep 2733 Mob:0777 1345847 CNS-Haemoglobinopathies – Adolescent Transition Luhanga Musumadi Tel: 020 7188 2710 Bleep 2256/2868 Mob. 07770678851 Email: [email protected] Advanced Nurse Practitioner –Adult Haemoglobinopathies/Nurse Manager

Neill Westerdale Tel: 020 7188 2710 Bleep 2256/2868 Mobile 07770683947 Email: [email protected] CNS Adult Haemoglobinopathies Email: Mobile 07920711266 Bleep 2868/2256 Tel 02071881424 Senior Paediatric Sickle Cell Research & Specialist Nurse

Sharon Ndoro Evelina London Children’s Hospital 2nd Floor Beckets House Westminster Bridge Road, London SE1 7EH Tel: 020 7188 6637 (Office) 07918338730 (Mobile) Email:[email protected]

SUTTON & MERTON PCT- No Service TOWER HAMLETS See Barts Health NHS Trust

WALTHAM FOREST Sickle & Thalassaemia Service 2nd floor Wood Street Health Centre 3 Linford Road Walthamstow London E17 3LA Tel: 020 8430 7639 / Fax: 020 8430 7641 Team Lead/Service Manager

Email: [email protected] Community Nurse Specialist - Adults: Marcia Hird

Email: [email protected]

Haemoglobinopathy Specialist Nurse – Paediatrics Email: [email protected] Service secretary/administrator: Sandra Springett /Jackie Caris Email: [email protected] [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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AIREDALE (WEST YORKSHIRE) Haemoglobinopathy Services Airedale General Hospital Antenatal Clinic Skipton Road Steeton Keighley BD20 6DT Tel: 01535 652511 ext. 2413 Fax: 01535 338738 Reception: 01535 606111 Haemoglobinopathy Counsellor: Janet Hall Email: [email protected]

BIRMINGHAM COMMUNITY Birmingham Sickle Cell & Thalassaemia Service Nineveh House 171 Nineveh Road Handsworth Birmingham B21 0SY Tel: 0121 466 3667 Fax: 0121 241 6736 Email: [email protected] Service email: [email protected] Service Co-ordinator: Lurieteen Miller Tel: 0121 466 3667 07702141366 Specialist Nurse - Haemoglobinopathy: Susan (Suzi) Raybould Haemoglobinopathy Nurses Barbara Bailey Judith Woodburn

ACUTE Sandwell & West Birmingham NHS Trust (Acute & Counselling) Sickle Cell & Thalassaemia Centre City Hospital Dudley Road Winson Green Birmingham B18 7QH Tel: 0121 507 6040 / Fax: 0121 507 6050 Haemoglobinopathy Unit Manager & Lead Nurse: Elizabeth Green Email: [email protected] (Mon, Tues, Thurs,Fri)

BRADFORD Sickle Cell & Thalassaemia Department Manningham Clinic Lumb Lane Bradford BD8 7SY Tel: 01274 730836 Haemoglobinopathy Counsellor: Sobia Khan Email: [email protected] Haemoglobinopathy Genetic Counsellor: Pauline Garnett Email: [email protected] Acute : Bradford Teaching Hospital NHS Foundation Trust Pathology offices Duckworth lane Bradford BD9 6RJ Direct line 01274 3825211 Haematology Ward 7 - 01274 364366 Ward 7 day unit - 01274 364516/364777 Haematology CNS: Susan smith Email: [email protected] Roald Dahl Paediatric / Haematology Nurse Specialist Paediatrics: Linda Brooks

Email: [email protected]

Ward 2 paediatrics - day unit Tel: 01274 364353/362149 M: 07971451680 BRISTOL University Hospitals Bristol Bristol Haemoglobinopathy Service Bristol Haematology and Oncology Centre Level 8 Horfield Road Bristol BS2 8ED Tel/Fax: 0117 342 2774 Mobile: 07825 948038 Haemoglobinopathy Clinical Nurse Specialist: Nicole Paterson Email: [email protected] Jess Nickels Email: [email protected]

CENTRES OUTSIDE LONDON

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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CARDIFF Sickle & Thalassaemia Centre Butetown Health Centre Plas Iona, Butetown Cardiff CF10 5HW Tel: 029 20471055 / 029 2183 3283 Fax: 029 2183 3285 Clinical Nurse Specialist: Annette Blackmore Mobile: 07976875729 Email: [email protected] Genetic Counsellor – Mon & Fri Benjamin Player Genetic Counsellor – Tues & Weds Caroline Kirwan Personal Assistant: Sarla Patel [email protected] Email: [email protected]

COVENTRY Haematology Dept. Ward 34 3rd Floor. University Hospital of Coventry and Warwickshire Clifford Bridge Road, Coventry, West Midlands CV2 2DX Tel: 0247 696 4000 ask to bleep:- Clinical Nurse Specialist (Lead ): Beryl DouglasGreen Email: [email protected] Clinical Nurse Specialist: Melvis Nkamani (Adult) Email: [email protected] Administrator: Emma Mead ( Admin. Officer) 0247 696 5549. Children's Outpatients Department West Wing Haemoglobinopathy Sister: Amy Leach Email: [email protected] Tel: 024 7696 4000 Bleep 4566 DERBY (SOUTH) Specialist Outpatient Department, Level 1, Royal Derby Hospital. Uttoxeter Road, Derby, DE22 3NE. Clinical Nurse Specialist: Email: Thrombosis, Haemostasis and Haemoglobinopathy Nurse Specialist Robert Batkin Email: [email protected]. Specialist Outpatients Department Royal Derby Hospital Tel: 01332 (7)88942 07469405987

DUDLEY Black Country Partnership NHS Foundation Trust Children, Young People & Families Division Brierley Hill Health & Social Centre – 3rd Floor Venture Way Brierley Hill Dudley DY5 1RU Tel: 01384 321242 Fax: 01384 321230 Mobile: 07766 541721 Haemoglobinopathy Specialist Lead/Counsellor Maritess Navarro Email: [email protected] [email protected] (Tues,Weds,Thurs) EAST BERKSHIRE – Awaiting nurse provision (Slough, Windsor, Ascot, Maidenhead) Wexham Park Hospital Haematology Dept (Contact Oxford)

EAST LANCASHIRE AND CUMBRIA AREA (managed by Paediatrician- Dr Vanessa Holme) (Covers Blackburn/Burnley Area)

Royal Blackburn Hospital Haslingden Road Blackburn BB2 3HH Tel: 01254 263555 Fax: 01254 293512

ESSEX Essex Sickle Cell and Thalassaemia Service Mayflower Community Hospital Blunts Wall Road Billericay Essex CM12 9SA Tel: 0300 300 1521 Option 4 Fax: 0300 300 1621 Mobile: 07956 619577 Advanced Specialist Practitioner: Lara Odelusi Email: [email protected] Advanced Specialist Practitioner for Sickle Cell & Thalassemia : Vacant Email: Secretarial support: [email protected] / [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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GLOUCESTER Sickle & Thalassaemia Service Gloucestershire Hospitals NHS Foundation Trust Edward Jenner Clinical Unit, Greater Western Road Gloucester GL1 3NN Tel: 0300 422 5224 Fax: 0300 422 5273 Specialist Nurse/Counsellor: Joan Mitchell Email: [email protected] HERTFORDSHIRE Apsley One, Postpoint 13, Brindley Way, Apsley Hemel Hempstead, Hertfordshire HP3 9BF Children’s Sickle Cell Nurse Specialist Phil Daly Tel: 01442 454671 Mobile:07887 995059 Email: [email protected] Clinical Psychologist Hayley Thompson Tel: 01442454671 Email: [email protected] Working hours: Monday HUDDERSFIELD Covered by Bradford centre HULL City Health Care Partnership CIC Children & Young People Service Orchard Health Centre 310 Orchard Park Rd Hull HU6 9BX Tel: 01462 617828

Mobile: 07964 688450

Shirley Simpson

Clinical Lead for SystmOne (IT) / Co-ordinator for Haemoglobinopathy/Newborn Bloodspot Screening Email: [email protected]

LEEDS Sickle & Thalassaemia Centre The Reginald Centre 2nd Floor 263 Chapeltown Road Leeds LS7 3EX Tel: 0113 843 4349 Fax: 0113843 4445 Haemoglobinopathy Counsellors: Zeb-un-Nisa Tel: 0113 843 4350 Email: [email protected] Staff Nurse: Sue Jammeh Tel: 0113 843 4348

Email: [email protected] Acute : St James’s University Hospital Haematology Offices Level 3, Bexley Wing Beckett Street Leeds. LS9 7TF Direct line 0113 206 8236 Ext: 68236 CNS- Red Cell: Susan Mckeown-Wade Email: [email protected] LEICESTERSHIRE Sickle Cell & Thalassaemia Service Ground Floor Osborne Building Leicester Royal Infirmary Leicester LE1 5WW Tel: 0116 258 6081 Lead Nurse Counsellor/ Service Manager: Daksha Elliott Email: [email protected] Specialist Nurse for Screening: Gemma Miles Email: [email protected] Specialist Nurse for Paediatrics: Sarah (Libby) Tadd Email: [email protected] Sickle Cell & Thalassaemia Support Officer: Daxa Parmar Email: [email protected] Community Haemoglobinopathy Support Assistant: Email:

LIVERPOOL – Acute Adults only Acute - Adults Royal Liverpool & Broadgreen University Hospital Prescott Street Liverpool L7 8XP Blood Transfusion Practitioner & Haemoglobinopathy Nurse Specialist Andy Houghton Tel: 0151 706 2000 ext 4702 Bleep 4931 Mobile: 07919 013432 Email: [email protected] Haemoglobinopathy Nurse Specialist Francesca Murphy Tel : 0151 706 3391 Email: [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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LUTON (STANMAP Secretary) Sickle Cell & Thalassaemia Service Cambridgeshire Community Services-Luton The Poynt 2-4 Poynters Road Luton. LU4 0LA Tel: 0333 4050070 Community Nurse Specialist: Maureen Scarlett Generic Email: CCS-Tr.Luton-Haemoglobinopathy.nhs.net

Email: [email protected]

MANCHESTER Sickle & Thalassaemia Centre 352 Oxford Road At Junction of Denmark Road Manchester M13 9NL Tel: 0161 274 3322 / Fax: 0161 273 7490 Centre Manager: Verna Davis Email: [email protected] Haemoglobinopathy Specialist Midwife: Waheeda Abbas Paediatric Specialist Nurse: Sarah McDonald Haemoglobinopathy Counsellor: Marcia Oliver, Marilyn Burton, Angela Jones Psychologist Paediatrics Dr Sonia Patel Clinical Psychologist: Sain Trenchard Email: [email protected] MILTON KEYNES Sickle & Thalassaemia Service Milton Keynes Community Health Services Children with Complex Needs Team Hospital Campus Standing Way Milton Keynes MK6 5NG Tel: 01908 724511 option: 5 Tel: 07771 340192 Specialist Nurse Haemoglobinopathies: Nicolette Petrou Email: [email protected] [email protected] (Adults – Contact Oxford) MIDDLESBROUGH Ward 33 The James Cook University Hospital Marton Road Middlesbrough Cleveland TS4 3BW Tel: 01642 854908 CNS Haematology – Haemoglobinopathies and red cell Lindy Defoe Email: [email protected]

NEWCASTLE Fetal Medicine Unit 4th floor Leases Wing

Royal Victoria Infirmary

Queen Victoria Road Newcastle upon Tyne. NE1 4LP

Tel: 0191 2829477

Specialist Midwife (Haemoglobinopathies) Brigid Keane (Tues,Weds,Thurs) Email: [email protected] NORTHAMPTONSHIRE Northampton General Hospital Child health Specialist Nursing Team. Billing Rd Northampton NN15BD Paed Specialist Nurse: Claire Stockley Email: [email protected] Tel: 07950884126 Northampton General Hospital Haematology Day Unit (Nurses area) Northampton NN1 5BD Tel: 01604 545031 Haemoglobinopathy CNS(Adult) Asha Mathew Email: [email protected] NOTTINGHAM Nottingham Sickle Cell and Thalassaemia Service The Mary Potter Centre in Hyson Green Gregory Boulevard Hyson Green Nottingham NG7 5HY Tel: 0115 8838424 Fax: 0115 8838425 Lead Specialist Nurse & Manager: Joanne Bloomfield Email: [email protected] Specialist Nurses: Alecia Johnston Email: [email protected] Email: [email protected] Specialist Nurse (Acute – Adults) Doreen Richards: Nottingham University Hospital Tel: 01159691169 Ext 53446 Mobile: 07812 270004 Monday Wednesday and Thursday Email:[email protected] Email: [email protected] Specialist Nurse (Acute- Paediatrics) Hazel Marriott Nottingham University Hospital Monday and Thursday Tel: 01159249924 Ext 63733 Mobile: 07812 268407 Email: [email protected]

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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OXFORD Haematology Secretariat, Level 2 Administration Cancer and Haematology Centre Churchill Hospital, Old Road, Oxford OX3 7LE, Advanced Nurse Practitioner: Sickle Cell Disease & Thalassaemia Sandy Hayes Mon, Tues, Wed, Fri. 9 – 5 pm Tel: 01865 227826(Sec) Tel: 01865 227907(Direct) Email: [email protected] (outreach clinics to the following NHST Trusts: Milton Keynes, Royal Berkshire and Wexham Park(Windsor)

PRESTON - Covered by Manchester Centre READING (WEST BERKSHIRE) Sickle & Thalassaemia Service Haematology Department Royal Berkshire Hospital London Road Reading Berks RG1 5AN Tel: 0118 322 7292 Fax: 0118 322 7755 Specialist Counsellor: Email: Contact Oxford Screening Midwife: Jo Young Email: [email protected] Screening Co-ordinator Tara Byle Antenatal Clinic Royal Berkshire Hospital NHS Trust Level 2 Maternity Unit Tel and Fax 0118 322 8507 Email: [email protected] Generic screening: [email protected] SCOTLAND Paediatric and Adult Haemoglobinopathy Managed Clinical network

Lead Clinician Dr Beverley Robertson, Consultant Haematologist, Aberdeen Royal Infirmary

Network Co-ordinator Laura Craig, NHS National Services Scotland, 6th Floor, Meridian Court, 5 Cadogan Street, Glasgow G2 6QE

Telephone Number - 0141 300 1424 Email [email protected]

(WEST of SCOTLAND) Margaretha van Mourik Consultant Genetic Counsellor Community and Clinical Genetics West of Scotland Clinical Genetic Service Level 2A Laboratory Medicine Queen Elisabeth University Campus 1345 Govan Road,Glasgow G51 4TF Tel: Secretary 0141 354 9229 Tel: Main departmental line 0141 354 9201 Email: [email protected] Or [email protected] SHEFFIELD Haemoglobinopathy Service Sheffield Children's Hospital Room E61, Orange Wing Western Bank Sheffield S10 2TH Haemoglobinopathy Specialist Nurse Sheila Daley Tel: 0114 271 7707 Fax: 0114 226 0640 Mobile: 07976601889 [email protected] [email protected] Haemoglobinopathy Nurse Specialist/Transfusion Practitioner Lisa Kirk P128 P Floor Royal Hallamshire Hospital Glossop Road Sheffield S10 2SF Tel: 0114 2261333/ 2711604/ 2715246 Mobile: 07825209411 E-mail: [email protected] SOUTHAMPTON – No Service (managed by Paediatrician & Haematologist)

Southampton General Hospital Dr Vandy Bharadwat - Paeds Dr Mary Morgan – Paeds Dr Shrini Narayanan - Adults Tel: 023 80777 222 – Main

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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WALSALL Community Haemoglobinopathy service 1st Floor (District Nurses Office) Bentley Health Centre Churchill Road Walsall WS2 0AW Tel: 01922 423506/07 Sickle Cell & Thalassaemia Community Counsellor: Pam Lakhpuri Email: [email protected] and [email protected] Mobile: 07506 201249 Admin Co-ordinator: Mrs Jas Kainth. Email: [email protected] and [email protected] Mobile: 07920 581513 Acute Sickle Cell & Thalassaemia Service Pathology Department Manor Hospital Moat Road Walsall, West Midlands WS2 9PS Tel: 01922 721172 x 7389 Fax: 01922 656809 Nurse Specialist (Acute): Valerie Davis Email: see Wolverhampton Mobile: 07506 201239

WOLVERHAMPTON Sickle Cell & Thalassaemia Support Project 2nd Floor Office St John’s House St John’s Square Wolverhampton WV2 4BH Tel: 01902 444 076/77 Fax: 01902 445 322

Email: [email protected] Project Co-ordinator: Sutinder Herian Information Officer: Ravinder Raj (Also covers Dudley) Haemoglobinopathy Community Officer: Pam Lakhpuri (Also covering Walsall Community) Specialist Nurse: Valerie Davis (Also covering Walsall Acute) Administrative Assistant: Jerome McIntosh Staff Email: [email protected] Website: www.sctsp.org.uk Community Development Officer: Alexis Reid-Hamilton (Dudley & Wolverhampton)

SOUTHERN IRELAND Rosena Geoghegan Registered Advanced Nurse Practitioner in Haemoglobinopathy (Childrens) Our Lady's Children's Hospital, Crumlin, Dublin 12, Ireland Office:00 353 1 4096953 Bleep: 00 353 1 4096100 Bleep 110 Email: [email protected] JOAN WALTERS Senior Nurse Practitioner Lecturer (Children & Young People) Florence Nightingale School of Nursing & Midwifery King’s College, London James Clerk Maxwell Building 57 Waterloo Bridge Road London SE1 8WA Tel: 020 7848 3510 / Fax: 020 7848 3555 Pager: 07659 143610 Email: [email protected] / [email protected] INDEPENDENT PRACTITIONER (with NHS SCREENING PROGRAMME) Cynthia Gill Independent Haemoglobinopathy Specialist Nurse Weatherill House New South Quarter 23 Whitestone Way Croydon CR0 4WF Tel: 020 3747 4747 Fax: 020 8686 6125 E-mail: [email protected]

CO-ORDINATORS/LECTURERS

SPECIALIST COURSES

Sickle Cell & Thalassaemia Association of Nurse, Midwives & Allied Professionals

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SICKLE CELL SOCIETY 54 Station Road Harlesden London NW10 4UA Tel: 020 8961 7795 Fax: 020 8961 8346 Email: [email protected] Website: www.sicklecellsociety.org CEO: John James Email: [email protected] Mobile: 07984011546 Helpline and Information Officer: Shahnaz Qizilbash Email: [email protected] Tel: 020 8963 7794 NHS Engagement Lead: Iyamide Thomas, Email: [email protected] Mobile: 07841 558 611 UK THALASSEAMIA SOCIETY 19 The Broadway Southgate London N14 6PH Tel: 020 8882 0011 Fax: 8882 8618 Email: [email protected] Website: http://www.ukts.org Chair: Gabriel Theophanus Executive Director: Romaine Maharaj

OSCAR BIRMINGHAM OSCAR Birmingham Ltd

22 Regent Place

Jewellery Quarter Birmingham B1 3NJ

Tel: 0121 212 9209 CEO Madge Milligan-Green

E-mail: [email protected]

OSCAR BRISTOL Sickle Cell & Thalassaemia Centre 256 Stapleton Road Easton Bristol BS5 0NP Tel: 0117 951 2200 Fax: 0117 951 9570 Email: [email protected] Website: www.bristoloscar.org

Secretary : Marjorie Richie Centre manager: Cathy Connelly OSCAR SANDWELL (Organisation for Sickle Cell Anaemia Research and Thalassaemia Support) 120 Lodge Road West Bromwich West Midlands B70 8PL Tel: 0121 525 0556 Centre Manager: Rachel McFee Email: [email protected] www.oscarsandwell.org.uk OSCAR TRUST LIMITED 5 Lauderdale house Gosling Way Brixton London SW9 6JN Tel: 020 7735 4166 Fax: 020 7820 9594 Co-ordinator: Peggy Brown SICKLE CELL ANAEMIA RELIEF FOUNDATION (SCARF) 163a Carr Rd Northolt Middx UB5 4RJ Tel: 020 8248 8316 Director: Melville Jones SICKLE CELL ANAEMIA RESEARCH (SCAR) PO Box 88 Barking, Essex 1T11 8PH Tel: 020 8514 3934 Co-ordinator: Paul Walsh SICKLE CELL WOMEN’S WELFARE ASSOCIATION (AYOKA) Sickle Cell Project St Margaret’s House 15a Old Ford Road London E2 9PL Tel: 020 8981 9603 Co-ordinator: Theresa Shinyanbola SICKLE CELL/THALASSAEMIA SUPPORT GROUP OF BARKING, DAGENHAM AND HAVERING Ripple Centre, 121-125 Ripple Road Barking, IG11 7FN Project Co-ordinator: Cecilia Shoetan Tel No: 0208 532 7330

NATIONAL VOLUNTARY

ORGANISATIONS

LOCAL VOLUNTARY GROUPS

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Mobile:07737 295 126 www.sicklecellbhr.org.uk/

Anyone who wishes to become a member of the Sickle & Thalassaemia Association of Nurses Midwives & Allied Professionals (STANMAP) or would like further information should contact: Maureen Scarlett, Secretary on 0333 405 0070 (See Luton) or Lola Oni, Chair (see Brent)

STANMAP mailing address: C/o Sickle Cell & Thalassaemia Centre Wooden Spoon House 5 Dugard Way Off Renfrew Road Kennington London SE11 4TH