Now we’ve started to talk about what's important to us, we can begin planning for the future… Derbyshire Gold Record about my future care Southern Derbyshire Clinical Commissioning Group I can help if I know what she wants I need to talk about what's important to me
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Derbyshire Gold Record about my future care · Motor Neurone Disease Association 02074049982 Parkinson's Disease Society 0808 800 0303 Multiple Sclerosis Society 0800 0323839 Alzheimer's
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Now we’ve started to talk about what's important to us, we can begin planning for the future…
Derbyshire Gold Record
about my future care
Southern Derbyshire Clinical Commissioning Group
I can help if I know what she wants
I need to talk about what's important to me
About this Book
This booklet aims to help you achieve your wishes for your
future care.
It gives you a chance to think about, talk about and write down
what is important to you, so that you can describe the type of
care you would like at the end of your life.
We plan for all other major life events – marriage, the birth of
children, birthdays, anniversaries and retirement – so why not
plan for the end of our lives?
The booklet can also help your carers (your family, friends and
professionals) to understand what is important to you when
planning your care. This means that if you become unwell and
cannot make decisions about your care, others will be able to
make decisions on your behalf, based on your wishes.
The Gold Standards Framework
The Gold Standards Framework (GSF) has been adopted by
many GP practices and district nursing teams to provide the
highest standard of care possible for all patients who may be
in the last year of life, irrespective of age or diagnosis.
Your doctor or nurse has talked with you about your poor
health and will want professionals involved in your care, to
recognise you as a Gold Patient.
British Heart Foundation 01865 391836
www.bhf.org.uk
British Lung Foundation 0300 0030500
www.lunguk.org
Motor Neurone Disease Association 02074049982
www.mndassociation.org
Parkinson's Disease Society 0808 800 0303
www.parkinsons.org.uk
Multiple Sclerosis Society 0800 0323839
www.mssociety.org.uk
Alzheimer's Society 01636 642804
www.alzheimers.org.uk
The Stroke Association 020 7566 0300
www.stroke.org.uk
Age UK 0800 1696565
www.ageuk.org.uk
Contacts
Derby City District Nursing Service 01332 258200
Treetops Hospice 0115 9491264
Marie Curie 0845 0567 899
Adult Social Services 01332 717777
Local office St Mary's Gate, Derby
Cancer Information Centre 01332 787433
Royal Derby Hospital
Derby Carers Association 01332 200002
Macmillan Benefits Local Advice Line 01246 828852
Open 10 - 12.30pm, Mon, Wed, Thurs
Macmillan Cancer Support 0808 808 0000
www.macmillan.org.uk
If you do not have access to the internet, please remember
that most local libraries have computers available for public
use.
My Personal Information
Name…………………………………………………………….. Address ………………………………………………………... …………………………………………………………………... Tel: ……………………………………………………………… Date of Birth ………………………………………………….. My chosen Key Contact …………………………………….. Relationship ………………………………………………….. Address ………………………………………………………. …………………………………………………………………. Tel …………………………………………………………….. Other family or carer contact ……………………………... Relationship ………………………………………………... Address ……………………………………………………… ……………………………………………………………….. Tel …………………………………………………………...
ROLE NAME CONTACT DETAILS
Key Worker
GP
Hospital Consultant
District Nurse
Community Matron
Macmillan or Specialist Nurse
Social Worker
Important Contacts
You may want to write down the contact details of people
involved in your care. You may not be known to all of these
professionals and there is space to add others.
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Further information
You can use this page to write down any further
information you need or questions you might want to ask
your professional carers (e.g. your doctor, nurse or social
worker).
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ROLE NAME CONTACT DETAILS
Continuing Care Manager
RightCare Out of Hours GP
Occupational Therapist
Speech Therapist
Advance Care Planning Discussions If you are someone who likes to plan ahead you might want
to talk with your doctor and nurse about your care options
and your wishes. The aim of an Advance Care Planning
(ACP) discussion is to develop a better understanding of you
and to record your priorities, needs and wishes.
There are three ways you can formalise an ACP discussion:
1. An Advance Statement is a written record that lets
people know about your views and wishes. Although not
legally binding, an advance statement is the easiest way to
record your wishes.
2. An Advanced Decision to Refuse Treatment (ADRT) is
a simple way to refuse certain treatments. This used to be
called a “living will”.
3. A Lasting Power of Attorney (LPA) is a person you trust
who you choose to act on your behalf with your finances or
make decisions about your health care if you are unable to.
There are more details about advance care plans, including
an example of an advance statement and ARDT, in the
following pages.
Please be assured, the DNACPR form only applies to
cardiopulmonary arrest, it does not apply to other
treatments, particularly treatments to keep you comfortable.
If you have not indicated your wishes, your healthcare team
will decide whether CPR is an appropriate treatment having
considered your current state of health and medical
problems. If your nurse or doctor thinks CPR is unlikely to
be successful they will discuss with you why CPR would be
an inappropriate treatment.
The Dying Matters Coalition is working to encourage
people to talk about their wishes towards the end of their
lives, including where they want to die and their funeral