CYPHSC workshop_AA

Amanda AllardPrincipal OfficerCouncil for Disabled Children

Children’s Voice and the NHSOxymoron or opportunity?

Visit CDC’s website for all the latest news from our networks and members

www.councilfordisabledchildren.org.uk

Why does voice matter?

Young people

Clinicians

Parents/ carers

Why does voice matter?

Who’s the expert?

Sorry what did you say?

What happens if you don’t listen?

What happens if you don’t listen?

What happens if you don’t listen?

hundreds of patients died at the hospital because of an obsession with meeting targets and a 'box-ticking culture'.

Strategic Focus on Children

In response to Report of Children and Young People’s Outcomes Forum:• Defining and agreeing national leadership and

accountability for children’s health in Children and Young People's Health Outcomes Board led by the Chief Medical Officer

• New Children’s Partnership• New Children and Young People's Health

Outcomes  Forum co-chaired by Christine Lenehan, CDC

• Pledge to provide better care for children and young people with long term condition and disability and increase life expectancy of those with life limiting conditions

• New Outcome indicators for children and young

people

DHMinisters

Children and Young People’s Health Outcomes Forum

Children and Young People’s Health Outcomes Board

Children’s Health and Wellbeing Partnership

LGA

HEEChair, Chief Executive

NHS EnglandChair, Chief Executive

SOLACE

PHEChair, Chief Executive

Organisations accountable for policy, commissioning and delivery

Independent bodies providing expertise, challenge, advice, recommendations

Partnership for policy, commissioning and delivery

ADCS

Themed Groups Sub Groups / Task & Finish Groups

Mediation & advice – with personal leadership of CMO

Constructive challenge, advice, recommendations

Response / decision

Request for advice

Two way communication

Update to

Recommendation from Children’s Partnership to organisation leadership. Decision by each

member organisation’s governance

CYP Outcome Board

CYP Outcome Forum

Children’s Health and Wellbeing Partnership

Health Transition Task Group

Aligned Themed and Sub / Task & Finish Groups to avoid duplication

National organisations which are members of Children’s Partnership

NHS Contribution to Public Health Governance

System steward & secretariat role

secretariat

HWEChair, Chief Executive

DfEMinisters

Health Transition Task Group

NHS Contribution to Public Heath Senior Oversight Group

secretariat

secretariat

ADPH

NHS Clinical CommissionersChair, Chief Executive

The new health system

National Health Leadership Bodies• Department of Health: Stewardship and

guardianship. Secretary of State retains ultimate responsibility for NHS

• NHS England: National commissioning body and system manager

• Public Health England: provide information and intelligence to support local public health services and lead on national public health campaigns

• Clinical Networks: bring together experts on particular conditions and service areas

Local Health Bodies

• Clinical Commissioning Groups: Led by GP Practices with secondary specialists. Will commissioning local NHS services and will set out their strategy for local health services in annual commissioning plans

• Local Authority Directors of Public Health: lead on local authorities’ new public health commissioning functions.

• Health and Wellbeing Boards: bring local partners together in each local authority will to plan health, social care and public health services

• Clinical Senates: Hosted by NHS England, give expert advice to the NHS Commissioning Board and CCGs in each area of the country

Drivers for delivery

Specialised Service SpecificationsNHS England Senate Clinical Reference Groups

to NHS England Commissioners Specifies outcomes for specific service

Quality Premium and CQUINS

NHS CB to CCGs and providers Additional quality specifications for additional payment

Quality and Outcomes Framework

NHS Commissioning Board to CCGs and providers

Standard framework for rewarding contractors in the NHS for the provision of quality care

Commissioning Outcome Indicator Set

NHS Commissioning Board to Clinical Commissioning Groups

Measures quality and outcomes to be achieved by Clinical Commissioning Groups

NHS and Public Health Outcomes Frameworks

Department of Health to NHS Commissioning Board General outcomes to measure impact of NHS

The Mandate

Department of Health to NHS Commissioning Board Broad Objectives and Priorities

Regulation and Oversight

• Monitor: becomes economic regulator for all NHS services. Will promote economy, efficiency and effectiveness in the provision of services

• CQC: responsible for overseeing compliance with quality requirements and powers to intervene to protect patient safety

• Ofsted: responsible for regulation of children’s social care

• Parliamentary and Health Services Ombudsman: Investigates individual complaints about poor NHS service

• Health Watch England: subcommittee of Care Quality Commission. Will support Local Health Watch and advise national health bodies. Can request CQC investigate poorly performing services.

• Local Health Watch: Commissioned by LA, will replace LINKs and some elements of Patient Advice and Liaison Services. Will promote patient involvement in local health system, and provide info and advice about local services and choice

• NHS independent complaints advocacy: commissioned by local authorities, accessible through Health Watch

Voice and Involvement

Local HealthwatchProvide information and advice to the public about accessing health and social care services and choice in relation to aspects of those services;

• make the views and experiences of people known to Healthwatch England helping it to carry out its role as national champion;

• make recommendations to Healthwatch England to advise the Care Quality Commission to carry out special reviews or investigations into areas of concern (or, if the circumstances justify it, go direct to the CQC with their recommendations, for example if urgent action were required by the CQC);

• promote and support the involvement of people in the monitoring, commissioning and provision of local care services;

• obtain the views of people about their needs for and experience of local care services and make those views known to those involved in the commissioning, provision and scrutiny of care services; and

• make reports and make recommendations about how those services could or should be improved.

1

2 3

NCB Healthwatch Resource

Making complaints in the new system

Stage 4

Judicial Review

If the complaints process is unsuccessful then you could undertake Judical Review to challenge the legality of the NHS actions. This is a big undertaking and you need legal advice.

Stage 3

Complain to the PSHO

They will review the way your complaint was handled using the information you provide, and can instruct the NHS to apologise or change its policies.

Stage 2Complain to the

commissioner of the serviceThis will be a CCG or NHS England. They will have their complaints information on

their website

Stage 1

Complain to the provider: they will have complaints manager or complaints policy

They must acknowledge keep you informed of the process of your complaint

What is CDC doing?

• Providing clinician’s with tools to better help them provide a service– Spotting the Sick Child– Managing My Way Clinic Poster – Emergency Healthcare Plans – RCPCH Neurodisability Portal

• Empowerment:– Expert Parent Programme– Constitution Project– Developing methodology for involving severely

communication impaired young people in research

So?

• Grounds for considerable optimism• But starting from a low base• Lots of work to do• But a significant number of levers to pull on in getting that work prioritised• So we maybe at a tipping point

View our resource bank, events calendar and table of resources to support the implementation of the SEND Reforms

www.councilfordisabledchildren.org.uk