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Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067-8231 Telephone: (248) 231-4480 E-Mail: [email protected] Web Site: www.multiplesofamerica.org Contact: Kim Ozark [email protected] www.multiplesofamerica.org Please review the Spring Mailing information at your next club meeting April 2015 Dear National Members, The past few years our organization embarked on a new era with a new trade-name Multiples of America, new logo and redesigned Notebook. And now we are almost done with our rebranding as we get ready to launch our new website. The new website will be modern, easy to navigate, eye-appealing and interactive. The new website should be ready for launch later this month. We have refreshed our brand while maintaining our Mission. We invite you to visit our new website and see all exciting and new things that Multiples of America has to offer. Multiple Birth Awareness Month is Here! Please join us in a celebration of multiples during the sixth annual Multiple Birth Awareness Month (MBA). Visit our website for more information at www.multiplesofamerica.org/mba; and, be sure to submit news on your local club MBA activities to: [email protected]. Need ideas? See what others have already planned and posted! Please share information in this mailing with your club officers and members. Page four and five of this document outlines attachments and important links to pass on to your members. Many of the links below will require that you have the Members Only login information. User Login: Mbr2Mbr Password: Grwth4Clb Helpful hint for ease of viewing Members Only multiple links: When signing on – select the “remember me” option the first time you login to Members Only. That way you will not have to repeat this step for each link you view from your computer or smart phone. We will post this mailing in the Members Only section of our website in the Members Only section for future reference. Titled: Spring Mailing 2015 The 2015 National Building Bridges Convention in Cincinnati, OH is a Unity Convention hosted by clubs all over the country. We are pleased to announce that the Convention Brochure is now available to be viewed on our website. You can review the brochure online or you can print it for convenience. And you can register online or by postal mail. Click the link on page five to access all the Convention information. If you need any assistance, contact the [email protected]. SPRING MAILING 2015 KO 1
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Page 1: Contact - Multiples of America · 2015-06-04 · Contact: Kim Ozark President ... (Enrichment. Development, Growth, Endowment) Fund has an exciting new campaign. ... Please review

Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067-8231

Telephone: (248) 231-4480 E-Mail: [email protected] Web Site: www.multiplesofamerica.org

Contact:

Kim Ozark [email protected]

www.multiplesofamerica.org

Please review the Spring Mailing information at your next club meeting

April 2015

Dear National Members,

The past few years our organization embarked on a new era with a new trade-name Multiples of America, new logo and redesigned Notebook. And now we are almost done with our rebranding as we get ready to launch our new website. The new website will be modern, easy to navigate, eye-appealing and interactive. The new website should be ready for launch later this month. We have refreshed our brand while maintaining our Mission. We invite you to visit our new website and see all exciting and new things that Multiples of America has to offer.

Multiple Birth Awareness Month is Here! Please join us in a celebration of multiples during the sixth annual Multiple Birth Awareness Month (MBA). Visit our website for more information at www.multiplesofamerica.org/mba; and, be sure to submit news on your local club MBA activities to: [email protected]. Need ideas? See what others have already planned and posted!

Please share information in this mailing with your club officers and members. Page four and five of this document outlines attachments and important links to pass on to your members. Many of the links below will require that you have the Members Only login information.

User Login: Mbr2Mbr Password: Grwth4Clb

Helpful hint for ease of viewing Members Only multiple links: When signing on – select the “remember me” option the first time you login to Members Only. That way you will not have to repeat this step for each link you view from your computer or smart phone.

We will post this mailing in the Members Only section of our website in the Members Only section for future reference. Titled: Spring Mailing 2015

The 2015 National Building Bridges Convention in Cincinnati, OH is a Unity Convention hosted by clubs all over the country. We are pleased to announce that the Convention Brochure is now available to be viewed on our website. You can review the brochure online or you can print it for convenience. And you can register online or by postal mail. Click the link on page five to access all the Convention information. If you need any assistance, contact the [email protected].

SPRING MAILING 2015 KO 1

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Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067-8231

Telephone: (248) 231-4480 E-Mail: [email protected] Web Site: www.multiplesofamerica.org

Contact:

Kim Ozark [email protected]

www.multiplesofamerica.org

Multiples of America Spring Mailing 2014 Page 2

Please watch your mailboxes for the Spring 2015 issue of Multiples of America’s Notebook with the theme of “Education of Multiples”. The Education Department is currently finishing up the Summer issue (to be received in July) with the theme of “Technology” The E-Magazine archived issues of Multiples of America's Notebook are available online in Members Only under Education Department.

It is not too late! There is still time to celebrate your club’s Member of the Year honoree with Multiples of America. Each club is asked to select a local club member who you feel best exemplifies the title of Member of the Year for your club based on criteria determined by your club. See the link on page five of this document.

On page five, you will find the Multiple Birth Data Base (MBDB) information survey link. Since 2007, we have used this survey to collect data and have found it very beneficial for researchers and others. In an effort to continually be up-to-date with this database, we need your help in spreading the word to your members. If a member has never provided information, or provided information before 2007, please encourage them to participate using this survey. Those parents who have completed the survey since 2007 are already in our database and no action is needed. This survey is to be filled out by a parent of multiples. The information is kept confidential and in a computerized data base maintained by Multiples of America. Information gathered gives us statistical information and may be used by approved researchers and/or casting directors. However, no personal information is ever given.

Also included in this mailing is College Survey links. Click on College Selection Survey Part I and College Funding Survey Part II to fill out the surveys. Please provide this survey link for MDDB and the College Surveys Part I & II at your club meetings, place the link in your newsletter and encourage participation. We appreciate your efforts in getting these important surveys out to your members. If you have any questions, please feel free to contact us at [email protected].

Multiples of America’s Product and Promotions Department has worked hard this year to provide new products for our members including items with new trade name and logo. Be sure to visit our Online Store and check out these items.

The Endowment Committee for EDGE (Enrichment. Development, Growth, Endowment) Fund has an exciting new campaign. Please see the Small Steps Make A Difference flyer and donation page attached. And please consider having your club and/or members make a donation to this worthwhile fund!

Group Exemption information is also attached to this mailing. The Group Exemption filing deadline is December 1st, please complete yearly statements after July 31, 2015 to ensure timely submission in November. Totals for

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Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067-8231

Telephone: (248) 231-4480 E-Mail: [email protected] Web Site: www.multiplesofamerica.org

Contact:

Kim Ozark [email protected]

www.multiplesofamerica.org

Multiples of America Spring Mailing 2015 Page 3

August 1 through July 31 each year are required. And Multiples of America’s Group Exemption is only Federal tax exemption and not for State tax exemption. Each club has to file for state tax exemption themselves.

For Your Information:

All clubs who receive Group Exemption status as a subordinate of Multiples of America/NOMOTC can obtain donations that are exempt from Federal taxes only using our IRS Determination letter. Please Note: Our IRS determination letter is dated July, 2006. This is the current letter from the IRS for Multiples of America/NOMOTC. The IRS doesn’t issue updated Determination Letters each year . Most corporations and companies are aware of this. We wanted to inform you as well. To request a copy of the Determination letter if you are part of our Group Exemption, contact [email protected] .

Watch for the following to be coming your way in May:

The Credentials Mailing, Convention/Election Mailing and the Dues Renewal Mailing will be sent to both your club contacts (President and National Representative) as submitted to Multiples of America with your annual dues.

Credentials, Convention/Election and Dues Renewal mailings in May are divided into three emailings and they include:

Credential Card for Convention 2015 (Deadline to return is June 10th) 2015-2016 Slate of Officers Flyer Proposed Bylaw changes for Convention 2015 Proposed 2015-2016 Budget and financial information Member Club Dues Renewal form and club member listings and procedures Club VIP information

Online Dues Renewal will again include the ability to pay using Paypal. Full details will be included in the Election/Dues Renewal Mailing in mid-May.

Watch your inboxes for the monthly email announcements from Multiples of America Executive Office that Multiple Messages is posted in Members Only. It is posted the first week of each month. Please open, review, and pass this monthly newsletter along to all members of your club. Email announcements are sent to both club contacts (President and National Representative) as submitted to Multiples of America with your annual dues.

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Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067-8231

Telephone: (248) 231-4480 E-Mail: [email protected] Web Site: www.multiplesofamerica.org

Contact:

Kim Ozark [email protected]

www.multiplesofamerica.org

Multiples of America Spring Mailing 2015 Page 4

We are always looking for talented members who are willing to share their skills and time with Multiples of America. Please review our job descriptions (link provided on the next page) and submit a Volunteer/National Worker form so that you can become a part of this wonderful volunteer team!

Multiples of America is here to support you. If your club ever has a question or issue relating to Multiples of America, please contact us immediately so that our Board of Directors respond to it right away.

Your 2014-2015 Multiples of America team wishes each of you a great spring!

Sincerely,

Kim Ozark, President

Multiples of America Also known as NOMOTC [email protected] www.multiplesofamerica.org

Spring Mailing Content and Reference Links

The attached enclosures and link checklist will assist you in organizing the materials included in this mailing

and will help you with determining who to share the information with. We are counting on you to let your

local club board and members know of the services and support provided by Multiples of America.

Attachments to share with your club members and file:

o 2015 Building Bridges Convention Flyer- attached

o Member of the Year Flyer - attached

o Research Information Flyer - attached

o EDGE Donation Flyer – EDGE Committee - attached

o EDGE Small Steps make a Difference Flyer – EDGE Committee- attached

o Job Descriptions Appointed/National Worker – attached

o Group Exemption Information – attached

o Multiples of America Code of Ethics - attached

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Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067-8231

Telephone: (248) 231-4480 E-Mail: [email protected] Web Site: www.multiplesofamerica.org

Contact:

Kim Ozark [email protected]

www.multiplesofamerica.org

Multiples of America Spring Mailing 2015 Page 5

Links to view and share with your club members:

o Multiple Birth Awareness Club Events

Find out what other clubs are doing during MBA month and post your club info here

o 2015 Building Bridges Cincinnati Convention Brochure and Registration

The Online Brochure is now available to be viewed or downloaded including the online or mail-in

Registration

o National Worker Directory 2015 - 2016

National Worker Directory has been posted for your reference

o State Organization Directory - 2015-2016

A State Directory has been posted for your reference

o Volunteer Form - National Worker via Survey Monkey

Become an Multiples of America Volunteer – Deadline for submissions - June 1st

o Member of the Year Form

Let us recognize your Member of the Year. Under Documents section

o College Surveys Part I & II

Give us your opinion on how you went about college selection and financing for you multiple birth children

College Selection Survey Part I

College Funding Survey Part II

o MBDB Link (Multiple Birth Data Base)

MBDB Link to online survey

o Benefits of Membership

A comprehensive eight page document with a listing of benefits of membership in Multiples of America

To review all Research Surveys and Studies:

o All – Multiples of America/NOMOTC's Organizational Surveys

o All - Outside Research Studies

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MEMBER OF THE YEAR

Continuing the tradition of Member of the Year into our 55th year Multiples of America

AKA National Organization of Mothers of Twins Clubs, Inc. will recognize one Member of the Year

from each participating local club.

This year, you will again have the opportunity to select a person who you feel best exemplifies the title

of Member of the Year for your club. Each club is asked to select a local club member based on

criteria determined by your club while keeping the following in mind:

This person should be someone who performs above and beyond expectations.

This person has made a difference this year in your club. Maybe you would like to honor a

long-time member for their dedication and service or a newer member who is always stepping

up.

The decision on who is selected Member of the Year is entirely up to the local club.

Multiples of America’s only guideline is the member chosen must be a current member of your

club and of Multiples of America, Inc.

These extraordinary people will be honored by Multiples of America, Inc. in two ways.

We will publish their names in Multiples of America’s Notebook, and in Multiple Messages on

our website.

We will celebrate all the Members of the Year at our 55th Annual Convention in

Cincinnati, Ohio including recognizing them at the General Business Session.

We encourage all your club members to attend Multiples of America’s 55th convention in Cincinnati,

Ohio to help congratulate your club’s Member of the Year.

After your club selects your Member of the Year, please complete the following form with the

Honoree’s name and requested information. We have also included a section to record why your club

chose this parent of multiples as your Member of the Year. Deadline for submitting your form is June

1, 2015.

Multiples of America is excited to continue the celebration by recognizing your Member of the Year

this coming year. We are especially excited to continue to celebrate YOU, our members!

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MEMBER OF THE YEAR

NAME: _____________________________________________________________________

E-MAIL: ____________________________________________________________________

CLUB NAME & STATE:

____________________________________________________________________________

CLUB E-MAIL: ______________________________________________________________

NUMBER OF YEARS AS A MEMBER OF YOUR CLUB: ___________________________

WILL YOUR MEMBER OF THE YEAR BE ATTENDING THE 2015 NATIONAL

CONVENTION IN CINCINNATI, OHIO? YES_____ NO _____ NOT SURE_______

WHY DID YOUR CLUB CHOOSE THIS PERSON AS MEMBER OF THE YEAR?

_____________________________________________________________________________

_____________________________________________________________________________

_____________________________________________________________________________

_____________________________________________________________________________

_____________________________________________________________________________

_____________________________________________________________________________

_____________________________________________________________________________

_____________________________________________________________________________

Please return via email to Kym Brophy, Multiples of America Membership VP at

[email protected] before June 1, 2015. Thank you!

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MULTIPLES OF AMERICA’S

RESEARCH DEPARTMENT

LISTING OF DEPARTMENTAL SURVEYS

SPRING 2015

OPEN SURVEYS

Do you have high school students in the process of college selection?

Please take a few moments to fill out College Selection for Families Part 1

Have you completed the college selection process and are now ready for

financing it?

Please take time to complete Financing College Education for Families with

Multiple Part 2

Do you have adult multiples that might be ready to share the family dynamic as they see it? Please encourage them to complete the Adult Multiples Interaction Survey

Don’t forget to complete the Multiple Birth Data Base questionnaire.

To fill out our current open surveys, just click on MultiplesofAmerica Research Page to locate the survey.

FUTURE RESEARCH SURVEYS

Watch for the Research Committee’s new surveys in the coming months!

RESEARCH REPORTS

Be sure to check out the newest Research Report on our website

#117- TAMBA

Maternity Services Survey

A Multi-International Survey

Outside Research Studies

SPRING SUMMARY – 2015

Jan Schmelz, Outside Research Coordinator

Two of the main purposes of Multiples of America aka the National

Organization of Mothers of Twins Club, Inc. (NOMOTC) are research and

education. The twelve members of the Research Department have worked

diligently this past year to further these goals.

The Research Department of Multiples of America cooperates with outside researchers such as physicians,

psychologists, other professionals and, occasionally, parents of multiples to connect them with participants

(multiples, siblings of multiples and parents of multiples) for their studies. Studies using multiples as subjects help

to shed light on many child development and medical issues. Twins and higher-order multiples aid researchers in

helping to distinguish between heredity and environment as causes of certain issues or medical conditions.

Our cooperative efforts also help us serve our second purpose, that of educating parents, researchers, multiples and

others having responsibility for, and interest in, multiples. We make this research data available to our membership

through publication in Multiples of America’s Notebook, online in Multiple Messages, Fall/Spring Mailings that go

to National Representatives and local club presidents, and on our website http//www.multiplesofamerica.org. In

addition, detailed Research Reports are prepared for all completed studies and distributed to our members

To participate in any of the “active research studies,” contact the researcher directly at the address listed. With

your cooperation and willingness to participate in these studies, you are furthering knowledge in the fields of

medicine and child development and helping to increase knowledge about multiple birth children.

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ACTIVE OUTSIDE RESEARCH STUDIES

*************************************************************

RESEARCH STUDY – YANG

TWIN BRAIN AND BEHAVIOR RESEARCH PROJECT

PURPOSE OF STUDY: To help figure out how genetics and environment contribute to your twins' brain

development and behavior (i.e.: why they behave alike or different). This study involves completing surveys,

providing saliva samples, and taking pictures of the brain through non-invasive MRI scans (no radiation, no

injections). The total time your family (twins and one parent) will spend with us is about half a day. Compensations

include $25 per hour per child, $35 per hour for one parent/legal guardian, usually about $380 in cash per family,

and copy of your twins' brain scans.

Please contact: Alina Arakelian (Research Assistant)

E-mail: [email protected]

RESEARCH STUDY – BERNARDO

ADDRESSING THE ISSUE OF MULTIPLES IN RANDOMIZED CONTROLLED TRIALS: A

PERSPECTIVE FROM MULTIPLES AND PARENTS

PURPOSE OF STUDY: To learn what parents of multiples and adult multiples think about multiple children being

enrolled in clinical research trials. The opinion of parents and multiples is important to this study. You can take

these surveys whether you have or have not had children in clinical trials or been in one yourself, just as long as you

are a parent of multiples or a multiple. These answers will greatly impact future trial design and uncover the option

most desirable by multiples and parents of multiples

Parents of multiples’ survey:

https://redcap.uhhospitals.org/redcap/surveys/?s=mrKbH8VMYZ

Multiples’ survey:

https://redcap.uhhospitals.org/redcap/surveys/?s=vtfFaSxjvH

RESEARCH STUDY – DAMATO & DOWLING

CARING FOR TWINS

PURPOSE OF STUDY: Examine the knowledge and intentions of pregnant mothers of twins concerning sleep

practices and feeding and to determine preferred methods of receiving education that meets the needs of mothers of

twins.

HOW TO PARTICIPATE: A questionnaire is available online and takes about 10 minutes to complete. To

participate, please click on the following link: https://www.surveymonkey.com/s/CaringForTwins

RESEARCH STUDY – MILLER

PATHOGENIC STUDIES IN FAMILIES WITH TWINS OR SIBLINGS DISCORDANT FOR SYSTEMIC

RHEUMATIC DISORDER

PURPOSE OF STUDY: To understand the genetic and environmental factors that may result in systemic rheumatic

diseases. For more information on this study, please contact the NIH patient recruitment office at: Phone: 1-(800)

411-1222, refer to Study# 03-E-0099; TTY: 1- (866) 411-1010

RESEARCH STUDY – ROSENFIELD

MULTIMODAL AND MIRROR NEURONAL FUNCTION IN VERBAL AND MUSICAL COGNITION

PURPOSE OF STUDY; Dr. Rosenfield is interested in learning more about the relationship between the brain and

the motor aspects of speech production by studying twins who stutter. The title of his ongoing study is Multimodal

and Mirror Neuronal Function in Verbal and Musical Cognition

CONTACT: If you are interested in learning more about this project, please contact: David B. Rosenfield. Email:

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RESEARCH STUDIES – SEGAL

ADULT TWINS WHO ARE PARENTS

Dr. Segal is doing a study on Adult Twins who are Parents. She is looking for ADULT twins who HAVE children,

in order to look at the relationships of twin aunts/uncles to their nieces/nephews. Families in which twin parents are identical, fraternal same-sex and fraternal opposite-sex are all of interest. This study is ongoing in the Psychology

Department at California State University, Fullerton. To access the survey, which takes 15-20 minutes to complete,

please go to http://psych.fullerton.edu/nsegal/twinparent. For further information, please contact Dr. Segal at new

Website: drnancysegaltwins.org Phone: (657) 278-2142; Fax: (657) 278-4843

CHINESE TWINS SEPARATED AT BIRTH AND CHINESE TWINS ADOPTED TOGETHER

This is a study conducted by Dr. Nancy Segal. She is looking for Chinese twins separated at birth and their separate

sets of parents, as well as Chinese twins adopted together. Dr. Segal plans to access the behavioral similarity of

separated twins. A study of these separated Chinese twin children would be the only such prospective study in the

world. Chinese twins adopted together are also very much needed for comparison. Phone: (657) 278-2142; Fax:

(657) 278-4843; new Website: drnancysegaltwins.org

LOSS OF A TWIN STUDY

Have you lost a twin? The loss of a twin is an experience that deserves considerable professional attention.

Families who have lost a young twin (age 4-14) are invited to participate in a study of how twin loss affects the

surviving twin partner and other family members. Results from this study can teach us a great deal about how

counselors and other psychological professionals may assist twins and their families in dealing with such loss. The

public also needs to be informed about the unique aspects of this special form of loss. A Twin Loss Survey will be

sent to you. A stamped, addressed envelope will be provided for returning the survey and one copy of a signed

Consent Form. It is estimated that 30 minutes will be required for completing this form, but this can vary across

individuals and families. Results will be provided as group data upon completion of the project. Please contact Dr.

Nancy L. Segal, CSU Fullerton, Psychology Department, Fullerton., CA 92834; Phone: (657)278-2142; Fax:

(657)278-4843; new Website: drnancysegaltwins.org; Email: [email protected]

STUDY OF TWINS WITH SPECIAL NEEDS

Dr. Nancy Segal’s Study of Twins with Special Needs will help to better identify the unmet needs of families who

have twins with special needs and to inform the public about the unique aspect of twinship. If you are a parent or

caretaker of twins who one or both have a special need, then you can become a participant in Dr. Segal’s study. A

questionnaire is all you need to participate in this study. You can contact Dr. Nancy Segal at California State

University Fullerton; Psychology, H830-M; 800 N. State College Blvd.; Fullerton, CA 92834. Phone: (657) 278-

2142; Fax: (657) 278-4843; Website: drnancysegaltwins.org or new email [email protected]

VIRTUAL TWINS (SAME-AGE UNRELATED CHILDREN): HOW SIMILAR ARE THEY?

Dr. Nancy Segal’s study on Virtual Twins will help to see how similar these children are despite their lack of

common genes. In this study, virtual twins are same age unrelated children raised together, who have been together

in the home by age one year. The age difference is no more than nine months and they are in the same school grade.

Both children can be adopted, or one can be adopted and the other child biological. These children are not twins,

but do share some twin-like characteristics. Contact Dr. Segal at [email protected] .

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RESEARCH STUDY – SILBERG

TWIN REGISTRY TO STUDY MULTIPLE DISEASES

INVESTIGATOR: Judy Silberg, Ph.D., is the Director of the Mid-Atlantic Twin Registry. The Registry has been

completing research since 1970, and most of the studies are ongoing.

.

PARTICIPANTS: For these studies, all ages of twins and higher-order multiples may consider participating in

health-related research. Identical and fraternal twins of all ethnic backgrounds, and even twins whose co-twin is

deceased, are encouraged to participate.

METHOD: The studies typically involve filling out a simple questionnaire or completing an interview conducted

over the telephone or in your home.

TOPICS INCLUDED IN THE PAST: epilepsy, cardiovascular disease, diabetes, cancer, obesity, inflammatory

bowel disease, attention-deficit hyperactivity disorder, clinical depression, anxiety, pregnancy complications,

periodontal disease, alcohol, nicotine and other drug abuse, stress and coping, religiosity and spirituality, social

support and parenting styles

CONTACT: Emily Lilley, Administrator; Mid-Atlantic Twin Registry

(MATR); Office of Research; Virginia Commonwealth University, Richmond, VA 23298-0003; Work#: 1-(804)-

828-813; Fax: 1-(804)-828-2051; E-mail: [email protected] or call 1-(800)-872-8946; Website:

http://www.matr.vcu.edu.

RESEARCH STUDY – FAITH

DO OBESITY-RELATED METABOTYPES RELATE TO TWIN DIFFERENCES IN DIET, APPETITE

AND BODY COMPOSITION?

A new study by the UNC Department of Nutrition is examining the influence of nature and nurture on appetite,

eating patterns, and body fat in early childhood. The study is now actively recruiting participants. The study is

looking for English-speaking families with identical twins who are 4- to 8-years old and do not have a diagnosed

illness, severe behavioral issue, or claustrophobia. Participating families will be visited at their homes by UNC’s

Metabolic Mobile Unit (MMU), a special van equipped for this biomedical research. Participating twins will have

their body fat measured using a painless, booth type machine called a BOD POD. Parents will fill out questionnaires regarding family home life and eating habits. Both twins will also provide urine and blood samples, as part of the

visit. Participating families will receive a $50 gift card, as well as a report with their twins’ height, weight and body

composition results.

If you are interested in participating or just want more information, please contact Dr. Myles Faith at 919-966-7230

or [email protected] These outside researchers have approached Multiples of America in hopes of recruiting

participants for their studies. Each has a contract and has been approved by Multiples of America. If you or your

multiples have the proper qualifications and wish to participate, please contact these researchers directly for further

details concerning their studies. Contacting a researcher does not obligate you to participate. Please keep in mind that two of the main purposes of Multiples of America are research and education. Your participation in these

studies is encouraged, and all communication is confidential between you and the researchers. For a complete list of

current researchers and information, visit our website at www.multiplesofamerica.org.

Current contact information for each research study is listed above. Please use the information provided by the

researcher to contact them directly. Multiples of America does not have any additional contact information.

Researchers studies may have a specific ending date (listed) or may have open ended dates (not listed). Multiples of

America thanks you in advance for taking the time to read about these research studies and choosing to participate

Have questions??

Please contact the

[email protected]

[email protected]

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Contact:

Carol Molyneux [email protected]

www.multiplesofamerica.org

Every Journey Begins with Small Steps

Dear Member Clubs and State Organizations:

As we look forward to new beginnings in 2015, we invite you to become part of the growth of your organizations Endowment Fund. Please share the Small Steps flyer and donation form with your members.

There are a number of ways to donate and we welcome, and greatly appreciate, donations of any size.

Join us by Stepping Up and being part of the growth and future of this very special organization as it continues to provide support in many ways to you and the multiple birth community.

Thank you for your involvement,

Carol Molyneux edgechm@multiplesofamerica,org

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All donations to the EDGE Fund are tax deductible. Multiples of America aka NOMOTC is a 501(c)(3 )organization.

Donate with debit or credit card !or download a donor form !

for donation by check or money order!by visiting www.multiplesofamerica.org!

EDGE also welcomes alternative ways of giving, including:life insurance beneficiary designations, bequests in a will,

traded securities, and retirement plan assets.Contact the Multiples of America Executive Office by email, [email protected] or by phone (248-231-4480) or the EDGE Chairman, [email protected]

for more information about planned giving donations to EDGE.!

Every journey begins with…

SMALL STEPS The journey of a thousand miles must begin with the first step.!

~Chinese proverb!!! ! ! ! ! Small Steps!! ! ! ! ! Every journey begins with a step. !! ! ! ! ! Some steps are small, like your multiples’ first steps. !! ! ! ! ! Some are giant leaps, like helping your twins pack up !! ! ! ! ! ! and head off to college. !! ! ! ! ! Whatever its size, every step is important !! ! ! ! ! ! ! in moving forward to new life, new possibilities.!!Small Steps Make a Difference!Over the last few years, EDGE has been taking SMALL STEPS in working to build !a lasting endowment fund focused on advancing the charitable purposes of Multiples of America (also known as the National Organization of Mothers of Twins Clubs). !!Through donations, sometimes a dollar or two at a time, we’ve been building a fund. !Once a reserve is accumulated, the endowment will serve as a sustainable funding source !that can provide member clubs with some monies to help grow their services and programs. !!

Please “Step Up” and help build this connection to tomorrow by donating today! !Every donation, !

whatever its size, !takes us a step forward in our dream !

to continue the work of reaching out to parents of multiples !for years to come.!! !

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Every journey begins with…

SMALL STEPS The journey of a thousand miles must begin with the first step.!

~Chinese proverb!!Every Step Makes a Difference!

Thank you for “Stepping Up” to help build our connection to tomorrow !by sending in a check or money order today! !

Every donation, whatever its size, !takes us a step forward in our dream to continue the work!of reaching out to parents of multiples for years to come.!

Donor Name _____________________________________________________________________!

Contact Name (if donor is a club or organization) _____________________________________________!

Address _________________________________________________________________________!

City ____________________________________________State___________ Zip _____________!

Email ______________________________________ Phone_______________________________!!Yes, I want to ensure the mission of Multiples of America (also known as the National Organization of Mothers of Twins Clubs, Inc.) through the EDGE fund with my gift of (check one):!!____ $ 50.00 Bronze Level! ! ! ! ____ $ 500.00 Platinum Level! ! ! !____ $ 100.00 Silver Level! ! ! ! ____ $ 1,000.00 Diamond Level!____ $ 250.00 Gold Level! ! ! ____ $ 2,000.00 Step Up the Growth Level! ! ____ Other ! $_____________!!OPTIONAL: My gift is a tribute: ! ____ In Memory of: OR !____ In Honor of: ! ! !! ! ! (Name) ____________________________________________________________!!I would like the EDGE Committee to send acknowledgment of this donation to: !(Note name and email or mailing address) _______________________________________________________!! ! ! ! ! ______________________________________________________!!ACKNOWLEDGMENT: ____ I wish my donation to remain anonymous. !!! !!

All donations to the EDGE Fund are tax deductible. Multiples of America aka NOMOTC is a 501(c)(3) organization.

All donations will be acknowledged publicly unless the box is checked indicating a desire to remain anonymous.

The amount of the donation will not be shared unless requested.!Please make checks payable to EDGE Fund, and mail to:!

EDGE Fund!2000 Mallory Lane, Suite 130-600, Franklin, TN 37067!

Donate with debit or credit card by visiting www.multiplesofamerica.org!When donating by debit or credit card, please complete this donor form!

and forward to Multiples of America to assist in our recordkeeping.!Questions? Contact the MOA Executive Office, [email protected]!

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ELECTED JOB DESCRIPTIONS

Elected Executive Committee

JOB TITLE: Treasurer

OFFICER IN CHARGE: President

REQUIRED TIME: 10-15 hours per week approximately

STATEMENT OF THE JOB

General supervision of all NOMOTC funds. Reports to the Board of Directors and the membership on financial operations of the Organization. Prepares the National budget for presentation to the Board of Directors at the

Midterm meeting and for approval by delegates at convention. E-mail capabilities required.

REQUIREMENTS/CRITERIA

Financial and analytical skills essential. Must possess qualified working knowledge of double-entry bookkeeping system and be capable of analyzing and verifying financial reports that are consistent with generally accepted standards

of the accounting profession. Must have computer experience and should be familiar with accounting and spreadsheet

software.

JOB TITLE: Secretary

OFFICER IN CHARGE: President

REQUIRED TIME: 5-10 hours per week approximately; 35 hours for

Midterm Minutes, 15 hours for Pre/Post Convention

Minutes

STATEMENT OF THE JOB Maintains a record of the proceedings of all meetings; prepare the NOMOTC National Worker Directory; conducts correspondence as directed; maintain service listing. Excellent grammar, spelling skills and computer proficiency

required. E-mail capabilities required.

JOB TITLE: Research Vice President

OFFICER IN CHARGE: President

REQUIRED TIME: 10-12 hours per week approximately

STATEMENT OF THE JOB

Officer in charge of the Research Department. Responsible for expanding and coordinating all research. Immediate supervisor of the Research Chairman, Research Librarian, Research Interpreter, Research Tabulator, and Outside

Researcher Coordinator. E-mail capabilities required.

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JOB TITLE: Membership Vice President

OFFICER IN CHARGE: President

REQUIRED TIME: 15- 20 hours per week approximately

STATEMENT OF THE JOB

Officer in charge of the Membership Department. Responsible for maintenance and development of policies and procedures within the department. Immediate supervisor of the Membership Chairman, Bereavement Support

Coordinator, Higher Order Multiples Coordinator, Single Parent Support Coordinator, Special Needs Coordinator,

National Representative Liaison, and National/State Liaison. E-mail capabilities required.

JOB TITLE: Education Vice President

OFFICER IN CHARGE: President

REQUIRED TIME: 15 - 20 hours per week approximately

STATEMENT OF THE JOB Officer in charge of the Education Department which oversees all printed and published materials of the organization including the quarterly magazine, NOMOTC’s Notebook. Immediate supervisor of the Education

Chairman and Advertising Promotions Designer. E-mail capabilities required.

JOB TITLE: Executive Vice President

OFFICER IN CHARGE: President

REQUIRED TIME: 20 – 25 hours per week approximately

STATEMENT OF THE JOB

Officer in charge of the Publicity Chairman, Marketing Coordinator, Publicity Coordinator, Webmaster, and the

Online Communication Assistants. Oversees all public relations and media events including coordination of all Multiple Birth Awareness initiatives. Assume the duties of the President in absence or inability of the President to

serve. E-mail capabilities required.

JOB TITLE: President

CLASSIFICATION: Executive Committee – Board of Directors

REQUIRED TIME: 25-30 hours per week approximately

STATEMENT OF THE JOB

Official representative, presiding officer, and general supervisor of the organization. Reports to the Board of Directors and the membership on all operations of the Organization. Officer in charge of the Board of Directors and Executive Secretary. Ex-officio member of all departments/committees, except Nominating Committee. Requires

leadership and ability to work well with people. This position is to be filled by a member of the Executive

Committee who served in the year preceding the election. Must be bondable. E-mail capabilities required.

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Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067

4-15 ko www.multiplesofamerica.org [email protected]

JOB DESCRIPTIONS for Appointed Positions

Listed below are condensed job descriptions for the various positions included on the National Worker Volunteer

Form. Eligibility requirements are listed for applicable positions. E-mail capability is required for ALL positions.

BOARD OF DIRECTORS, APPOINTED POSITIONS: ATTENDANCE IS REQUIRED AT ALL BOARD MEETINGS AND AT THE ANNUAL CONVENTION.

ADVISOR: Oversees the Nominating and Endowment Chairs and Committees. Maintains confidential files,

National Worker Volunteer Forms, and evaluations for election and appointment purposes. Officer in Charge of

installation preparations at the annual banquet. The position of Advisor is usually the immediate Past President, but

can be any Past President of the elected Officers’ choice.

PARLIAMENTARIAN: Serves as consultant/advisor/interpreter on all parliamentary matters during all Executive

Committee, Board of Directors, and general business meetings and on site supervision of convention registration and

credentials. Must be a member of American Institute of Parliamentarians or National Association of

Parliamentarians, or have a minimum of three years service as a Parliamentarian to a like organization. Must have

attended at least two MULTIPLES OF AMERICA conventions and have expert knowledge of MULTIPLES OF

AMERICA Bylaws, Standing Rules and Procedures.

EDUCATION CHAIRMAN: Immediate supervisor of all MULTIPLES OF AMERICA’s Notebook staff

members. Has an active role in the workings of MULTIPLES OF AMERICA’s Notebook. Writing skills and computer proficiency required.

MEMBERSHIP CHAIRMAN: Immediate supervisor of the Membership Department committee members,

Statistician, and Affiliate Member Coordinator. Maintains an updated file on all member clubs, membership

statistics, and club credentials. Communicates with delinquent and other nonmember clubs to encourage

membership.

PUBLICITY CHAIRMAN: Immediate supervisor of the Publicity Department Committee Workers. Acts as a

liaison with the host server to answer or solve technical questions. Worker must possess own computer, have an

Internet connection, and applicable software to produce web pages. Qualifications for the position include excellent

command of language, grammar and spelling; extensive Internet knowledge and protocols. Layout experience in art/background is helpful.

RESEARCH CHAIRMAN: Immediate supervisor of the Research Committee. Assists the Research Committee

with development and writing of organizational research studies. Assists Research Vice President in expanding and

coordinating research within the organization.

MEETING PLANNER: Supervises Convention Committees, Site Planner, and Exhibit & Sponsorship

Coordinator. Requires ability to work well with people, and have strong skills in public relations. Must be able to

negotiate, organize, and coordinate meeting details. Assists with budget input. Position must be filled by past

MULTIPLES OF AMERICA Board of Director, past Convention Chairman, Vice Chairman, or Treasurer or a

qualified National Worker with Meeting Planner experience.

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NATIONAL WORKER POSITIONS:

EDUCATION DEPARTMENT:

ADVERTISING/PROMOTION DESIGNER: Assists MULTIPLES OF AMERICA in creating informational and

visually exciting ads to appear in MULTIPLES OF AMERICA’s Notebook, mailings and other publications.

Excellent desktop publishing and design experience required. Writing experience desirable.

COPY EDITOR: Receives and edits material for MULTIPLES OF AMERICA’S Notebook. Assists District

Reporters and Feature Writers with leads as needed. Excellent grammar and spelling skills, good facility with words

and computer proficiency is required.

DISTRICT REPORTER: Writes club highlights column (currently called “Member Club Spotlight”) from

material submitted by member clubs and prepares additional theme articles for MULTIPLES OF AMERICA’s

Notebook. Creative writing experience desired. Good language skills and computer proficiency required.

FEATURE WRITER: Prepares feature articles for MULTIPLES OF AMERICA’s Notebook. Creative writing

experience desired and prior experience on MULTIPLES OF AMERICA’s Notebook staff is helpful. Good language

skills and computer proficiency required.

RESOURCE AND PUBLICATIONS COORDINATOR: Writes column for each issue of MULTIPLES OF AMERICA’s Notebook,spotlighting published materials of interest to multiple birth families and other articles as

assigned. Updates, reviews, and revises designated club resource materials. Maintains club resource library. Good language skills required. Computer proficiency preferred.

CONVENTION PROGRAM BOOK COORDINATOR: Reports to Education Vice President and works with

Meeting Planner and Current Convention Chairman to create the convention program book with input from several

sources. Coordinates ad use. Excellent desktop publishing and design experience required. Appointed as needed.

MEMBERSHIP DEPARTMENT:

MEMBERSHIP COMMITTEE: Encourages organization of new clubs, corresponds with prospective members,

offers assistance to new members and assists member clubs with various needs.

AFFILIATE MEMBER COORDINATOR: Encourages, recruits, and welcomes new individual and professional

affiliate members. Corresponds with affiliate members and provides resources and services as needed. Works with

the Membership Chairman and Membership Vice President in preparing special mailings throughout the year. Writes

occasional column for MULTIPLES OF AMERICA’s Notebook as directed.

BEREAVEMENT SUPPORT COORDINATOR: Corresponds with and offers support to parents who have lost a

child or immediate family member. Preferably should be a parent who has experienced a loss or is experienced in

grief counseling. Writes column for each issue of MULTIPLES OF AMERICA’s Notebook.

HIGHER ORDER MULTIPLES COORDINATOR: Coordinates services to MULTIPLES OF AMERICA parents of higher order multiples and oversees the Multiple Multiples Support Group. Preferably worker should be a

parent of higher order multiples. Writes articles on a regular basis for MULTIPLES OF AMERICA’s Notebook.

MEMBERSHIP STATISTICIAN: Maintains computer files on clubs, affiliate membership, and all club

transactions for the current year. Assists Membership Chairman, Membership Vice Pr esident, and Executive Office

with deposit report and credential information as needed. Provides statistical information as needed.

NATIONAL/STATE LIAISON: Liaison between MULTIPLES OF AMERICA and state organizations.

Corresponds with state organizations and maintains an updated listing of state conventions, officers, and contacts.

Assists in preparation of two mailings, and prepares articles for MULTIPLES OF AMERICA’s Notebook.

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NATIONAL REPRESENTATIVE LIAISON: Liaison between MULTIPLES OF AMERICA and National

Representatives. Corresponds with and provides support for National Representatives. Maintains files of current

information and resources. Prepares articles for MULTIPLES OF AMERICA’s Notebook as needed.

SINGLE PARENT SUPPORT COORDINATOR: Coordinates services to MULTIPLES OF AMERICA single

parents (divorced, widowed, or never married). Preferably worker should be a single parent. Maintains a file of those willing to assist as a pen pal. Writes articles on a regular basis for MULTIPLES OF AMERICA’s Notebook.

SPECIAL NEEDS COORDINATOR: Coordinates support activities and contact with parents who have children

with similar circumstances of physical, emotional or learning disabilities. Maintains a file of those willing to assist

as a pen pal. Writes articles on a regular basis for MULTIPLES OF AMERICA’s Notebook.

SPANISH LIAISON: Coordinates support and resources for parents who speak Spanish only and for clubs with

Spanish-speaking members. Assists Executive Office in answering communication received in Spanish. Assists in

development of materials for Spanish speaking members and finds ways to integrate materials and services to all

departments/areas of MULTIPLES OF AMERICA. Fluency in oral and written Spanish required.

RESEARCH DEPARTMENT:

OUTSIDE RESEARCH COORDINATOR: Responsible for expanding and coordinating outside/professional

research with the organization.

RESEARCH COMMITTEE: Helps to write and coordinate organizational research studies.

RESEARCH INTERPRETER: Interprets technical reports and findings of studies. Provides technical assistance in

setting up forms for surveys, questionnaires, etc. Writes summaries for MULTIPLES OF AMERICA’s Notebook in

layman’s language. Medical or technical knowledge and understanding of statistical analysis preferred. Writing

proficiency required.

RESEARCH SUPPORT COORDINATOR: Answers correspondence from individuals, researchers, or

organizations that have questions or need information of a research nature. Maintains research library and keeps an updated index of resources available. Prepares articles for MULTIPLES OF AMERICA’s Notebook as needed.

PUBLICITY DEPARTMENT:

WEBMASTER: Coordinates, updates, and maintains MULTIPLES OF AMERICA website. Maintains e-commerce

and pop e-mail portions of the website. Acts as liaison with host server to answer/solve technical questions. Worker

must possess own computer, have Internet connections, and applicable software. Technical qualifications required.

ONLINE COMMUNICATION ASSISTANT: Assists with updating and maintaining the MULTIPLES OF

AMERICA website. Assists in answering technical questions as directed by the Webmaster. Worker must possess own computer, have Internet connections, and applicable software. Technical qualifications required.

MARKETING COORDINATOR: Work with the Executive Vice President and the Publicity Coordinator in the

development and implementation of marketing projects for MULTIPLES OF AMERICA to both internal and

external audiences, and with the preparation of materials for the MBA festival. preparation of materials. Must be an

effective communicator, skilled in writing, creative, and energetic. Marketing experience preferred.

PUBLICITY COORDINATOR: Work with the Executive Vice President and Marketing Coordinator on projects

for MULTIPLES OF AMERICA. Responsible for increasing the public’s awareness about MULTIPLES OF

AMERICA through the media, publications, etc. Must have excellent writing skills. Typing or computer proficiency

required. Public relations or marketing experience preferred.

FINANCE:

PRODUCT, PROMOTIONS, and SALES: Assists in development of organizational fundraising through product

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Executive Office: 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067

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sales. Assists Treasurer in ordering products, maintaining inventory and recording all products/sales. Coordinates

MULTIPLES OF AMERICA sales during convention.

CONVENTION/OTHER:

SITE PLANNER: Supervises convention bid process, conducts future convention site inspections, and supervises future convention planning committees. Assists Meeting Planner at annual convention. Good public relations and negotiation skills preferred and some travel is required.

CONVENTION SPONSORSHIP AND EXHIBITS COORDINATOR: Responsible for development of

convention sponsorship and exhibits opportunities. Assists in creating publicity materials for soliciting sponsorships and national exhibitors. Works with Research Vice President to secure research sponsorships. Works with

Convention Committees to secure local sponsorships and exhibitors. Oversees convention Showcase event.

CONVENTION COMMITTEE CHAIRMEN AND TREASURER:

The Convention Committee Directors are comprised of the Convention Chairman, Vice Chairmen and Treasurer. Supervision of the convention subcommittees is divided among the Chairman, Vice Chairmen and Treasurer.

Individual subcommittee assignments to a particular Director will vary from year to year, based on the individual

convention requirements and preferences of the Convention Committee Directors.

NOMINATING CHAIRMAN: Immediate Supervisor and coordinator of duties of the Nominating Committee.

Maintains confidential files, National Worker Volunteer Forms, and evaluations for election and appointment

purposes. Must be available to attend Annual Convention to present the slate of officers to the delegation/membership. Elected by the voting body at convention. Eligibility requirements same as those of

Nominating Committee.

NOMINATING COMMITTEE: Consists of five members elected by the voting body at convention, each member

representing a different district. Duties include sending letters of recruitment to prospective officer candidates and

national workers encouraging them to serve MULTIPLES OF AMERICA. Works under the supervision of the

Nominating Chairman to prepare a slate of officers to be voted on at the annual convention. To be eligible, shall

have attended a previous convention within the last five years, have served on a National Committee, and have a qualified National Worker Volunteer Form on file.

ENDOWMENT CHAIRMAN: Immediate supervisor of the Endowment Committee. Elected by the voting body at Convention and must meet eligibility requirements. Serves for three year term. Experience in managing endowments

or financial experience preferred.

ENDOWMENT COMMITTEE: Two to four members of the committee to be appointed by the Board of Directors

to serve a three year term with the option to be reappointed to one additional term. Assists the Endowment Chairman

in development, maintenance and distribution of Endowment Fund. The committee shall consist of a minimum of five

members and no more than seven members. The current President and Treasurer will be two of the members.

Experience in managing endowments or financial experience preferred.

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Notice to Clubs - the importance of Group Exemption filing…

The Group Exemption filing deadline is December 1st, please complete yearly statements after July 31, 2015

to ensure timely submission in November. Totals for August 1 through July 31 each year are required.

Did you know that approximately 75% of Multiples of America’s member clubs participate?

This is very important to all clubs. Here are the reasons why!

With Multiples of America’s classification, its subordinates receive the following benefits:

The IRS will recognize your club as a subordinate chapter of Multiples of America/NOMOTC withassignment of a Group Exemption Number (GEN).

With this ruling, subordinates may receive gifts and donations that are tax deductible by donors.

A subordinate may apply for state tax exemption, if applicable. Most states will not classify a localchapter for sales tax exemption, unless federal exemption has been granted. Multiples of Americacannot file for state exemption for clubs.

If club mailings are 200 or more pieces, a subordinate may apply for postal nonprofit rates, asubstantial savings from regular bulk postal rates.

Officers and committee chairpersons can deduct out-of-pocket expenses in personal income taxreturns, including mileage in conducting business. Further information for individuals is available in theIRS 1040 Packet, under instructions for Schedule A (contributions).

Multiples of America/NOMOTC will complete the Form 990-N, e-Postcard, on behalf of clubs with grossreceipts less than $50K. Clubs with gross receipts exceeding $50K are required to file Form 990 and willthus meet the reporting requirements related to Form 990 –N. (For the definition of gross receipts,contact the Executive Office.)

Participation in Multiples of America/NOMOTC’s 501(c) (3) filing with the IRS requires that member clubs

submit the appropriate documents annually per the Club Tips for Group Exemption, found here:

http://www.nomotc.org/index.php?option=com_content&task=view&id=420&Itemid=242

The deadline for participation each year is now December 1st. Avoid a late fee of $20.

Documentation must be completed and sent to Multiples of America/NOMOTC via email to

[email protected]. In addition, if your club’s bylaws have been updated since last February, a copy

of the updated bylaws must also be submitted to Multiples of America/NOMOTC. Any questions, please contact

Multiples of America/NOMOTC’s Treasurer at [email protected]

* Read instructions at the following link: Club Tips for Group Exemption* Determine your club's gross receipts to determine which of the following links you should use:Gross Receipts under $50,000 Gross Receipts $50,000 and over * Save a blank copy to your PC before completing

o Complete the Authorization letter and save changes to your PCo Complete the Financial statement and save changes to your PC

* Now, you are ready to email the completed forms to NOMOTC:o Attach a copy of your bylaws if they have changed since February 2010o Forward all documents to: [email protected]

* If submitted after December 1st, mail a check for the $20 late fee to:Multiples of America Attention Group Exemption, 2000 Mallory Lane, Suite 130-600, Franklin, TN 37067

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MULTIPLES OF AMERICA/NOMOTC CODE OF ETHICS

Accountability to Member Clubs from Multiples of America

• Develop and maintain all programs and services to further the mission and purpose of theorganization

• Provide professional and responsive service to members• Share information about Multiples of America on a routine basis• Maintain all appropriate legal, financial and organizational requirements• Responsible stewardship of resources• Provide recommendations/advice for issues based on best practices and experience (limited by

information shared by member clubs)

Accountability of Member Clubs to Multiples of America

• Act in support of the mission and purpose of the organization• Adhere to all bylaws, standing rules, and procedures• Pay dues for all members• Respond to all requests from prospective members• Share mailings and all material received from Multiples of America on a routine basis• Seek input and advice on areas of question/conflict and provide complete factual representation

of the issue for all parties• Accurately report/share Multiples of America statements and responses with members

Personal and Professional Responsibility (for Multiples of America and Member Clubs)

• Respect and honor differing opinions by providing transparent process for decision making andconflict resolution

• Ensure discussion/debate processes respect individuals and demonstrate personal/professionalintegrity ~ Remember, that while the majority rules, the minority has the right to be heard

• Use appropriate communication in all formats (verbal, email, written) by all parties and at alltimes

• Demonstrate honesty and integrity in all actions

Responsible Stewardship (for Multiples of America and Member Clubs)

• Ensure that all spending practices and policies are fair, reasonable and appropriate to fulfill the missionof the organization

• Ensure all financial reports are factually accurate and complete in all material respects

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