Community-Based Cancer Control:  YMCA and LIVESTRONG Partner

Community-Based Cancer Control: YMCA and LIVESTRONG Partner

to Provide Support for Cancer Survivors

Ann-Hilary Heston YMCA of the USA

May 5, 2011

Can We? Should We Do This?

• Four hundred telephone interviews with a random sample of cancer survivors living within the continental United States. These interviews were completed during September and October of 2008.

• Eighty internet-based interviews with cancer survivors from the LAF database. These interviews were completed in October and November of 2008.

Can We? Should We Do This?

YMCA?

“That is a great idea. The YMCA is everywhere.”

LIVESTRONG?

“Lance Armstrong’s personal story is about as good as it gets. This tells me this is not some old worn-out program, but that it is real and it is going to challenge me.”

Can We? Should We Do This?

YMCA and LIVESTRONG?

“The YMCA and Lance Armstrong? That is just cool.”

A Great Idea and Opportunity

“You get to a point that you need help but you do not want to go to a hospital or the doctor’s office any more. You are well and you need to go somewhere that offers hope and health, not sickness. You are ready to move on.”

Expert Panel• To ensure the LIVESTRONG at the YMCA was

evidence-based and met the needs of cancer survivors, an expert panel was established. Experts include:– Wes Alles - Michael Goldstein– Therese Billings - James Gordon– Tim Byers - Casey Klein– Kerry Courneya - Genne’ McDonald– Colleen Doyle - Alexander Ng– Angelina Esparza - Julia Rowland– Carrie Phelps - Carole Schneider– Katie Schmitz - Anna Schwartz– Kerri Winters-Stone

Special Focus

Targeted Programs

Supportive Relationships

Competent Staff

Safe and Supportive

Environments

Strong Partnerships

Select Topic for

Improvement

YMCA Teams

LS 3LS 2

People and Other Supports• Web based communications

• Conference calls

• PDSA posting

• Monthly team reports

SPREAD

Expert Meeting AP1 AP

2AP3

Develop Core Documents:

Charter

PreWork

Executive Strategy Session

Components of the Gulick Process

LS 1

Monthly Chart of WorkDecemberThis month, you will focus on activities to implement your Learning Transfer Plan, deepen your awareness and empathy for cancer survivors, and lay the groundwork for implementation of programs, partnerships, and best practices.

Tasks & Tools Strategy to Accomplish Task: What and Who & Outcome Target Date

Implement Learning Transfer Plan

Learning Session Team trains Back Home Team members, according to Learning Transfer Plan. Outcome: Back Home Team gains knowledge and skills needed to assist in implementation of programs and best practices.

Implementation underway by December 1; Learning Transfer is ongoing.

Interview Cancer SurvivorsAll team members engage in interviews (at least 1 per member) and focus groups (at least 1 per branch), using tools and techniques presented at LS1.Outcome: Team members develop deeper awareness of and empathy for cancer survivors.

Interviews and focus groups completed by January 14.

Share Cancer Survivor Interview Experiences

During team meetings, members share learnings from interviews/focus groups and team identifies themes, using skills taught at LS1. Outcome: Team members begin to identify themes, issues, and opportunities from information collected about cancer survivors in the community.

Team shares information at each team meeting in December and January.

Develop Environmental Assessment TeamTeam members identify representatives to serve on the Environmental Assessment Team. Outcome: Environmental Assessment Team selected, recruited, and ready to begin assessment and improvement process.

Environmental Assessment Team chosen by December 31.

Make a Plan for Partnership DevelopmentPartnership Development Plan Worksheet

Project Manager and CEO meet to formulate plan. Plan shared with team.Outcome: Designated representatives are poised to begin partnership development with targeted community organizations.

Partnership development plan posted on the web community by January 14.

1st Cohort, representing 41 YMCA branches

2nd Cohort, representing 22 YMCA branches

3rd Cohort, representing 18 YMCA branches

4th Cohort, representing 19 YMCA branches

5th Cohort,

6th Cohort,

92% of cancer survivor program participants agree that they have made progress related to their health and well being goals as a result of their participation in YMCA programs for cancer survivors.

86% of cancer survivor program participants agree that they are part of a supportive community at the YMCA (as defined by 4 measures).

92% of program participants agree that their program leader has the understanding and skills needed to lead a physical activity program for cancer survivors.

Most program participants plan to continue their health and well-being journey at the YMCA after the program ends.Most program participants plan to continue their health and well-being journey at the YMCA after the program ends.

20k full time staff230k part time staff500k volunteers

964 Corporate YMCAs2,686 Locations

10,000 Communities

Ys in all 50 States,Puerto Rico,

Virgin Islands

•Go to LIVESTRONG.org to vote to bring LIVESTRONG at the YMCA to your state

•Contact a Local YMCA

•Add YMCAs in Your State that Offer LIVESTRONG at the YMCA to your Resource Directories

•Contact Your YMCA State Alliance

•Contact Haley Gardiner, LIVESTRONG:-512-279-8388 or [email protected]

•Contact Ann-Hilary Heston, YMCA of the USA : -312-419-2847 or [email protected]

What Can You Do?